Well, our fears have come true with this belly issue again. Kayleigh's feeds have been stopped once again due to her belly backing up. The x-ray showed her tummy being full of mostly gas, but there was some stool still in there. Kayleigh started to get really irritated throughout the day and started to desat more often. Tonight, she hasn't desatted nearly as much, but they pulled whatever aspirates she had on her tummy and tried to get out as much air as possible. It seemed to work if she is not dessating anymore. They will keep an eye on her tummy and start her feeds back again once it goes down. I am not sure what the plan of action is with the type of food they will use. It seems to me that we may be right after all with the plain breast milk suggestion. I guess we will find out if that is the route they go.
Other than that, Kayleigh grew a bunch today. She weighed in at 1245 grams (2 pounds - 11.9 ounces). The nurse weighed her twice thinking there was an error, so hopefully tomorrow's weight proves it right. Since Kayleigh was having an issue with her belly tonight, they increased her flow back up to 3 liters and they schedule an Upper GI test for tomorrow morning. I know Kayleigh had the eye exam on the same day this past week when she had the Lower GI test done, but I just hope she doesn't flip out like last time and end up on the vent again.
So, today was a step back, but maybe a step closer to finding out what works and what doesn't with her feeding situation. I hope we can figure something out soon. She is doing so well in all other categories, that I would hate for this to hold her back. All the doctors and nurses have been wonderful in keeping us aware of all options and educating us on each topic. The best way to make this NICU experience much easier, is to learn as much as you can. If we don't know something, we stress out about it. So if you are stressed for us because you may not understand something, please let us know and we will do our best to explain. I have learned a lot of people just get stressed out about the wires that are attached to every sector of Kayleigh's body. The wires alone can be a scary sight, but when you get in to the deep waters of the balancing act, then fright is merely an understatement.
Please pray that we can link this last piece of the puzzle, so Kayleigh can keep moving forward. Also I know today, the 11th is not a pleasant day in our history, so please pray for those unfortunate families who lost their loved ones and who are dealing with much more stress than we can fathom. I appreciate everyone so much and I wish you all the best.
The Freemans :)