5/9/09 - Every Step Of The Way
Well, today didn't go as planned. We were hoping for another glorious visit with tons of photos and a lot of great moments, but unfortunately, Kayleigh was not feeling too great.
We are not sure if Kayleigh is not feeling well because of the weaning of her Flolan or if this is neurological problems. Last night's head measurement showed Kayleigh's head has swelled even more than the previous three nights (which showed no more swelling). She has been bearing down and turning red, with the occasional fast, heavy breathing that drops her sats a little.
Our fear is that Kayleigh may be experiencing some irritability and that is the last thing we want her to deal with, but if this is just caused by the weaning of her Flolan medication, then we should see some signs of improvement very soon as the doctors are currently taking action with the speed of the weaning process.
If this is neurological and may cause Kayleigh to be irritable or uncomfortable, we would have no choice but to let Kayleigh go in peace as this is God telling us it is time. We want to do what is best for Kayleigh and our family, and to make our decisions based out of faith and love, so we feel at peace with making the right decision. God has proven before and can still create a miracle at anytime. Listening to Him is the most important decision right now.
With hard days like these and even harder ones to come, there seems to be one or two people who brighten up our bad days with a smile. Or should I say in this case, it was a shout of laughter. Eva Fuller sent this awesome video over for Aimee and you all need to check it out: CLICK HERE
Here is some exciting news!!! If you have been with us for a while, you would have seen a post that I wrote about being on a television show that was quickly taken down. Well, it was taken down for secretive reasons by the producers, but now it is free rain to talk about it.
Wednesday, May 13th in the afternoon, "The Doctors" will be airing a full special on our family and the journey we have endured with Kayleigh in these unfortunate times, facing this horrible market we live in. It was more than a pleasure shooting here in Charlotte for the show, meeting some famous people while making the best out of our very quick (1 day) visit to Hollywood to shoot on the set. Check your TV Guide and make sure you set your TV to record it. Click here to see the preview for our show: The Doctors
Extra Extra, Read all about it!!! For all of you Charlotteans, Mark Washburn is writing a column about us tomorrow (Saturday) in the Charlotte Observer.
Many of you have been e-mailing me, asking if they can still get Kayleigh bracelets and I finally fixed the link over to the right. I apologize for not fixing it sooner, but I honestly didn't have the time to package and ship out boxes on my own with everything going on, so I just left it broken, sorry.
Soooo....a good friend, Rachel, decided to help us out with the bracelets and is going to be doing all the orders, packaging and shipping. God Bless Her!!! The proceeds are going to create an unbelievable scrap book filled with the photos you send in, page decorations, and a note if you wish to write one. Yes, you need to take a photo of you and your family wearing your bracelets and send it to me at (Adam@TeamFreemanProperties.com) so we can add it to the scrapbook. This will be special for us to have forever, to always remember all the wonderful people who supported us and prayed for us through this journey.
Look over to the right on the tool bar to get your Kayleigh bracelet.
Even with the sadness amongst us, God is continuing to help us share Kayleigh's story with the world. Whether it is on this blog, on television, newspapers, or even with sharing your bracelet stories, everyone needs to be filled with the faith, hope and love that our Lord has blessed us with. Our goal from the beginning was the help others with our story. We are doing it full force and we will continue to do this for the rest of our lives. We hope you are with us every step of the way.