Today was a very quiet day for Kayleigh. There was not a whole lot that went on and she slept for most of the day. The only thing they worked on today was lowering her settings, so the high oxygen settings do not do any more damage to the lung tissue than they already have. She is down to the low 40's on the amount of oxygen she is getting, but her other settings (pressure) are still high. If we continue to progress some each day, she will hopefully be off the vent in a week or so.
We have not set a time or date as to when they will be doing the JG tube. The x-rays have shown improvement with her pneumonia day after day, so we are so happy to see that clearing up. She got another IV today to receive a blood transfusion due to low hemoglobin count. They had to put it in her head because all the other veins in her arms were taken and her legs have not been very plentiful with good sights.
Other than that, it was very quiet and we LOVE quiet!!! When Kayleigh has a good day, we all have a good day. If you can see me now. My head is still shaking back and forth in amazement as our God has shown us day in and day out how powerful He is and what a miracle He has blessed us with. Kayleigh is one tough cookie!!!
A lot of you were asking for an address, so Aimee and I planned on getting a PO box until the post office said it would take a couple days and it would cost an arm and a leg, so we just decided to use our home address. Please email if you would like to receive that addrress. Thank you so much for helping us make this Christmas as less stressful as possible to where we can enjoy our family time together and not have to deal with a huge weight on our shoulders. God Bless Every Single One Of You!!!! You all are amazing to us and we couldn't be more blessed.
Thank you SO MUCH!!! Kayleigh is 6 months old tomorrow!!! WOO HOO!!!
God Bless,
The Freemans ;)
62 comments:
Praise God for a peaceful day!! I hope and pray she keeps improving day by day! Happy early 6 Month Birthday Kayleigh Anne!!
Praying for your family and your sweet Kayleigh often. I have a baby girl (Katelyn) who is only about 3 weeks older than Kayleigh (born June 4th) and Kayleigh reminds me every day to be so very thankful for every minute I have with my baby girl. When I read about Kayleigh, I often have to pick up Katelyn and just hug her and kiss her sweet cheeks. Thank you for sharing and reminding all of us as parents to cherish each and every moment and to praise God for all of them! Blessings to you and your family this Christmas and always.
P.S. Happy 6 months Kayleigh!!!
I'm so glad that Kayleigh is doing well today! Since I heard about her on BabyCenter from another mom, I have kept her in my daily prayers and check this blog a few times a day. I am in awe of the miracle that we are seeing right before our eyes. Happy 6 month birthday Kayleigh!!
You story really hits me close to home, as my son was born on July 14, exactly 3 weeks after Kayleigh was born.
We love you Kayleigh!!! Happy 6 Month Birthday and keep fighting. You are such a sweet little princess. I enjoy watching you grow, and I can't wait for your first tooth, your first step, your prom, graduation, wedding day, and first child. You are a true miracle. You make me so thankful everyday for what I have, and for what you have taught me. I'm thankful for getting to love you. Sweet dreams sweety. I have your picture as my wallpaper on my cell phone and everytime I open it I say a prayer for you. Keep growing sweet Kayleigh.
We love you,
Jason, Nikki, Madison, Jerni, and Asher Conway.
Happy half-birthday Kayleigh!! Yay for being 6 months old today!
Krista & Elias (also 6 months today)
we are so happy that she is getting better. we will continue to pray for kayleigh and that her pressures will drop so the surgery can take place.
Happy 6 month birthday Miss Kayleigh! I am very pleased to hear today was a peacful day, may there be many more of them on the road to recovery and we are still praying for you every night
The Powell's
Happy 6th Month Birthday Kayleigh!! You are half way to ONE YEAR OLD!!! YEAH!!!
May there be MANY, MANY more peaceful and sleep-filled days coming your way Kayleigh! Get all of the sleep you can at the hospital, because I know there will many parties when you get home! Plus, your brother and sister are going to want to play with you ALL day long!
Elizabeth
Happy birthday to you,
Happy birthday to you,
Happy birthdsy, sweet Kayleigh,
Happy birhday to you!
And MANY more!!!
<3, Jenni in KY
Happy Birthday Kayleigh!! Thinking and praying for you all of the time.
Happy 6 month b-day to a very cute princess!!! I am so glad things are looking up. Evan had an IV in his noggin at one point...we pretended it was a dreadlock...haha. We continue to pray daily for your family. Stay strong for each other. The Lord reminds us everyday that He is in control...and for us to trust in Him.
Much love and prayers,
Nate, Kim and Evan Smith
www.caringbridge.org/visit/evannsmith
I can not believe how well Kayligh is doing considereing the events of the last week. Prayer is AMAZING!!!! I will continue to pray for improvements for this wonderful baby. By the way happy six months old!
Ashley
Happy 6 months!! We are praying for you sweet little girl and your family as well!!
Happy 6 Month Birthday, Peanut! All of your new friends across the country are praying for many more quiet days for you and your family. You are an amazing little girl!
Still praying in Michigan,
Aimee Gillespie
Happy Half birthday little miss Kayleigh!!!!! I love you my little cyber baby!
With love from Southern NH!
Happy 6 months sweet Kayleigh!! So glad that you had a quiet and peaceful day yesterday. Hugs and prayers are still coming your way! May God continue to bless you all this holiday season!
Happy 1/2 year little sweetheart!
I worked as an RN in the CT-ICU many years, for adults, no pedi experience. I know that eventually a more permanent tube needs to be placed for feeds, however we did use longer tubes that passed through the gastric sphincter into the jejunum to decrease the risk of aspiration...it is not as effective as a tube placed through the skin, but this gets threaded through the nose, so no invasive procedures. Just wondering if she already has a nasojejunal tube already, or this might be a possibility?
Always thinking of our Kayleigh, and hoping you guys are getting some much needed rest!
Leslie, in CT
We have been praying for a Christmas miracle for Kayleigh and your family. What encouraging news for all of you! Kayleigh is beautiful and her eyes grab your heart and make you smile. We'll keep praying. Lyn & Phala Burleson
P.S. Happy 6 months birthday, Kayleigh!
Praise God for his many miracles in Kayleigh's life. Happy 6 Month Birthday :-)
George sends his love :-)
Happy Happy 6 month Birthday Sweet Kayleigh!! God Bless You!!
Erica
Happy 6 month Birthday Little Kayleigh! You are such a strong little peanut! Praying for many more peaceful days for you.
Laurie
Praying for you in SD
A friend emailed me this link and asked me to pray for Kayleigh last week, now I find myself coming the the site everyday to see how the little angel is doing. Anytime I start to read your blog I stop and pray for Kayleigh and her family. I do not know you but can tell that this is a very strong family and that God is not done with Kayleigh! I pray that she continues to get better so that you will have your angel at home! May God continue to bless your family!
Happy 6 months Kayleigh!! We love you!!!
Happy birthday Kayleigh! I pray for you and your family every day. We're all rooting for you, sweetie! God bless!
Gretchen, Reese and Madeline
I am praying for a Christmas miracle for your family. My daughter was born June 27th at 32 weeks gestation and I thank God everyday that she is home!
Happy 6 month Birthday Kayleigh!! and have many more quiet days
Happy 6th month Birthday Kayleigh!! I am so happy to hear that you are doing so well--I know that you are the Christmas miracle for everyone following your story. And Merry Christmas to all of you!!
Happy 6 months Kayleigh!!!!!
I am just amazed at how your story has traveled through bloggy land! I found you a while back thru Angel Annabelle - Now when I visit other blogs I am so greatful to see the Pray for Kayleigh button on sidebars!!!!
Prayers are going all around for the little Miss!!! You all are in my thoughts and prayers each and every day!
Amanda & family
Spartanburg, SC
Praying for sweet Kayleigh and your entire family. I check your blog many times each day and continue to be in awe at the progress Kayleigh is making. She is such a sweet, beautiful princess. Happy 6 month birthday to a very special girl!
Happy 6 month birthday to both of our little preemies! Our little Isaac is 6 months today too! What a miraculous trip you've taken! Enjoy the day and Merry Christmas!
happy 6 month bday Kayleigh!!! I'm praying for you! I found your blog through MckMama's twitter and I just wanted to let you know that you are being prayed for in Phoenix Arizona.
Keep fighting little one...
Marilena
What an awesome God we serve. It is so amazing to see this miracle unfold before our eyes. HAPPY 6 MONTH BIRTHDAY MISS KAYLEIGH. There are many more to come so just keep getting stronger and let God and his Earth workers get those pressures down so you can come home and be right where you belong in the arms of your loving family. Merry Christmas to all and God bless the Freeman family this Christmas season.
I too had a preemie. He was only in the NICU for 46 days but honestly it is a miracle we are both here today. I was very sick and God blessed my family and I so we are able to enjoy the life of my son and I. Your daughter reminds us all everyday how much we really have to be grateful for. I am thinking of you and your family and you will be in my prayers. Your daughter is truly a miracle and reminds us all that miracles do happen. God bless you and your family.
My cousin emailed me this link on Facebook yesterday and asked me to pray for Kayleigh. I cannot get your little angel out of my mind. My church in Germany is praying for Kayleigh and all of you to remain strong. Happy 6th birthday, Kayleigh! God is not done with you, Kayleigh! I look forward to reading about your miraculous steps forward every day! I pray that you continue to get better!
I found out about Kayleigh from the Baby Center - 2008 August Babies board. I just wanted you to know that we are praying for her!! This precious baby is loved by a lot of strangers!! Happy 6 Month Birthday Baby Kayleigh!! Sending you hugs and kisses from Mississippi!!
Randi, Chris, Kids and Baby Rylee
I just came across your blog and am sitting at work crying. Kayleigh's story is so touching and I will say many prayers for her and for your family. Happy 6 months old, Kayleigh! You are truly a miracle! Merry Christmas to you all!
Beth in Maryland.
I heard your story from a mom on babycenter. You have an amazing little girl who is a miracle. Kayleigh is only 20 days younger than my son who was born at 30 wks. You all will be in our hearts this Christmas. She's made it this far she'll make it to the end. There is a light at the end of the tunnel with only good things waiting for her & you. Happy 6 mos Kayleigh!!
Who would have thought such a little girl could touch so many people's lives. Reading your blog, it really makes me stop and think of all the things I take for granted on a daily basis. Kayleigh, you a a true miracle from God, and I pray everyday for you to be healthy enough to go home with your family. You keep resting sweet baby girl, so you can get stronger and grow bigger. We are all cheering for you!!! Merry Christmas Freeman's, we hope you have a wonderful holiday!
Kara & Trace
Rockford, IL.
thank you jesus~~
I first heard of Kayleigh's story on Babycenter's Preemie board. She is touching so many lives - what a beautiful little miracle you have. My little Adelaide (32 weeker)is 3 days younger than Kayleigh, and we are blessed that she is perfectly healthy after a one month NICU stay. I pray for Kayleigh and your family every day. You are all truly inspirational.
I forgot - Adelaide and my whole family wish Kayleigh a very happy 6 month birthday. We pray that she has a very calm, peaceful day.
Here is to another Miracle of the Christmas Season. May the love of God surround you and your family today and always.
DEAR FREEMAN FAMILY,
JUST RECENTLY FOUND YOUR BLOG FROM MCKMAMA. WHAT A MIACLE KAYLEIGH IS. HER STORY HAS TOUCHED US SO MUCH ALSO WE THINK THE REST OF HER FAMILY ROCKS THE OUT POURING OF LOVE FOR YOUR FAMILY HAS RENEWED OUR FAITH IN MAN KIND. WAY TO GO FELLOW BLOGGERS! THINGS ARE TIGHT RIGHT NOW BUT SHOULD LOOK UP NEXT MONTH WE WOULD LIKE TO SEND A DONATION IN MEMORY OF THE LATE RICHARD LESTER FREEMAN WE WISH YOU A VERY MERRY CHRISTMAS GOD BLESS WAY TO GO KAYLEIGH HAPPY 6 MONTHS MIRACLE GIRL WE SEND YOU LOTS OF LOVE AND HUGS
JANET AND JOLEA ♥
DEAR FREEMAN FAMILY,
JUST RECENTLY FOUND YOUR BLOG FROM MCKMAMA. WHAT A MIACLE KAYLEIGH IS. HER STORY HAS TOUCHED US SO MUCH ALSO WE THINK THE REST OF HER FAMILY ROCKS THE OUT POURING OF LOVE FOR YOUR FAMILY HAS RENEWED OUR FAITH IN MAN KIND. WAY TO GO FELLOW BLOGGERS! THINGS ARE TIGHT RIGHT NOW BUT SHOULD LOOK UP NEXT MONTH WE WOULD LIKE TO SEND A DONATION IN MEMORY OF THE LATE RICHARD LESTER FREEMAN WE WISH YOU A VERY MERRY CHRISTMAS GOD BLESS WAY TO GO KAYLEIGH HAPPY 6 MONTHS MIRACLE GIRL WE SEND YOU LOTS OF LOVE AND HUGS
JANET AND JOLEA ♥
Hey Kayleigh,
Happy Birthday little angle. You are a great miricale from GOD and im glade he gave you to all of us. Its great to see that you had a quite day today there will be more to come for mommy and daddy but then maybe not becuase you make as much noise when you get home and feeling better. I hope you get lots from Santa you deserve it. I love you and your a part of my heart and I think of you every minute and every hour. You take care hun and great job to daddy and mommy too.
The Lorec family
6 months!!! Woohoo!!!!
Praying for more peaceful days and nights. Bless you all this eve of the Eve!
Dear Freeman Family,
So happy to hear about Kayleigh's progress. I pray that she will continue to amaze us all with her will to survive. She is a precious little girl and I wish her a happy 6 month birthday! I am praying for you, Adam and Aimee, that you stay physically and mentally healthy through this time. Trust in the Lord for His light to shine on each step you are taking. Praying also that Allyson and Brandon will have a blessed Christmas.
Debbie
Columbia SC
Happy 6 months to Kayleigh!!! Quiet nights are VERY good! So glad she's improving more each day. Praying for more nights like that.
I found this blog a couple of days ago and have spent these few days reading from the beginning.
I will be praying for Kayleigh and you that she will be able to come home soon and grow up to be a beautiful young girl.
I have a little experience with this. My second daughter was born at 34 weeks. She spent 11 days in the special care nursery. It is a very scarey and trying experience. I can't imagine doing it for six months and having to face all the ups and downs you two have faced.
Merry Christmas and God bless.
Love mlpinky
mom to 3 in Canada
Happy 6 Months Kayleigh.
HAPPY 6 MONTH BIRTHDAY KAYLEIGH!! That was the first thing I thought about this morning when I woke up! She has come so far! What a little, yet big, blessing!!!
Give Kayleigh xoxo's from us. We continue to pray for a healthy little one...she is such a good fighter. Have a fabulous Christmas and I hope my little contribution could help...Can't wait until you get the bracelets in. Take care and keep that chin up!! xoxo's to Miss Kayleigh.
The Polleys
I just spent about two hours reading your blog from start to finish.
I want you to know how touched I am by your story. You see, I know about much of what you're going through although on a smaller scale.
My son, Grady, was born perfectly healthy at 39 weeks. At 2 wks old he got bronchiolitis. Then at 7 wks old he stopped breathing and we began a 40+ days journey in our local children's hospital. He's been on the vent, had transfusions, had a PICC line and a central line, aspiration pneumonia, etc, etc, etc.
Your faith and the way you've been able to carry on through all of this is amazing. I remember people telling me that I "inspired" them when Grady was sick but at the time I was just in survival mode as I'm sure you both are too. You both look awesome, I must say, for the stress that you're under.
Anyway, Grady is now over a year old and doing well. I'll keep following your blog and praying for your beautiful daughter and your family.
God bless,
Mandy
So grateful for a nice quiet day! Praise God!
Welcome to the 6 month old club sweet girl! Continuing to pray in OK
M from OK, mom to twin 6 mo. old girls
Adam and Aimee: I hope her six month birthday was a very quiet and uneventful day as well. I want to wish you and Aimee and your family a blessed and peaceful Christmas Eve. I can't wait to read your post from Christmas Day. I know it will be the most special ever. But one year from now will be the best since she will be home with you!
Merry Christmas Freemans!
Lots of prayers,
Karen Andwan
cincymomof4
HAPPY 6th MONTH BIRTHDAY KAYLEIGH !!! EVERY NEW DAY IS ANOTHER MIRACLE, JUST LIKE YOU !!
YOU HAVE SO MANY PEOPLE (BIG AND SMALL) PRAYING FOR YOU. THANK YOU FOR ALLOWING US TO BE PART OF YOUR LIFE(I LIKE THE TERM CYBER BABY) I KNOW MOST OF US WILL NEVER MEET YOU IN PERSON, THO I'D LOVE TO GIVE YOU A REAL HUG, KNOW THAT YOU ARE ALL OURS IN OUR HEARTS. LOVE YOU CYBERBABY!!!!
grammie dy
Happy 6 months Kayleigh. You are an amazing little girl. I hope adding you all to my blog will give you more help and more prayers. You all continue to be in my thoughts and prayers.
Merry Christmas.
Happy six month birthday Kayleigh! You share a birthday with my daughter (she is just a wee bit older, like six years, LOL). I pray that you all have a wonderful Christmas!!
Happy 6 months, Kayleigh! She is truly a blessing. I haven't seen a picture of her with her puppy lately - are you still taking them to show her growth? I never did that with my girls (who were average size) and I wish now that I had. They grow so quickly!
Blessings to the entire Freeman family,
Kristin0821 from BBC
Kayleigh my name is Kim Stowe I have 13 month old little girl her name is Adrianna. I wish you the best I will be praying for you and your family I that you get better soon and that you get to come home soon. I also wanted to wish you and your family a Merry Christmas and A Happy New Year from Kim Stowe and my little girl Adrianna
Happy 6 months old, Kayleigh. Stay strong and we always pray for your health.
Happy 6 month birthday Kayleigh! I found your story from another BBC Mom and am so touched by the courage you show as parents and by the pure strength God has bestowed upon your beautiful little girl. I pray every night for her and hope she continues to improve. God works in wonderful ways and your baby truly inspires me and helps me appreciate my little ones even more. Have a wonderful Christmas and hope 2009 brings your little princess home!
Summer
Mommy to 1 year old Kaitlyn and 4 1/2 year old Ryan in Northern California
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