I really did not want to let him write for us because every single one of you have helped us out so much before. Whether you prayed for us, donated your hard earned money or supported us with your love, we are forever grateful. In just one full day, you all have helped lift such a huge burden off of our backs. Dealing with Kayleigh's situation is one of the hardest thing any parent should have to go through, so thank you to every single one of you for helping take our minds off of our financial stressors so we can focus on Kayleigh who needs all of our positive thoughts. We are SO VERY THANKFUL!!!
Please understand that we would love to share with everyone how much was donated, but several people made a very good point, mentioning an amount can cause possible security issues and we would rather protect our family from any possible criminal activity. Unfortunately, this has already happened in the past. That is also why we are going to post a PO Box soon for those of you who asked for our address. Worrying about
Kayleigh looked so beautiful today, but doesn't she everyday? More of her swelling from the surgery has gone down and she seems to be in a more comfortable state than she has lately. There are very few cries of pain or discomfort and her rapid breathing has ceased for the most part. She was awake today while we held her and even though her eyes are distant, they weren't being pulled in direction that seemed noticeable. She looks straight forward, which made us feel almost as if she was looking at us. To clear some confusion up, she has no cerebral cortex brain functions, but still has brain stem functions. This allows her to breath, heart to beat, to move without purpose, and unfortunately cry/feel pain. She doesn't understand anything, won't learn, talk, comprehend anything she she sees or hears, and will never have purposeful movements.
We were able to speak with the doctors and share our plans with them. We plan to care for Kayleigh in the NICU until she is able to come home, just as if she was normal and had no brain injury. There were questions of whether or not we bring her home with normal nursing care of palliative care. We plan to bring her home on normal nursing care, so we take our time to live as a family before we decide to say good-bye. God is almighty and we will continue to pray He lays His hands on her to create a miracle, so no quick and rash decisions will be made. We will listen to our Lord and decide when that time is right.
So we are happy to continue to share the journey of Kayleigh's triumphant road home like every single one of us planned for so long. Just because Kayleigh's brain is not working the right way, doesn't mean she is not looking down on us with pure joy that we are able to follow through with the plans we always dreamed of. We know she is rejoicing in this moment with us and is happily smiling from a better place. She is our precious daughter, miracle and gift from God, and we will not let anything get in the way of our dreams and wishes.
Thank you all from the bottom of our hearts for the love and support you have given us. Please pray Kayleigh continues to progress with her feedings and everything else, so she can come home sooner than later. That day is still going to be one of the most glorious days of our lives because we still remember everyone telling us she will never make it that far.
We can't wait to hold her here in peace and quiet. We can't wait to see the sunlight dance across her face. We can't wait to see the wind blow in her
God Bless you all and God Bless our sweet little Kayleigh,
252 comments:
«Oldest ‹Older 201 – 252 of 252May I suggest a book about a family who loved and raised a beautiful daughter who was born without a brain. Only her brain stem. One Tattered Angel by Blaine Yorgason. They know exactly what you are going thru. Charity lived to be alomost 10 I beleive.
Still praying in AZ for a mirracle. It's amazing how many hearts your little Kayleigh has touched. The Freemans are very blessed. ((hugs))
~AZ Mommy
I have no words except that I am praying for you. I feel like we have all come to know you and Kayleigh and we love you guys. My heart hurts for you.
Kayleigh is just so cute, and in looking at the pictures with her and her mommy, you'd never know that her little brain is injured so badly. I'm praying for her (and both of you) all day long...for a wondrous miracle, for peace, for strength, for understanding...God bless you all today.
God bless you all. I can not wait til you get to take her home.
Please remember, the human brain is AMAZING. People who have been in comas for years, supposively brain dead, have waken up, because the brain has the power to rewire itself.
One of my friends in college cracked his skull open after falling 2 stories off of a roof, and damaged his frontal cortex. They told his parents he would never be able to learn or speak again.
We were in school for Computer Programming. He wen't from being unable to do anything to computer programming. Do not believe everything a doctor tells you.
We send our love to you and your family, and continue to Pray for your Baby Miracle, Kayleigh.
God Bless you.
Jessica, Damien and Bobby D Cameron
Praying everyday...
She is absolutely beautiful. I will keep you in my prayers and thoughts....
"For You formed my inward parts; You covered me in my mother's womb. I will praise You for I am fearfully and wondrfully made; Marvelous are Your works, And that my soul knows very well. My frame was not hidden from You. when I was made in secret, And skillfully wrought in the lowest parts of the earth. Your eyes saw my substance, being yet unformed. And in Your book they all were written, the days fashioned for me, when as yet there were none of them." Psalm 193 13-16
I praise the Lord for little Kayleigh and trust that He has her in His hands. I am praying that He will strengthen and continue to sustain you as you care for Kayleigh, providing for your every need. I pray that you will be able to bring her home soon and that the Lord will direct your steps.
In Christ's love,
Lynn
Elk Grove, CA
She is so precious. You are all in my constant thoughts and prayers.
Your words touch my heart so deeply. Little Kayleigh is just beautiful and not a day goes by that I don't pray for her.
Big hugz,
Michele
Happy to see beautiful pictures of Kayleigh and Aimee. Also, thanks for the updates on Kayleigh. Still in shock and saddened by the new situation.
I'm so glad that the money burden could be helped, even just a little. I understand why you wouldn't want to list specifics about money. Would you be able to tell us some of the ways that the money is helping you. ) IE, we can now continue to pay for kayleighs insurance, and/or save our car(s), or we will be able to save the house.) This may help readers know how much more need you have and possibly let us know if you need more. And also let readers know how they've been able to help.
Enough about that, I know that we are all just glad to hear updates about Kayleigh and your family! Continuing to pray for you ALL! Hugs, The Gilbreaths!
Still as beautiful as ever! Praying for your sweet Kayleigh.
A Child Of Mine
Edgar Guest
I will lend you, for a little time,
A child of mine, He said.
For you to love the while she lives, And mourn for when she is dead. It may be six or seven years,
Or twenty-two or three. But will you, till I call her back, Take care of her for Me?
She'll bring her charms to gladden you, And should her stay be brief.
You'll have her lovely memories, As solace for your grief.
I cannot promise she will stay, Since all from earth return. But there are lessons taught down there, I want this child to learn.
I've looked the wide world over,
In search for teachers true. And from the throngs that crowd life's lanes,I have selected you.
Now will you give her all your love, Nor think the labour vain.
Nor hate me when I come To take her home again? I fancied that I heard them say, 'Dear Lord, Thy will be done!' For all the joys Thy child shall bring, The risk of grief we'll run. We'll shelter her with tenderness, We'll love her while we may,And for the happiness we've known, Forever grateful stay.
But should the angels call for her,
Much sooner than we've planned.
We'll brave the bitter grief that comes, And try to understand.
Prayers for Kayleigh's home coming!
Keeping you and your beautiful girl in my thoughts and prayers. May God bless you and your family.
Adam & Aimee,
Dont give up hope or faith, and give kayleigh all the love from us...we lover her a ton praying for a miracle.
You guys aer so strong..Once again I can not wait to get home to check and see if any new post, news, has taken place. I think of her so often..like she was one of my own.
She will always be a miracle...Mother's Day is sneeking upon us and maybe that day she can be at home and Aimee can hold her all day long.
Love and hugs to you all
Donna Carver
Still praying for a miracle for little Kayleigh!
Praying in Mesa, AZ!
I am new to your blog but my heart so goes out to your family! I will be praying and checking in...
God be with you all, may His peace & presence, love, comfort, hope, and healing abound.
April
What a precious, beautiful girl! Kayleigh is living out God's amazing purpose for her here on this earth so beautifully. Thank you for allowing Him to use your family to touch so many others for His kingdom. I am still praying without ceasing in great anticipation for all that He has planned for her.
Love, Olivia (in CA)
Keep your faith in God. God has a purpose for everything. Maybe He is using Kayleigh to show the doctors His power.
I love Kayleigh's peach fuzz! I want a bracelet but google isn't letting me order one. =( My family and friends are still praying for you, and will continue to do so for as long as you need us to. My 5 year old still asks about her every day. Seeing her pictures and hearing your story brings back memories of my baby brother. I'm so glad that you've had 10 months with your little beauty. She's so precious. Still praying for a miracle in Camp Lejeune, North Carolina!!!
It is no ones business how much money is donated - protect your family and don't worry about that part. I pray that it will be enough to help with any finacial need. I pray for God's will for Kayleigh and your family.
Praying for Kayleigh and your entire family!!
We're praying for you all and for Kayleigh's continuing miracle from God!
May the Lord give you strength...it seems like he already has from the beautiful pictures of Mommy and baby...prayers every day. Love, Tamara
I'm so very sorry.
I was here, in this situation last year. My daughter's time with us towards the end was so incredibly precious.
Please contact Now I Lay Me Down To Sleep. The Australian version of this group came and took some precious photos of us with our baby girl. They bring a comfort I cannot describe.
I wish you all strength and peace in the oncoming days.
We received some extra $$ today and I just donated it to the Freeman's. This makes my 3rd donation---3x the charm!
Thank you for sharing your post and your lives.
If she can feel pain, cannot she also feel warmth and comfort?
Please do not decide that she is dead when you just cannot know for sure what is going on inside her mind or that she does not have one. Doctors often are not the best ones to make judgment calls like this.
I suggest you contact Jimmy at jimmyakin.org, who has a brilliant mind for these situations.
This is heartbreaking. I am grateful that you want to do the right thing. God bless.
I just can't seem to stop thinking of you guys and praying for that miracle. She does look so peaceful and beautiful as ever. You have so many people, across the world, always thinking of you guys and Kayleigh. Your whole family is some of the strongest I have ever heard of.
We continue to pray for Kayleigh, God gives her breath, so God gives her purpose. She has done more in 10 months than most do in a lifetime, what a blessing! I still pray for a miracle and that the amazing love and joy as a family, together at home, will spark something. If not, God has another purpose. I wish you the best in all of life, God bless your family.
She is still the most beautiful little miracle I've ever seen!
Praying for you all.
God bless you all.
Em
from Australia
Praying for you all.
God bless you all.
Em
from Australia
I am still praying for your beautiful baby. I can't wait for you all to just have her home and just 'be'.
Sweet, sweet baby girl, you have touched my heart and millions of others for the better. You are loved immeasurably here on Earth, and even more so up in heaven. You are one of God's most precious gifts. I am praying for you and your family.
The pictures are so touching and beautiful. I truly believe Kayleigh is still with us, she just isn't able to respond anymore, but i believe she can hear her Mommy and Daddys voices. We trust in God, and He caused the lame to walk again, opened the blinded eyes,raised the dead, and i have great hope and faith that He can give Little Kayleigh the miracle she needs. Please Please don't give up yet, Dr.s can be wrong, they are very wise, but God is in control. I don't want to sound angry or anything else of that nature, that is not my intentions, but if we believe, then let's believe that God is in control, and it is left up to Him and keep close to God in prayer and pray for a miracle for Kayleigh. I know it is hard to stay strong all the time, but we have to try to for Kayleigh. We love her very much, she has really touched my heart and made me check myself as to where i should be more (in prayer). I also am praying for Kayleigh's grandparents,(been on my mind too) they have to be hurting deeply too, for their children and their precious Kayleigh. Our grandchildren seem like ours too, so Adam and Aimee, i am on my knees more because of your beautiful little angel, and i keep your family on my heart. My prayer is for all of you, may God bless your family and have a miracle for Kayleigh. Please Dear God, touch Kayleigh and renew her health and little body.
Oh my. she is just so beautiful. we are praying for all of you. The last paragraph just made me bawl. Thank you again for sharing Kayleighs journey with us. We are so thankful and feel so blessed to be a part of it.
Sarah,Chris,Helaina and Ava J.
Hi Freeman family - I've never met you and I'm new to your story, but I have been weeping and praying with you for the past week. I felt my heart break to hear your news, and I admire you for handling things with such grace and love.
God has been putting some words on my heart - I'm sure you've thought them before, but maybe they'll be an encouragement to hear again? I feel a burden to write to you.
Jesus' ministry was often focused on those who were on the outside of society, who didn't fit in in some way - the people who were hurting or ill or different. Jesus came to reach out to those whom society doesn't understand and even those who cannot express themselves (think those suffering from demons and the like in the gospels). When I think of your sweet Kayleigh, I think of Jesus' concern for those who are the most vulnerable, and I know that he is holding her in the palm of his hand.
I also think of Jesus' ministry with children, how he put an infant (that's the meaning of the Greek word in Luke) in the middle of his disciples and lifted up the infant as a model of the kingdom of God. That infant - who is completely dependent on God, who cannot do anything to earn God's love and favor - that infant is able to teach us wayward adults about the kingdom of God and the unconditional love of God and what's important to God. I again think of your sweet Kayleigh, and the lives that have been changed by her story, and the lives that God will continue to change through her legacy and your honest sharing. God has a beautiful purpose and a mission for Kayleigh's life, as brutally painful as it must be right now. I pray now for her mission and legacy.
I cannot imagine your pain - sometimes it almost feels like I can imagine it for a split second, and then I cannot imagine how it must be to live with that sadness every minute. However, through my encounter with Kayleigh's story, I have found my own faith strengthened and my love for my family revitalized.
Remember...when we sinful humans decide what is "normal" or "best," we often miss God's best...I'm not at all trying to say that Kayleigh's situation is God's best, though I am trying to encourage you to keep remembering, if possible, that God's will is often painful and seems illogical (the cross?!), but that there is resurrection and hope that can come from such trials. But, while you're in the valley, many thousands of people pray for you.
Thank you for your boldness in sharing your story and your beautiful daughter. God sees her as a perfect creation, just as He sees all of us, turning our brokenness into a beautiful mosaic -- and we're all broken/not whole, some of us just hide it better than others.
I read a quote while preparing for a sermon on Maundy Thursday (the observance of the day before Jesus was crucified), and it struck me powerfully then and is haunting me now with regards to your little Kayleigh. It goes like this:
"What happens tomorrow looks like the end. It is really the beginning. Even now, the shadows are infused with light."
I have been praying for you guys, daily. I can not imagine what you are going through or the days that you face ahead of you. I know that you will lean on your Faith and allow God to lead the way through all of this. Just know that we are praying for you!
I hope for the best for your family; I pray that things go as He intends! May there always be comfort in knowing how much He loves and that He is holding Kayleigh in His heart as we all are.
I am a lost for words. She is just beautiful!!!! My heart aches for you.
Just remember how many lives she and you have touched! She is truly a blessing!
(((())))
Although I've only been following your blog for a few weeks now, Kayleigh has truly touched my heart. Your journey in the NICU reminds me so much of ours.
Our little girl was a 23 wkr and spent over 6 months in the NICU. She has multiple special needs, but fought through many, many days when we thought she wouldn't make it. She is a blessing.
I will be praying for your family during this most difficult yet joyful time of bringing Kayleigh home. Praying for a miracle, for God's hand to be on you for guidance and comfort. I hope your whole family has plenty of time to cuddle Kayleigh and to create memories you will have forever.
Hurting for you,
Patty
Your family is so close in my thoughts today. I pray for a restful night for Kayleigh and peace in her sleep. And may God give both of you sleep and strength for another day. My thoughts are with you.
I am continuing my prayers for you guys. And for peace in knowing what decisions you make are the right ones when you are ready. Kayleigh has touched my life in ways I couldn't imagine. I pray you get to take her home and snuggle next to her, there isn't a better feeling in the whole world then cuddling your precious gift in your arms in peace. May God bless you and your family
She still looks adorable as always :) You & Aimee have truely been blessed in caring for one of God's Children for whoever long she will be with you. My prayers continue to be with your family as you plan for the homecoming of your lil baby girl :) Hope to SEE photos from HOME soon!!!
Blessings & Love,
~Joni In MN
My heart goes out to you and your family. I am praying that God gives Kayleigh a miracle! God bless!
HA HA shooting an intruder! That was great :)
praying, praying, praying. kayleigh is such a beautiful little girl and will always hold a place in the hearts of those who love and cherish her (and there are so many who do)! my heart is truly breaking for you guys and i am so deeply sorry. just want to give you all a huge hug and i wish things were different- you are enduring the hardest path a parent can ever walk. stay strong and enjoy your days with her.
Faith is believing what you can not see.
I believe he parted the sea, even though I did not see it. I believe he raised the dead. I believe he fed the multitudes with two fish and five loaves of bread. I believe Kayleigh is still here even though I can no longer see her sweet little soul.
Kayleigh taught me to believe--the last time we thought there was no hope. Kayleigh taught me to believe, and I won't give up on believing that she will recover. If he can raise the dead then surely there is hope for Kayleigh.
He is almighty.
BELIEVE with me.
I pray daily for his will to be done in your lives, but I believe that he will heal her.
Much love from Moyock
So sorry and so frustrated for you. Cannot begin to imagine you pain.
I love the 2nd to last picture; she is smiling!!
You will surely be rewarded for your love and the way you are living your faith. All life is precious and so is Kayleigh. God is using her for his good and many people will know him, because of her. We will continue to pray for you, Kayleigh and for God to show us all his wonderful plan.
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