12/25/08 - MERRY CHRISTMAS EVERYONE!!!

Merry Christmas from our family to yours. I sure hope everyone had as much fun with their family as we did. We woke up early this morning and opened up presents here at our house and shortly after that, we went to Aimee's mom's house to celebrate with the whole family. "Thank you so much Nama for doing Christmas at your house this year as it was one less thing we had to stress out about." After that was all said and done, we went to spend Christmas time with sweet Kayleigh. She didn't want to party like everyone else, instead she just slept and slept some more.

She is having a much better day since yesterday morning's events. I wasn't able to get any good photos because she was face down, drooling and snotting like a champ! "That's my girl" They have had to suction her out quite a bit today, but it is good that she is getting it all out of her system. The last x-ray showed the lungs are clearing up very well. The right side has actually looking better than the left side now, which is great but we are definitely not at 100% yet.

Monday is the scheduled day for the jg-tube procedure. We can cancel it up to ten minutes before the procedure, so depending on how Kayleigh is doing will depend on whether or not we go through with it. We are all for the jg-tube to be inserted, but our biggest fear is Kayleigh's prognosis at the time of the procedure and if she will be able to handle it. I know she will be heavily sedated, paralyzed and on anesthesia, but she is still very sensitive to the slightest touch and could spiral out of control at anytime.

After speaking with the doctor in length, the biggest fear is coronary pulmonale, which is right side heart failure. The basis behind that scenario is due to the right side of the heart's inability to withstand the pulmonary pressures caused by her hypertension. The jg-tube will reduce the risk of damaging the lungs anymore, food will help Kayleigh grow and hopefully we can buy us some time to grow without the heart failing on us. It seems that even if Kayleigh's pressures come down, she still needs to grow quickly so she can build new lung tissue and grow out of this problem she has. It is not going to happen over night, so we can only pray that she stay healthy and grow as quickly as possible.

Regards to the nasty emails we have gotten and some of the threats out there, Aimee and I appreciate your comments today as we want to make sure we never hurt anyone's feelings. We have taken in to consideration about contacting the authorities once we lock down a message board or site that is making these threats. If anyone comes across one of these sites, please email us so we can pass it on to team of authorities who will locate these people by their IP Addresses and quickly resolve the issues. We aren't going to play any games with our children's lives and I am sure you all wouldn't either. It would be best to pray for these people and hope they find their way to salvation before it is too late.

Thank you everyone for being so awesome to our family and making this Christmas such a wonderful and blessed filled day. Everyone thanks us all the time for sharing Kayleigh's story with them, but I want to thank you for listening. I have never been as passionate about writing until I started this blog. I never knew what God's plan was for me until I started writing this blog. I never thought that I would be able to save someone or bring their relationship closer to God until I started writing this blog.

I thought that I would someday die and have to answer to God on why I didn't honor or glorify Him like I should have in my lifetime. Kayleigh has not only been a miracle or blessing to all of you, but she has also been a miracle and blessing to me. She has brought me closer to God and she has allowed me to find my purpose to glorify God. She has given me a new found strength to wear my heart on my sleeve and profess my deepest emotions to thousands of people who I have never met before with the sole purpose of helping every single one of you in your own lives.

I will never stop sharing Kayleigh's story and I will never count God out of the reasons why Kayleigh is here and is still alive. Beyond this blog, I am counting on every single one of you to help me reach many many more people to continue making a difference in their lives too. I am hungry to do God's will and change this crazy world one person at a time. Not to mention, if we can gather more and more prayer warriors for Kayleigh, it certainly can't hurt. If Kayleigh can continue to pull on the heartstrings of so many people and make them better people, then I am never going to quit.

Let's work together for a common good and glorify God together. Contact family, friends, churches, news, radio, OPRAH :) or anyone else you can think of that would be a great way for us to do God's will. Not many people get a chance to leave a legacy where they did everything they possibly could with what God has given them (Good or Bad) and made it in to something so special to where it has changed the lives of so many. God is present through Kayleigh and the world needs to know about Him. Amen!!!

Please enjoy some of our family Christmas photos:

God Bless,

The Freemans :)