11/7/08 - 2:05pm - Quick Update

Kayleigh is still doing great and has not had any setbacks. As a matter of fact, they have taken her off the epinaphrine (blood pressure medicine), weaned her off her sedation medicine almost completely, increased her feeds to 12 mls every three hours, and they are thinking about extubating her later this afternoon if the chest x-rays look good. They have some chest PT to do which is to help loosen up her lungs to prepare her for extubation. Hopefully it will all go smooth and she will continue to shock us with her unbelievably progression. We are just amazed at how well she is doing and I don't mind it one single bit :) God, You have certainly heard all the prayers out there and we can't thank you enough for the blessings you have given us.

***On a very sad note, one of our friends Rachel and Ryan, who we met along the way, lost their baby girl Hannah (Hannah's Story) this morning. We don't have any update on how or why, but please pray for their family.

Rachel & Ryan unfortunately ALSO lost their preemie, Carly (Carly's Story) not too long ago, when she was 4 months old due to a heart defect. Carly is one of "Our Angel's" here on Kayleigh's site. She was in the same NICU as Kayleigh a few months before we arrived. God has certainly tested this family & they need a lot of support to get through this tough time. Thank you so much.

This is Helaina. She is a special little girl who has been praying for Kayleigh to get better. She has even been praying with her 5 month old sister, which we are so happy to hear that she is setting an awesome example. Helaina is going to be a wonderful big sister. Helaina, Thank you so much for caring about our little girl so much and Sarah, your family is amazing. We thank you so much for your support through all of this and we pray that God will bless your family with much happiness and joy!

God Bless,

The Freemans :)


Anonymous said...

I am so happy to hear about Kayleigh's great progress. I will continue to pray for her full recovery soon!! Keep up the good work Kayleigh!!

Sorry to hear about Hannah and Carly. My prayers go out to those families as well.

Denise in CA

The Woollard Family said...

So glad to hear that Kayleigh is doing great!! Also, it's so wonderful when you receive pictures of people wearing their bracelets for Kayleigh, especially little kids. It's so wonderful. Your friends will be in our thoughts and our prayers. God will help them through this tough time, he just needed his very special angel back with him. She's now with her sister and together they are watching over their mom and dad. God bless!

Ali said...

Praying for the families. Praying for Kayleigh. Praising God for Kayleigh.

Anonymous said...

Oh my....That is so heartbreaking!! Hannah's family are in our prayers. God Bless!

YAY! For Kayleigh!! God Bless You Kayleigh!! Keep up the good work!!

Mommy to 2 boys
1 who was a 31 weeker

Anonymous said...

Yay Kayeleigh you are such an amazing and strong little girl!!!

I am a Cafemom friend of Rachels and I actually found your blog through a prayer request she made for Kayleigh. I just can't believe she is going through this again. Her pregancy was going so well. Please let us know if you hear anything.

God bless

God bless

Anonymous said...

YAY!!! GO KAYLEIGH!!! I am so glad to hear of her progress. Babies are the strongest people you will ever meet!!! Still praying for her!!!

Anonymous said...

I am so glad to hear that your little princess is doing so well. I am still praying for her. I heard about Rachel this am it brakes my heart that she has to go through this agian. I know that she is a strong woman and will make it, God is on her side. Thanks for sharing your lives with us!

In Him,

Dana Potts

Anonymous said...

While we can't understand the loss of these families, we can know that God understands and has a greater purpose. We can also trust it to be right in every way. I hope if these families read this they will find comfort in knowing that they can rejoin their babies one day in heaven if they are believers in Jesus and have a personal relationship with Him.

God has been so good to your family and Kayleigh, and we can't thank Him enough. I'm so happy for you with the progress she continues to make daily. What a burden lifted from your shoulders (and ours too!) It's so difficult to watch your child suffer.(and you can't do a thing)

Adam, you do such a good job with your post, and thank you for being dedicated to it. We all do anxiously await your updates. (and pictures)

You and Aimee continue to trust God to direct your steps.My prayers are with you, your friends and your doctors and nurses, especially those hurting right now.

Joe said...

God bless you and your thriving child, and God hold those who lost theirs. I am so glad to see that Kayleigh is so strong.

Anonymous said...

God bless her. She is so strong through Christ. I made a "button" for Kayleigh that I put on my site..
hopefully people will click on it and be brought to Kayliegh's site. If anyone would like it, email me and I will send you the code.
I will continue my prayers for your little miracle.

Anonymous said...

I was so happy to hear that Kayleigh is progressing right along. Keep going strong Kayleigh and I so enjoy the updates.

I was following Hannah's story since you introduced us to this couple. Oh my gosh, it is just heartbreaking. I am speechless. I was so happy that she was expecting another baby and that Hannah seemed to be growing fine - last post was about gestational diabetes a week or so ago. I wonder what went wrong.
My prayers are with them.

Thanks for letting us all know Adam


Anonymous said...

I am so happy to hear that she is recovering so quickly!! The pictures you posted yesterday she already looks 100% better then the ones taken after surgery!! God is amazing and will continue to help Kayleigh keep recovering quickly!! Will keep prayers coming for Kayleigh!! Prayers go out to Hannah and Carly's families.

caryn said...

I'm so happy to find thing are going so well for Kayleigh. She is a real fighter and showing all of us to never give up. I'm so sad to read about Hannah, her parent have been through so much, we will pray for them.

Grace said...

I've been following your story for a long time now. I've smiled for you, cried for you, and definitely prayed for you. Little Miss Kayleigh is a precious example of God's love. The two of you amaze me more with each post. Thank you for your openness. You are a blessing to many.

I'm heartbroken to hear of baby Hannah. I've been following their lives for awhile now and truly have no idea how a mama would survive such heartache, other than falling face first in front of our Father. Many tears for them this evening.

I continue to pray for all of you.

Sarah Suzy said...

Go Kayleigh! you are more amazing everyday!!!

Lord please hold Ryan and Rachel tight in your arms in the coming days aand week as they are faced with the loss of yet another sweet baby. We don't always know the reasons why such awful, sad things happen, but I pray that they find peace and comfort.

Thank you for posting Helaina's picture, she was ECSTATIC to see herself on Kayleigh's blog. She is a pretty special kid. :o)

keep fighting Kayleigh, we're all still praying.

The Jankowskis
(Sarah, Chris, Helaina and Ava)

Unknown said...

Way to go Kayleigh...keep up the good work and show us your fighting spirit!! So sorry to hear of your friends loss...I will keep them in my prayers. Keri in NH

Anonymous said...

Its heartbreaking to hear about hannah and carly. The lord is with them and their families. I am praying for them..
I am so thankful that Kayleigh is doing so much better that is a blessing upon its self..

Anonymous said...

hello, I just read about your journey for the first time yesterday. Kayleighs story has inspired and touch my whole family. We are so happy that she is making such wonderful progress. She sure is a beautiful little girl. GOD BLESS your family as well as the families who have lost their little angels!

Britt & Family

Anonymous said...

Hey guys. This is Rachel's sister in law. I just wanted to update you a bit. I'm not sure when Rachel will be able to do it. She was at our house Wed. and Thurs here in Fayetteville, and everything was fine. She had a drs appt Wed. morning, and Hannah's heartbeat was great. Thurs night, she stopped feelg Hannah move. She drank coffee and layed down, and still felt nothing, so she went to the hospital in Albemarle. They tried for 2 hours to find her heartbeat, but couldn't, and the OB later came in to do an ultrasound to confirm. Hannah was born Friday morning at 9:05, weighing in at 2lbs 15 ozs. She was beautiful with a head full of black hair. An autopsy was preformed, but we won't get the results back for a while. Rachel's having very seriuos complications from the c-section. She is running a high fever, and bleeded very badly. Her iron was very low, so they started her on iron and antibiotics. The Dr came in today and told her what was going on with her. He said that the placenta was attached to the uterine scar tissue from the first csection. That was why the cord wasn't delivering what it needed to to Hannah. He also was not able to take it all out due to some large blood veins around it. Now, she is looking at possibly having to go through a DNC (is that right?) and also possibly a full hysterectomy. i PRAY that that doesn't happen, because, obviously, that would mean no childen. The OB said that he doesn't recommend any future pregnacies anyway, due to the risk involved for her and the baby. He is planning on sending her to Chapel Hill to see a specialist. We need serious prayer warriors on her behalf. Hannah Kathleen's funeral is set for Thurs. It will be graveside, with immediate family only. She'll be buried with her angel sister. :) Thank you for your concern and your prayers during this extremely difficult time. The good news is, Rachel and Ryan have strong faith, and they are trusting in God for the future. keep in touch. I'll keep you updated as I know more. If you'd like, you can email me at nikkimorton4@gmail.com