Today was the end to a great day and we are pleased to say that her first 24 hours, which are the most critical, went very smooth. Since they closed the chest earlier than expected, they are going to start making Kayleigh work for her progress now. Starting tonight, they are going to slowly wean her off of her sedation medication and allow her to start waking up.
As she starts to come to, they will do a balancing act with her dial settings. They want to try to help her relax while she is coming out of sedation. The scary part is keeping her lung pressures down, which also means keeping Kayleigh calm without much stimulation. That means that Aimee and I have to keep our hands off and not talk to her as much, which is tough but we know we need to do what is best for her. If her lung pressures do rise, since she does not have the VSD (hole in her heart) anymore to level out the pressure, the heart will bare down and work extra extra hard. The hard work that is placed on the heart, if the lung pressures don't come down quick enough, can cause it to weaken and fail at a fast rate. Also, if they can't fix the pressures quick enough, they will have to open her back up :(
So, it is going to be a tough day tomorrow but hopefully Kayleigh will do fine and we can get past this. We are trying to be very positive, but her lung pressures were up all day today because of her heart closing procedure, some of the medications and the fact that she was not as sedated. But, since she doesn't have any other major stimulation going on tomorrow, we hope she will do better with controlling her pressures. Please pray she will do great.
All in all, today was another awesome day and she is showing signs of more improvement. I know this all sounds scary, but she is being put to the test only because she is progressing so well. We are so proud of the progress though that it just blows our mind. Several new staff members that we have met have said that they are amazed with how well she is doing for how little she is. So if they are amazed, then I am amazed. But, we all know who is in control and He can do ANYTHING :)
God Bless and Goodnight :)
The Freemans :)