It is with great excitement and pleasure to announce that Kayleigh's surgery went better than perfect. There is no ECMO and there is no pacemaker. Her heart started back perfectly and she is doing just fine. Her lung pressures have actually dropped a little already, which is amazing. They did leave her chest open to allow her heart and lungs to work without any extra pressure from the swelling and constriction of her chest cavity.
Her lungs are working great and she is breathing good on the vent still. They were able to control the bleeding very well, so she didn't have an issue like last time with the cath procedure (Probably because the VSD is closed now). Her urinary output is better than expected, but they said it may slow down or stop completely. They have a catheter in there in case it does and some diuretics will help also. She does have an arterial line in her leg, tubes coming out of her chest and abdomen, but she is doing great for the most part.
So all in all, there is a lot of great news here and I hope I explained it well enough for right now. You will have to forgive me because it is so hard to concentrate and remember everything when all your hearing are positive information over and over again. If I missed something, I will be sure to add it later.
This is to show that with prayer, ANYTHING is possible. Not to be a party pooper, but even though this surgery was a complete success, we are not out of the woods yet. This whole week, but more importantly, the next 48 hours are the most critical. Please keep praying and hope for the best with her recovery. I am just so stoked that there are no major issues, so that only means she has less on her plate to recover from.
THANK YOU - THANK YOU - THANK YOU EVERYONE!!!!!
We can not say it enough. With your prayers, we have been able to move mountains :)
We are forever in debt to all of you for caring so much. Aimee and I are going to be able to see her soon, so I will update and educate you all later with what we learn in the CVICU (cardiovascular Intensive Care Unit). I am looking forward to it!
Thank you and God Bless!!!
The VERY Happy Freemans :)
80 comments:
Praise God! That is AWESOME news, here's to continued prayers as Kayleigh makes her recovery! So happy for you guys!
Terresha in KC
Thank You God :)
Thanks to God for her great surgery results. We will continue to pray for her speedy recovery!!!!
Praise the LORD! I am so happy to hear that everything went well. Prayers will continue over the next critical hours.
Praise the LORD! I am so happy to hear that everything went well. Prayers will continue over the next critical hours.
Praise God from whom all blessings flow! Will continue to pray for a speedy recovery and no major setbacks.
God is so good! You will definately all be in my prayers this week as Kayleigh recovers! I'm so glad that the surgery went so well! Praise God!
I'm SO happy for you. That's AWESOME news! I pray her recovery goes as smoothly as the procedure did.
God is Good, and loving. Congratulations and as always we will continue to pray.
PRAISE GOD!! So glad things went better than expected!!! Praying for a speedy recovery!
In Christ,
Rachel
AMEN!!
Praise God for this fabulous news.
Will continue to pray for wonderful news.
Thats wonderful. I knew she would do fine. How long will they leave her chest open? God Bless.
Still Praying for Kayleigh,
Nikki Conway
That is just great news!!! We will countinue to pray for a quick and speedy recovery.
Great news! I have had my entire office and family/friends praying for your little miracle. God Bless!!!!!!!!!!
Christine - NYC
Yeah I am so happy for all of you and couldn't be happier to hear the good news!! Kayliegh is such a little figheter and will hopefully recover in record time so you can get that precious little girl home to her very cute room!! Keep updating us with more great news! Still many prayers from Iowa!!
Thank God! I will continue to pray for a speedy recovery!
PRAISE THE LORD! Nothing is too big for Him to handle...You will have continued prayers coming from the Benedict household till Kayleigh is home sleeping in her own crib! Can't wait to hear continued updates. How long are they thinking before they close her chest? Is that going to be another major surgery, or is that a no big deal thing? Is that the last of her projected procedures?
Yeah! We have been praying for Kayleigh all day and are so excited to hear that surgery went well. We'll continue to pray for her recovery. NC
Nikki,
The chest will remain open for a few days unless the swelling goes down quickly and they find no other reasons to leave it open. Their main concern is putting extra pressure on the heart and to give them easy access incase something goes wrong.
Thanks :)
The Freemans :)
Thank You God!!! AMEN!!
WOOO HOOO!! Sorry I am just happy that everything went so good! Kayleigh you are still in our prayers!! Continue to be a fighter sweetie!! God Bless You!!
Erica
mommy to 2 boys
1 who was a 31 weeker
WAY TO GO!! Kayleigh you are the Little "Super Girl" keep up your strength and get better..
YEAH!!!! What a true miracle we are seeing right before our eyes. Iam so very happy that everything went so well. Lots of Hugs for all 3 of you...make that 5 of you. I just knew she would do wonderfully.
How wonderful! My daughter (born 9/13) was born with 3 heart defects (VSD, Coarctation of the Aorta, and PDA) and is a CVICU (and open heart surgery) graduate! These next few days/weeks will be tough no doubt, but you will get through it. They told us in the beginning that it's 2 steps forward one step back process, and that was absolutely the case. Soon the arterial lines will go ... pacing wires (if she has them), vent, cath, chest tube will be gone - and this will be a distant memory (maybe not distant - but you know!)
Good luck to you all, little Kayleigh is in our prayers!
God truly is a miracle worker!!! Kayleigh and your family will be in our prayers during her recovery.
Thank you Lord! That is AWESOME! Will keep praying of course that the road to a full recovery is a quick and easy one!
Thanks to God for her great surgery results. I am so happy for you. I even have tears of joy.
God Bless you all....
Awesome, awesome update! Many praises to God! Prayers will continue to come your way over this next week and especially during the next 48 hours. I'm so happy that you received such great news. Hoping that her recovery is smooth and speedy! She'll be on her way out the door soon! Yay!
THANK YOU GOD, THANK YOU GOD, THANK YOU GOD!!!! I can not say it enough! Like I said earlier I don't even know you all but I have been a mess all day with worry and have been praying non-stop. I look forward to hearing more good news and will continue to pray, pray, and pray!
Thank you, God for this fabulous news! Praying that the worst is far behind little Kayleigh and for a fast & easy recovery.
You are such a fighter, Kayleigh! Rest easy this week and get all healed up so you an get home to your Mommy and Daddy!
Sarah, not a huge deal. All it should take are some sutures or staples. Not sure what they will use. It should be a few days, but hopefully sooner :)
That is the last of the procedures, but they are keeping an eye on a hernia she has. They might have to fix that, but it isn't another heart surgery.
Thanks :)
Adam Freeman
I have tears in my eyes - praise God. I will continue to keep Kayleigh in my prayers as she recovers.
Kristin0821 from BBC
Thank you Jesus! I am so happy!
YAY!!!! I am so thankful and excited that her surgery went well. We, like y'all, we so very scared for her and for y'all! But, I'm glad that things worked out better than perfect! Y'all have a little fighter, and she's so strong! God bless you and your family! We will continue to pray for your little miracle!
Whew......Thank You God for showing us your magnificient power and love. YOU are the reason for this success and we praise you for allowing Kayleigh's surgery to be such a success. God, this all is in Your Hands, and YOU delivered in the OR today!!!!!!! Praises to YOU, JESUS!!!!!!
Thank the Lord she made it through. You have a tough little girl there and it is obvious she is surrounded by love. We will continue our prayers for her and your family from Madison, WI.
The entire world is pulling for you and little Kayleigh! Continued prayers, faith, hope, and love are coming your way from Oklahoma City!
Remember, there was a reason Kayleigh has been put on this earth. She has already touched the lives of millions of people.
Thank God! I have been checking in all day--not getting any work done :)I am just so darn excited!! I will continue to pray for Kayleighs speedy recovery!! I just love that little girl more than anyone I have never met before ;)
Lisa
What wonderful, wonderful news! Please, when you see Kayleigh, give her a kiss from all of us and tell her we love her! She has quite the fan club already for such a little one :)
Sherri in NC
My best friend has been DEDICATED to praying for your daughter and has encouraged a bunch of us to do so as well! We are praying every day and we are so happy that the surgery went well!
We all our parents about your age to young babies and can't imagine what you all are going through! Just know that some extra prayers are being said for your baby girl!
All glory to God!
I am so happy for ya'll!!! We will continue to pray for Kayleigh and your whole family. God bless your sweet baby! Give her a kiss from Baton Rouge! Love The Nadeaus
GOD is sooo good. My thoughts and prayers continue to be with you. What amazing grace!!!!!!!
This is the BEST news I could get along with my sister announcing to me a few minutes ago that she is expecting her first child which she has desperately wanted for years! What a great day!
Praise BE TO GOD!
Karen,
Cincinnati
Awesome, thanks be to God. Hang in there you guys are doing great. Kayleigh you are such an insiration to so many, Our prayers will continue until Miss Kayleigh heals and goes home.
The Chassards
Wonderful, wonderful news!!!!
Prayers will continue as she recovers.
I was just thinking that in a couple of years when Kayleigh is doing her first March of Dimes walk I would love to sponsor her! Where did this thought come from you ask? I have no idea but it did and I just wanted to mention it!
Yea Kayleigh!!! We are so happy to hear the great news! What wonderful doctors you have. The prayers will continue!
I have been reading your blog before and have never left a comment but I just wanted to say AMEN!! And Praise the Lord! I am so excited and still praying for little Kayleigh bug! (((hugs))) and prayers! ~Chan~
Kayleigh! You go girl! I am so excited that things went well! She is such a tough little girl, and has many great things to do yet! This is just one of many speed bumps along the way of life, but she is showing us how strong she is! Aimee and Adam, you too. It's a rough time for your family, but with the power of prayer, all things are possible! You guys have been so strong, I am in awe of how you guys have done this. Hang in there!
Paula L (NPCN)
THANK YOU GOD! Thank you for keeping your hand on the staff while they performed such a delicate procedure on a very delicate and very loved angel. I can't stop crying. This is just awesome news. I will keep praying of course for her to recover well and for the hernia to be no big deal. I will pray for her forever probably, just to be sure she gets everything she ever wants out of life.
You guys are absolutely amazing. I feel like a weight has been lifted off of me, I can only imagine the universe and more has been lifted off of you. Keep us updated on her recovery!
With many hugs and love,
Jenn
YAY Kayleigh!!!!!!!!
YAY Kayleigh!!!!!!!!
Praise Jesus - he's still very much on the throne!! God Bless you both!!
JRS in SC
what a great update!
Great News, so happy for everyone ! Your strength is amazing ! We will keep the prayers coming ! Kayleigh is such a blessing !
Karen Smith
Calgary, AB
What an amazing update. I know that you and Aimee are somewhat speechless due to the positive outcome of this surgery. More prayers are coming your way.
Kayleigh,
Keep pulling through little angel. God has a purpose for you and it's going to be amazing.
Kayleigh...you go girl!!! That is AWESOME news...We are still going to keep praying for a complete healthy recovery. I even have ALL of our church praying for this little munchkin. I can't wait till Thursday night to share at choir practice the GREAT news. Please give Kayleigh a BIG kiss for us in California.
Love,
The Hallmark's
I am in awe of this little girl. I am so happy for your family and for Kayleigh. She is a miracle and I can't wait to see what she does in life! It is clear god has great purpose for her. I thank god that she is doing well and I will keep praying for you and Kayleigh!
Love,
The Westendorf's
Thank you God! :)That's great news.
PRAISE THE GOOD LORD!!!! keep it up Kaleigh you are doing awesome. We all love you!!!
God Bless
Thank God!!! I am so thrilled for all of you. Keep the faith, Kaleigh has a very strong will and I know she will continue fighting!!
I will continue to pray for all of you.
Happily, Pat
Absolutely Amazing! Thank you Lord!!
~The Funderburg's
Trussville, Alabama
Hey All - Angela & I are certainly praying for you all. We've been there and know the stress and high/low that comes at this time. Andrew and Denise keep us up on what's happening. Thanks for the great blog. Take care of that little one!
Pete & Angela Northern
I'm so happy!!!I knew that she can do it.She is very strong and she is an example that everything is possible,we just have to have Faith.Give her a kiss from my side.God bless you.
Carolina.
Anniston,Al.
"I can do EVERYTHING through Him who gives me strength."
Phillipians 4:13
I haven't been able to post all day, but I have been following by my phone. Praise GOD! I'm so glad that things have went so well today...now let's all get busy praying for the next 48 hours!
I'm busy making little Miss Kayleigh hats for her to wear once she gets a little bigger (I'm sure she has a ton now). I'll be sending a message through Facebook once I get them ready to be sent. (I'm under Kelly Hardin).
Adam and Aimee....stay strong. Lean on the Lord and each other. Give Kayleigh a big hug from the Hardin household. Get some rest one of these days! :)
Praise Him, for He is GOOD!
Kayleigh's Kentucky Prayer Warrior!
Kelly Sheree
SSWWEEEEETTT!!!! That's what Shane, my 5yr old, says when he is soooo excited and cant think of any other words. :) Kayleigh just wants to go home sooo badly that she's zipping through all the tests. Keeping up the prayers and cant wait to hear more.
Susan & Gang
good job little angel!!!!! God made a strong little girl. We are so proud of you!!!
crystal in ct
God is so GOOD. This is my first comment on your blog but I've been following your story ever since Aimee posted on babycenter.com. I have been so moved by God's Grace and the power of prayer and I rarely go a day without checking the blog to see how she is doing. I will continue to pray for her and for both of you as you see her through it. God Bless!
When I came to the site to check on you all Sara Mclachlan's song Ordinary Miracle greeted me. I lost it and cried for all that you have been through and the miracles that GOD has performed on Kayleigh. Kayleigh is a strong girl and a MIRACLE indeed. I will continue to pray for her and your family.
Dear Lord,
Thank You for this beautiful miracle that was performed today. May Kayleigh's miracle continue to change the lives of others around the world. She has touched so many through you. May lives be changed in your honor.
Amen
Thank God! I have been checking in and thinking of you and Aimee all day. This is definitely the bright spot in my day! Prayers still coming strong from PA!
Praise God! I've been thinking about and praying for you guys all day! I'm wearing my Kayleigh bracelet too!
Oh praise the lord! this is awesome news. i couldn't even concentrate in class this morning because i was so preoccupied with praying for and thinking of you guys and Kayleigh. thankfully years ago i mastered the art of looking like im paying attention in class when im actually not. im just lucky that my lecturer didnt ask me any questions...lol. so so glad to hear that the surgery went well. i know shes not out of the woods yet so i will keep sending my thoughs and prayers until she is. much love,
Sarah
Praise the Lord for all thigns good. He is so good and I thank him for all he does. I'm thrilled to hear that Kayleigh pulled through like the champ that she is. You two are very lucky parents. I will continue lifting her up and pray that her body heals quickly and with NO complications. THANK YOU JESUS!!
That is absolutely wonderful news!! Thank you God for hearing our prayers and finding it in your will to get Kayleigh through this surgery. Kathy from Orangeburg, SC
SOOO GLAD TO HEAR ITS GOING WELL!!!
I am praying that she has a speedy recovery! WITH GOD ANYTHING IS POSSIBLE!!!
Praise God! Way to go Kayleigh!
I just heard of your story. Lot's of prayers for your beautiful daughter!
No doubt that Kayleigh is a miracle on earth...thanks be to God for getting her through this, and I have no doubt she will be home enjoying that beautiful nursery in no time!!! Peace to the family, sound sleep tonight knowing your LO is doing well. Leslie Johnson and Family
Wonderful news! I'll continue praying for her, and for you all.
Thank God. I knew she pulled through, since this post is several months old, but I have been near tears waiting for this moment as I read through the story and try to catch up on where little Kayleigh's journey has taken her.
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