You don't want to see what she looked like during her meltdown.
Today was a very stressful day as Kayleigh was acting up like never before. This morning, the doctors performed the Lower GI Dye test and soon after, the opthamologist came in to do an eye exam. So needless to say, Kayleigh was put through two stressful situations that caused her to be so irritated that it stressed Aimee and I out to the hilt.
The Lower GI test came back normal with no obstructions, so that is great news. She had some major blowouts today and from looking at it, I am almost positive that was the reason she was having a bad day. They are going to start her feeds again tomorrow, so I am excited to see if we have progress this time around. The eye exam went great and the doctor said her eye are responding wonderfully. This is really great news except we were not able to enjoy it because of how irritated it made Kayleigh.
When we showed up, she was so uncomfortable and she was breathing as fast as can be. She was desatting every now and then, but just seemed nothing like her normal self. After about fifteen minutes, her desats started to get worse and she wasn't recovering from them. She would stick around the 40-50's with her saturation and there were no signs of getting any better. Sometimes is would drop in to the 20's and that is when things started to get really scary. Aimee tried to hold her for a second and all of a sudden, Kayleigh went apnic but didn't catch her breath to start breathing again. It was a good 25 seconds before Kayleigh started breathing again. Our nurse had started to bag her to see if that would help to bring her sats back up and she gave her some medicine to calm her down. Neither were working and we were just flipping out.
After about 45 minutes through this heart wrenching situation, the doctor advised the nurse to put her on the bubble cpap, but that didn't help either. It was on for about 5 minutes before we were told to leave the room as they intubated her and put her on the vent. When we got back in, Kayleigh had worn herself out so bad that she was sleeping and the vent was breathing for her. We were so relieved to see her calm and satting good again, but I hope she is relaxed again when she wakes up. We both just held her hand and watched her sleep peacefully for a while before we went home. We are both so stressed out right now! It was just a very crazy day. It just breaks my heart that there was nothing we could do to calm her down. I am so thankful or all the doctors and nurses who helped out today. They did a great job.
Pray that Kayleigh will have a much better day tomorrow and that she will tolerate her feeds well. Also, please give thanks for such wonderful and knowledgeable doctors and nurses.