4/25/09 - God's Hand

"I sat and watched as my beautiful wife held Kayleigh in her arms. Through the tears in our eyes, we watched her sleep peacefully on her soft pink boppy pillow. There were no words spoken, but heartbreaking emotions raced through our bodies. Seeing this amazing miracle from God, loved by millions across the world, made us realize how lucky we are to have been blessed with 10 amazing months of love. I laid my head next to hers, smelling her soft fuzzy head, I closed my eyes to pray and fell sound asleep next to her.

For once, I felt as if nothing was wrong and no troubles to stress. We laid comfortably together, enjoying the closeness as a Father and his little girl should feel every single night. I've never gotten the chance to be so close and I may never get that chance again until we meet again in heaven someday. She is my precious sweetheart and it will be so hard to let her go when that day soon comes."


We are not sure if Kayleigh's traumatic and unforeseen circumstance is the cause to her new found issues. She is no longer tense with constricted muscles, but she seems to be breathing heavier and cries out silent cries of agitation. The doctors tell us she feels no pain as this section of the brain controls no emotions, but when she is awake, her uncomfortable condition seems to tell us otherwise. She doesn't hold our fingers anymore and retracts her hands and feet at the slightest touch.

This is so uncomfortable to see and our emotions become at ease when our nurse gives her some sedatives to let her rest. We are all fearful of Kayleigh continuing to act this way as we were told this is how most people with this brain condition will act unless they're asleep. No parent should ever have to see their child like this and I lift my hands in prayer to those who do.

Aimee and I have plans to bring Kayleigh home to her precious room, we so anxiously prepared her for, so she can live out the remainder days of her life. We want Allyson and Brandon to spend some time with their sister, which they were unfortunately not able to do since August of last year due to RSV season at the hospital. We are not sure when that will be due to her lack of feeding abilities, but we only pray the Lord will bless us with our wishes.

Many of you asked if Kayleigh's organs can be donated and this is something we wish we could do, but with the major organs having so many issues, it is not possible. There are options to donate some minor things, but that could only be done before Kayleigh passes and we would rather have her with us at home during her remaining time.

I learned today that God has given us a gift of love and no matter what or when our decisions may be, it will be filled with love. We don't want to regret any decisions we have to make, so we want to be 100% sure we are doing what we feel is right on this inside. No one can tell us what is right or wrong, only God can fill our hearts, making the perfect decision for our daughter when it is purely made out of love. Kayleigh will always be remarkable, whether she is with us here on earth or not. But, we do know that heaven shares no pain and Kayleigh will be made new again.

Someone very special to me told me something today that has touched my heart so deeply that I want to share with all of you. I want you to look closely at the photo above where my hand is holding Kayleigh's. Do you see God's hand holding mine? I do.

I would like to praise God for my parents who walked for us this morning in the March of Dimes walk in Charlotte. We wish we could have been there with you guys, but just know we will walk every year for here on out and for those who can will be more than welcome to join us. Here are some photos of them with Kayleigh the other day and this morning, during their walk in Kayleigh's name. Thank you two and we love you so very much! Also, thanks to all of those out there who also walked in Kayleigh's name. We really appreciate it.







God Bless,

335 comments:

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~Chel~ said...

I'm so sorry things haven't improved. I'm glad you will be able to take her home and spend some time with her...Still praying in Mesa, AZ

Moni Graf said...

Knowing, with a tear-streaked face, that the Good Lord guides your tough decisions and lightens the hefty burdens. You will ALWAYS make the right decision when it's made purely out of love.

We love you Freeman Family!

Love and prayers from the KS Quads,
Billy and Moni
Pius, Forrest, Danna and Laine

Jen said...

The last line of your intro at the beginning of your blog says "get ready to fall in love with this one pound miracle from God." It explains why for the last several days my husband and I have both literally been in frequent tears. We HAVE fallen in love with Kayleigh.

We've never met her in person but we've watched her videos and kept up with her picture from Aimee's first cry for prayers in the Ultrasound section on the old Babycenter.

From then on my husband and I have prayed for her, for Aimee and for you. We love Kayleigh so much. It just feels like our hearts are being ripped out.

I just want you to know that Kayleigh's life has made a huge impression in ours. We will always love her.

Shari said...

I'm still praying for your family, for you to have the peace you all deserve. Kayleigh has touched me so much just in the last few days since discovering her story. It's amazing the power such a small child can have in a stranger's life. I find myself thinking of her when I see`my children. Your little girl has accomplished more than most people even dream of doing. Thank you for bringing her into this world.

Please know we're all thinking of you and your family. There are no words to express how any of us feel for you.

Sarah Lulu said...

May our loving Father continue to hold your family in His hands.

I hope you do get the chance to take your beloved daughter home with you.

Please know, in her short life she has touched so many people all around the world.

Much love, God bless,

Sarah Lulu in Australia

Michelle said...

I will continue to keep your family in my prayers.

Kristi said...

I am sorry I have nothing to offer you to make this better. I do not know you or your family, but my heart breaks for your pain. My heart is filled with gladness at the love you have for your daughter and the love you have surrounded her with during her life. We are praying for you and Kayleigh. May you be at peace with the decisions you make and may your sweet girl be able to come home with you as you hope.

Mark, Kristi and Luke in LA, CA

Kerley's Kreations said...

Tonight I lay in bed reading this and tears fill my eyes. While at dinner your facebook update came thru my cell and my son was like who is Adam Freeman? I was like that is Kayleigh's dad. And he said Kayleigh the little baby that is visiting God? I said well she is not there yet, and he looked at me and said she has already went to see him and brought his message back here mom. Kayleigh has delivered her spirit to all of us here. Mom she is an angel I can see her wings. I am shocked to hear this from him as he is 13, but he too has seen God and is a miracle in his own way. you see we lost him 3 times from 5 weeks to 14 weeks and sometimes during his life he will say mom did you see that God visited again and did this or that. He knows Kayleigh is with our father and that is an awesome celebration. I will pray for your peace and answers. Enjoy your time with her over the next few days and know that you are in our family's prayers form the Middle east where my husband is to Michigan where we reside. Kayleigh has been added to our prayer list here at the house as well as your family. Prayers to you ..The Kerleys

Bridget said...

I pray God wraps his loving arms around you and your wife during this difficult time. I pray he gives you wisdom and that you continue to reflect his light during this time. May God Bless you and keep you. ((hugs))
sweet Kayleigh Anne has touched so many:)

Anonymous said...

I'm so sorry that Kayleigh' health issues have not improved, I still believe that she is a miracle in her tiny life.

I wish that there was more that we could do to help you, to help take some of this pain away. I can pray for you, love on Kayleigh.

I want you to know that you have changed my life undoubtedly. To witness your strength through this terrible time is honorable. To witness Kayleigh's miracles and life is a privilege.

Know that we love you all and though have never met, we will always carry Kayleigh in our lives... she is a hero in so many ways, she has saved us (my family) from our own spiritual turmoil... if only we can save her - what a blessing that would be.

Always,

Analiza and The Bernat Family

Anonymous said...

Still praying for you. May the Lord continue to guide and comfort you
Em from Australia.

The Pirsein Family said...

I'm so very heart broken after reading your post. I'm so sorry that your family has to go through this. I can't even begin, as a parent, to understand what you and Amiee must be going through. Kayleigh has been a strong fighter and it saddens me that she took this turn. Your faith in God is amazing and I believe he will guide you in the right direction. Still praying for a Miracle for sweet baby Kayleigh.

Unknown said...

I am lost for words :(

Donae said...

No words could ever be enough. I am praying for you and I know that no matter what, your faith and love for God will carry you through.

Please know that God never closes one door before opening up another.

You have inspired me in so many ways. Thank you for allowing us to love Kayleigh with you.

May God contine to be your source of strength.

Kirste & Lee said...

Adam and Aimee,

Words could never express how sad we are for you. Our heartfelt prayers for strength and peace go out to all of you. Amazing that God sent an angel that small to do work that big.

Babs said...

Aimee and Adam, I am so sorry for your pain.
I haven't been "involved" in this walk of yours with Kayleigh for very long but that doesn't matter because I feel your pain as much as a person can over the airwaves. ...love transcends.....
God is amazing and you guys are amazing.......we only have now....and I pray for your now.

Titus 2 Thandi said...

Last night, my husband woke from a deep sleep, impressed that he should pray for you too.May the knowledge that you have touched many lives,and that we all care, somehow help to ease your spiritual burden.No matter what you decide, we know it will be the best because God will guide you as He has thus far.Thank you for encouraging us to never let go of His hand.

Lu (Lucille) said...

No words, just prayers for you and Kayleigh...

Amber Schmidt said...

My heart is absolutely broken for you. I can't find any words... just know that we are praying for a miracle above miracles!!

Hugs and prayers,
Amber Schmidt

Melanie @ Whimsical Creations said...

hugs

Shelia said...

We are so sorry. Wprds alone cannot express the sorrow we feel for your family. Know that many prayers are being said for Kayleigh and your entire family.

God Bless.

Beth in NC said...

Crying with you. I pray you can take Kayleigh home with you for some precious moments.

God bless you.
Beth

Anonymous said...

Yes, I see God holding your hand. He will never let go.

Nothing separates us from the love of God.

I am praying as you take your sweet Kayleigh home, that it will be the most precious time for you all.

May God bless you in the ways that only He can, and may you know His comfort and peace.

Carla in Maryland

Aspiemom said...

Adam has the same gift with words that Nate does. And somehow the same wisdom.

You seem at peace with what is going on, even though you grieve that her little muscles retract at your slightest touch, you know that she is surrounded my love and held in God's capable, loving hands.

Taking her home and loving on her there would be wonderful. I will be praying towards that end. I'm still praying for a miracle though...here in GA.

Jean Alvey said...

My heart is heavy as I'm still waiting for that miracle. Glad to hear of your plans to bring sweet Kayleigh home to be with family. I just hope its not to tramatic for Brandon and Ally but it is the right thing to do. I'm sure they will appreciate getting to spend time with her also.
No matter what happens from here on out you have made a big impact on my life and will always be in my heart and prayers.

Anonymous said...

Adam & Aimee,

I am so so sorry for all of this. This was the decision that I was hoping you both would make & bring your sweet daughter home. I feel that God will decide 100% when her time is and not leave you feeling unsure. We have said many prayers for you and those prayers will continue for a long time.
The Fullers in Houston

Anonymous said...

Praying for Kayleigh. I know that this is a difficult time. I pray that God gives you all peace at this time and that you Know God holds precious Kayleigh in his arms and is there with you all.
Praying in Florida

4 Lettre Words said...

So beautifully said, Adam. You ALL are an inspiration to me and so many. I truly hope that you know that.

Still praying...

Wendy said...

adam and aimee, thank you . for sharing your joys and sorrows, and for allowing us to be part of kayeigh's life, to be touched by how wonderful and precious her life is. adam, you have such a gift with words in the way you have told your daughter's story. God is amazing in how he brought your family together for such a special and powerful reason. i pray these days will give you precious memories to last a lifetime. and i know God will reward you for your faithfullness and bless you!

vera said...

Praying hard for your sweet family!

Anonymous said...

God bless you all during this very difficult time.

With love from Southern NH

Shelby said...

I have no words. Only tears and continued prayers for your sweet baby girl and your family.

Mrs. Alldred said...

Our family is praying that you will find strength during this difficult time, and that you will bring Kayleigh home to be with her siblings.

Dalila from NJ said...

I heart is so heavy right now. I'm sorry that you must face this. God Bless the Freeman family. Please know that my 16 year old son is doing the March of Dimes today and he is walking in honor Kayleigh.

Love you all,

Paula said...

I just recently have caught up on your story. I am so very sorry. My heart aches for you. Yes, what a wonderful and most blessed 10 months you have had with a miracle. I pray throughout the next minutes, days weeks that you feel God holding you more than ever!!

Stacie said...

i am so sorry you are having to go through what no parent should have to go through. i have sat with parents in your situation a few times in my nursing career, and it was a few times too many. my God envelope you in His peace and give you guidance in your decisions. praying in fletcher (asheville)...

Erin said...

Freemans...You have been amazing parents to Kayleigh. I know the two of you make decisions out of love for your daughter and know God gave her to the two of you knowing you could handle the wonderful amazing journey/task of a precious angel. I pray everything is at peace wrapped up in love and light and your Kayleigh comes home. Still praying!

SometimesSheWhispers said...

I am doing the MOD walk in PA this month and I'll be walking for Kayleigh! Praying that your time with her, however much it is, is peaceful.

Nena said...

Sending you peace.

Nena and Reese
www.caringbridge.org/visit/reesejohnson

Michelle M. said...

Continuing to pray for you all!

Michelle M. said...

Continuing to pray for you all!

Carey said...

You all are in my thoughts and prayers.

J Lannan said...

You have a beautiful daughter. I'm praying for your family during this heartbreaking and difficult time.

Shauna said...

You and your family in my prayers.

Jim said...

God Bless!!!

The Burgess Family said...
This comment has been removed by the author.
The Burgess Family said...

I have a huge lump in my throat as I sit her typing. I am sure you have consulted every physician involved in her care & that they are doing all they can to support her and will do all they can to support your family as you make choices for Kayleigh and her home care. Your greatest concern, as always, seems to be making sure Kayleigh is as comfortable as possible. I am so glad to hear that you have plans of taking her home so that she can get some quality time with the family before her passing comes, if that is what God has in His plans for her. Whatever God choses, I think that Kayleigh is in a win/win situation. If God intervenes in a supernatural way & heals her brain, either completely or enough that she is able to have a good quality of life, then He will be glorified & Kayleigh will be able to remain here with her family. I feel certain that this healing is your hearts greatest wish and I raise my hands in prayer for you for this. Should God decide to take Kayleigh home, then we, as your readers who will mourn will you, will also rejoice with you that Kayleigh will be with Jesus, face to face and hand in hand, free of tubes & tests & struggles & machines. My prayer for your family is for God's will to be shown in her life, for total healing (bodily or heavenly) & above all, for peace & comfort for that sweet and strong girl who has overcome so much in her life. While we will never know how much time Kayleigh has left, please remember your own words... know that the One who holds us all has you all firmly in His ever-loving hands.

Anonymous said...

my heart is breaking for you and your family. Praying for you all.

Tina said...

So sad to hear Kayleigh has not improved...but we will continue to pray.

Hopefully you can bring Kayleigh home so you guys can be together as a family. I will pray for this to happen for you guys.

God Bless your entire family during this difficult time and may he give you the courage to push forward.

Anonymous said...

i don't know what to write. i'm so sorry for the way that all of this turned out. everything happens for a reason and everything will be okay. God is def. with you and has been this WHOLE time. i see him holding your hand too =)

Leigh Anne said...

I can not understand this. But someone said in another comment that Kayleigh was an angel. That is the only thing that seems to make sense. The Lord saw so many people in need of learning so many things. He sent his angel Kayleigh to you His children. He chose you to take care of her on this earth while He worked through her to reach so many. The spririt God gave her was too strong for her body. I cry for the loss, but will rejoice when Kayleigh is made whole. Her short time on this earth will most certainly last a lifetime in our hearts

You are in my prayers. Your heartache to me, I can not fathom. Someone has said, God is nearest to the broken hearted. Then I have no worries, He is definelty with you... always has been.

Even when her spirt is whole in heaven, her story will live on here on earth. I'm going to start writing what Kayleigh story is to me. While here trials were seen the same by everyone, I have a feeling the impact was so much different.

May God hold you close!

Christie said...

I want you to know that you have many prayers coming from the Salisbury area. I have sent your blog with a request for prayers to everyone I know. You are in our thoughts and prayers!

Anonymous said...

Wishing you peaceful moments during this difficult time. I am so sorry you have to go through this. Please know our prayers are with you and your children.

Miss Isles said...

I am so sorry that this is happening to you and to Kayleigh - but you know that God loves you and her and that He will take care of all of you. Your daughter has nothing to fear while she is in His hands, which we all know she has been from the very beginning.

Anonymous said...

I am so sorry and still praying for a miracle. I know this doesn't really matter, but could this have been caused by any of the medication they were giving her?

Anonymous said...

There are so many things that I am feeling right now, but no words to express them.....I found Kayleigh's story months ago and have followed from afar - even my boys both know who Kayleigh is as we shared looking at your posts each day enjoying the latest photos that you so graciously shared with all of us.....we continue to pray for Kayleigh and guidance for you and your entire family at this time....

Blessings,
Kathy in Austin Texas

Ponce Family said...

Our hearts have been very sad this week. We have prayed every day for our Lord to keep Kayleigh here on earth for all of us to treasure and watch grow up. She is blessed to have such a wonderful, caring, and loving Mommy & Daddy :o)

Rhonda said...

Praying for your precious baby to have peace and for Your family to have Peace and to be comfort from OUR AWESOME GOD!!!!

Mary said...

Prayers and thoughts with your sweet, loving family at this time. No one should have to endure what battle you have fought. May the Spirit huddle near...

Carole said...

All our love and prayers are yours. May God carry you through your difficult journey.

Carole
xoxo

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Jose Heleno
Cape Vert Islands

Jennifer said...

I pray that God's plan is made clear soon and He helps you each step of the way. Danny and I walked yesterday with the boys for the March of Dimes. When we talked to people we told them about Kayleigh's story and we all wore our bracelets. I didn't realize so many people across the nation were taking part in the same event and so many in Kayleigh's name.

Joshua Green said...

Thinking of you guys..

Kahla said...

Our hearts go out to you and you are all surrounded by our prayers.

Anonymous said...

Aimee and Adam,
This morning when I was at Elevation Church, this song reminded me of you both and of little Kayleigh. God is walking through this fire with you!!! Praying for you all and of the peace that passes all understanding.

Hillsong
Healer lyrics

Verse:

You hold my every moment
You calm my raging seas
You walk with me through fire
And heal all my disease

Pre-Chorus:

I trust in You
I trust in You

Chorus:

I believe You're my Healer
I believe You are all I need
I believe You're my Portion
I believe You're more than enough for me
Jesus You're all I need



Nothing is impossible for You
Nothing is impossible for You
Nothing is impossible for You
You hold my world in Your hands

Kaycee said...

I pray that God grants you your wish to bring Kayleigh home to her own room.
My heart aches for your family, but you are both such an inspiration to all of us. Your outstanding faith, hope, and love truly makes me want to be a better person.

Still praying ferventley here in Ar.

Julie said...

I am sad that she will not be able to recover from this. I think that you are doing the right thing by bringing her home to spend what time she has left with her family. Just know that she knows how much she is loved & will be watching over you from heaven

Lara said...

My heart is breaking for your family.
I'm praying for Kaleigh and you all!!

An Unlikely Retirement said...

I am so sorry. I have no words that would be more than small comfort. Please know that I am on my knees in prayer for your family.

Mare said...

Typing through tears, I can only imagine how painful this must be for you both.

You know we are all in God's hands.
He being the creator, we being the created...he already knows what's in store for us.

Precious Kayleigh's story has touched the hearts of so many. Though she may not be here on earth, she will continue on our hearts.

May you find comfort and peace in the arms of our Lord

Judi English and Uncle John Wojtowicz said...

I am continuing to hold Kayleigh up in prayers for his perfect will. Through this precious child many of us have had a renewed relationship with God, our Father. Through this precious child doctors have learned many new things in which to treat others.Through this precious child hundreds of people around the Earth have been educated on medical conditions that affect their very neighbors. Kayleigh is a blessing to all of us and I am looking forward to hearing of her further triumphs. We love you. Judi and Uncle John

RockstarMama said...

Just wanted to let you know I'm thinking of you, as a fellow NICU mom. Sending love and hugs.

Anonymous said...

Our thoughts and prayers are with you and little Kayleigh. God Bless.
Praying in NB, TX

MLW Creations said...

My heart is breaking for you. There are no words, only trust in the Lord. God is good.

MLW Creations said...

My heart is breaking for you. There are no words, only trust in the Lord. God is good.

michelle77 said...

Even though I don't know you guys personally, I feel so lost right now! I have been feeling your blog for some time now and to be honest I don't know what I will do without reading your updates on your little miracle. I can only imagine the pain you both are going through right now. I lost my brother last year to a bleed on the brain, so I can relate to your pain. God does have his own plan, but that has not stopped my prayers and tears for sweet Kayleigh and your family. I feel so upset and my heart very heavy. Love, Michelle and Baby Brayden

Michelle said...

My heart is so heavy for you during this time. I have been praying for you so much and my mind just struggles to understand but my heart KNOWS this earth is not our final place. Thank you for sharing this precious baby girl with us to love from afar. Thank you for having the strength to continue to update us during this time. I am praying for your hearts and your entire family along with this beautiful blessing!!! Much love from Texas.

Anonymous said...

No words, my heart is breaking. I am so glad you will be able to bring her home. Prayers and hugs for you all. Kayleigh has touched so many lives and brought so many people closer to God. In her short life she has done more than most people do in a full lifetime. I feel blessed to be part of her journey.

Love,
Beth (Houston)

Sarah said...

I cannot think of words to say. . . my heart breaks for kayleigh and your family. She will never be forgotten. . . I consider myself so blessed to have read Aimee's post on babycenter almost a year ago now and to have had my heart and life touched by this amazing miracle. . . it is so true that his ways are NOT our ways, and though I have never dealt with a trial nearly as difficult as the one you have faced and continue to face, I do know that no matter how painful God's plan is always best regardless of what we want or what we think makes sense. . . stay strong- many prayers are being said :) God Bless!

Anonymous said...

My heart breaks for your entire family. Kayleigh is the embodiment of a miracle and it will never cease to amaze me how something so tiny could fight this hard. God has been with you through this entire journey and he'll be there still when Kayleigh continues on her own path. Thank you so much for having the strength to continue to update us on her situation. She (and all of you) are always in my thoughts and prayers. I will continue to pray for another miracle.

Sincerely,
Hope in Ottawa, ON Canada

Unknown said...

My heart is aching for you right now. I am so sorry. We are praying for you.

Amber Johnson said...

I'm from the October 2008 baby board and we've been following Kayleigh's story since the beginning, praying harder than I could ever imagine. She's got a purpose, and that's all we know. I find myself questioning God's plans and I have to stop and think twice. Only He knows her purpose. He knew you and Aimee could care for this little girl like no one else could and you're so blessed to have had her in your lives for 10 months. My heart is breaking every single day for your family, and a night doesn't go by that my family isn't praying for baby Kayleigh's recovery. My 5 year old knows who she is and asks about her on a daily basis. "Is Kayleigh ok, Mommy?" and it breaks my heart. God will guide you in the right direction. My heart and prayers are with you during this difficult time. God Bless.

Tonya said...

My thoughts and prayers are with you and your family. I pray that you get your wishes to bring her home. I don't know you guys but this lays heavy on my heart and I pray for your continued strentgh.

Praying for you in MD,
Tonya

Anonymous said...

Praying for you all and sweet Kayleigh's peace and comfort. I hope that she gets home soon and you can spend some precious time w/ her at home...

Fer said...

I am so sorry to read this. My heart aches for you, who
will continue to be in my thoughts and prayers.

Kerren said...

I am sorry that there has been no improvement, and you are correct that no parent should have to suffer all the (difficult) things that you have been through with Kayleigh - but she is an amazing little girl and she chose you for her Mommy and Daddy because you are exactly who she needs! God chose you to take care of this special little girl - isn't that amazing? Out of the billions of people on earth, He knew that only you would be the exact kind of parents He needs to take care of His sweet baby!

I tell everybody I meet about you and your precious family..You, as a family, have touched so many lives and I hope that all the lives you touch will now lift you up in prayer and strength when you need it most.

Thinking of you all the time

Kerren
South Africa

CraftGirlAlli said...

Just letting you know, you all are in our prayers.

I walked in the March of Dimes walk on 4/25/09 in Lafayette,IN. Kayleigh was on my mind the entire time.

God Bless

Kelly Deneen Raymond said...

I am so so sorry for what you are faced with. Kayleigh is so lucky to have you as her parents. She knows she is loved.

Unknown said...

So sorry to hear that things do not seem to be headed in the direction we were all praying for...but I did walk in the March of Dimes walk here in NH today with Kayleigh on my mind the whole 3 miles. Just wanted you to know that while I don't even know you or Kayleigh, you are loved...and your story has touched so many of us! Thank you!

Kelly @ Sufficient Grace Ministries said...

I just came across your blog and met your sweet Kayleigh. You are such a beautiful family, and my heart is broken as I read your journey. Please know that we will be praying for sweet Kayleigh and for all of you...for God's continued comfort and sufficient grace as you walk this path...

In His Grace,
Kelly Gerken
Sufficient Grace Ministries

Anonymous said...

So thankful that you got another day with your little sweetheart. Each day is a blessing from God. Now more than ever i know they mean so much more to you when another new day comes up with a sunny sky. I pray that God gives you all the time you need if His will is to take her home, but i am begging God for a miracle healing. He knows what is best for Kayleigh and her family, but sometimes that is so hard for us to see or understand. I think when it comes to your children God knows exactly what we feel and how we hurt, because after all, He chose us to be their babysitters for Him until He comes for them to take them home. The love we have for them is so strong, i can't imagine how your hearts feel now. God Bless your Family is my prayer.

Jennifer said...

May God continue to watch over all of you and may you be blessed with your wish to bring your sweet daughter home. My continued prayers.

Gabby said...

Kayleigh is amazing. I've been checking periodically since probably 7 months ago. It is very sad that things have to end this way. Your family is so strong, and so amazing. The NICU is a very scary place, and you've been there 10 months. Though my daughter was only there 2 weeks, it was a nightmare. I pray for a miracle, she is a strong little girl. If that miracle is not possible, I pray that you stay strong for her. God is with you.

Kelly said...

Aimee & Adam, Your faith and trust in the Lord is amazing. I have been following Kayleigh's story for awhile. It hit close to home. When I was 25 weeks pregnant I was in a terrible car accident totaling our van. The Dr.'s said that if I went into labor then our daughter would have a 50/50 chance of surviving. Thankfully she's stubborn and decided to prolong her delivery till term. But as I look at pictures of Kayleigh I get tears in my eyes remembering how close I came to being in your situation. I pray for Kayleigh daily and your whole family. Keep up your positive attitude and faith in the Lord.

Love
Kelly Hoover
Missouri

KellyGirl said...

Adam and Aimee,
I know that our mere words can not remove the sorrow you feel in this time. If it were that simple... but, Our Abba Father - the BEST Daddy there ever is or will be.. HE CAN COMFORT YOU in this time. Rest in Him! Lean on Him! Adam - I DO see God's hand holding yours! He is WORTHY of ALL our Praise. Hold fast to Him in this storm.
Your precious little girl, Kayleigh and Stellan (MSC) - through them I have learned how to pray. God hears us all and we are flooding the gates of Heaven with our pleas for your beautiful angel and you two as well, and your other children.
Remember this - God knows exactly how you feel. He too wept! and weeps today with you! He WILL HOLD YOU THROUGH THIS ALL.
Praying without ceasing in Boise, Idaho.
Kelly and Jon

KellyGirl said...
This comment has been removed by the author.
Anonymous said...

cherish the moments you have with her.... hold them in your heart forever.

Anonymous said...

I continue to be speechless. Thank you for sharing your precious baby with the world! My heart is just swollen for your family. Peace and God's love to you. Still praying....

Melissa
McMinnville, OR

LisaShaw said...

May the GOD of all COMFORT, comfort each one of you on this painful and loving journey with precious Kayleigh. My heart aches with/for you. My prayers are with you.

Lovingly in Christ...

Orena Murray said...

Praying for you that God will be carrying you in his arms during this time...helping you to feel at peace with the decisions you are faced with...giving you the strength you need...praying for Kayleigh.

Laura Marchant said...

Tears...my prayers are with you. I can't believe this and I am so sorry. I am still hoping and praying for the best.

Penny said...

no words of wisdom just prayers and tears ...............

I am so glad you got some time to snooze along side your sweet baby.

Megan said...

I don't have any words, only prayers for you today. May you continue to cling to God and to each other during this most difficult time.

Megan

Anonymous said...

I'm still praying for a miracle!!

Anonymous said...

I poster earlier today and I just cannot get you guys off my mind. I am still hoping and praying for Kayleigh to have another miracle come thru. I pray that you are at peace and know that you are amazing parents.

All my love and blessings,

Elizabeth

Boston, MA

Andrea said...

I'm so sorry to read the latest news about Kayleigh. She truly is a miracle and has blessed many lives. I pray that Heavenly Father will continue to comfort you all during this time.

debbale said...

NO words can comfort you now. I am sorry for that but I pray that you continue to feel our Lords grace and His arms wrapped around you as you continue to face these hard times. I would like to to believe that Kayleigh is if not in heaven playing with the other children she is playing with her angels. Find comfort in our Lord and know he is with you. Praying......

Anonymous said...

Praying for Kayleigh's comfort and for God's love to surround your family.

Ellen said...

I hope you can take your beautiful girl home with you to spend time together as a family. As hard as this will be, I think this is very important. I'm giving you all the strenght you'll need.

Ellen from California

Anonymous said...

Adam and Aimee, I write this with tears streaming down my face. I have followed Sweet Kayleigh's blog for quite some time now and am amazed at how strong she has been and how strong you two have been. Your religious outlook on life is truly amazing. I am from the Later Day Saint (Mormon) faith and have realized that a lot of your beliefs are very similar to the Mormon faith. I would encourage you to take a look at the Mormon website which it lds.org. I pray for your Sweet family every single day and visit your blog multiple times a day to read updates and when there are no updates, to look at the cute, angelic pictures of little Kayleigh! I pray that your family will be given the strength and guidence you need to do what is best for Kayleigh that is in harmony with the Lord's plan for her. May you feel the Lord's comfort and love through this challenging time.
Love, Macy

Jen said...

I can't seem to find any words right now. Just know that we are praying for you constantly here in IL.

Sarah D. said...

Dear Freemans ~
I am so sorry this has happened. My heart aches for your sweet family!
God's timing is perfect ~ this may be Kayleigh's time to go home, but just know that she has touched more lives in her 10 months on this earth than many of us do in a lifetime! Her story will continue to be told, she will not be forgotten.
May God's loving arms surround you all at this time. I pray for strength & discernment for you. Thank you for sharing Kayleigh's story....Love & Prayers....

Anonymous said...

Praying for you in Long Beach, CA. You have done a beautiful job writing about your experience parenting Kaleigh. You are a wonderful mom and dad and have obviously loved your little girl beyond measure. It is a gift to all those who enter here. I hope that your wish to bring Kayleigh home comes true. It is a beautiful wish. Take Care.
Natalie

Mel said...

No words, just sorrow for you and sweet Miss Kayleigh.
Will continue to hold you and Kayleigh in my prayers and just so very sorry.
Still praying in OK, M

Mari said...

tears streaming as read your report this afternoon. kayleigh has been in our prayers and although we have never met in person we feel as if you and your family are dear dear friends going through this.

we have another dear family we have known for several years now who have been through a similar condition with their baby girl susannah joy. i would encourage you to contact nathan and melaine maxwell as they too struggled with decisions the doctors might bring to them, and god's taking care of it all for them. they also talked a lot about if susannah had already left for heaven. i felt god putting them on my heart to bring to you as i was typing. you can find the maxwell's on their blog at http://www.titus2.com/about.htm they are an another amazing family trusting in god for all things.

we are praying for you all as you enter into this new season with kayleigh. i am praying that god holds you close and you feel is love through your pain.

blessings, mrs. mari

The Pyrat Family said...

praying for peace that passes understanding, to you and your family in the days, weeks, months and years ahead.

God Bless you and keep you, Kayleigh!!!

Lindsay Dean said...

Our hearts are breaking for you. Please know that we are holding you close. Praying for strength in the days to come.
Blessings,
Suzie Dean

J. said...

Dear Freeman Family,

My family has been so blessed by your sweet angel and your wonderful family. Our hearts are broken for you and we are praying that your desire to bring your precious baby home will be answered. Kayleigh was such a fighter - perhaps she was showing you how to be strong if God decides that He wants the joy of Kayleigh with Him in His presence soon.

Kayleigh has been an amazing example for how precious life is - no matter how young, small, or ill - all life is amazing and can be used by the perfect God that created each one. Kayleigh has lived her life for her Creator - she has touched more lives in her tiny life than many touch in a long lifetime.

Be strong and lean on God. We will be praying.

Love,
The Peskirs

Anonymous said...

This is the first time I have read your blog (I linked to it from a Mckmama tweet). Having sat in a small hospital conference room 6 years ago with my husband debating the doctor's question of whether to terminate care for our 3 day old son, I desire to tell you that as we cried out to the Lord our answer came and the Lord took care of all the details, leaving us with no regrets or a feeling of misdirection. I realized that I had underestimated God's grace in the time leading up to our son's birth and death. May you know His comfort and expect His care and grace.

Natalie Bourque said...

I want ya'll to know that Kayleigh and your entire family's story has touched my life forever. God bless you and I pray that ya'll are able to bring her home to the comfort of ya'lls home.

Anonymous said...

I am so so sorry this is happening to you. No one should be faced with these types of decisions, in regards to their child. When I lost my 3 month old daughter last year, someone made us a shadow box with a quote that has brought me comfort and peace, and I hope it does for you as well. It says 'I'm holding God's hand now, and He says everything is OK. I can promise that no decision you make in regards to your daughter, with all the love you have for her, will be wrong. You will find peace in knowing that she knows how very very much you love her, and want the very best for her. You all are on my heart constantly, and in my prayers as well.

Tammy Lister
ntrlister@hotmail.com

Allison said...

Praying for you & your family from FL. My heart breaks for you & I pray that you can find the strength from each other & from God to remain strong through this unthinkably difficult time.

Cathy ~ Tadpoles and Teacups said...

Your words, your faith, and Kayleigh's story have impacted so many.
May the Lord provide everything you need for each moment in the coming days.
Heartfelt prayers for you all.

Cathy

Anonymous said...

Praying for you all and our sweet princess. Stay tough sweet girl we all love you!

Elaine said...

I am deeply saddened by the latest news on Kayleigh. God will give you the strenght to make the decisions you feel are right for your family. I am glad to hear you may be able to bring Kayleigh home so that she may be where she belongs for the remainder of her dear life,, with her family at home. Prayers and thoughts are with you and your family during this difficult time.
Elaine from MT

Anonymous said...

MUCH PEACE at this difficult time! from a loyal reader in the deep south.

RaChelle said...

I just recently learned of your family, and can't imagine the situation you are in. I am so sorry things have taken this turn. I truly hope your family can find some kind of peace in these next few days. Your family is in our thoughts, and I know this does help or even truly matter, but I wanted you to know that after reading your story,I look at my son with a new light,I loved him before, but now I feel I have more patience for the trivial things. I know I am just lucky to have him thanks to your story.
Please know you are being thought of all over the country, and Kayleigh will always have a small part in my heart.
-the Greaby family

Anonymous said...

I was just directed to this blog, and I must say that reading your journey has been incredible. The strength and insightful spiritual outlook that your family has is beyond words. I can't even fathom how hard and emotonally tolling this situation has been to go through, but your family has accepted Kaleigh's struggle as a miracle and a complete act of God, as it is. Everything happens for a reason, and Kaleigh has touched so many people in the short time she has been on this earth, by reminding us all of God's presence. You are amazing people. I will keep you and beautiful Kaleigh in my prayers.

Anonymous said...

I have been following Kayleigh's story for sometime now. I spent hours upon hours at work reading your story and have been so amazed on your little angels turn arounds. I went in for surgery last week and was unable to check up on you guys, I came back to work this morinng and was so shocked to see what has happened over the past week. I am so sorry for the pain that you Amiee and Adam are going thru as well as the rest of your families. Just know that there are millions of people out there that are praying for you and that amazing, beautiful, strong little girl of yours. You will be in my prayers. Kiss her a hundred times and keep talking to her, she hears you!

God Bless you and Kayleigh!!!

Lovers said...

What a lucky girl Kayleigh is to have you two for parents! She chose you to be her's for a reason and I can see why. I'm glad to hear that you will all finally be home as a family of 5.

Thank you for sharing Kayleigh's story

Anonymous said...

Praying for you in Victoria, Texas

The Brown's

Brenda Neff said...

Sending your precious little girl into God's hands in Heaven in the most difficult thing you will ever do in life. I've been there and know. Just know that sharing your miracle with the world has blessed many people. Thank you for sharing your journey. I will pray for strength for you and your family during this difficult time.

Anonymous said...

My heart is broken for your family. I am crushed and I can't even fathom how you guys are feeling right now. Kayleigh is such a fighter, I am praying a miracle happens. She WILL pull through. She is such an amazing and strong baby. She has gone through SO much. More than most people will in a lifetime.
It is just heartbreaking, and I pray for you constantly.
I hope that you guys know just how many lives you have touched, how much your beautiful Kayleigh means to so many.

Jenna said...

I wish words could ease what emotions I could only imagine right now. Please know so many are praying and thinking of you all right now. Kayleigh is such a beautiful little girl who has touched us all!

Anonymous said...

Adam and Aimee,

You don't know me, in fact I just stumbled across your blog tonight for the very first time. Of course your story touched me, as it has so many across the globe. You have an absolutely beautiful little girl, and you two are truly an inspiration about what it means to be a selfless parent, and to walk in the path of the Lord. I know that your hearts are so troubled at this difficult time, and as a level III NICU nurse for the last five years, I have seen too many families struggle with similar circumstances. I pray for you two to have peace in your hearts, that God will guide your decisions, and give you the strength to persevere whatever the outcome. Find strength in your family and in your love for each other. Kayleigh has touched more lives than you will ever know. What a blessing she is.

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