Kayleigh's progress of coming off her sedation is going very well so far. We were a little afraid this morning to find out that Kayleigh had an episode last night probably 10 minutes after we left. She had an episode with her hypertension, but now that she doesn't have that hole in her heart to control the pressures, her heart started to work three times as hard. They were able to sedate/paralyze Kayleigh to get her to relax so she can put an end to her episode. It worked!!!
After speaking with the doctor today about it, we were quite curious why this was happening and if he was concerned about it. He was NOT concerned because he thought she would be having these bouts continuously and she isn't. The doctor also mentioned that they are going to start feeding her a little through a tube and possible start taking her off some of the tubes. That is AWESOME!!! We thought we would be in the CVICU for a couple weeks and the doctors mentioned that if things continue to progress, we could be back up in the NICU in a few days. WOW!!! That would be awesome progress right there.
Other than that, I need some assistance from ALL of you out there. We met our two neighbors who are also in critical care right now and I would like to ask everyone to say a prayer for them. One baby is named Mattox and he has a ventricle that is not working at all. Mattox's parents have a facebook account, so go to facebook.com and search for Cary Mayes from Greenville, NC and you will see their page. Ask to be a friend and send them your thougths and prayers, please!!! You know how I want to help everyone so please do this for us. Delandis is another baby that we have met and he is having congestive heart failure. Right now he is on a pacemaker, but may be put on the list the receive a transplant if it doesn't work. I do not have a website for him, but please say a prayer. Thank you!
Thank you all for everything and hopefully we can continue to get great news on Kayleigh's progress. I will be sure to update later as we get more news.
Thank you and God Bless,
The Freemans :)