5/9/09 - Every Step Of The Way





Well, today didn't go as planned. We were hoping for another glorious visit with tons of photos and a lot of great moments, but unfortunately, Kayleigh was not feeling too great.

We are not sure if Kayleigh is not feeling well because of the weaning of her Flolan or if this is neurological problems. Last night's head measurement showed Kayleigh's head has swelled even more than the previous three nights (which showed no more swelling). She has been bearing down and turning red, with the occasional fast, heavy breathing that drops her sats a little.

Our fear is that Kayleigh may be experiencing some irritability and that is the last thing we want her to deal with, but if this is just caused by the weaning of her Flolan medication, then we should see some signs of improvement very soon as the doctors are currently taking action with the speed of the weaning process.

If this is neurological and may cause Kayleigh to be irritable or uncomfortable, we would have no choice but to let Kayleigh go in peace as this is God telling us it is time. We want to do what is best for Kayleigh and our family, and to make our decisions based out of faith and love, so we feel at peace with making the right decision. God has proven before and can still create a miracle at anytime. Listening to Him is the most important decision right now.


With hard days like these and even harder ones to come, there seems to be one or two people who brighten up our bad days with a smile. Or should I say in this case, it was a shout of laughter. Eva Fuller sent this awesome video over for Aimee and you all need to check it out: CLICK HERE


Here is some exciting news!!! If you have been with us for a while, you would have seen a post that I wrote about being on a television show that was quickly taken down. Well, it was taken down for secretive reasons by the producers, but now it is free rain to talk about it.

Wednesday, May 13th in the afternoon, "The Doctors" will be airing a full special on our family and the journey we have endured with Kayleigh in these unfortunate times, facing this horrible market we live in. It was more than a pleasure shooting here in Charlotte for the show, meeting some famous people while making the best out of our very quick (1 day) visit to Hollywood to shoot on the set. Check your TV Guide and make sure you set your TV to record it. Click here to see the preview for our show: The Doctors


Extra Extra, Read all about it!!! For all of you Charlotteans, Mark Washburn is writing a column about us tomorrow (Saturday) in the Charlotte Observer.


Many of you have been e-mailing me, asking if they can still get Kayleigh bracelets and I finally fixed the link over to the right. I apologize for not fixing it sooner, but I honestly didn't have the time to package and ship out boxes on my own with everything going on, so I just left it broken, sorry.

Soooo....a good friend, Rachel, decided to help us out with the bracelets and is going to be doing all the orders, packaging and shipping. God Bless Her!!! The proceeds are going to create an unbelievable scrap book filled with the photos you send in, page decorations, and a note if you wish to write one. Yes, you need to take a photo of you and your family wearing your bracelets and send it to me at (Adam@TeamFreemanProperties.com) so we can add it to the scrapbook. This will be special for us to have forever, to always remember all the wonderful people who supported us and prayed for us through this journey.

Look over to the right on the tool bar to get your Kayleigh bracelet.

Even with the sadness amongst us, God is continuing to help us share Kayleigh's story with the world. Whether it is on this blog, on television, newspapers, or even with sharing your bracelet stories, everyone needs to be filled with the faith, hope and love that our Lord has blessed us with. Our goal from the beginning was the help others with our story. We are doing it full force and we will continue to do this for the rest of our lives. We hope you are with us every step of the way.

God Bless,

144 comments:

* April's Mom * said...

Praying hard for your sweet family... And your sweet girl. And I LOVE the Doctors. How awesome!

Praying,
B

Mama Notes said...

I'm so sorry. Praying for you guys as always as you have hard decisions to make. can't wait to watch you on TV!

Anonymous said...

I'm so excited to see the Doctors! I'll be praying extra hard for Kayleigh to feel better.. =(
You guys continue to amaze with your strength!!

LinMarie

Anonymous said...

Sweet Kayleigh...I am so sorry you didn't get to spend your day relaxing with Mommy and Daddy.

Aimee and Adam, we are still praying for a miracle and cannot imagine what you are going through. She is just so beautiful and honestly reminds me of my 5 month old. I just pray HE heals her little brain and lets her come home with you soon.

love to you all

Massey Family said...

I continue to pray for your family every night. I can't wait to see you and Aimee on the Doctors. Take care:)
The Massey's

C said...

Praying super hard for Kayleigh, too. Your baby girl has touched my heart so deeply...
Thank you for making me slow down and enjoy my baby and not take her for granted!
Wonderful news on the tv spot
Peace and miracles be with you.

In my thought and heart,
C

Anonymous said...

God Bless you and your family! Your strength is AMAZING. Thank you for being an inspiration and sharing your story with so many people. I have been praying for you and will continue. Kayleigh is so beautiful.
Thinking and praying for you from Wisconsin,
Jennie

Analiza said...

What ever the next step is, know that we are right behind you 100% of the way.

We love you Kayleigh girl!

J said...

Thank you once again for sharing your amazing and inspiring story. You have touched my life and many others that I have told about your story. Kayleigh along with the rest of your family are always in my prayers. I love the faith you have in God and his plan. It is because of you that I have started praying again each and every day and my life has been greatly blessed since doing so. Words can't describe how glad I am that I somehow found your blog, your family has truly touched my life.

Love from West Jordan, Utah

Catherine said...

My prayers are with you all! I had to smile at the outfit Kayleigh has on. Its just adorable! :)

Tiffany said...

we are praying for you sweet Kayleigh and your family.
Tiffany in TN

Praying for KayleighAnne said...

amazing! when did you film the DOCTORS show? how exciting!
make sure you give them your website link on all tv shows or newspaper articles to that more people can come here and donate to you!

QUESTION:
Why does Kayleigh have to be weaned off Flolan to come home? I thought you would have 24 hr nurses anyway that could manage the Flolan line. Did that change? Please let us know.

Jason said...

Praying for you bro. I pray your little girl would rest easy tonight and God's peace would find her and your family.

-The Gore's

Kristin said...

Glad I get to see you guys on TV...I love that show. Hope Kayleigh gets to feeling better.

Veda's Mommy said...

May God continue to bless your family during this unfortunate time. Many prayers for your family.

wicker0407 said...

Kayleigh will be forever in my heart and my life will forver be changed because of her. Today for my son's Mother's Day celebration at school we read "Love you Forever" I read this book often to both my kids and I think all our blog family would agree the words ring so true for our baby Kayleigh as well. "I'll love you forever, I'll like you for always, As long as I'm living my baby you'll be."
We love you Freeman Family you will always be in our thoughts. I will continue praying for a miracle as with God anything is possible.
Summer in California

thegilbreathfam said...

Praying for sweet little Kayleigh. May her sweet little body feel no more pain. She has endured so much. May your family have peace reguarding what is right for Kayleigh and bless that the Lord carry you all (like in the poem "footprints in the sand" )through which ever path that may be.
With love, The Gilbreaths

Stephanie Scales said...

Oh how you have touched my heart in such a way..it is simply amazing lil Kayleigh. May God bless you precious angel, and should he choose to take you in these next few days, may he give you the bightest set of wings for the angelic work you have done here on earth.
We still pray for strength and persaverance for your mommy and daddy and siblings, and we pray pray that the lord will heal your tiny body and allow you to go home to be a family.

Jennifer said...

Praying for you all during this time.

mommy to Kaden, Brody and angel Ava said...

You all continue to be in my prayers.

Kayleigh, baby girl...
You are absolutely beautiful. I feel blessed to have found your blog and lucky to be one of your many fans. You hold a special place in my heart. You and your family have taught many many people the power of love on so many different levels. When I see your beautiful pictures I can't help but want to hold you and hug you, who would want to do that...your adorable. You are one tough cookie and I (along with so many others...especially your mommy and daddy) are so proud of you and the strength you have. I hope that you are feeling alright and that you feel no pain...as a mommy with two babies who have been through rough, rough times I know how hard it is to see. I just want to let you know that I think you are perfect!!!

Again, you all continue to be in my thoughts. Have a great night baby girl. Sweet dreams.

Amy

Anonymous said...

i am continuing to pray for Kayleigh and the rest of your family. your story has been such an inspiration...your strength is amazing.

jan tompkins said...

Praise God for his gifts. Can't wait to see and hear your beautiful story. Good Luck from SC

Stacey said...

Praying for all of you to feel some peace tonight and have a better tomorrow. God bless you all.
Stacey

mtva said...

I continue to pray for Kayleigh and I am so sorry you did not have the day you wished for. The pictures of her are just so precious. I love the close up one, look at those eye lashes and the adorable little nose. Thank you for fixing the bracelet button, I ordered three more. :)

Tracy

Amie said...

With you from Oregon. From our family to yours we are in prayer continuely. We can't even match the pain and heartache that you are going through right now. I am so amazed at your strength and courage. May the peace of sweet Jesus carry you through this Journey. I never had said this before but your difficulty is bringing good out of this. For a loong time my husband and I had been away from God after suffering some severe complications with the birth of our third child. We walked away from church and God. When I first found out about Kayleigh in October I started sharing your family with my husband. We began to pray together and we also slowly began to start to trust again. We went to church for the first time in a long time. God is, and going to continue to use you. Thank You
God bless you,
Amie and Juan

Melody said...

What a precious angel she is, and we love her dearly. I pray that God continues to give you peace in the coming days with what decisions to make and when to step back. I imagine on top of the incredible difficulty of facing losing your daughter, it's also tough to open yourself up so vulnerably- knowing that there may be those who will criticize. I am so appreciative that you constantly let us in and allow us to share Kayleigh with you. Always praying!!

Tamara aka Cheapskate Mom said...

Praying for Kayleigh. Praying for you and your family. It was hard for me to wrap my mind around the words you typed tonight about possibly letting Kayleigh go peacefully to Heaven. I had a hard time reading that. I can't imagine being in your shoes. I can't imagine having to decide if my baby was in pain and there was no saving her to have to make such a hard choice. I pray that if it is God's will to take Kayleigh (which I hold out hope it is not yet!) Then if it is His will I pray He allows her to come to Him on her own so you don't have to make such a decision. I pray that she is not in pain and that it is the weaning of the meds that is making her react that way. I pray so hard that you get to take your baby out in the sun and lay her in the grass. Such little things I take for granted with my children on any given day. You have taught me to let them wiggle their toes in the grass and soak up the sun when it is shining. I am praying so hard for little Kayleigh to feel the sun in your arms.

God bless you and your family.

Tamara

The McGuire Family said...

I am sad and excited of you news tonight. We are praying, as always, for a miracle, but even more so for God's will, for He knows what is best. May God bless your family with peace, comfort, and love, no matter his calling for Kayleighs life. We will continue to pray that some how, some way, sweet Kayleigh makes it home soon. We love you.
The McGuire Family

Kelli said...

Thinking of you every day. I greatly admire your strength and pray for God's perfect will to be done for sweet Kayleigh.

Natalie said...

This is just so sad. I really am at a loss for words.

I pray that God comforts you through all this and I'm still praying for a miracle!

Winter said...

My family and I will continue to pray for ya'll! It is amazing how God can open up so many doors, to be able to share His love to others! I believe being on Doctors, is one of those doors! We'll be watching!
God Bless Ya'll!

Jessica said...

I was thinking about you guys today as I was uploading some pictures of my primary baby in the NICU to send off to his parents. They too are following Kayleigh's story, and pray for you every day.

As previous commenter just stated - howcome you are trying to her off of the Flolan? She was going to come home on it anyway before all this other stuff happened... why the change? Just wondering...

Jessica said...

(I'm also setting my DVR for the show now so I won't forget!)

Linda said...

Oraying for you all the way from South Africa!

Sue said...

You guys are amazing with your strength. You totally inspire me!!!

Sue

Cherilynn from British Columbia said...

Oh I'm so excited that Kayleigh is going to be on the doctors! What a blessing for God to allow you to reach such a large audience to tell her story! I will be watching for sure!

- Cherilynn

cathy said...

i continue to pray for kayleigh and your family...

Joylynn said...

Just ordered a bracelet! :-D

I am just so heartsick at what this poor baby has gone through! For those of you who do not know, a Blood Gas is EXTREMELY painful.. for an adult. So, just imagine what it must be like for Kayleigh! And to have had over 200!!! Grown men even cry over a blood gas sometimes! She is so teeny tiny, it just kills me to think of the pain this poor baby has endured! And as a mother, it kills my heart to know the pain you have endured, watching it done to her.

You are an amazing family!! I know you probably now here that about a thousand times a day, but it is SO incredibly true!!!! We are behind you 110%! ;-) We love you and we are lifting you up to the Father.

~* Kayleigh~ precious child of God.. may the arms of Jesus remain around you for all eternity. While you are sleeping, or with Mommy and Daddy. May you feel His love shelter and surround you. You are beautiful and special and absolutely WONDERFUL. I have never seen you in person, or held you.. but I love you. Babies are the most precious and gentle gift from God, and you are one of His most special. My prayers are with you, sweet little One. *~

Sarah said...

I don't get the time to comment like I used to, but I'm still reading and praying. You guys are on the top of our church prayer list and whenever you pop in my head throughout the day I say a prayer for you guys...which is very often. You guys have become an inspiration to me...if you guys can have the faith that you have with what you are going through, I should have no problem! God really is able to bring you through the darkest of times and I forget that so easily. Thank you for sharing Kayleigh's story with us. I'm still praying for that miracle and hoping that we get another miracle post of her coming home HEALED!

Jewelz said...

♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡♥❤♡♥❤♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♡♥❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡❤♥♡♥♡
That's all I can find to send you
He❤rts full of love and prayers!
May HIS love carry you through this journey.
Jewelz

Belle's Blog said...

Praying for you all ! Praying for Kayleigh to not be in pain also.

Lacy's Family said...

Always here for Kayleigh in prayer 100%. She is a beautiful and amazing little blessing from God. Feel comfort in the knowledge that God is holding her through all this and even though her body may suffer at times, her spirit certainly is not.

Hope said...

Still praying for a miracle. ((Hugs)) to you and Aimee.

Ang said...

praying for your sweet baby girl!

Kim Harrill said...

I am so sorry to hear your news this morning. Hoping for the best and continuing to pray har for a miracle. Little Kayleigh is absolutely beautiful. She looks like a little angel. Godd bless Kayleigh and the Freeman family.

Kim from Omaha, NE

KarenK. said...

I SO feel for you. Could the aggitation & irritability be a sign her brain is re-wiring and not a bad problem? As a mom of a daughter of a re-wired brain, you never know what is going on in the nerve regeneration department. God works miracles!
Karen

Lindsey barham said...

Freeman's:
This has made me sad this morning. I was hoping to see a great update and wonderful pics of the whole day you got to spend with sweet Kayleigh. She still looks peaceful in the above two photos. Lord we do continue to pray for you to be merciful on little Kayleigh and keep her comfortable and let your will be done in her life. As well I will never give up praying for a miracle to happen. Baby girl just rest and try and stay strong. Adam and Aimee words can never say how much for family means to me and continues to amaze me daily with your strong faith. I hope Brandon and Allyson are doing well. I just don't knwo what to say I am sad. I am happy and can still see God continues to open doors to share Kayleigh and her story. Thank you Lord. We love you guys and hopefully good news will come on precious Kayleigh today.

Stephanie said...

Praying!!!! Glad you got the show worked out..can't wait to watch it!!!!!

Michele said...

Your family has been blessed 1000x over. Look at everything as a whole, if it wasnt for Kayleigh, you wouldnt have so much!
Still praying for Kayleigh, what a sweet, beautiful and innocent soul!
God bless.

Megan and Kallyn, In NH said...

Every Step.....we're not going any where!

Holly said...

I'm going to set up my DVR to record that episode. I hope God blesses this opportunity to spread Kayleigh's story and His love. Prayers for you.

Just an ordinary woman said...

I am sorry Kayleigh is not feeling well at the moment.. I pray she feels better soon!

That is so exciting about The Doctors.. please can you tell me (if you know) which episode of which season it is so that I can look out for it here as we are a season behind in everyting.

Kerren
South Arica

kiddiescorner said...

I'm so sorry to hear Kayleigh isn't feeling well :( We are praying for her. God Bless!

mum2twelve said...

Hello Adam and Aimee
I would like to make a suggestion. Between the scrap book idea and all the material you have written here on your blog, I believe you have a great opportunity to put together a book about your journey - even though the ending that God is writing for your story does not yet appear to be the one you had hoped for. Your faith will be a great inspiration for others going through what you have and still are going through. You have said that you would like to be able to give back in return for all you have gone through. So I would suggest if you can get a book contract you offer some percentage of the proceeds as a donation to a charity of your choice - or even to the PICU for equipment that is always being needed. Or for things you wished had been available for you while there.
I think you have so many people following your story that the opportunity to own a book of your story would be greatly appealing as well as knowing the price (or portion of) was also going to help others.
I hope you like this idea and are not offended by it!
love & blessings to you and yours
from me and mine!
Christi aka mum2twelve

Rebecca said...

I live in Australia, and I have been praying for Kayleigh and your family. I cried as I read this post ...

I say 'amen' to your comment about listening to Jesus. His is the only voice that matters. What a comfort that He promised to never leave us, to never forsake us.

May His will be done and His name glorified in the life of your precious family. May you know Him with you at every moment ...

Rebecca

mrosev14 said...

I'm praying for you guys!

Mel said...

Prayers for peace for all of you, especially for Amy duirng this weekend. May God's love wrap you up and carry you through this journey. Still praying in OK-M

Mom2anAngel&amiracle said...

can you link the newstory? I can't find it online at their site.

The Carpenters said...

Can't wait to see the Doctors! I've been anxiously waiting. :)
Still praying...

Jenny said...

Prayers and hugs.

Sara said...

Of course we are with you every step of the way. Kayleigh has touched my heart in a way that words cannot describe. My heart aches for you as you make these impossible decisions - God will be with you every step of the way as well.
Many hugs and prayers.

Laura Fiegel said...

I am praying for you and your family - I have asked my blog readers to pray for all of you as well. I have set my DVR and I cannot wait to watch The Doctors this coming Wednesday. Take care!

xo, Laura

Jacqueline said...

We are praying so hard that Kayleigh will be able to be comfortable and not in any pain during this time. She is so beautiful in these pictures. Its such a blessing to know that you all have peace and are staying strong in your faith.

Allison said...

I'm so sorry that your day hasn't gone as planned. I continue to pray for your family everyday & think of you always. I just set my DVR to tape The Doctors & look forward to watching. Sending love from Tampa.

Annji said...

I've been reading your blog for a while and I never comment. I just wanted to let you know that I am praying for your family!!! I pray that Kayleigh is able to come home to spend the rest of her days with her family. I'm soo sorry that you guys have to go through this. I just saw the preview for The Doctors episode that you are going to be on, and I'm looking foward to seeing it. May God bless you and your beautiful family!!!!

Suzan said...

Continued prayers for Kayleigh and your family. I hope she has a better day today and that you guys are able to spend some quality time with her.

Also, can't wait to see you guys on TV...so many more lives are going to be touched and changed because of your precious blessing. The Lord is continuing to do good works through Kayleigh and for that I praise him.

We love you guys! God Bless!

Sabrina said...

God Bless you all!

Misty Rice said...

Oh I am so sorry she isn't feeling well. I hope its just from them taking her meds down.

THat is an adorable outfit on her too. Love her little hands and feet poking out of it.

I am sorry that you have to spend this Mother's Day holiday in such sadness.

We pray pray pray for you.

God Bless.

Lynn said...

With you guys every step of the way! I am praying that Kayleigh's irritation will pass. Lord direct the doctors in little Kayleigh's care, and keep your loving hand on this precious family. God we would like a miracle today.
Love in Christ,
Lynn

Deanna said...

I have followed your miracle story for a short while and am so blessed to see families like yours! You have treasured a life that was so tiny and what a miracle to see that Kayleigh was a child of God at such a tiny and fragile state. Like everyone else we wish the news after Kayleighs surgery was more happy news. Can the doctors not remove some of the swelling and pressure with an exterior shunt. Is the head circumference increasing due to the need for a shunt due to its recent trauma and possibly retaining cerebral spinal fluid. With the decreased brain function maybe this would make a permenant shunt necessary. Praying for comfort for Kayleigh and your family!
With Love from a former NCer now living in Indiana
Deanna

Brandon, Andrea and Emma said...

We will be praying for you as you make these decisions for Kayleigh. I am glad that you are able to be on TV and in the news to share your story! We are praying for Kayleigh to stay free of pain and irritability. She has changed my life in so many ways and we are going to send a picture in to you guys tomorrow on Mother's Day! Happy Mother's Day Amiee!

KristalM said...

Hi Arpil's Mom,

My name is Kristal and I live in Texas. I am a wife and a mother of a 20mo Son. I came across you blog from a posting on Kayleigh's blog. I am so glad to be here. You have brought me closer to god. I pray for you and your sweet baby everynight.

Thank you for your stength and wisdom!

S. said...

praying for kayleigh!

Crysgoss said...

Praying for peace and a miracle!

Anonymous said...

Praying in Ohio!

KellySC said...

We continue to pray that God will heal sweet Kayleigh and give peace to your family. I hope you can have another day relaxing together soon!

Kelly in SC

Sarah J. said...

I'm so sorry the day didn't go as planned and that Kayleigh is having so much discomfort. You are never far from our thoughts. Much love!

Sarah, Chris, Helaina and Ava J.

Anonymous said...

Your daughter is absolutely beautiful. The pink and white checkered dress she had on the other day (that was your favorite) is adorable. I love seeing her pictures. I continue to send prayers your way and hope ths Kaleigh is not sufferingin any way.

Love,
Michele

(www.caringbridge.org/ca/macey)

Ellie said...

May peace come to you and your family and only you know what you need to do and what is right for your family. We will be sending many prayers your way in hopes that it helps guide you.

I just bought 4 bracelets and I am excited to get them. I have been sharing your story with my family and friends. You have really touched us spiritually, emotionally and mentally.

May god be with you and your family always.

Stephini said...

i am so glad to hear the bracelets are now up again! i plan on ordering three! one for my mom one for me and i want to fix one for my 7 month old to be able to wear!

on another note, its so sad to hear Kayleigh is uncomfortable as a mother with a tether i know how hard we work just to make sure our child is comfy! its has to be so hard for you two seeing her like that! miracles can still happen and that's what everybody around here is hoping for!!

Heather said...

I hope that she improves enough for her to spend some time at home. Can they not send her home on Flolan. Im sure you would get some home nursing so why is it not possible to send her home with the medicine and equipment. What can they do at the hospital that can not be provided at home with nursing care. I hope that she will get to spend some time at home which would greatly benefit you all so that you could have some nice quality family time at home. All my best. You are so strong as a family.

brandy0613 said...

Praying for kayleigh!!! I have basically just started following your story.. it took me about 8 hours but i read EVERY post. I lost my 23wkr after 17days of being with us. Its amazing that kayleigh has been so strong and is continuing to do so.

scrappy quilter said...

Continuing to pray that God will give you the strength you need through this. She is so beautiful.

Stuart and Sarah Creamer said...

Praying for your precious baby girl and praying God gives you the peace to make decisions!

Anonymous said...

There's a man in Gastonia, NC whom the Lord has been using mightily in the gifts of miracles and healing.

Please inquire of him here at

www.gastoniafirstassembly.org

The Lord is real and he's ready to heal !!!

jEnNy said...

LOVED the video for Aimee!! Especially the last quote about "pulling your hair back into a pony tail is not the same as taking a shower"...guilty as charged over here!

Praying for your family everyday here in Texas & I am excited to hear about the episode of The Doctors (love that show) & the article.

May God continue to give you & your family strength & comfort.

Jenny

Anonymous said...

Adam and Aimee, I am so sorry your day didn't go as planned. I'm so sorry that you both have to endure watching and not knowing if she's uncomfortable or not.

I have not given up and am praying to God everyday for little Kayleigh and for your family.

Have you contacted your local hospice? (Not because I've given up) They are wonderful people that will do everything in their power to get her out of the hospital and home to her family. They will verify her needs and make it happen at home. They also provide emotional support to the family (and have a great program for other young children involved). (They are also available in a hospital setting).

God Bless You, Lorna

Amanda said...

I've been praying every night that God wraps his loving arms around your family and precious little Kayleigh. I know God has the ultimate plan and I'm so thankful to see yall are faithful in listening to Him and what he has planned. It's very touching and has made me a lot closer to God just by reading about your faith in God through such a tough situation. God bless, and I'm still sending up the prayer!!

JaMean said...

We love you all and will continue our prayers. We are SO sorry things did not work out like you had wanted. God does work in mysterious ways. Bless you all.

Michele said...

My husband and I pray for Kayleigh every single night. We've been doing it since we found your blog. And she was remembered today in our rosary group, which prays for life issues. She is a very special girl who has touched so many and, regardless of when she goes to be with God, I know that she will continue to do His work from heaven.

Mama2aMiracle said...

I just love you guys!! And I am still praying and praying hard!!

-Lori from TN

felicia said...

My heart truly breaks for you all but I am so amazed by your faith in our Lord and I love that you all know how much he loves Kayleigh and you all and that you are sure beyond a shadow of a doubt that he is by your sides. I check on you all daily and have been praying for Kayleigh and you all and I just admire your love for your children but most of all your stead fast faith in our Lord.

Love, Felicia in Pittsboro, NC

margaret said...

So sorry sweet Kayleigh is not feeling well. Praying for you all. Hugs

Hope James Wilson said...

Ya'll are amazing!

Amanda said...

She is beautiful :)

God bless your family. You are in my prayers.

Jenny said...

Never heard of "The Doctors" before, but I clicked over to watch the preview and am really EXCITED to see it- it's on my calendar!! Still praying here in Kansas!!!

NewfieMoma said...

Continuing our prayers to you all.
We are really hoping you get to take Kayleigh home to be with her family .
Love Rochelle, Jeff, Chelsea and Melissa
In Brampton, Ontario Canada

4 Lettre Words said...

Goodness....that outfit is just too much. She is such a doll!

I pray that today is better for all of you.

Happy Mother's Day to Aimee!!

April said...

Kayleigh is always in my thoughts and prayers. I walked 6 miles for the March of Babies fund raiser in Appleton, WI this morning, wearing Kayleigh's name on my shirt.

Thank you, sweet baby girl!

TnAHurst said...

I just wanted to tell Aimee for what its worth God Bless you this Mother's day! Your family is in my prayers!

Tina said...

Adam & Aimee:

I am so happy for you guys about the show.....I have been updating the Blogfrog over at MCK site to try and keep Kayleigh's mircle going and to have people keep praying!!!! Kayleigh is a mircle and I still believe God will show us a mircle through Kayleigh one way or another!!!!

Aimee.....I hope you have a very special Mothers Day tomorrow and you will be in my prayers.

Adam....I hope to see Kayligh's book on shelves in the near future and I know it will be a #1 BEST Seller!!!!

God Bless your entire family....

Anonymous said...

Loved the Mother of the Year video. That was so funny.

Anonymous said...

Oh- so sorry you didn't get to spend the day together... hoping today is a better day for you, Aimee and Kayleigh.

I have set the DVR and look forward to seeing you on the Doctors. I can't wait to see what they've done for you and whatever it is, you deserve it.

Denise said...

Oh man, the teaser on The Doctors is making me wish I wasn't going to be on vacation and not around a TV! i hope you post a link on here so I can watch it online.

I am praying for you still

Jenney said...

I haven't commented in awhile, not because I'm not reading and praying...just don't know any words of comfort for you. I will continue to leave updates on Kayleigh on my blog and asking others to continue praying.

Lisa said...

I just found your blog today and wanted to you let you know I am heartbroken and praying for Kayleigh, you and your family. I had a hard time reading about your precious little angel, and I can't imagine being in your shoes. If it is God's will to take Kayleigh I pray that she is not in pain and that you find the strength to endure such a loss. Such little things I take for granted with my children on any given day. You have taught me to let the kids play in the park for just a little longer, and I pray little Kayleigh gets to feel the sun too.

God bless you and your family.

Lisa

Raising Olives said...

We are praying for God's wisdom and peace for your family. Thank you for your clear testimony to God's goodness and mercy to us daily.

Blessings,
Kimberly

Anonymous said...

Kayleigh looks so adorable in that outfit. What a beautie!
My heart is heavy with sadness with all that is going on, but my faith continues to grow. That is the miracle of your baby girl.
The previews to The Doctors looks amazing and I am so excited to watch it Wednesday. I am amazed at how you were able to get asked on the show... again, God's amaziness, huh?
God Bless and thinking about you daily.
Lindsay from MI

Anonymous said...

Praying for Kayleigh and your family. Also, saying a prayer for all Kayleigh's nurses who have been by her side 24/7 for the past 10 months. Happy Nurses Week, thank you for all of your hard work.

S said...

Happy Mother's Day Aimee...may God bless you an your beautiful family today and everyday. Still praying for a miracle!

Pam said...

The DVR is set. Thank you so much for sharing this beautiful girl with us.

Miranda said...

DVR set and ready to record.. I am praying everyday for you sweet angel baby!

Lisa said...

I wanted to tell all of you that someone said something to me the other day that really touched my heart. I was telling my SIL about Kayleigh and she said to me that God's plan for her was to teach everyone how to pray. Tear's filled my eyes, because I do not pray often, but since I started reading Kayleigh's story, I have prayed multiple times a day. God Bless the Freeman's and I will keep praying for you.

lesley said...

Continued prayers for your sweet Kayleigh and for you and your family.Spring Hill Fl.

debasu said...

Keep holding on, and sing to her. When my son was in his coma and aggitated, I would sing to him in his good ear that he could still hear out of.. . it calmed him down when none of the meds would. He says now, "dont ever give up". Miracles happen* My thoughts and prayers are with you all, I know you are exhausted *

Erika said...

Hi! I'm not sure if you read comments this far down, but if you do...just wanted to say that I have been reading your blog for the past 9 months or so, and have been praying for your family- Kayleigh has touched my heart in a very special and deep way.

I gave birth to twin daughters, Vivian and Annemarie, last July. They were both stillborn due to Twin to Twin Transfusion Syndrome. Following your story has given me such hope and has really made my faith stronger.

Well- here is the interesting "coincidence"- my husband is a television editor and works occasionally on "The Doctors" (his main job is with Dancing With The Stars)... a few weeks ago, he came home and started telling me about how that night he had edited a piece about this little girl and how much it had touched his heart...and he went into the story...and I looked at him and said, "Are you talking about Kayleigh Freeman?" And he said "yes, how did you know that?" And I said, "because I read their blog every day, and in fact, just got done reading tonight's post"...it was a pretty incredible moment!

Your story really touched my husband's heart as he worked on editing the piece...and I can't wait to see the finished result!

Much love to you and I am praying for your whole family...

-Erika

Anonymous said...

Trust and believe in the Lord Jesus will all your might.

The Lord Jesus did not resurrect in vain, it was to give you HOPE and SALVATION.

JanaBanana said...

Bless her, she is as beautiful as ever. Im still praying. She is one amazing little baby girl!

Anonymous said...

Adam, I would love to see the show, but we dont have cable, maybe you can give a link to watch on the computer, i pray several times a day for this lovely baby, one of my daughters will be two tomm, she was five weeks early due to preclampsia also the day i came home that nite i went into congestive heart failure, glad it was me instead of my baby,will still pray for god to work a miricle for your family,god bless

Anonymous said...

We are all behind you guys because you are holding God's hand every step of the way. We're just here to remind you of how much your beautiful baby girl is so very loved. Stay strong and Happy Mother's Day Aimee!!

Rita in Ohio

ooprincessjennoo said...

It's amazing how many people all over the world love Kayleigh. I pray each day for her and your family. God is good and I believe that he will provide a miracle for Kayleigh! She will be home one day, I just know it.

--Jenn

candi said...

I have been following your blog for a little while now and I think and pray for your family all the time. I have you on dvr. I will continue to pray for sweet Kayleigh. Your family is a part of my life. I can't go to bed without checking for a update. Always hoping for a miracle. You and Aimee have so much strength. I dont know how you guys say so strong. Keep with your faith and God will show you the way.
Thoughts and prayers with you and your family from Boston, Ma

Anonymous said...

with you every step of the way..
still praying for a miracle

cant wait until to watch the doctors, although I am sure I will cry through the entire time.
sending lots of love
kristy in MI

Shelby said...

i don't know what else to say to you except that when the time comes that you have the strength that you have now. You are an amazing family with amazing faith. I am blessed to "know" you and to be able to learn and grow from your experiences. I feel like you are a part of my family and its so hard to think that you have to let your precious miracle go in such a short time. But i know that it is a comfort to know that your daughter has made such an impact on millions across the world. Because of your miracle daughter, millions across this God given world have grown closer to HIM.
I can never tell or show you how much this has changed my life and how greatful i am to Kayleigh. Like you, she has given me something to look forward to in the after life. I can't wait to meet her there and tell her this myself. She has made me grow as a person. She has made me look at my own children a little longer. She has made me look at life a little clearer. This little angel has made me a better person. And that says a lot since i have never even met her.
i had someone say to me once that it may be my purpose in life to be the father or grandfather of someone who is great, and thats my contribution to this world. I think Kayleigh is that someone great, and your contribution is to share her story with the millions that follow her story and become better people. Be proud and greatful to be that person that gets to share her story. Be honored.

I love you like my own family
Shelby

Tina said...

Adam & Aimee:

The blogfrog thread at Mckmama's site that I started a couple of weeks ago about Kayleigh has been "removed".

Today I updated it(which I do as you make new post)about the upcoming television show and told everyone to come over to your site to get the details....tonight I checked to see if anyone had responded and it has been removed so I thought it was a mistake and I reposted the information abut 20 minutes ago and the new thread I made was there and now it is GONE again????? What is up with that???

I really don't understand WHY MckMama would have taken this down considering you guys have her button on your blog and this thread has been there for 2 weeks?? I'm really sorry this has happened but I will continue to spread the word for prayers for your Beautiful Sweet Baby and I know many others that read that blog are praying for your family.

Keep the faith and we will continue to pray.........

The Dey Family said...

I will continue to pray for your family and sweet little baby girl.She is so beautiful!

mrs. mari said...

keeping you all in our prayers as you face the issues coming forward with kayleigh's care. my heart is with you all.

i'm not familiar with "the doctors" but hope to the info on here in seattle so i can watch.

The Pirsein Family said...

God continue's to hold your hand's through this time. Kayleigh is the insipiration to many and even though my hear breaks, we see how amazing Kayleigh is and how many obsticles she has overcome. May she continue to jump these hurdles so she can come home to her wonderful room that is so anxiously waiting for her.

Praying many prayers from Michigan

mum2twelve said...

I have an urgent prayer request. We just learned that a friend of the family who is 14 is ill and in hospital. At this time his kidneys are failing. Drs suspect a rare form of Ecoli that does not respond to treatment. Please can you share this with as many prayer lines as possible. He is a lovely boy and they are a lovely family!
Thank you in advance for your prayers. Please also pray for safety on the road as one of our family members try to get his sister home from NC to Tennessee ASAP.

Anonymous said...

Can you keep the Flonan and have her go home on it?? Time is running short...take her home on all the meds.
--M.D.

Jennifer said...

Oh my gosh, for a minute I totally thought the CNNBC "news" thing was a real news cast... so cute, what a neat idea. Happy Mother's Day Aimee!!!!!!!!


~AZ Mommy

MoonNStarMommy said...

My DVR is set also and I'm sure I will cry, a lot. I can't wait though to learn more about your journey and share in it. I have only been reading Kayleigh's story for about a week or so now but it has touched my heart greatly, especially having been in the NICU with two of my boys. I'm going to add a featured bloggers post on mine today about Kayleigh. Thanks for sharing her with all of us.

Courtney Kay said...

I will be watching The Doctors

Margaret Cloud said...

I am still praying for sweet Kayleigh, she is so precious. May the Lord continue to be with her in her hours od need, and may God bless your household.

Meade family adoption said...

I just want to say Happy Mother's Day, and I'm sending your entire family a huge cyber hug. I'm thinking and praying for you every day!!!! I know that you get so many comments, but I pray that you all are doing well, your stenght is up, and you feel God's presence with you every second.

babygirl said...

this is my first time here and your in my prayers.
she a tiny miracle that to me she seems tougher then most and allthough its a tough time right now let god show the way for only he knows whats ahead.
but she so beautiful and i do hope tings get better and i will keep following so i can see her progress thks for dropping by and thks for the congrats

Melinda said...

Continuing to think of you and sweet Kayleigh daily. Hugs & I hope you had a wonderful Mother's Day, Aimee!

Tammy Doorn said...

I have been thinking of all of you. I just got on the computer after a few days and read the posts. I am so excited to see you on The Doctors.
Happy Belated Mothers Day to Aimee!!

Gina said...

Kayleigh looks absolutely beautiful in these pictures, so peaceful. God bless this precious angel.

Anonymous said...

I WAS 3 months premature but I FEEL FOR THE FAMILY

Lorza said...

What is crazy is that as I was watching the previews I was thinking "that is so familiar to me". I had that disconnect of following you on the net, and then seeing you on tv.

I am so sorry for your loss, but I am so amazing at your faith. God bless you and your family. You guys are letting God shine through you and it is truly inspiring.

Canela Alvarez said...

She is so beautiful. I am so sorry for your loss. God is a God of mercy and understanding. He took away all her pain and brought her to a much better place. Your family will always be in my prayers. God Bless you all. You're strength and perseverance is truly inspiring.

Canela

Karla Lingor-Smith said...

Your daughter is absolutely beautiful. I'm so very very sorry for your loss. Your daughter knows that she was very very loved and still is loved even though she is now with God and in Heaven. She is your little angel looking over you and your family. God bless you.

☆M♔d♪☆ said...

What a Mirical!