We are sitting here thinking of the right words to say, but there are never the right words to say when your life has been turned upside down in a blink of an eye.
"I am praying, Lord, that you will speak through me and deliver this message to shine a light on others for them to show you how special Kayleigh is to all of us and how we are not ready to say goodbye."
We need your prayers right now! Something terrible is going on with Kayleigh and no doctor or specialist can lay a finger on what has caused this to happen. Our hearts are breaking right before our eyes and we are in complete shock at the moment. Please help us.
As you all know, post surgery seemed to go as expected. Normally, it gets worse before it gets any better, but Kayleigh was showing great signs of recovery. Although, after a couple days and things progressing normally, sweet Kayleigh is not waking up anymore. She is no longer on the Nitric or any pain medication. She is on very low settings beyond the expected pressure control to help her breath. Her sats are great and her heart rate/blood pressure is right where it should be. However, she is still not waking up like she should be at this point.
Her sweet tiny body lays still, with very slight (unexplainable) movements at times, while her muscles are contracted beyond any measurable understanding. The thought of some kind of neurological problem quickly raised a red flag and an EEG test was conducted only to show that a big section of Kayleigh's brain (cerebral cortex) is not working at all and may never work again. In other words, the doctors stated she has a flat reading, which is another term for being brain dead.
This is so hard to write and so hard to take in right now. The doctors plan to do more testing to see what could have caused this to happen and why she still makes unexplained movements. Was it the excess pain medication they gave her to calm her down? Was it a stroke that she encountered while fighting off the pain the other night? Was there not enough oxygen or blood flow to the brain? Did the Nitric cause this? Barbiturate poisoning can cause flat readings at time, so could that be the case? (She had some phenobarbital this morning) With all these questions running through our heads, we have no idea, but we pray we will get the answers as quick as possible.
This has all happened so sudden and we don't know what is going to happen from here or what to even do. All we can do is pray there was some error, some mistake, something was overlooked or by God's grace, her brain will miraculously start working again. We have all seen miracles happen with Kayleigh many times before and I have learned my lesson by giving up hope and not trusting that the Lord has the final decision. That is not even a question in my mind anymore.
Unfortunately and sadly, no one else is optimistic when it comes to Kayleigh's recovery from this and when the doctors comforting love turns in to the "matter of fact" attitude, we know they have once again lost hope. The doctors have been amazing through this journey and we know they will do everything in their power to help Kayleigh through this. There is no one else in this world we would trust other than them, but it just hurts sometimes to compare Kayleigh to other situations when Kayleigh has created her own case study of uniqueness.
With all the faith in the world, it still hurts to think that this journey may end so drastically and beyond understanding. Kayleigh is our precious gift from God and He has given us this sweet miracle for a reason. Whether she touches someones life to bring them closer to God or closer to their family, we may never know the true reason until we meet our creator face to face. We have to trust God for the things He does, but staying strong and patient for those answers are practically unbearable at times.
We know the doctors are not as optimistic and statistics prove that Kayleigh's chances are very slim right now, but we all know our Lord all too well and His way will be the right way. We don't know what is going to happen in the next day, week or month, but if we could ask for anything from you all, please pray your hearts out and please keep us strong with your support through these difficult times. Please pray that the Lord will fix Kayleigh's brain waves so she can continue to bless all of us with her amazing strength, love and that adorable little smile. Thank you.
"Lord Almighty, You are so amazing and your love is beyond greater than any words we could ever imagine. We are not blaming you one bit or nor are we angry at you for what is going on here because we trust in you and we love you with all of our hearts.
We beg of you not to take our little girl from us. Heal her troubled body and give her the strength to make it through this devastating circumstance so she can come home to our family who anxiously awaits with open arms.
Our faith is so strong and we know you are so powerful to do anything your will desires. If Kayleigh is ready to go to heaven to be with you, we completely understand, but then please give us the strength to live our lives without seeing her precious smile and filling our hearts with happiness every single day. Give us direction to continue to share her precious story to help so many others come to know you Lord, love each other and find hope in their own journeys. We know that we are here to prepare our lives for eternity with you, so we trust that your decision is the right decision.
We are just not ready to say "Goodbye, for now."
Please Lord, Help us!!!