Oh what a day! Finally we have narrowed down a time for Kayleigh's upcoming surgeries. Monday starting at 12:00, the doctors are going to perform a PEG placement surgery, then a bilateral hernia repair, and then they will do a biopsy of Kayleigh's bowels to test for a motility deficiency. Their thought is Hirschsprungs disease, so we will see if that checks out.
We received an email from someone who has had similar problems with their child's belly blowing up, but were never able to figure out the problem. We plan to speak more in depth with them and get an understanding of what other tests to figure out where the underlying issue is. Like some of you had said, it may not be Hirschsprungs because she has been able to stool on her own without stimulation. So, hopefully your right and that is the case, but at least the biopsy will rule that out and we can move on to other possibilities.
Please keep Kayleigh in your prayers Monday around 12:00 (EST) and pray that she will come through these procedures with flying colors and we can get back on the right track to coming home.
For some reason I feel very positive about all of the procedures that I can feel it in the pit of my stomach that something great is going to happen. I can't really express my feelings beyond descriptive words, unless.....I show you in a couple photos. Hmmmm, let me think.....
Okay...I got it!!!!
Right now, this is how I feel after yesterdays post:
And this is how I am going to be once all the procedures are done and we can get to go home:
Lord Help Me! :)