4/25/09 - God's Hand

"I sat and watched as my beautiful wife held Kayleigh in her arms. Through the tears in our eyes, we watched her sleep peacefully on her soft pink boppy pillow. There were no words spoken, but heartbreaking emotions raced through our bodies. Seeing this amazing miracle from God, loved by millions across the world, made us realize how lucky we are to have been blessed with 10 amazing months of love. I laid my head next to hers, smelling her soft fuzzy head, I closed my eyes to pray and fell sound asleep next to her.

For once, I felt as if nothing was wrong and no troubles to stress. We laid comfortably together, enjoying the closeness as a Father and his little girl should feel every single night. I've never gotten the chance to be so close and I may never get that chance again until we meet again in heaven someday. She is my precious sweetheart and it will be so hard to let her go when that day soon comes."


We are not sure if Kayleigh's traumatic and unforeseen circumstance is the cause to her new found issues. She is no longer tense with constricted muscles, but she seems to be breathing heavier and cries out silent cries of agitation. The doctors tell us she feels no pain as this section of the brain controls no emotions, but when she is awake, her uncomfortable condition seems to tell us otherwise. She doesn't hold our fingers anymore and retracts her hands and feet at the slightest touch.

This is so uncomfortable to see and our emotions become at ease when our nurse gives her some sedatives to let her rest. We are all fearful of Kayleigh continuing to act this way as we were told this is how most people with this brain condition will act unless they're asleep. No parent should ever have to see their child like this and I lift my hands in prayer to those who do.

Aimee and I have plans to bring Kayleigh home to her precious room, we so anxiously prepared her for, so she can live out the remainder days of her life. We want Allyson and Brandon to spend some time with their sister, which they were unfortunately not able to do since August of last year due to RSV season at the hospital. We are not sure when that will be due to her lack of feeding abilities, but we only pray the Lord will bless us with our wishes.

Many of you asked if Kayleigh's organs can be donated and this is something we wish we could do, but with the major organs having so many issues, it is not possible. There are options to donate some minor things, but that could only be done before Kayleigh passes and we would rather have her with us at home during her remaining time.

I learned today that God has given us a gift of love and no matter what or when our decisions may be, it will be filled with love. We don't want to regret any decisions we have to make, so we want to be 100% sure we are doing what we feel is right on this inside. No one can tell us what is right or wrong, only God can fill our hearts, making the perfect decision for our daughter when it is purely made out of love. Kayleigh will always be remarkable, whether she is with us here on earth or not. But, we do know that heaven shares no pain and Kayleigh will be made new again.

Someone very special to me told me something today that has touched my heart so deeply that I want to share with all of you. I want you to look closely at the photo above where my hand is holding Kayleigh's. Do you see God's hand holding mine? I do.

I would like to praise God for my parents who walked for us this morning in the March of Dimes walk in Charlotte. We wish we could have been there with you guys, but just know we will walk every year for here on out and for those who can will be more than welcome to join us. Here are some photos of them with Kayleigh the other day and this morning, during their walk in Kayleigh's name. Thank you two and we love you so very much! Also, thanks to all of those out there who also walked in Kayleigh's name. We really appreciate it.







God Bless,

335 comments:

1 – 200 of 335   Newer›   Newest»
KAS said...

I am so sorry things have not improved but am very happy that your family has the opportunity to bring your daughter home to spend the rest of her life with her family, as she ought to. I am still hoping for a miracle but I am at the same time very happy that you seem to have made some kind of peace with what is and what may be. You have a difficult road ahead of you but I have no doubt you are guided in your choices every day, and that it is impossible for the two of you to do ANYTHING that is "wrong" for your daughter.

I am sorry that donating her organs is not an option for your family, but even if she cannot physically touch the lives of others, she has undoubtedly done so mentally and emotionally. No parent could ask anything more for their child, to be remembered in so many ways by so many people. - Another Kayleigh Anne

Anonymous said...

any decision a parent makes with love for their child is right and don't ever feel otherwise.

with love and a sad heart
I am thinking of you all

sarah said...

with heavy heart i am praying for you guys. I hope that god will answer your prayers.

Shelly said...

I'm so sorry to see you go through this anguish. I will be praying for you all during this difficult time of decisions. God bless you all.

Tammy said...

God bless you all. Your family is in my thoughts and prayers tonight.

Anonymous said...

meant to add thank you Kayleigh for making me see things so differently and thank you Adam and Aimee for sharing your miracle with all of us xo

Cindy said...

Keeping you in my prayers. From our lips to His ears.

Ronda said...

I'm so sorry that she is not doing better. I hope you can bring her home and spend her last days together as a family. I'll be praying for you all.

Devon said...

you are so right...no body can tell you what is the "right" decision. praying you will feel god's peace with your decisions and know HIS hands are in this. kayleigh has touched so many lives...she is a remarkable girl.

my heart is aching with you...i know all too well the pain of having to make such hard decisions.

know i am holding you all up in prayer....

Anonymous said...

Still praying hard for your family and little Kayleigh. I really hope your plans to bring her home move forward. That would be such a blessing. Thank you for sharing kayleigh with me, and everyone else. She has touched my life in so many ways

ANSLEY said...

You are so strong, inspiring and beautiful! May God bless and hold you close every day.
You guys continue to be in our thoughts and prayers!!

Jennifer said...

My thoughts and prayers are with you all.

bonnie said...

i just recently learned of Kayleigh and your family's story and was saddend to see the turn she took. i pray that you are able to bring her home soon to where she belongs, at least for a little while.remain strong together.

Anonymous said...

I continue to pray for you, Aimee, and Kayleigh through this most difficult time in your life. I am beyond sad that this has happened to Kayleigh and only hope that you will be able to bring her home to spend time with her family. I am so sorry adam. We are always thinking about you guys
katie
Baltimore, MD

Denise said...

I have no words...none, they all seem so pathetic and lame. I am just so sad, so sad, bawling even. I truly believe God will give you all the knowledge you need to make the right decision. Know that we are praying for you and the family and your sweet miracle. I pray for peace and time with her.

We plan to put a sign on our stroller tomorrow as we walk for Parker, because well, we want to walk for her too!

CFlover said...

I am so sorry.
You all will continue to be in my thoughts and prayers.

Anonymous said...

It is amazing the strength that your amazing miracle has give so many people. Kayleigh will be in my heart too here or in heaven she will be right here. She is a blessing from God as you know. If I were ever blessed with such an amazing set of parents I would fight the same fight 100 times just to be near them. You guys are amazing! and it is no surprise to me that you have such an amazing daughter.

Daniel, Anna, Emma, Kylie, Duncan, and Kellan said...

I can’t even fathom what ya’ll must be feeling right now…I know my heart is breaking and Kayleigh isn’t even mine. I want to go pick up my little ones and hold them close tonight as once again I pray for your beautiful family. Know that there are countless people that have been touched by Kayleigh’s life and know that we’ll never stop lifting your family up in prayer. I’m praying that God will continue to be your strength and give you His peace as only He can :)
We’re praying…

The Rowe Family said...

Your faith is amazing! My heart just breaks for you all tonight. I have no words, my heart just hurts. Emily

mandy1980-ott said...

I am so incredibly sorry for what you guys are going through...I am crying so much for you guys, the beginning of your post Is the sweetest thing I have ever read...She is so beautiful and will live on in my heart forever even though I don't personally know her. I am still praying for a miracle....She is such a strong little girl and beautiful little girl.....thank you so much for thinking about all of us with your updates.....

God bless.....

Phoenix's Mom said...

Please know my thoughts and prayers are with your family. Your little blessing has touched our lives, thank you for sharing her with us.
Angela

Anonymous said...

Your family is in my prayers. Your faith is an amazing testament to the power of the Lord.

Karalyn said...

Keeping your family in my prayers.

Becky said...

There are no eloquent words that enter my mind...although I only recently began following Kayleigh's story, I am wrought with grief for you but yet know that you are taking solace in knowing that her life in Heaven will be whole and joyful beyond measure. I am praying fervently for all of you. May God bless you and give you comfort.

April Swarthout said...

Praying that GOD the AMAZING GOD will place is ever GODLY hands upon you and Amiee. What a wonderful GIFT Kayleigh is to so many people on this earth that it self is an amazing GIFT! Praying for GOD to guide you through this trying time.

April

jag said...

Praying for you. I don't even know exactly what to pray during this difficult time. I just pray and pray...

Patricia said...

Still praying for a Miracle...GOD is good all the time and all the time GOD is good....HE hears our prayer's...HE answer's all our prayer's...just not the way we want them to be answered sometimes...GOD Bless All your sweet family!
Patricia & Wes

Anonymous said...

With a heavy, saddened heart, I wish you peace with all you are going through. You are lucky to have your belief in God to carry you through. Saying a prayer for your baby girl...

Ree said...

I am so so sorry that this is all happening to Kayleigh and your family!! I will continue to keep you all in my thoughts & prayers!!

Hope said...

I have no words, I'm heartbroken. My thoughts and prayers are all yours.

MissingLandan said...

My thoughts & prayers will be with your during this very difficult time. Having your child slip away is the hardest thing in the world. I hope these days you have left with Kayleigh, whether it be days, weeks or months are filled with nothing but love. I'm still holding out hope for a miracle!

-Lacey, Mama to Angel Landan-
http://missinglandan0306.blogspot.com/

Jennifer said...

I pray that God hears your prayers and allows you to spend time with Kaleigh at home with her family.

Misty Rice said...

Hurting tonight for your family, and you as a parents. Oh how hard this must be. I can't bare the thought of it. I just sat rocking my little girl praying for you, only to come to my computer and read this heartbreaking post.

Praying for a peaceful transition taking Kayleigh home.

I agree....any choice made by a parent for their child out of love is ALWAYS the right choice. God is with you and God is still the same God he was 12 days ago before Kayleighs surgery and before this situation took place. I am praying for HIS understanding in all of this.

It hurts.

God Bless.

Beth.. One Blessed Nana said...

I pray that God will wrap you and your precious little girl in His arms and speak to your heart. You are an amazing family and I thank you for sharing your lives with us all.

I pray that Our precious Lord will make His way known to you and that He give the strength you need in this time of uncertainty.

In His Grip,
Beth

jenn said...

sweet kayleigh has been in my prayers and on my heart all day today! i pray the lord will give you and aimee the specific answers that you are seeking and your desires to bring your baby girl home.

i pray that lord gives you all a peace that passes all of your understanding and that he gives you comfort in this most difficult time.

i won't stop praying! your family has touched my life in a remarkable way.

praying in augusta, ga!!

Valerie said...

Feeling sad for you. I know God is with you and Kayleigh. Praying.

Arianna's Mommy said...

God will guide you and there is no way that he will let you make a wrong choice for you and for Kayleigh. He is with you! We are with you!

God bless you and your precious angel.

I do hope you can take advantage of the Bereavment Fotos via www.noilaymedowntosleep.org I saw it last night and I think it would be perfect for your family.

Barclay Kathryn said...

God has great plans for you, hold tight to those, and know (unless He has a miracle in store) Kayleigh will be watching over you and is so proud of her amazing parents and siblings. : )

Jordan Sanders said...

With a heavy heart, teary eyes, and faith in our God for the best- prayers in Tulsa, OK.

Carolyn in NY said...

I am so sorry that Kayleigh is not improving but I think the decision to take her home is the right one. Let her know something other than that hospital. Let her hear the birds sing, feel the sun on her face, let the wind slowly blow her fuzzy hair, let her feel the grass in her toes, lay in her crib in her beautiful room, hear music, hear her family in their home and most of all always feel your love. I am so sorry for all of this and my heart is breaking. I so wanted her to come through this surgery with flying colors and go home. When I read your comments of what happened it took my breath away and I was so so sad. I am still praying for sweet little Kayleigh.

Anonymous said...

Your raw emotion and honesty with all you have experienced has helped renew my Faith in God. I continue to pray for you all. Thank you. Thank you for your blog. Thank you for taking time to update it. Thank you to Kayleigh too.

Kimmy Estright said...

I am so sorry that Kayleigh hasn't gotten better. I am sitting here with my heart breaking for her and your family and I don't even know you guys personally. I have been following your story for a couple of months now and I just knew that one day you would bring your little girl home and she would live a happy and long life, I can not even fathom what you and your family is going through. You all will be in my thoughts and prayers. I am so happy that you will be able to bring your little precious girl home with you to live out the rest of her life. That is where she deserves to be at this time. I will still pray for Kayleigh and your family. She is a precious little girl. I wish I was just able to give you all a hug because sometimes it helps just a little bit.

My prayers our with you from Manassas, VA

Anonymous said...

I hope and pray you will be able to bring Kayleigh home soon. Your family deserves that special time with one another--away from the hospital's madness. I know God is able to do amazing things, and whether or not Kayleigh is healed here on earth, or in heaven, she is evidence of God's miracles. Kayleigh is not only a medical miracle, but a spiritual one too. From the posts I've been reading since I found your blog and learned of your precious daughter, it sounds like she has touched so many lives--and brought so many people closer to Christ. What an awesome thing to be able to do without even speaking! Thank you for sharing your story. I continue to pray for more of God's miracles for your family, as well as peace and strength as you live through this period in your lives.

Hugs,
Kathy Lang in WV

Chloe's Couture said...

I had just posted a comment to your previous post and I was thinking about families that have to deal with such a situation without the Lord. What a praise to have your family united and trusting God. I too, think that it is a blessing to be able to take Kayleigh home.

Come to Me all who are weary and heavy laden, and I will give you rest Matthew 11:28

Praying and crying before the Lord for you, from a NICU in Germany

Amy said...

God bless the Freeman family. This is so hard to read. Kayleigh has fought a LONG, TOUGH battle and it breaks my heart to see things take a turn in this direction. Adam, thank you for keeping us updated even during the rough times. I am on my knees for your sweet Kayleigh and the rest of your family. Take comfort in the fact that Jesus has Kayleigh wrapped in His arms.

In Christ's Love,

Amy S. in KS

Lindsey said...

I am so sorry to hear about your daughter. I pray you can bring her home to spend sometime with her.

Stewart Family said...

Lifting you, Aimee, and Kayleigh up in prayers. She has been such an inspiration and blessing to so many already! God Bless!

Anonymous said...

I have been following your beautiful daughter's story for quite some time now. It breaks my heart to read what your family is going through. You are in my prayers. I hope that you will be able to bring your little angel home, if only for a little while. Your story makes me give my preemie twins a bigger hug and kiss at night, and makes me realize how lucky I truely am for all that I have been given. Thank you for sharing your story with us. I admire your strenght, I don't know if I would be able to. You are a wonderful family, and I wish you all the best.

Katie Anderson said...

I am just praying for your strength. We love you and are praying that you can have some special moment with her at home.

Love Always

Katie Anderson

Cibele said...

My heart aches for you. May God be with you

Carole said...

Please know you are loved and prayed for every day. God be with you all.

Carole
xoxo

Anonymous said...

My heart breaks for you guys. I am praying God's goodness and guidance will be evident to your family during this time. Your little girl has touched my heart. Thank you for sharing the journey God is giving you.
Praying in Texas!!

Anonymous said...

MY HEART IS FILLED WITH SADNESS, I WAS HOPPING FOR BETTER NEWS,I HOPE SHE CAN COME HOME TO BE WITH ALL HER FAMILY,I AM STILL PRAYING GOD WILL TURN THIS BACK AROUND AND HEAL HER SWEET LITTLE BODY...MY HEART IS BREAKING FOR YOUR FAMILY,LET GOD BE WITH YOU BOTH IN THIS VERY DIFFICULT TIME

Shelby said...

I know we can't say anything to make any of this any better for you. I just want your family to be able to cherrish each moment you have left with her. She means so much to everyone. She has touched so many people in her little time here on earth. She was a gift to you from God and i am so thankfull you shared her with all of us. She has changed my life forever and i will always hold a little peice of her in my heart. We all love her and want you to do what you feel is best for her. And again, thank you for sharing your little miracle with me.

Anonymous said...

Your right Kayleigh is loved all over the world and has touched so many lives. Thanks for the update. I am praying for a miracle and a glad that you will be able to take her home..
still praying with lots of love.
kayleigh is so blessed to have such wonderful parents

Smee said...

Hello! I am a friend of Marie Kelley's, and that's how I've come to sweet Kayleigh's site and story.

Praying for Kayleigh and your whole entire family.

God Bless You All,
Becky

Anonymous said...

I am so sorry. I will continue to pray for sweet baby Kayleigh.

Lindsey Barham said...

Freeman's:
After I read the "We Are Lost" post this morning I walked over to my mom's and cried and told her I just couldn't understand why things had to turn out this way for Kayleigh. She said Lindsey this is God's perfect plan for her life and when she gets to Heaven just think of the whole and perfect body she is going to have. Kayleigh I know you will be a beautiful Angel!!! I am so so happy you will get to take her home for her final days. I was thinking about that today. I agree that Brandon and Allyson need to get some time in with her as well as you and Aimee. Baby girl enjoy that pretty room, it is fit for a princess - YOU!!! I am praying hard for you day in and day out. Your faith is so awesome and through you both and Kayleigh my life is forever changed for the better. Thank you for this. I know God will lead you in the right direction. We love you.

Kim Smith said...

Dear Sweet Freemans,
Kayleigh's story has touched so many lives, and I'm sure it will continue forever. Our hearts break at the news that has come over the last several days. Stay strong for each other. You guys are an amazing family. Sometimes God's plan and will are different than what we think it should be, but He has it all under control. May His loving arms wrap around you all and comfort you during these hard times. We are continuing to pray for you daily!
Love,
Nate, Kim and Evan Smith
www.caringbridge.org/visit/evannsmith

Melinda and Ken said...

I'm so so sorry. May God be with you and your family.

Anonymous said...

May you, Aimee, Allison and Brandon find peace with Kayleigh at home.

No words are the right words, just know that my life and my childrens lives will be richer because of Kayleighs life. And mostly because of the way you and Aimee have shared your feelings and faith. Open and honestly.

Prayers and hugs through tears.

Wendy

Nichol said...

I am so sorry. I hope you get to bring her home to spend some one on one time with her and I am praying for a miracle. God bless! Thinking of your whole family.

Jenny said...

So very sorry to hear this news, but praying that you will get to take her home and love her there for a while. We will always cherish our sweet pink bracelets and continue to hold your family in prayer in the years to come. Kayleigh's story has touched our whole family and brought us together in prayer, and that has been an AMAZING thing for us- thank you.

wife, mother and so much more! said...

Your family will continue to be in our prayers--God's will be done!
~~Amy

Myra said...

What a precious post...my heart is breaking for you. Praying that you will know God's wisdom and sweet blessings and tokens at this difficult time.

Michele said...

My heart hurts with the latest news, but I am so proud of you for making the decision to bring Kayleigh home. I am so happy that you, Aimee, and your children can spend time with her without nurses and doctors surrounding you. I am unbelievably sorry that this has happened, but I am so thankful that I have been enraptured with your story and feel like my life has been changed in some way by Kayleigh. Thank you so much for letting us peek into the window of your life. I'm sending all of my love to Kayleigh and hope that God is bringing you some measure of peace during this awful time.

The Carpenters said...

We love you guys.

Tara @ Feels like home said...

I'm so sorry. No parent should ever have to face these choices, and whatever you choose will be the best decision for Kayleigh. I'll continue to pray for you.

Ali said...

Praying. Love and hugs from Columbus, Ohio.

Anonymous said...

you are in my thoughts and prayers

jessie

Anonymous said...

As a person who works for a transplant organization, I commend you for making the choice that will help you and your family through this time, and that is taking your sweet daughter home. Do not let ANYONE try to guilt you for the choice you made. You've shared Kayleigh with enough people, and now it is time for you to be with her at home. My prayers are with you and your family.

Rebekah said...

I am sitting here crying and thinking of how hard this must be for you. Even though you are letting go and letting God decide, I can imagine how awful the uncertainty must be.

You will be in my thoughts. I pray that you have peace and some quality time with your whole family together at home.

Michelle said...

I've been following your blog for a while now-came over from the Riggs' blog..I've prayed for you guys but never commented until now. I don't really have anything to say now either-I just wanted you to know there is yet one more person out here in cyberland who cares and prays for you.
May God grant you the peace you felt today as you laid next to your precious daughter.
Michelle Mann
Alaska

Anonymous said...

I have fallen in love with Kayleigh.

In December I fell to my knees and begged for her to live. She is beautiful and wonderful and has touched me in a way that I can never put into words.

She has helped me to find patience with my children, to enjoy those late night feedings and everything else I once thought was hard.

I pray that Kayleigh gets to come home to her beautiful room, and be held by those who love her. I pray that she feels the love you have for her. You have been so strong.

Laura Groen said...

I have just recently come across your blog and your little girl's story. You have touched my heart in so many ways. We had to let our little girl go home to Jesus on May 16, 2008. Even though our story is different from yours our faith is the same. God will show you the answers and what ever the out come he will be by your side. God already knows what tomorrow holds and the next day. He already planned this for Kayleigh before she was born (Psalm 139). Sometimes I wished we knew what was going to happen to our Lindsay but we didn't and all we did was put our full trust in God and let him handle it all. I have added your blog to ours so that lots more people will be lifting your family before the throne.

In His Grip,
Laura Groen

This is our daughter Lindsay's blog; lindsaykeswick.blogspot.com

Anonymous said...

I am so sorry for the unimaginable decisions you have had to make in recent days. I pray that you would feel God's presence through family and friends during this time. I ran across Kayleigh's blog through another person's blog earlier this week. Although I've never met any of you and probably never will, know that little Kayleigh has touched yet another person's heart. I will continue to pray for all of you in the coming days. Thank you for sharing Kayleigh's amazing journey.

CinderellaMommy said...

Praying for you to feel God's loving arms holding you all as you go through these most difficult times. I'm so glad that you are enjoying such wonderful moments with Kyleigh and pray that you will continue to do so. Peace be with you all.

Melody said...

I will be praying for you guys- and of course Kayleigh- more than ever. She has touched my heart in a way I never imagined, and I am so heartbroken that you guys are going through this.

I will be praying that you are able to bring her home. I had no idea that Allyson & Brandon had not seen her in that long! I am sure this is amazingly hard on them and I will pray for God's comfort to surround them during this heartbreaking, confusing time. ((hugs))

Rebekah said...

Im so sorry. Im just so sorry. I pray that she is not in pain. I pray for your mommy and daddy hearts because I know they are broken.

The Kargs said...

I hope you both know how loved Kayleigh is. I hope you also know how how much YOU four are loved. You have touched lives with Kayleigh. Thank you for that. Please, if you want, stop by my blog to read what I wrote to you and Aimee.

I cry for you tonight, I smile for Kayleigh as she looks to Jesus.

I love how someone said that your hand is God's hand holding yours. What a picture!!!

Like I said, stop by my blog to read what I wrote you. I understand if you don't make it over, but please know you are constantly prayed for by so many people in this world. We love you so much.

Ani Karg
Veiyah's Mom

PS. Thanks for always being the first to answer my twitters, or to twitter for us on V's behalf. I knew you knew how we felt. You have been such great friends.

Anonymous said...

Praying praying praying. I hope that god will answer your prayers. Kayleigh has taught us all so much and will continue to do so on Earth and in Heaven. God Bless.

Melanie said...

Dear Father,
I ask you to bless this precious family. Surround them with your love, compassion and truths. Fill them with understanding and lead them in the path that you would have them take. God, I beg you, show yourself to them through all of this, so that they will never doubt your unfading and enormous amount of love for them and precious Kayleigh. Direct them in these days, they so desperately need you. Amen
I am so sorry. My heart aches for you and I cannot understand why parents have to go through so much pain. God be with you all!

Stephanie said...

Adam and Aimee-I am sitting here with tears in my eyes. I can't imagine how many tears you have shed in the last few days but I feel such pain for you right now you would think I knew you all personally. I am speechless when all I want is to find the words that will make things better for you both. I think of the two of you and Kayleigh constantly throughout the day and my heart is breaking for what she is going through. Life just isn't fair sometimes..I don't understand it. Please know that I love you both and your little girl and if there is anything I can do please let me know!

Erin and family said...

My heart is breaking for you. Your family's faith and strength are inspiring. Kayleigh is an angel. Thank you for helping so many people see how important all of the simple things are in life, as well as how we should always count our blessings. Take care. I pray you and your family will find peace despite the heartbreak you are feeling.

Three Amazing Kids said...

you are in our prayers.

Anonymous said...

My heart just aches for you.

Thank you for giving me the priviledge to get to know you and Kayleigh's and your entire family.

Hold her tight! And give her sweet sweet kisses from me.
And love to your son and daughter too.

Many many thoughts, love and prayers,
Melissa

Allison said...

Just adding my deepest sympathies for your family. Blessed by an angel and even more blessed that she will be held by Our Father.

I lift you up in prayers and I'm sorry you are now having to deal with this period also.

May peace surround her and your family.

Allison

Pennie said...

I am dying inside for what all of you are dealing with at this time.

Still trusting God for a miracle. You are in my constant thoughts and prayers. Kayleigh, you are always in our hearts and we love you!

Love,
Pennie, Michella, and Marissa

Anonymous said...

i just have a question i hope you can answer for me. I am wondering how Kayleigh is able to have a sleep and awake state if her brain is not functioning. How can she be"brain dead" if she is able to do this?

scrappy quilter said...

There are no words to say other than I'm praying for your little angel.

Sarah J. said...

well after staring at my keyboard for awhile I can find no words that would be adequate to express the sadness in my heart for all that you are going through. I'm glad you're going to take her home to be with you, Aimee and the kids for her final days on this Earth. I can't imagine the way your hearts are breaking at the thought of it though. I just keep thinking, "she was supposed to live, why is this happening?" I know that it's Gods plan and that Kayleigh will be made whole and healthy, but it is heartbreaking for those of us left behind.

Lean on the Lord, he will not fail you.

Sarah, Chris, Helaina and Ava J.

Angela Childress said...
This comment has been removed by the author.
Corrie said...

Tears are streaming down my face. My prayers are with you and your family.

Christa @ Quintooples said...

I have no words...only that I am praying.

I am so sorry.

Suzan said...

My heart is truly breaking for your family. As I sit here with tears streaming down my face, I pray that the Lord continues to hold your hands as Kayleigh makes her journey Home. I also pray for a pain free and peaceful journey for Kayleigh. God bless you all!

jensones71 said...

I'm praying for God's peace for y'all, and I'm glad Kayleigh will get to go home and spend her days with you. God bless you.

Jennifer in La

Sandy Jenney said...

I am so sorry for what has happened to your miracle little girl. Being able to even write to update us is more than most could do at this point. Thank you for that. Enjoy every minute you have with your daughter. I'm praying for your daughter and your family.

Heather Marie said...

I too have no words...and I am also praying that God carries your family through this. You will get through this...God is with you always.

"Be strong and courageous...do not be discouraged, for the Lord your God will be with you wherever you go." Joshua 1:9

sarah said...

im so sorryn for you loss! my prayers are with you and your family! god bless!
Sarah,
San Antonio

The Dey Family said...

My heart aches for you.I am praying for your family.

Angela Childress said...

I am so sorry for where you are right now.
Kayleigh is so precious. We will remember her forever, and I will continue to pray for you.

Do not let anyone judge you or criticize you for the decision you have made. God does not judge you or condemn you. God has given you wisdom, and he will give you strength and comfort. Do not let anyone make you think that you did not have enough faith, or make light of your love for Kayleigh.

Reading this evening, I thought of this verse, and I believe it is just for Kayleigh and your family tonight...

Zephaniah 3:16b-17
"Do not fear;
Zion, let not your hands be weak.
The Lord your God in your midst
The Mighty One will save;
He will rejoice over you with gladness,
He will quiet you with His love,
He will rejoice over you with singing."

Isaiah 55:12
"For you shall go out with joy, and be led out iwth peace;"

Isaiah 54:13
All your children shall be taught by the Lord. And great shall be the peace of your children.

Is 39:28-31

Anonymous said...

Please don't give up hope. Kayleigh has proven to you time and time again that she can beat the odds. There is no limit to what God can do. I pray that He has one big miracle left in store for you.

Jenney said...

Thank you for sharing this with all of us. I guess since I started reading this I just kept praying that God would heal Kayleigh and let you take her home. Well, hopefully she will be going home soon and we know that either here on earth or in heaven God will heal Kayleigh. You are in our prayers.

k8wizzo said...

My 19 month old 35-weeker and I walked for him and for Kayleigh today. Your family was on my heart and in my prayers the whole time. Be at peace as you love your little girl and know that you are loved from all over.

Brittany said...

You and your family have been in my thoughts and prayers all day. I pray that God gives you strength. I pray that God will guide you in whatever decisions have to be made in the next few days. I hope that you will be able to bring Kayleigh home. That will be very nice. God is with you always! He loves Kayleigh and your family. God is holding Kayleigh in the palm of his hand. Kayleigh has touched so many people's lives. She is a wonderful gift. Thank you for sharing your story and miracle with me and so many others. I am still praying for a miracle. God has a plan for Kayleigh. Praying for you and your family. God bless you all!

Anonymous said...

My heart is just utterly broken for you. My tears are for Adam and Aimee, who are just heartbroken at seeing their daughter go through this; for Allyson and Brandon, whom I am sure are just as heartbroken and confused. But we should be happy that when HE wishes, Kayleigh will be in HIS hands, if that is HIS plan. She will feel no pain and will be playing with all of the other angels above.

I am just so incredibly sad. I can't say anything else. Thank you for sharing her journey with us. I pray that you all, as a family will be able to make memories together, at home, like you have always wished for as parents.

Thinking and praying for you guys always!

All my love,

Elizabeth

Boston, MA

Lisa said...

We never know what God has in store for us, but whatever lies ahead of you... we pray that you find peace and comfort knowing that your little sweetheart is touched with God's love and hands.

You are in our thoughts and prayers and we pray that you will be able to take Kayleigh home and let her enjoy her nursery and spend time with the family before God takes her home.

Sending up lots of prayers here in Ohio.

Blessings,
Lisa

Mae said...

Lord, you are the master healer, You alone hold Kayleigh's life in Your palms. You know the number of her days and when she will be dancing in heaven. I pray that You will comfort Aimee and Adam and let them feel Your loving arms surrounding them while they, in turn, put their arms around Kayleigh. Father, I ask that you will bring peace to the entire Freeman family and help them walk this road with the peace that passes all understanding. Amen.

The Evans Family said...

I've followed Kayleigh's story for many months now. I am so sorry that Kayleigh is not getting better. I pray that you will be able to finally take her home to the room that has been waiting for her. You have been blessed to parent her and she will leave this life having known the purest form of love. My prayers are with you all.

The Evans Family said...

I've followed Kayleigh's story for many months now. I am so sorry that Kayleigh is not getting better. I pray that you will be able to finally take her home to the room that has been waiting for her. You have been blessed to parent her and she will leave this life having known the purest form of love. My prayers are with you all.

Rebekah Kultgen said...

I will continue to keep your family in prayer and that God will let you know in some way that whatever your decision is, it is the right one.
Dear our Heavenly Father:
I pray that you will be with Aimee, Adam, Kayleigh and the 2 kids at home and give them the strength they need during this very difficult time, please surround them with angels and with your love and comfort. I pray this in Your Name, Amen

Anthony's Mommy said...

I am still so sad about these turn of events. But I am happy you will take Kayleigh home to her beautiful room and to be surrounded by the family that loves her so much. I'm glad you will be able to have quiet time with her. No NICU walls, no NICU smell. Just your family in your loving home. I hope you will take lots of pictures and video. I cherish the 2 pictures I have of my daughter.

Kim

Just'N Angel said...

Praying for you all. Thank you for sharing your heart.

Anonymous said...

I am so very sorry that this is happening. I am praying that Kayleigh will come around, but if she doesn't I hope that the doctors have learned things from her that will help them in helping another baby when the need arises.

I also pray that you can take her home and spend some time with her outside of the hospital walls.

Just know that the world is a better place because of people like you.

Heather said...

I know that no words can even begin to touch the pain you must be going through, but please know how terribly sorry I am that this is happening, oh my heart is so heavy and broken for you :( I am praying my heart out for your sweet Kayleigh to be healed and will be in prayer that you will be able to take her home to spend time as a family. Words can't express the sorrow I feel. You are so blessed to have such an amazing little girl and she is so blessed to have such amazing parents as you. Our family will be walking for Kayleigh in the March for Babies tomorrow and we will continue to keep you all in our prayers.
Hugs and prayers,
Heather~ On the Homefront

Kelly said...

Thinking of you and your family. I hope you are able to bring Kayleigh home soon. Enjoy those precious moments with this beautiful girl.

MissJeovette said...

There are really no right words to say at this moment. We've been following your blog since the very beginning and I feel as if there's a heaviness in my heart at this point. Adam and Aimee my family and I are praying for you. You keep reminding us and are a living example of what kind of faith we should have in our Lord.


Sweet Kayleigh, you have touched our lives in many way baby girl!!! IM PRAYING FOR A MIRACLE but we will leave this up to OUR LORD. Trust me the lives you have touched is unexplainable. You have given us all a new meaning of life and we thank you sweetheart!!!


xoxox,

The Abreu-Banegas Family
(Brooklyn, NY)

Amy said...

She is a beauiful baby girl, I am so sorry for all you` are going through, you are in our thoughts and prayers for comfort for your family and kayleigh.

Anonymous said...

I have followed Kayleigh's site for a long time. Every nite I go on site to see how she is doing. I was out of town for a week and got home today and was in tears as I read what has happened over the week. My heart goes out to you and your family. I feel as close to all of you as I do my own grandchildren. Through your site you have brought me closer to God and I want to thank you for that. I will keep you in my thougts and prayers.

Jennifer said...

No words can express my heartfelt sadness for you all. I continue to pray for God's will to be done in Kayleigh' s life, whether here or her forever home. I pray that you will continue to feel HIS arm's wrapped around your entire family during this time.

God Bless,

harmonysong said...

My heart is so broken for you. May Jesus be your ever present help and comfort. No matter what He has planned for your little girl, it will be great-in life or death. I pray you will be able to bring her home so she can see her room you prepared for her in love.

Love and prayers to you, Freemans!
~Liz

Anonymous said...

I do not know you you personally but I have followed your journey. I have to say you are an inspiration to all parent's out there. Your undying faith is incredible. When people would turn their backs to God and have feelings of anger you show more faith. My heart and prayers go out to you as well as many prayers each day. I just want to say thank you for sharing your story. You have shown many of us how blessed we are to have children, but also you have shown us how faith and love in God can get you through anything. Again..many thoughts and prayers for you and your family..just know that Kayleigh has incredible parents and whatever her path may be in life she was loved by so many who did not even know her.

Adam and Sherry said...

I really don't have enough words to express how deeply your sweet family has touched my life. You are amazing!! I am so sorry you are having to go through all this and it has brought me to tears numerous times a day just thinking of you and how hard this must be. I am so glad that you may be able to take Kayleigh home and be a whole family. That is what this life is all about. I want to thank you for helping me to realize I need to hug my kids a little more and love them a little deeper. You are so blessed to have such a miracle touch so many people. Sweet Kayleigh has touched more people in her short lifetime than many of us could ever even dream. She is truly a miracle.

Anonymous said...

Amie and Adam:

I always followed your blog as Kayleigh was my inspiration throughout my pregnancy and thereafter too.

I am follower of Lord Ganesha and I am a hindu. Our beleifs may be different but your child holds a special place in my life. It is disheartening to see the little baby who has the heart and fighting spirit of a tigress suffer.

I have always prayed for her but didnt want to leave a comment thinking that we didnt share the same belief. But then God is after all same and comes in different forms.

I am praying for kayleigh and you. Hope your wishes come true.

your well wisher
-Samata Gandhi

Jenny said...

I am so sorry you are having to go thru this and we will be praying for your family.

Amy E. said...

I have just recently in the past 2 weeks began reading your blog. I so wish that you and your family were not having to go through this but I do believe in a sovereign God. I am praying for peace for all of you and strength. I am thankful for our Lord and Saviour who is there with you now in this moment and every moment to come.
Prayers for you and your family

carley said...

I have kept up with Kayleigh's story since Aimee posted on Babycenter ultrasound board. My son was born a day after Kayleigh and had many health problems. I pray for Kayleigh daily. You and Aimee are amazing people and have touched so many w/ your faith. We will never understand God's work but I believe one day when we are in heaven it will come together like the end of a great novel. You have done right by her from the moment she was growing in Aimee's tummy. You have never given up on her. God has been holding her this entire time. Look at what she has done to people all over the world...she has made them believe in Him. She speaks His word without ever uttering a sound. God Bless you all!!!!

Anonymous said...

i'm so sad to hear this i have 3 children at home and can't imagine what you are going through but God has a plan for us and now here on this earth we cannot fathum what he has planneed for us and we cannot change his plan we just want our children here with us no matter what, Kayleigh is so precious and beautiful God Bless You and your family

Anonymous said...

My heart is breaking for you all. I am glad you are going to have the chance to bring her home...I think that is a prefect plan (not that you asked). As I was thinking and praying for you all earlier, that was my biggest thought...I would want to be home with her...if she were mine. Know you will remain in our prayers as you endure what no parent should have to...and know too, that Kayleigh has affected SO many lives, even without organ donation!
God bless you and give you peace as you make these decisions...don't let anyone make you feel bad. You are right...any parent doing this in love will make the best decisions for their child. Regardless.
Love- Laura from FL

NewfieMoma said...

I am sitting here, my heart filled with complete sadness... and I can not imagine what you are going through... I am just so so so sad, I am continuing to pray for you all... and that you may get to bring Kayleigh home, to be with her family.
Sending Love Hope Thoughts and Prayers to you all.
Love, Rochelle, Jeff, Chelsea and Melissa

Lynnette Kraft said...

I've never left a comment - in fact I just found your blog recently, but I want you to know that my heart is aching for you. I've had 2 babies die, and my 6 year old daugther. Death is hard and I'm so sorry that it appears you are heading there. God's love and peace will carry you and in time you'll be able to see more clearly, but for now, I just pray that you will rest as your Savior carries you through these most difficlut days.

Praying for you and Kayleigh - for a miracle - and trusting God to work his perfect will in your lives.

Love,
Lynnette
Dancing Barefoot on Weathered Ground

cathy said...

I have followed Kayleigh since Aimee first posted the bad news about her pregnancy on BBC last year. Kayleigh has without a doubt touched my life and my entire family. I read to my husband your blogs and share your stories. I pray for Kayleigh and for your entire family. There are just not words to describe. My heart aches for you.
You are the strongest family I've ever seen and your faith is so touching. Kayleigh sure is one little fighter.
I'm so glad that you will be able to bring her home. You will stay in my prayers.

Following Him said...

My thoughts and prayers are deeply going out to you all during this unforeseen time!
~Elyse~

Karen said...

I am so heartbroken to that Kayleigh has not improved. I am still praying..praying for a miracle and that God will decide not to take her right now, praying that if he chooses to, that he allows your family time at home with her. I hope you or someone close to you were able to contact a photographer if you chose. We will be walking in the March for Babies tomorrow and I will certainly be thinking & praying of you all.
God Bless,
Karen

Nathalie said...

I am really sorry you have to go through all this when you were so close to bring her home. But God is mighty and we shouldn't give up hope before it is over. I will keep praying for you all.

Tami S said...

You have been through so much with your sweet, precious little girl. Enjoy and hold tight to these wonderful and special moments of holding her. And please know so many out here are thinking of your family and lifting you and Kayleigh up in prayer. Our hearts are breaking for you, but at the same time we look forward to Kayleigh being in the presence of her loving Lord.

Anonymous said...

Your faith in god astounds me. I pray for your strength and guidance. And a miracle. Your relationship with each other, with your children, with Kayleigh, with god, are beautiful. You inspire me to have a better relationship with god...

Susan said...

So Very Sorry. So Very Sad.

Yet, So Very Happy, that soon you will take Kayleigh home to spend some time as a family. Also, praying that you will be at peace with decisions you have to make. Whatever you decide, you will be doing out of love for Kayleigh.

Still pleading for God to intercede and save Kayleigh. I wish so badly this all wasn't happening.

Much love and prayers,
Susan in Indiana

Abby Sokul Turner said...

I am so sorry that you have been left to make this decision. My heart is heavy for you and your family. Praying, praying, praying for you!

Kerrie said...

I will never give up hoping and praying for a miracle. God has a plan, he does for us all. Kayleigh has touched so many lives in the past 10 months!! I'm so happy that you will be able to take her home and let her see the room you worked so hard to prepare for her!! And I'm equally happy that Allyson and Brandon will be able to spend time with their precious baby sister!!

Adam and Aimee, you are two of the most amazing parents I have ever met! Anyone who has read even one of your entries knows that every decision you have and will make in your childrens' lives is because of nothing less than absolute love!! Thank you for being such an inspiration to us all and sharing Kayleigh's story with us!!

Aidan and I are sending love, hugs and kisses to you all from Kentucky!!

Amanda said...

Hoping you feel the support you need moving forward from God and all your "friends". Take comfort in whatever decision you make; it comes out of love for your baby girl. God won't let you make the wrong decision.

Alex(andra) said...

With such a heavy heart, and many tears, I am praying for you. I hope that you get to take her home. Praying so much.

"There'll be beauty from pain."

Mama4Real said...

My heart is sick for you.

Anonymous said...

my prayers are with you & your family

Anonymous said...

I thank you within the depths of my soul for sharing your love, your faith and Kayleigh with all of us.

Last night I was so concerned about the confusion and fear you showed in your post. Tonight I feel as if God has spoken to your hearts and has given you His assurance that He will lead you in your decisions. And through God you will have the peace that all decisions will be right.

Kayleigh has known more love in 10 months than some children know in a lifetime. Kayleigh was given to amazing parents of faith. God knew what He was doing when He chose the two of you.

I pray that you can take Kayleigh home to have that time together as a complete family. If for some reason you can't just remember that all of us are in just temporary homes here on earth and our eternal home will be in the very presence of God.

Reading all the comments I can see that God's plan for Kayleigh are being fulfilled. Through Kayleigh so many lives have been changed, faith restored and strengthened and love made more precious.

My heart and prayers are with you all.

Ann Stegall
Wake Forest, NC

Rebecca, Idaho said...

I am at loss for words. After so many close calls for Kayleigh I half expected to wake up one morning and read she turned around in the middle of the night and is going to be fine. I am so sorry it has come to this and you will have to say good bye to your precious little girl. I am glad you will be able to bring her home with you if even for a short time. I am praying for comfort and peace for you and your family.

amanda said...

Adam and Aimee,
Your beautiful miracle has forever changed my heart. I have followed Kayleighs story for months now and I am so saddened right now. She is just 2 weeks older than my twins, and it just breaks my heart to even imagine what you must be going through. You're strength is inspiring. The Lord will put it in your hearts what to do. Take that sweet baby home to her room and show her the things you want to show her. I will forever pray for you, Aimee, Allyson and Brandon, and I will always keep sweet little Kayleigh in my heart! Thank you for continuing to share the story of your miracle.
Always,
Amanda

Anonymous said...

Adam and Aimee:

My heart just breaks for you. I'm so sorry that this is happening to our Kayleigh. You must trust God's plan and that if it is soon her time that she has accomplished everything she is meant to do.
She will always - always - have a never ending effect on so many souls. We are all better people just knowing Kayleigh. Your baby is a miracle. I hope she will come home with you and I pray that things change for the better.

I love sweet baby Kayleigh and she has been a part of my daily life since before you gave birth to her. It is just part of my day to check in on her and your family. My prayers are closely with you and I just know that whatever happens, God is with you holding you tight.

Whatever you may decide, just follow your heart and your beliefs. No one can tell you what to do -- that is between you and Aimee and God. Maybe in time things will develop - I would still be clinging to that hope as well. I have heard about stem cells being implanted in parts of the body to redevelop things -- is this possible with Kayleigh?

May God surround you will love and peace.
Karen Andwan
cincymomof4

Anonymous said...

My heart is filled with sadness for your pain. Kayleigh's life was not in vain. SHe has done more for other people's faith in her mere months on this Earth than most people have done in years. I am glad to hear that you have made the decision to take her home to be surrounded by family. I think that is a wise decision and one that will bring you much comfort in the long run. Hug that sweet girl for me.

Anonymous said...

Is it possible that Kayleigh's brain is swelling and causing her pain? Can they give meds to decrease the brain inflammation and allow it to heal? Just wondering. Praying for you and Kayleigh always.

Mel Fraase said...

So sorry you are going through all of this. Please know you are never alone. I pray that the Lord will hold you tight as you cherish your sweet baby girl all you can now.

rochelle said...

Don't worry about the feeding. Kayleigh can still go home on TPN feeds via the central line. She can also go home on a vent/and or oxygen. ALl these things are possible, so please do not allow them to interfere with getting this precious child home with her family where she belongs.

Justin and Jennifer Harris said...

I do not know you, but I just happened onto your blog. My heart is breaking for you tonight! As a pediatric nurse and momma of two precious babes I can only imagine what you are going through. May God grant you peace during this time. We will be praying now and when your sweet little girl enters into the arms of Jesus!

About Michelle said...

I read Kayleigh's site several times a day and each time hoping to find a miracle happening for Kayleigh. I am sad for you all and our heart are breaking. I am at a lost for words so I leave you with this verse from Isaiah 41:10. "Don’t you be afraid, for I am with you. Don’t be dismayed, for I am your God. I will strengthen you. Yes, I will help you. Yes, I will uphold you with the right hand of my righteousness."

May God strengthen your family in this very difficult time.

Nutty Mom said...

I love you guys, I love Kayleigh! Thank you for sharing her with me. My prayers are with each of you every day.

Erika said...

Writing through tears tonight, and lifting your family up in prayer.

I hope that your days with Kayleigh are peaceful and full of memories. When that day comes and Kayleigh joins my two daughters in Heaven, we will all hold fast to the promise that our girls are whole and well and in the best hands. Much love to you tonight, and so many prayers for strength, for supporting one another, and for Kayleigh to feel the love of not only your family, but of all the people around the world who love her so much. Because we do love her SO MUCH!

Love,
Erika

http://littletinyfootprints.blogspot.com/

Laurie in Ca. said...

It is our Heavenly Father who blessed you with this precious gift of love named Kayleigh, and it is He who is guiding your hearts in pure love for her. He will direct your path and I pray He honors your deepest hearts desire to bring her home to her family. Praying for His strength for you in the moments and days ahead. My heart is breaking for you and I am so very sorry for the unimaginable pain you are in. My prayers continue for His will to be done as He holds all of you gently and firmly in His hands.

Love and Hugs, Laurie

Anonymous said...

Once again your beautiful words of tribute to your daughter has left me with tears streaming down my face. No parent should know this pain, it certainly makes me ask "Why"? Then I answer myself...Kayleigh has shown me the power of prayer, the love of God. I am so truly sorry that she has had to go through this journey to help me see God's grace, but truly she has. I am praying that she will be able to go home to be with her family, Love Leslie in CT

Tina said...

I have just learned of Kayleigh's story over the past few days from a friend's blog. My heart aches for you and your precious family and for that amazing little girl. God will give you the strength and peace as you come closer to the end of this journey. Your faith is such a testament to how wonderful our Saviour truly is. I pray that you will be a able to take her home so you can spend every precious minute you can with her. We will continue to pray for you. I know there must be tough and hearbreaking decisions that lie ahead. I know you will continue to turn to our Heavenly Father for the answers you need and for his comfort in knowing He's holding Kayleigh in His arms and surrounding you with His love. Thinking of you and praying for you, Tina McLean

Nicole said...

I really have no words other than I am so so incredibly sorry. Sending love, prayers, hugs and strength to your family. You're doing the right thing, because your doing it out of love for your child.

Charity said...

I have never left a comment before, but I feel lead to after reading your last post. My father is a pastor and a family councilor. I was sharing with him your Kayleigh's story today. I had told him that you guys were asking for godly advice as to how to move forward. He told me that if it were him, he would take Kayleigh home to live with the family. I guess all of this to say, that when I read your blog just now, a peace passed over me...not because it is what my dad said he would do, but just because I feel, for what it is worth, that Lord has given you such a clear answer. I will pray for you and the days to come.

May the Lord bless you and Keep you, may He shine His face upon you, and be gracious to you.

Pam Asbury said...

Crying with you...

May you find God to be your refuge and strength, a very present help in time of trouble.

Anonymous said...

Praying for you through this very hard time. God bless you!
Tressa

Anonymous said...

We are so saddened by the fact that you are all going though this. Your family is in our prayers. We have loved Kayleigh and cheered her on and we have loved you guys and admired your strength, love, faithfulness, joy, enthusiasm and commitment to each other and to God.

"Trust in the LORD with all your heart
and lean not on your own understanding;
in all your ways acknowledge him,
and he will direct your paths."
Proverbs 3: 5-6

Love,
The Smiths (in TN)

Lindsay said...

I am just so sorry. God carries you in the palm of his hand as broken as you must feel, all of you will eventually be made whole in Him.
Again, I am so sorry.

Curtis and Talesha Swainston said...

You don't know me I saw your link on my friends blog, but I am deeply touched.I am too crying with you! Our prayers, hugs and love are with you at this difficult time!

Anonymous said...

I am here crying with my family, my friends for the pain you must be going through. . . We cant imagine. I pray so hard for peace - peace for you and Aimee. Peace for Kayleighs little body. She has taught us all so much! I love on little Kenna a lil extra each night because of your story. Thank you for letting us all in to your lives. Praying for another miracle through Kayleigh!!!

With all our LOVE,
Kenna, rebeccajo19, and family

rhysgirl said...

i ran across your blog from a friend of mine, and it made me cry in a way i have not been able to do since our daughter was born. we too watched and fought for her life and experienced ups and downs in the NICU. when i look at our little joy in life, i can only wonder, though, at how long and how hard kayleigh has fought and know how much you love her.

blessings to you, peace to you in these days you have with kayleigh. may they be filled with grace.

Joanne said...

Adam and Aimee,

Your precious baby girl has touched so many lives, and I will pray you will be able to bring this dear girl home to spend time with you and your other children.

Anonymous said...

PLEASE GOD, PLEASE HELP KAYLEIGH AND HER FAMILY!!! PLEASE GOD, WE NEED YOU!!! HOLD THEM ALL IN YOUR ARMS TIGHTLY, LET THEM FEEL YOUR LOVE!!! PLEASE HELP THIS FAMILY LORD, PLEASE !!! AMEN

kadencesmommy68 said...

I am so sorry and I am praying for your family to be strong in this time of need. I'm praying for a miracle. I'm praying for strength for you and your wife as you are faced with difficult times. I wish there was something I could do to make it all better for you. But for now prayer will have to work!!!

May your days with Kayleigh be filled with grace and love and peace for you all!!

a woman found said...

Dear Freemans,

I just happened upon your blog tonight. I just want you to know one more person is praying. I pray that the comfort of our Lord would hold you and Kayleigh right now. I pray that you would be filled with wisdom and peace with every decision.

Praying,
Sheila
Goodyear, Arizona

Anonymous said...

I can't even begin to imagine what you are going through. Your sweet Kayleigh will be in my thoughts and prayers.

Cherilynn from British Columbia said...

I am so glad that Kayleigh is finally going to come home! I so terribly wish it was under better circumstances, but I am thankful that God has given you this opportunity. Kayleigh remains in my prayers & thoughts throughout the day, as do you all. I am praying desperately for the miracle to happen, but praise Him for what He has done for you already. God bless you and bring you peace and understanding.

Love & prayers,

Cherilynn

Angelique said...

I am praying so hard for you and your family and especially for beautiful Kayleigh.

She has been fighting and doing so well for so long and hopefully with some strong prayers she will over come this too.

I am thinking of you.

xxxxx

SHANDI AND FAMILY said...

I have been following for a few months now, and every so often I leave a comment. I cant begin to express my sorrow for your sweet little angel. I am so glad you'll finally be able to bring your little girl home! That will be an amazing place for her to spend her final days. It will be wonderfull for her brother and sister as well.
I think about Kayleigh daily, and pray for her and your entire family. Your faith amazes me! I only wish I could be such a faithfull person. I will tell you Kayleigh has made me look at things very differntly.

Praying for you in Ohio EVERY DAY!!!

Laura McBride Portland Oregon said...

It is quite amazing how such a tiny precious baby girl can have such a HUGE impact on this world. God has used her in so many ways. Your family has blessed my life. I am praying for you in this incredibly difficult time. May God's strong hand continue to guide you...

Laura

LitterOf1 said...

All I can say is that you are the ***** BEST PARENTS **** that Kayleigh could possibly have, and I mean that from the bottom of my heart.

Tracy said...

I have been desperately hoping things would turn around and Kayleigh would be doing better. As soon as I started reading your post, the tears began to pour. I'm so deeply saddened for you and your family. I can honestly say I pictured Kayleigh going home one day and growing up telling her amazing story to everyone. It is a blessing to know you will be able to bring Kayleigh home and that all of you will be able to love on her. You will make the right decisions for her. I will continue to pray for her. Such a beautiful, amazing little girl!!!

Konnie said...

We Love You guys! and are Praying for Kayleigh and your entire Family! I am so glad that you are going to be able to bring that Beautiful Baby HOME!
You have no idea how much ya'll have touched my life in the last 5 months since I found your blog. I have hugged my children tighter, prayed over them & appreciated them more than I ever thought was possible.
We are Still Praying in South Mississippi!

Robyn said...

I have no words, I am truly shocked and heartbroken at this turn of events. I'm still praying for a big miracle, and I'm glad you guys are going to bring her home. I'll be thinking of your whole family in the days to come.

Kirsten: said...

Crying as I read your post and type these words. I am so sad that Kayleigh hasn't shown any signs of improvement but glad ya'll are taking her home. She needs to be with you, Aimee and her siblings.

Many thanks for sharing Kayleigh with us. She is an amazing little girl who has made a big impact on so many people's lives, including mine.

Still hoping and praying for another miracle!

All our love in Houston, TX

The Five Pennies said...

My heart is broken for you. May god be with you as you prepare to take Kayleigh home. Nana C.

tahnie said...

my heart is breaking for you all and i wish i could fix things. i am the very lucky recipient of a kidney that has lasted 14 1/2 years, but also realize organ donation is a heavy decision. i hope you can one day find peace. <3

wicker0407 said...

I have been crying all day. My faith has surly been tested these past few days. I have asked Why so many times. All I can say is how very sorry I am I never would have imagied it ending this way. I pray the Lord show you mercy and give you peace. I hope your angel gets to go home for her final days. Your daughter has forever changed my life and she will never be forgotten. I love her so much as do so many other people all over the world. I will continue to pray for all of you.

wicker0407 said...

I have been crying all day. My faith has surly been tested these past few days. I have asked Why so many times. All I can say is how very sorry I am I never would have imagied it ending this way. I pray the Lord show you mercy and give you peace. I hope your angel gets to go home for her final days. Your daughter has forever changed my life and she will never be forgotten. I love her so much as do so many other people all over the world. I will continue to pray for all of you.

TnAHurst said...

I have no words other than my personal thoughts that no matter what happens you receive a miracle!!! May God bless and keep you and his angels surround you all!! I dont know if you've heard the song before but one song that REALLY helps me is Keep Singing by MercyMe

Lindsey's mom said...

I am so sorry Kayleigh is not improving..we went through the EEG's and waiting and hoping after our daughter suffered a severe brain bleed when she was 8..nearly 3.5 years ago..she left us on 1/6/06. May God bless you! I am so glad you get to bring her home before she goes Home. My daughter loved babies and will greet her at Heavens gates I am positive.
Kathy

Shari said...

I wish I had the right words. I pray the Lord gives you the grace, and strength to make it through these next days. My love to a little girl who changed my life! I love you guys!

Jessica said...

My March of Dimes walk is today (Sunday). Myself, and my fellow NICU nurses will dedicate a large part of our walk specifically to Kayleigh. The past week, I have shared her special journey with them, and each and every one of them have truly been touched by her journey. She really is a special girl, and always will be.

I know there are no words on this earth that could make this any better. But I do know that Kayleigh has most definitely touched my life since I started following her journey several months ago. I am a better person, and a better NICU nurse because of her. I know that she already has a friend up in heaven, whenever she continues her journey to that special place. A very special boy named Daniel is there waiting for her. I know he has been watching over her these past 10 months.

During the March of Dimes walk tomorrow, whenever I get annoyed at the cold, rainy, yucky Chicago weather, I will think of Kayleigh, and her face, her smile will get me through.

Thinking of you all
Jessica B
NICU nurse up in Chicago

mrs boo radley said...

Praying that you rest in the arms of our Savior tonight and always.

dg darling said...

I have a constant prayer in my heart for sweet Kaleigh and your family. May you be blessed with peace. Thank you for letting us share this journey with you and for sharing your sweet baby girl with us...

K said...

I'm praying for your famil! I hope you can bring your precious daughter home, even if it may be for a short time.

Tiff said...

I am aching inside for you. I have been and will be praying for you Adam, and dear Aimee, and your two older children. And of course, for sweet Kayleigh. May God show his blessings to your famly in this devastating time.

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you a hope and a future."
Jeremiah 29:11

our7dees said...

My heart is broken for your family and Kaleigh. I hope your time together as a family is a memory that you can cherish forever! I believe that God will lead you and be behind any decisions that you must make regarding Kaleigh and her care. I am praying for you guys and still praying for a miracle, even if this miracle is not to be here on earth but rather in the arms of our Father in Heaven. I will continue to pray for strength and hope for your family:)

Davis Family said...

We are praying for Kayleigh and your family.

Blessings,
Deena

Tamara aka Cheapskate Mom said...

I'm praying for you and little kayleigh. What your friend said, about God's hand holding yours. It's so beautiful and so so true. I hold little Kayleigh in my heart and prayers tonight. Bless you.

Tamara

Pure Mommy Extract said...

I just came over from MCK. We will be in prayer for you. We walked today in a different location for March of Dimes (much colder it looks), sadly in memory of two precious twin girls.

My prayers are for comfort and the close grip of our Savior to be with you.

The Red One said...

I am lost for words, but my faith is still in tact. I hope he answers your prayers.
You have such a beautiful daughter and I pray for all of you.
I just love her.Her smiles lifted me so much when i visit your blog. she has the power of a million soldiers.
I will keep the faith n keep on prayin.
Lifting my hands..and on my knees.
The morgan family

Amy said...

I am so sorry that you must face this situation, but I praise God that He is with you as you go through it.

Praying for you in WA,
Amy

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