11/11/08 - GREAT DAY & GREAT NEWS!!!

IV's coming out...

and all better.

Today has been such a great day!!! Kayleigh was moved back up to the NICU this morning as we thought she would, so Aimee and I had to move out of the hospital and back home. Although it is good to be home again, the only bad part is that it limits my ability to post more than once in a day. So, forgive me for cutting it back to one again. I normally post late at night so everyone will wake up to a new update.

Anyhow, Kayleigh is now back in the NICU an we were actually hoping that she would be good enough to go straight to Progressive Care, but since the neonantologists have not seen Kayleigh in a week, they wanted to keep an eye on her for a day, before they make that decision. As the day progressed, they did decide that she is good enough to go over, so we should be packing our things and moving over the NPCN tomorrow. Woo Hoo!!

Other GREAT NEWS!!! Our biggest concerns besides Kayleigh being strong enough for her to survive the open heart surgery because it is so invasive for such a tiny little girl, was her "reactive" pressures dropping over time. I am so happy to announce that the pressures have DROPPED tremendously from where they were which will not cause the heart to over work and possibly fail due to the stress placed upon it. This will also not cause her Pulmonary Hypertension to be "Fixed" at a higher level, causing Kayleigh to go in to those hypertensive bouts like before. This is amazing news and ALL of our hopes and prayers have been answered!!! THANK YOU GOD!!!!!

Beyond that, the doctor told us today that if Kayleigh's progress continues, then we would be looking at a week or two before she would be able to COME HOME. When Aimee and I heard that, we both about jumped right out of our skin. So, even though the doctor said the possibility of two weeks, we blocked that out and just heard ONE WEEK.

I can't even put in to words how excited I am to hear that this long stressful journey could be over in a week or so, and we could have our sweet Kayleigh home with us for good. No Wires, no alarms, no isolette, no nurses, no doctors, no surgeries, no feeding schedules, no cramped spaces, no "only two people at a time," no more driving back and forth, no more hospital food, no more calling for check ups, no more going to bed worried sick, no more...well...much less stressful days :), no more thinking that our girl may not make it through this hurdle, etc... There is so much to look forward to and the list can go on and on if I want it to.

Let's just hope and pray over this next week that Kayleigh will continue to move in the right direction so she can finally come home with us. I normally ask for prayers for her to grow, or make it through a certain surgery, but this time we are praying for her to get ready to start a new journey and that begins with her coming home. I am so thankful for everyone who has prayed through the tough time and rejoiced in the great times, but we have one last hurdle and that is to convince the doctors she is ready to leave from their care and to come home.

Beyond all the wonderful prayers that people have sent in, Aimee and I want to share one with you that is just unbelievable! This is by far the cutest thing we have ever heard in my life! This is a prayer from a 4 year old named Zoe:

"Dear Jesus, please help the little baby girl drink a lot of milk so she can grow up big and strong and please help her Momma and Daddy find her a VERY big Dora band aid and if they can't find Dora I think she would like Diego too - ok? Amen."

Thank you so much Micah and Caleb for sporting your Kayleigh bracelets. I can't wait to get all the photos in so we can add them to the scrap book that Aimee is going to make. With all the people who bought bracelets, we have been able to purchase some really cool templates for each page of the scrap book. Kayleigh is going to love it!!!

Thank you all for your support and let's make this a wonderful week!!!

God Bless,

The Freemans :)