9/10/08 - One Step Back...Again

Well, our fears have come true with this belly issue again. Kayleigh's feeds have been stopped once again due to her belly backing up. The x-ray showed her tummy being full of mostly gas, but there was some stool still in there. Kayleigh started to get really irritated throughout the day and started to desat more often. Tonight, she hasn't desatted nearly as much, but they pulled whatever aspirates she had on her tummy and tried to get out as much air as possible. It seemed to work if she is not dessating anymore. They will keep an eye on her tummy and start her feeds back again once it goes down. I am not sure what the plan of action is with the type of food they will use. It seems to me that we may be right after all with the plain breast milk suggestion. I guess we will find out if that is the route they go.

Other than that, Kayleigh grew a bunch today. She weighed in at 1245 grams (2 pounds - 11.9 ounces). The nurse weighed her twice thinking there was an error, so hopefully tomorrow's weight proves it right. Since Kayleigh was having an issue with her belly tonight, they increased her flow back up to 3 liters and they schedule an Upper GI test for tomorrow morning. I know Kayleigh had the eye exam on the same day this past week when she had the Lower GI test done, but I just hope she doesn't flip out like last time and end up on the vent again.

So, today was a step back, but maybe a step closer to finding out what works and what doesn't with her feeding situation. I hope we can figure something out soon. She is doing so well in all other categories, that I would hate for this to hold her back. All the doctors and nurses have been wonderful in keeping us aware of all options and educating us on each topic. The best way to make this NICU experience much easier, is to learn as much as you can. If we don't know something, we stress out about it. So if you are stressed for us because you may not understand something, please let us know and we will do our best to explain. I have learned a lot of people just get stressed out about the wires that are attached to every sector of Kayleigh's body. The wires alone can be a scary sight, but when you get in to the deep waters of the balancing act, then fright is merely an understatement.

Please pray that we can link this last piece of the puzzle, so Kayleigh can keep moving forward. Also I know today, the 11th is not a pleasant day in our history, so please pray for those unfortunate families who lost their loved ones and who are dealing with much more stress than we can fathom. I appreciate everyone so much and I wish you all the best.

God Bless,

The Freemans :)

12 comments:

Trish said...

I will definitely be praying for you and your family. God is so good. His perfect plan is already touching people's lives (including mine) though your baby girl who can't even say a word, yet her story has spoken volumes. Congrats on your little lady, and keep the spirit.

gloryrevealed said...

I was wondering if you could pray for our family tonight. I'm 22 weeks pregnant with our third son and I've been dealing with preterm labor. This week, things are not looking so good and I've been in and out of the hospital. My son is probably now about the size Kayleigh was when she was born. Please pray that our baby would continue to grow in my tummy and that the labor contractions would stop. Thank you!
-Sara

Adam and Aimee Freeman said...

Sara,

We will certainly be praying for you. Keep positive and God will take care of you. Trust in Him through ALL things. Please keep me updated on how things are going. Email me directly at Adam@TeamFreemanProperties.com.

God Bless you and hang in there!

Adam & Aimee

Julie said...

Your daughter is beautiful!

Your family is in our prayers!!!

- The Flood Family, Oregon

ERICA said...

Stay strong Adam and Aimee!! God Bless you ALL!! Kayleigh will overcome this bump in the road! God Bless You Kayleigh!!

I know I haven't commented in awhile but I do check and pray for Kaleigh every night! :-)

Erica
Mommy to 2 boys
1 who was a 31 weeker

Anonymous said...

I check your blog every day in hopes of good news. Your family is so strong and I really am in awe of your faith and great attitude. Kayleigh is so lucky to have such wonderful parents. I can't wait for the day this tummy problem is licked and your blog is about Kaleigh not sleeping through the night or her first tooth. Much love to you all.
- Tina

Anonymous said...

I'm so sorry to hear she is having tummy problems again. Is there any chance she could have a food intolerance? I know nothing about premies, but my kids have all had food issues. My youngest was tried on all kinds of formulas (including Vivonex with added Microlipids-something usually used for IV nutrition in adults) and she never tolerated any of them better than she did my breast milk. I had to eliminate Dairy & Soy in my diet, as well as corn in the begining, and enventually glutten as well, but she did the best on the breast milk. I had to push for the breast milk because the drs thought the formulas would be better for her as she was considered failure to thrive, but in the end, the breast milk was the best option and she has been growing wonderfully since we figured out what foods were offending her. I'm praying that your drs figure out what is going on, and she gets something that works well for her. Hang in there!

Erika said...

My gut feeling is the breast milk will resolve Kayleigh's issues. Its the perfect food for babies. I nursed both my babies and they grew like weeds.And I only say that as some think that Breast fed babies are smaller. I hope this gets resolved as it seems like the only thing holding her back now. Cant wait to read your post the day you bring her home :0)

Anonymous said...

Breastmilk, breastmilk, breastmilk. :)

Nikki Hampton said...

This is so amazing. I don't even know you and I'm setting here bawling after reading your story because I'm so touched. Your daughter is absolutely beautiful and I have all the faith in the world that God will bring her up to be an even more beautiful child of His. I'm so intrigued by your faith and love. You are truely an inspiration to everyone around the world. Thank you so much for showing me how silly it is to get upset about something so small when something so huge is happening to someone else in the world. God bless you and your whole family...although he has blessed you greatly he has more blessings in store.

Carly Nicole Elliotte My Micro Preemie said...

Poor girl! I pray that they get this tummy thing under control real soon.

In Christ,
Rachel

This is to Sara (who commented above)

I don't know you but will pray that you little stays safe inside your tummy and continues to grow. I also pray that your contractions stop and you can continue with a healthy pregnancy!
email me if you like
carlynicoleelliotte@gmail.com

In Christ,
Rachel

Anonymous said...

Aimee and Adam-

I just wanted to drop you a note today and let you know you and your family are in our continued thoughts and prayers. I remember those day by day ups and downs of the NICU and my heart goes out to you.

I wanted to direct you to Gavin's blog that I just updated today....I think it is a great story of hope for you in the situation you are dealing with right now. Check it out at www.thegavinchronicles.blogspot.com.

We will continue our prayers for strength and healing for Kayleigh. Also, that the doctors would find a reason for her food intolerance and pooping issues. We have prayed for poop before....so I hear you on the poop prayers.

Take care of yourselves and if you ever need a shoulder to cry on or just someone to vent to....I am only an email away.

Juanita