12/18/08 - 10:53am - A Glimmer of Hope!!!

PRAY!!! Get on your knees and pray right now!!!

Our doctor came to us not too long ago after having a group meeting about Kayleigh and told us that they have some small glimmer of hope. Now I said I would not go in to detail of Kayleigh's prognosis, but I want you to get the full understanding of what we are going through right now and what you all need to pray for.

Right now, Kayleigh is currently on the max setting of every machine and medication there is to keep her alive. She is on the vent, 100% oxygen, 20ppm NO2, Viagra, Prosticyclin, and still her oxygen saturation is at 80-85. She is also on 3 different pain/sedation medications and a constant drip of a paralytic. The paralytic is helping right now, but she is quickly getting to the max dose on that. The slightest touch sends her sats dropping and spiraling out of control in to a hypertensive episode. She has earmuffs to block out the sound as every bit of noise will also cause her to spiral out of control.

Kayleigh's x-ray came back yesterday showing some haziness around her lungs and the x-ray that was taken early this morning proved that haziness to be pneumonia and it is getting worse, quickly. They have ordered an ultrasound to see if the fluid showing up on the x-ray is inside or outside of the lungs. The good thing is, it is treatable by antibiotics and extracting the fluid. One follower mentioned Decadron, which is a steroid that helps with inflammation. They have a steroid similar to that which will do the same exact thing, but minus the negative side effects. So thank you for mentioning/screaming it to us. We heard you ;)

So, this pneumonia could be making her lungs cause problems with the pulmonary hypertension as did the urinary tract infection the other week. If we can clear up the pneumonia and the excess fluid, we may be able to get Kayleigh back to a state of stability. The only issue comes back to the pulmonary pressures and whether or not they have increased a lot due to the pneumonia and if they will be "fixed" at that level. It is like a zip tie. When something causes Kayleigh's pressures to rise/tighten, nothing will drop/loosen it up again. With Kayleigh's lungs looking the way they do right now, the doctors and nurses are shocked that Kayleigh is currently satting in the mid 80's.

All I have to say is that Kayleigh is fighting hard and God is listening to our prayers. Please keep praying that the pneumonia will clear up fast, her fluids will be released from her body and her pressures will return to a better level. Since the doctors have more answers, they are finding little hope in moving to a better prognosis. But, little hope from the doctors is A LOT better than no hope from them at all. Aimee whispered to Kayleigh this morning if she got better, she would give her some bacon. I think Kayleigh heard her, HA :)

We are beyond floored right now and we are honestly taken back as we truly feel that God is listening to all of our prayers right this minute. So please keep praying as hard as possible and hope that there is some way a miracle can take place and Kayleigh can make it through this. God is showing His signs of HIM being the one to decide what happens with Kayleigh, but it is evident that He is listening to our prayers. God is by far the one in control, so let's speak loud enough so He can hear every word we pray.

I will update you all as soon as I hear something.

GOD BLESS,

The Freemans :)

227 comments:

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mrs boo radley said...

Found you when MckMama called for prayers on Twitter.

No babes of our own...love to pray for others' babes!!

l e a h

http://thaitrait.blogspot.com

Crissie said...

God is at work here!

Heal little Kayleigh and fight hard!

Love you guys and praying for you always.

Crystal in CT

Classy Fab Sarah said...

Praying for your sweet baby girl....

May the Lord bless and keep her close.

Anonymous said...

Yesterday's post moved me to tears and I prayed that God wouldn't take your precious girl from you & Aimee. Today's post has also moved me to tears because I know he was listening to the many many prayers he received. I will continue to forward her story on to as many people as I can...prayers DO work!

God Bless,
Karen

The Finnans said...

So glad to hear a little bit of hope in this last post. I have prayed everytime I thought of her these last 24 hours, which has been a lot. God is definatly listening. Definatly praying for a Christmas miracle!

God bless,
Erica

carley said...

My son faced something very similar and ended up on cardiac bypass (ECMO)and the doctors still were not sure he would make it. He came home today after being in the hospital and rehab for three months. Miracles happen---look at Kayleigh---she is a MIRACLE and a fighter. I have followed your story since you posted on the ultrasound board at Babycenter. God Bless your family!!!!!!!!!!

Anonymous said...

Praying hard for little Kayleigh! She is such a fighter and has proved that time and time again. I believe she will fight her way through this pneumonia, and will eventually get to enjoy her bacon,eggs, and toast!!
Always praying for your sweet miracle baby!
-Rebecca

Mendy said...

Stumbled upon your blog today, and let it just tear me away from work almost all afternoon. I scanned each post from the beginning. I want you to know that I truly beleive God has Kaleigh in his arms and is blessing her, and will continue to bless her and all of her family. She has shown so much strength, that I strongly believe that she is going to grow into a healthy little girl.

You have soooo many prayers coming your way. Add my prayers to the list.

God bless you all!!!!

Mendy

Anonymous said...

Found your blog in round about way through the Graf quads a couple weeks ago. Sending lots of prayers your way!!!! Can tell Kayleigh and family have lots of love and support surrounding them. God bless

Stacy

Anonymous said...

I am praying hard that this glimmer of hope ignites and splinters into thousands of bright beautiful stars, enough to light up the darkest of nights.

In my prayers always
lindsey, West Australia.

Anonymous said...

God, It was just over 24 hours ago I asked for a Miracle. A Miracle to save Kayleigh. Today you provided us all with HOPE. You provided us with strength. You gave Kayleigh another day. Your plan is working. Please continue your ongoing works. We will step aside and follow your lead, Amen.

Praying and thinking of you all!

Cathy
Noblesville, Indiana

Sara said...

I just found your blog......I am praying really hard that God's will be done.

Your Kayleigh is the sweetest and you are both amazing parents.

Love, light, and prayers your way,
Sara

Anonymous said...

Praying for u baby girl!!! Stay strong and keep fighting...

Anonymous said...

I just found your blog and I wanted to let you know that I am praying for your little girl.

Anonymous said...

I've been following your blog for about 6 weeks now. My heart was so heavy yesterday and it jumped for joy today. I got chills when I read the blog this morning and felt the power of God. You are amazing people and your little girl is precious beyond words. I have been praying and thinking of her and you all day. I am hoping beyond hope that she can pull through this and will someday spend her first night in that brown and pink room.

Andrea
Des Moines, IA

Unknown said...

Sending prayers your way! God Bless

Anonymous said...

Praying for little Miss Kayleigh here in Cornelius, NC. You can do it, baby girl!

Anonymous said...

My name is Keri. I've never commented before. But I have been a follower for quite a while now. I can't even begin to explain how much Kayliegh and her story have touched me. I love a baby I've never met...

Reading yesterday's blog broke my heart. I sat at my computer with tears falling. My one and a half year old daughter was sitting on my lap. She pat my cheek while nodding her head and saying "k". I squeezed her and cried more. I want you both to have that. I want Kayliegh to color on your walls. I want her to say bad words in public and embarrass you. I want her to keep you up at night. I want her to throw tantrams at YOUR home. I cherish those things all the more because of your story. I want you to get to have all of that, plus the good things :)

The 'glimmer of hope' has lifted my heart. I can't imagine the hope it must give you. I will pray for Kayliegh as I always have.

With love and faith,
Keri

Anonymous said...

Fight, baby girl. You can do it! I'm praying for you every night. I will check in on you from Ohio.

Anonymous said...

South Carolina is praying for Kayleigh! We are amazed by your family's strength and love! Through God all things are possible!

X said...

Our thoughts are with you...

www.mngossip.com

Anonymous said...

hello Aimee and Adam,
This is my first time leaving you a comment, I watched your video because my friend sent it to me. I didnt have a dry eye all night long. I feel very sad to hear your story. So let me just start by saying that I have lost a very close loved one about 2 years ago she was my nana. She was very close to me, so I write to her and I sometimes talk to her.
I took the time last night to talk to her while I was taking my dog out, and I asked her to watch over Kayleigh and your whole family through this tough time. And I asked her to give me some kind of sign that Kayleigh will be ok, and before I could get into my house I smelt Lilac [ my nana's favorite flower] so I knew she heard me.
Also, I came on this morning to see if you had any new news and I saw your blog that you labeld " Glimmer Of Hope" I was so happy that I cried. Maybe its just my emotions getting the best of me, I dont know, But all I know is that I am here for Kayleigh and her family. I beleive that there is a heaven and that my nana is now watching over little kayleigh.

My families thoughts and prayers are with The Freeman family at this time of need.

Anonymous said...

hello Aimee and Adam,
This is my first time leaving you a comment, I watched your video because my friend sent it to me. I didnt have a dry eye all night long. I feel very sad to hear your story. So let me just start by saying that I have lost a very close loved one about 2 years ago she was my nana. She was very close to me, so I write to her and I sometimes talk to her.
I took the time last night to talk to her while I was taking my dog out, and I asked her to watch over Kayleigh and your whole family through this tough time. And I asked her to give me some kind of sign that Kayleigh will be ok, and before I could get into my house I smelt Lilac [ my nana's favorite flower] so I knew she heard me.
Also, I came on this morning to see if you had any new news and I saw your blog that you labeld " Glimmer Of Hope" I was so happy that I cried. Maybe its just my emotions getting the best of me, I dont know, But all I know is that I am here for Kayleigh and her family. I beleive that there is a heaven and that my nana is now watching over little kayleigh.

My families thoughts and prayers are with The Freeman family at this time of need.

Anonymous said...

hello Aimee and Adam,
This is my first time leaving you a comment, I watched your video because my friend sent it to me. I didnt have a dry eye all night long. I feel very sad to hear your story. So let me just start by saying that I have lost a very close loved one about 2 years ago she was my nana. She was very close to me, so I write to her and I sometimes talk to her.
I took the time last night to talk to her while I was taking my dog out, and I asked her to watch over Kayleigh and your whole family through this tough time. And I asked her to give me some kind of sign that Kayleigh will be ok, and before I could get into my house I smelt Lilac [ my nana's favorite flower] so I knew she heard me.
Also, I came on this morning to see if you had any new news and I saw your blog that you labeld " Glimmer Of Hope" I was so happy that I cried. Maybe its just my emotions getting the best of me, I dont know, But all I know is that I am here for Kayleigh and her family. I beleive that there is a heaven and that my nana is now watching over little kayleigh.

My families thoughts and prayers are with The Freeman family at this time of need.

Anonymous said...

I am praying for you!! Come on baby girl, you can do this.

Martha said...

Hi Freeman family!!

I just wanted to say how much your story has touched my heart. Just over a year ago I too lost a beautiful little girl named Michelle. Although my angel was born sleeping due to pg complications, I can tell you that she was a beautiful gift from God...she saved my life and gave me a renewed loved for life. Kayleigh is one of those special gifts from God that help you reach a renewed love for life! She's a fighter and I am praying that she lives to fight many more battles, and more importantly celebrate many, many, MANY happy moments with her wonderful family and that this is the worst part of her life so that the rest of her (hopefully LONG) life is filled with nothing less than bliss!!

Love,
M.

Rachel Dominguez said...

I just wanted to say HELLO and I am praying with all that I have. I was just recently introduced to your blog. I have been reading for 4 days now to get caught up. It has been an incredible story and that beautiful little girl has fought so hard to beat all this and stay in this world. I have just now gotten to post 12/18/08 and will continue reading, but after seeing this post, and believing whole heartedly that GOD is listening....I had to stop and comment to you.

Add me to your list of prayer warriors!!!! I'm going to PRAY LIKE NO TOMORROW till this baby goes home.

You are all so strong from all that i have read. I know that your baby could not get any luckier than to have two parents as devoted and loving as you. You all amaze me.

Remember....I'm praying now. Each added prayer helps. My children and I will pray every day and every night!

Rachel (lee's summit, MO)

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