11/10/08 - Last Night in the CVICU!!!

Kayleigh has been a big girl today as she has been on max feeds and eating very well from her bottles. She has come down to 2 liters on her oxygen flow and they will change her in the morning from a high flow cannula to the regular flow cannula. That is the one Kayleigh can come home to. She is also coming off the last of her medications, so that is a huge plus. It was cool to see more and more of those wires, tubes and IV lines disappear today. Each time I had to change her diaper (which was a lot), there were less objects that got in the way.

Since Kayleigh is on full feeds, low flow, and no medication, she is in the same position she was when she was in progressive care (NPCN). So, Aimee and I are working our mojo to see if she can skip going back to the NICU and go straight over to NPCN. Wouldn't that be nice? Our take on it is if she is over there, she is closer to coming home :) We don't want to rush things, but we don't want to stick around if we don't have to either. You don't know how DONE we are with hospital life. We are ready to start taking photos of her in our house, in our car, in her crib, in her stroller, in her EVERYTHING!!! HA :)

I first want to apologize before I tell you all this. A wonderful person made us a video that you can see on YouTube.com called "Meet Kayleigh" and I am so grateful for her doing that. With that being said, Aimee and I decided to make one too because you can't have too many videos of your children, right? And, we wanted to do it slightly different with a storyline of her ups and downs. So I don't want to make that person feel bad that we did one too, as we are VERY appreciative of it. I look forward to completing this one with photos of Kayleigh coming home. Grab a tissue because we ALL cried like babies when we watched it. I hope you like it too: Kayleigh's Story


I am just amazed by all the people out there who have been praying for Kayleigh. I think it is the cutest thing to get emails from people who say their children are praying for Kayleigh before they go to bed. This photo is so touching to see little George and Sidney praying for Kayleigh. (Sidney's just not crossing her hands) ha! Thank you guys so much for your prayers and from the progress that Kayleigh has been making, we ALL know that God heard those prayers.


We are just blown away from the sweet photos that we have gotten from all of Kayleigh's friends. This photo above is a 25 weeker named Story giving Kayleigh a "virtual hug". When this popped up on our computer screen, all you could hear was "Awwwwww" and we showed all the nurses and that is the same response all up and down the CVICU today. This is just too adorable! Thank you so much Story for the virtual hug sweetheart! You are awesome!!!

Let's all pray that Kayleigh will make it through this next week with flying colors, so we can start to celebrate her miraculous homecoming!!! HOW AWESOME THAT IS GOING TO BE!!!!!
God Bless,
The Freemans :)

18 comments:

Nelson Family said...

So awesome!!!
Keep moving forward and then out the door!!!

Jennifer said...

I know that the time we spent in the NICU with Jonah doesn't come close to your time with Kayleigh but I totally understand the being over the hospital feeling. When we were finally discharged we felt like we were free at last!!! I can't believe how quickly she is progressing. I can't view the youtube video for some reason but I will watch it tomorrow at work, in between working of course. Our family will continue to pray that her recovery will remain smooth. Yeah!!!!

Jennifer said...

I'm curious because I kept asking this when we were waiting to go home too but what barriers to discharge does she need to overcome before they will release her? Have they talked about a timeline at all? I am just so excited with all this great news :)

Jennifer said...

:)

Nelson Family said...

Just thinking about our daughters long NICU stay and wished I would have gotten all the names of the nurses and doctors that cared for her. I have read about some taking a journal and asking as many of those that cared for her to write in it. I wish I would have thought of it when I was getting ready to take her home and while she was still there. It may be nice to have. I figured I would remember all thier names, but I only can recall a few... it has been 13 months since Hannah left the NICU.
Just a random thought!
-karen

Erika said...

The video was beautiful!!!! I cant believe hope small she was. So precious.

jessica gautreau nh said...

Back in June the year two thousand-eight,
Kayleigh Anne Freeman was born to fight,
You see she was not supposed to survive,
But she has pulled through this roller coaster ride,
The day she was born she was only a pound,
All on tubes and vents they heard no sound,
Looking in on her in her inside her isolate,
With mommy and daddy touching her head,
With all the pain and fears they have inside,
The creator of the world is by their side,
Kayleigh has had a rough start at her life,
But one day she will become a wife,
And daddy will be there to give her away,
And mommy too will be there that day,
So keep your head up very high,
and remember this is just a ride,
remember you are not alone,
and in no time Kayleigh will be home..

campbell9023 said...

That video was precious and very bittersweet. IT is scary to see how small she once was and yet so great to see how she looks now. I am so happy to see that she is progressing so well, pretty soon she will be walking out the door. I will pray that she will be put into progressive care rather than the NICU. But like you said, only what is best for her. I will check this morning for a new update.

Anxiously awaiting!

Jennifer
jlcampbell2008@yahoo.com

P.S. I ordered a braclet! Can't wait for it!!!!

campbell9023 said...

That video was precious and very bittersweet. IT is scary to see how small she once was and yet so great to see how she looks now. I am so happy to see that she is progressing so well, pretty soon she will be walking out the door. I will pray that she will be put into progressive care rather than the NICU. But like you said, only what is best for her. I will check this morning for a new update.

Anxiously awaiting!

Jennifer
jlcampbell2008@yahoo.com

P.S. I ordered a braclet! Can't wait for it!!!!

CathyVal said...

Kayleigh's video is amazing and a true testimony of the power of PRAYER!! I'm coming out the shadows to say each day I log on and the first thing I do is see how Kayleigh is doing, each time I pray in the name of our Father to Bless her! I am so excited to see her grow stronger and stronger each day. God has big plans for Kayleigh! God bless you Freeman family! Hugs from Florida!

Betsy said...

Go Kayleigh go! So glad to hear the tubes and wires are leaving and you all are on your way to leaving the hospital too!

iheartbowheads.blogspot.com said...

ok precious precious precious girl - I watched all the whole video - I cried, I smiled and I prayed like CRAZY! My 4 year old came in and said in her sweet little chirpy voice, "Mommy, whatcha watching?" I told her I was watching a story of a sweet baby girl that needed us to pray to Jesus for her because she was sick. Zoe asked what her name was and if you had a Dora bandaid big enough for the huge owie on her her chest. Then I asked if she wanted to say a prayer for the baby girl. Here is her prayer,

"Dear Jesus, please help the little baby girl drink a lot of milk so she can grow up big and strong and please help her Momma and Daddy find her a VERY big Dora band aid and if they can't find Dora I think she would like Diego too - ok? Amen."

You guys are in our prayers in Texas!

Holly

Shalyn said...

I am so glad to hear how Wonderful Kayleigh is doing! I am praying that she is home soon with her family so you don't have to visit the hospital everyday, instead you can just stare at her 24/7 in her own room :) Work the Mojo! I Love the video you put together, it's amazing! Our lives are so Blessed to be surrounded by Little Miracles!

Amy said...

What an awesome video! Kayleigh is a ture miracle and an example of just how awesome our mighty God is. I too log on as soon as I get a chance every morning to check on Kayleigh. Keep up the awesome work baby girl. You'll be home before you know it!

In Christs' Love,

Amy S from KS

Jennifer said...

I was finally able to watch the video with tears flowing. This little precious baby is amazing. WOW!!

Kelly Sheree said...

my daughter Micah and I just watched the video...Micah calls Kayleigh..her little baby on Mommy's computer. I cried like a baby...and my husband looked at me like I had lost my mind. When you look at everything all together, it's amazing how many things she has pulled through and how big she has gotten.
u
Kayleigh....keep up all the hard work...you are SO CLOSE!

God Bless you all,
Kayleigh's Kentucky Prayer Warrior
Kelly Sheree

Anonymous said...

Hi,

My name is Matthew and I am almost six months old. I pray for Kayleigh every night with my mom. My mom also let me type this with her help. I love the computer and keyboard even if it takes her a long time to get a message out because I like to press the keys at once. Here is my unedited message to Kayleigh

jdshjkkkkkkkkkkkkkkkkkkkkkkkkkkkk732746372649369846br87gbk tr7bynmbg gik,gBFHJC N
(fEEL BETTER SOON)

smiles
matthew grand blanc, michigan

jlwgator said...

I don't know you, and I am actually a bit embarassed to tell you I just found out about Kayleigh today. I was on the August Babycenter Boards as my baby was due in late Aug. She was born almost a month early and spent a couple of days in NICU, but my story is absolutely not comparable to yours.

I have read all the way up to Nov. 10th in just one day, today. I have cried repeatedly and I am blown away by your strength, Aimee's grace and courage and strength, and Kayleigh's continuous battle to survive. She is the most incredible little preemie in the world. I am going to keep reading your blog. You write beautifully and you have done a great service for all preemies. I cannot say enough good things about your little girl and I wish you all the best as you continue to struggle to help her live a happy, healthy and wonderful life.