11/11/08 - GREAT DAY & GREAT NEWS!!!

IV's coming out...
and all better.

Today has been such a great day!!! Kayleigh was moved back up to the NICU this morning as we thought she would, so Aimee and I had to move out of the hospital and back home. Although it is good to be home again, the only bad part is that it limits my ability to post more than once in a day. So, forgive me for cutting it back to one again. I normally post late at night so everyone will wake up to a new update.

Anyhow, Kayleigh is now back in the NICU an we were actually hoping that she would be good enough to go straight to Progressive Care, but since the neonantologists have not seen Kayleigh in a week, they wanted to keep an eye on her for a day, before they make that decision. As the day progressed, they did decide that she is good enough to go over, so we should be packing our things and moving over the NPCN tomorrow. Woo Hoo!!

Other GREAT NEWS!!! Our biggest concerns besides Kayleigh being strong enough for her to survive the open heart surgery because it is so invasive for such a tiny little girl, was her "reactive" pressures dropping over time. I am so happy to announce that the pressures have DROPPED tremendously from where they were which will not cause the heart to over work and possibly fail due to the stress placed upon it. This will also not cause her Pulmonary Hypertension to be "Fixed" at a higher level, causing Kayleigh to go in to those hypertensive bouts like before. This is amazing news and ALL of our hopes and prayers have been answered!!! THANK YOU GOD!!!!!

Beyond that, the doctor told us today that if Kayleigh's progress continues, then we would be looking at a week or two before she would be able to COME HOME. When Aimee and I heard that, we both about jumped right out of our skin. So, even though the doctor said the possibility of two weeks, we blocked that out and just heard ONE WEEK.

I can't even put in to words how excited I am to hear that this long stressful journey could be over in a week or so, and we could have our sweet Kayleigh home with us for good. No Wires, no alarms, no isolette, no nurses, no doctors, no surgeries, no feeding schedules, no cramped spaces, no "only two people at a time," no more driving back and forth, no more hospital food, no more calling for check ups, no more going to bed worried sick, no more...well...much less stressful days :), no more thinking that our girl may not make it through this hurdle, etc... There is so much to look forward to and the list can go on and on if I want it to.

Let's just hope and pray over this next week that Kayleigh will continue to move in the right direction so she can finally come home with us. I normally ask for prayers for her to grow, or make it through a certain surgery, but this time we are praying for her to get ready to start a new journey and that begins with her coming home. I am so thankful for everyone who has prayed through the tough time and rejoiced in the great times, but we have one last hurdle and that is to convince the doctors she is ready to leave from their care and to come home.

Beyond all the wonderful prayers that people have sent in, Aimee and I want to share one with you that is just unbelievable! This is by far the cutest thing we have ever heard in my life! This is a prayer from a 4 year old named Zoe:

"Dear Jesus, please help the little baby girl drink a lot of milk so she can grow up big and strong and please help her Momma and Daddy find her a VERY big Dora band aid and if they can't find Dora I think she would like Diego too - ok? Amen."


Thank you so much Micah and Caleb for sporting your Kayleigh bracelets. I can't wait to get all the photos in so we can add them to the scrap book that Aimee is going to make. With all the people who bought bracelets, we have been able to purchase some really cool templates for each page of the scrap book. Kayleigh is going to love it!!!

Thank you all for your support and let's make this a wonderful week!!!

God Bless,
The Freemans :)

41 comments:

Rhiannon said...

Praise God that Kayleigh is almost home. I just brought my 30 weeker home last Thursday after 100 days in NICU. I am so happy for you and your whole family. God bless you.

Rhiannon

cincymomof4 said...

Wow! She looks awesome! She looks so happy!!!! Only GOOD and EXCITING days to come!!! Congratulations on the news that she will be coming home SOON!

Karen
Cincinnati

Anonymous said...

YEAH Kayleigh! I was so ecstatic to read your post and share your good news, God is GOOD and looking after your little girl and your family! So happy for you :)

Terresha and more Prayers from Kansas City!!

Anonymous said...

It's amazing how well Kayleigh is doing in just one week after having such a major surgery. I'm so happy she will be able to come home soon! Yay Kayleigh!!!!!!!!!

Emily

caryn said...

What great news!!!
Caryn

Denise said...

God is so good! I am so thankful for that! I have a picture to send you once I get if off my camera...Parker made Kayleigh a sign!

Janelle in AZ said...

Way to go "Super Girl" make mommy and daddy happy and showed them miracles can happen. Take it easy grow and get home Im so happy to hear such wonderful news you look so happy to be in mommys arms. I bet you can wait to be a family together in the warmth of your own home.

Janelle in AZ

Amanda said...

Im so glad to see you guys are strong in your faith. I love seeing people I went to school with, now be sold out for Jesus. I dont live in Charlotte anymore but when I come up to visit we go to Elevation, awesome church, love Furtick :)
I know I have commented on all of your stuff since seeing it but I am so amazed, Im even telling my friends about it. We are all into babies right now because we all want one.
Anyway, praying for you and your family.

Andrea in Ohio said...

Awesome, Awesome news! Just a great thing to read just before heading to bed. :) Keep up the great work Kayleigh! You'll be home in no time!

Still praying :)

Nelson Family said...

That is awesome that they gave you a schedule now all she has to do it break it! She has been so strong and pressed so hard to recover.. I would be shocked if it was more than a week... They told me two with my little hannah, she went home 6 days later. It was awesome! they told me that she would have to go home on o2 and she proved them wrong there to and the last two days in the NICU had no need for o2! she went home with an apnea monitor and caffine for the apnea! IT was so awesome to have her home!
I will pray she continues to amaze us all and goes home when she is ready!
-Karen
Hannah 1.7, 25wk miricle

Hanna's Mommy said...

So very happy for you all! I can't imagine what a long road it has been but it's so awesome to hear that Kayleigh will be coming home soon!

I just wanted to add that your faith and optimism has been so inspiring. Kayleigh is so blessed to have such amazing parents. She will be hard-pressed to ever find a man someday that can come close to competing with her daddy!

Best wishes to you all and thank you for sharing your story.

Kelly Sheree said...

Kayleigh looks WONDERFUL! I'm so glad that she is one step closer to finally being home.

God bless you all!
Kayleigh's Kentucky Prayer Warrior
Kelly Sheree

Bridget said...

I'm not sure how I found your blog, but I love it! Kayleigh is too cute for words...and such a fighter! I love it. You are in my prayers.

Anonymous said...

WOW!!! Just in time to celebrate Thanksgiving with your family. Now that is something to be thankful for! Keep up the good work, Kayleigh! Your Mommy and Daddy need you at home.

AliciaJohnson1983 said...

Yay! She looks sooo much better now. Her color is back, and she's bright eyed! I am so happy for you and Amy and of course Kayleigh. I pray all goes really really well in the next few weeks and you get to take her home...FINALLY! God Bless you and Amy for having such amazing strength through this long journey. I don't know if I could ever handle going through all that you have. God bless Kayleigh!

Jennie said...

YEEEEAAAAA!!!! Your post made me so excited!!! Kayleigh looks PHENOMENAL!!! I don't think she has every looked as healthy and plump as she does in those pictures today. I'm so happy for you!

Amy said...

This is such awesome news!!! I got goose bumps and teared up when I heard that Kayleigh may be home is as little as one week. What an awesome GOD we serve!!!

In Christs' Love,

Amy S from KS

Anonymous said...

Now all you guys have to do is make up for all her suffering. Spoil her with love and kisses!! Good luck to you all! You are in my prayers.

Jennifer said...

She looks so precious and healthy! Next step.......discharge!! We will keep praying! You guys deserve all the happiness in the world.

Adam and Sherry said...

I don't know how I stumbled on your blog but we have a baby in the NICU right now too. He was born at 30 weeks and I was searching one night for others that may be in our same situation and got sucked in by your little sweetheart!! I am so glad that everything is going well. I hope you get your dreams of bringing her home in a week. You are in my thoughts and prayers. She is truly a miracle. The more I research the more I find that these Preemies really are amazing and we all just have to get on the roler coster and hope we survive the ride!!

Anonymous said...

Yay! How awesome to think she will be home in her beautiful nursery soon! How is her weight coming along?

Erin

The Plis family said...

WOW Praise God!
Kayleigh, you look great! How awesome that you are doing so well. Keep up the good work and make sure your Mommy and Daddy can take you home in ONE week! :)
Our family keeps praying!
lots of love from South Carolina!

chdmommyof2 said...

PRAISE THE LORD!!!!! She looks so good!! 1 WEEK?? Thats awesome!! GO KAYLEIGH!!!!! Still praying that this lil precious miracle gets to go home and be with her loving family!!

Anonymous said...

I can't believe how good she looks. You would have no idea that she just had open heart surgery. She's looking bigger too. How much is she weighing now? Go Kayleigh Go!!!

Lisa C.
Hebron, KY

Anonymous said...

WOOHOOO!!!! This is just the best news. Kayleigh looks wonderful, and she so strong that I am in awe of her. Adam and Aimee Thank you so much for sharing you beautiful daughter with us. You all are in my prayers.

Nicole E.
Massachusetts

Laura in Sarasota said...

Wow, the thought of Kayleigh going home gives me chills! Keep on truckin', kiddo, you're amazing.

Amanda from Milwaukee said...

I come to this site about twice a week, sometimes more, and get the updates on Kayleigh. I must tell you, I got chills and teared up when i read that this angelbaby may be able to go home with her mommy and daddy in a few weeks. My daughter was in the NICU for only 2weeks (she wasn't on wires or anything serious like that; she had to be monitored because of a medication I was on and they worried that she was having withdrawals from it but she's fine!). Those 2 weeks of driving back and forth, not being able to wake up with my baby in the middle of the night, just not having her home with us was heartbreaking. So I can only imagine what you 2 have been going through. God Bless you both and of course God Bless little Kayleigh. It's amazing what prayer can do hey? My prayers are with you and your family. I'd love to start seeing new pix on here with Kayleigh in her own little crib, no wires, comfortable in her own home. Good luck and much love.

Anonymous said...

That is GREAT news!! Kayleigh is such a strong little girl!! I was so excited for all of you when I read the post and saw she may be coming home in a week or two!!! I am so relieved as everyday the first thing I do when I get to work is check the blog for updates!! We will keep parying in Iowa for her very speedy recovery that she has had and that it continues in that direction so she can COME HOME VERY SOON!!!!!

Anonymous said...

Yay! What wonderful news!
With love from Southern NH!

Anonymous said...

OH MY GOSH!! What wonderful news!!! I got goosebumps when I read that Kayleigh may be going home in a week or two!! Praying for a week vs two :)

LB said...

Praise God!!!!
We're joining you in praying that Kayleigh comes in very soon...in ONE WEEK...In Jesus name!!!!
Larry Brey

The Baldwin Family said...

How wonderful that she is so close to coming home and is doing so well! We couldn't be happier for you guys! Praise God and continued prayers.

The Baldwins
http://thebaldwinbaby.blogspot.com
Houston, Texas

Anonymous said...

Amazing news! I pray that your little girl keeps up the good work and she's home in just 7 days!!! I fully remember the day I was told I could look forward to bringing my 26 weeker home. No words can describe that and I'm so thrilled that you have finally reached that day. You've all worked so hard to get here. Congrats and keep it up Kayleigh!!

Hope M.
Ottawa, ON Canada

Lindsey Davenport said...

Kayleigh is amazing! I pray that she continues to make such wonderful progress. She truly is a blessing and a miracle and reminds me everyday how precious life is. Congrats on your beautiful angel!

Denise in CA said...

She looks GREAT! She is such a cutie pie. Look at those eyes - wide awake and alert. What a true relief!! Such wonderful news that she will be home soon.

How much does she weigh now?

Continued Prayers to you all!!

Denise in CA

The Woollard Family said...

Yay!!! When you said the dr. said she might be coming home in a week or two I got chill bumps right away. That is so exciting and I know you can't wait!!!! She looks AMAZING in the bottom picture, like she didn't just have surgery or anything!

Anonymous said...

I just wanted to let you guys know how much your blog is helping me right now. I became an aunt to twins, one boy one girl, yesterday and the boy has now been taken to the local children's hospital and placed in the NICU for breathing help. He is doing pretty good, but it is very difficult to see him like this with all the wires and such.Keeping up with Kayleigh shows me that everything will be ok and he will come home very soon.
So again thank you very much. Once again your story has helped another family.

Anonymous said...

What wonderful news!! You all are just amazing.

Anonymous said...

WOW!!! That is such wonderful news!!! And I have to say, she is just absolutely BEEEEEEEAAUUUUUUTIFULLLLL!!!
God Bless you guys!
The Brodricks

Crissie said...

Yup this one got the tears going! Kayleigh looks SOOOOO Pretty and comfortable! I am so glad to here that this little angel is on the road to going home and being in that wonderful room that you guys have worked so hard on! Great Job! Kiddo!

Crystal in Ct

Crissie said...

LOL Sorry Guys! I am glad to HEAR not HERE! I guess I should pay attention when I am typing! LOL

Crystal Again! SHHHH Kayleigh dont tell!