to the Nasal Cannula.
Card from Grandma & Pa Pa "G"
Wow, what progress Kayleigh has since we left last night! She is now off the Nitric Oxide and they removed the vent breathing tube and put her on the nasal cannula. She has not had any major desats since before Aimee's magic touch last night. That is awesome!!! I am just amazed at her turn around and it definitely makes me feel even that much more comfortable with her going in to heart surgery next week. They are still leaning more towards Tuesday, so that gives Kayleigh several more days to recover. Thank goodness they are not going to push to move it earlier.
They decided to start feeding Kayleigh yesterday and even though she has had a few aspirates with every other feeding, they have decided to increase her ml's even more. Since her bowel sounds are good and her belly is soft, it certainly won't hurt anything. Her weight has been fluctuating because of water retention and the lasix (diuretic). Tonight, she weighed in at 1840 grams which is right at 4 pounds. Let's just hope it doesn't drop from that.
Besides the great progress she is having, we really enjoyed our time with her today. It was a little rocky at first because she had not yet come off the vent and she was really showing signs of the vent tube irritating her throat. She was practically gagging the whole time I held her and I had to constantly adjust her positioning so she was more comfortable. When the respiratory nurse came in, removed her tube and put Kayleigh on the nasal cannula, it made all the difference. We were able to spend a few minutes with her before we left to go pick up Allyson and Brandon from school. Kayleigh was so excited and just seemed to act like her normal self again. We were so happy when we left the NICU, we just smiled all the way home. We are still smiling like crazy! ha-ha.
Today was a great day for Kayleigh and I am just so thankful because she really went through some rough times this past week. It was as if Kayleigh was a totally different person when she was sick and to see her awake and active now just relieves so much stress. A ton of bricks have been lifted from our backs today and I just hope she continues to make progress throughout the rest of the week. It is really heartbreaking to know she fought so hard to recover from this past procedure, only to have to do it all over again soon. Although, while some may say it is horrible that she has no idea what is about to happen, others might think this traumatic situation is better left unknown. She is going to have some battle wounds, but we will call them her love scars :)
Thank you all again for your support and please continue to pray for Kayleigh's upcoming surgery.
The Freemans :)