First off, I want to apologize for not posting a newer update lately. I am sure you all have been itching for an update and quite honestly, we are having a really tough time right now dealing with this.
Kayleigh had a repeated EEG this morning and the results on her brain waves have not changed. Kayleigh remains in a state of a flat reading and besides being able to breath on her own and maintain a stable position otherwise, she shows no other signs of improvement.
It breaks my heart to say that we have no idea where this recent news will lead us, but the doctors feel with the unchanged brain wave diagnosis, Kayleigh will not recover from this traumatic incident.
The CT-scan showed that the lack of blood/oxygen loss happened within the last 12 days somewhere, so this happened either during or shortly after the surgery. We will continue to see if there are tests to tell us if she had a stroke or something else to give us some kind of answer and understanding.
Aimee and I are in complete shock as we continue to read about others who have come back from a flat reading within a 24 hour period, but no success story goes as far as several days. We know that God can do anything He wants at anytime, but the more time goes by with no improvements, we may feel He has decided this is just the beginning of Kayleigh's triumphant journey to heaven.
As Aimee and I are strong in our faith, there are still questions about our precious little girl's state right now. We question if Kayleigh is in heaven already since her mind is no longer here. Just because she has a beating heart and the ability to breath, with no brain functions, is she already playing with all the other beautiful children in heaven? We don't know and it is a very tough position to be in.
We fear the doctors will soon be asking us the dreaded question to no longer give her the support she needs. We are lost and we need your help, not from an opinion point of view, but of what the Bible teaches us. Over the next week, we are going to be faced with uncertainty, so we beg of all those who are preachers to contact us to pray over us and to help us through this difficult time in helping us come to make a decision that God would want us to make.
We pray that no one should have to go through this in a million years and all we ask if for your prayers of strength. We have cried many tears and are completely lost and need guidance from our Lord. We honestly don't know what our Lord would want us to do here. Our lives are shattered.
All preachers, please email me at Adam@TeamFreemanProperties.com and leave me your contact information so we can call.
All of your prayers have been so amazing and we are so grateful to have everyone supporting us through this unbelievably difficult time.
Thank you so much and God Bless,
372 comments:
«Oldest ‹Older 201 – 372 of 372I'm praying for you guys to know God's will for Kayleigh and your family. Know you are being bathed in prayers and in God's love.
Blessings --
Melissa
Kayleigh has touched more people in her short life, than most of us ever touch. I can't imagine your pain and I ask God to carry your entire family. Take comfort in the impact she had on so many people's lives. I know that deep in your hearts you know all this, but that still doesn't take away the pain and loss. I am so sorry for you. I can't believe this has happened after all she has been through. I will contnue to pray for you and her.
May the Good Lord's Will be done whatever that may be giving Kayleigh a HEALING hand of Love & Comfort! May He also bring comfort & understanding of His Word to Aimee, Adam & family!!!
Keep Your Faith ~ don't let Satan bring you down!
Loving thoughts Your way!
~Joni
Our hearts break for you and with you.
I'm praying wisdom, peace and courage for you.
God bless....
Erica
I just e-mailed this to my pastor. I hope you find what God wants y'all to do. Praying for you!
praying for you. no matter what, I am sure God will guide you on what is best for her and you.
Seeking Biblical counsel is never a bad thing, but what is most important is that you and Aimee know that none of this comes as a surprise to God. He has trusted you with Kayleigh's life. Seek him and His counsel, He will answer you. You may not hear an audible voice, but you will have a peace. Although she may not be playing with the other children in Heaven yet; know that she is NOT alone! She is being comforted, cherished and touched in ways you cannot see by her Heavenly Daddy.
I am praying for you.
Chris
My heart breaks for you and your family. I am at a loss for words. I read your blogs everyday and have been following Kayleigh's miracle story. All I can say is how sorry I am you all are faced with such sorrow. I cannot begin to imagine how you must be feeling right now. I continue to pray as hard as ever that there will be some miracle from God that will change Kayleighs progress. Stay strong
Katie
Baltimore, MD
You don't know my but I am praying for you! I read the post on cafe mom. My heart is breaking for you. May God give you guidance and peace!
Julie
Words of comfort are so incredibly difficult at this time. Kayleigh has touched thousands of lives from all over the world, and for so many of us who have followed her story, this is not the news we have wanted to hear and our hearts are breaking!! Maybe Kayleigh's life was meant to touch each of us in a unique way and leave her legacy, which she certainly has done. We continue to pray for her!
Adam, Aimee, Allyson and Brandon:
I know of no words of comfort that I can offer. Please know that you are not alone in this time of grief. My heart is breaking for you all.
Though I'm not Christian, I am praying for guidance and inspiration for the doctors, healing for Kayleigh, and peace and comfort for you and your family.
Jeri in Michigan
I'm so sorry ....HUGS....
It seems to me that you already have peace in all of this and that is great.. although I am sure this is heart wrenching for you. my mom is a nurse in a NICU so I hear stories of babies and their families all the time. Your blog is actually the first one I ever read because my mom was doing a presentation on traechs and she came across Kayleigh and showed me... and from there I got hooked on yours and others.
I am so sorry.... My heart is breaking for you. Praying so much.
I feel like I am losing Kayleigh too. I have shed many tears over the past several days for her. I am still in shock over the sudden change in events, so I can only imagine how heartbroken you are feeling. I am just devastated. I have watched her struggle from 1 lb and have cheered her on as she has beat all of the odds. I just wish that she would beat these odds as well, but maybe this is just a battle that she'll be unable to win.
Please don't let others' opinions get to you. Seek the advice of the ministers that you need to speak with, but don't let the advice of the many hundreds of people who read this blog influence your decision. The right path will become clear with time, and only you and your wife can decide what's best for your beautiful, precious daughter.
My husband and I are praying hard and hoping for a miracle. But if Kayleigh is already in Heaven, please be comforted that she is with the Father. There is no better reward for her after touching so many lives here on earth. My grandma passed away unexpectedly in 2006, and I can assure you that she absolutely loved her granddaughters. I'm sure if she's able to, she's holding Kayleigh right now and helping her to watch over you. Peace be with you, and with your precious miracle.
I think about and pray for your family consistently. I pray that yours will be the greatest miracle. Sweet, sweet Kayleigh... you are a precious gift from God.
My heart is breaking for you. We're still praying!!
Praying.
I am so saddened to have read this update today. My heart and prayers go out to you and your family. God is here for you and I continue to pray for your sweet little girl.
I am praying. I can't say harder than ever because I give my all when I pray and believe.
Father I pray for your hand to reach down into Kayleigh's body right now and do the miracle that will bring her home, to her earthly home with her earthly family.
I pray that you would lift up this precious family in this place of confusion and weakness. God this is such a hard place to be in and no body is expected to do this alone! Help them FATHER! Help them see you face to tear streaked face and fall at your feet laying all their fears, worries, concerns, and brokenness at the foot of the cross!
Bless this family God!
Amen!
Love you all!
OMG. My heart is just breaking for you. I have been in prayer dialy.
I am in tears reading this...so NOT what I was hoping to read. My prayers go to you and your family.
My heart is just breaking for you guys right now. Kayleigh is just the most precious little angel...what a blessing she has been to us all. Know that her life has led so many of us to hope more, believe in miracles again, and both pray to/praise our God on our knees! What an amazing girl!
I am passing your info. along to my Dad who has been a pastor for many years here in California. He has helped many families in your situation. God bless you sweet people!
Precious Freeman Family,
I continue to pray. Sweet Kaleigh is still here...she is still breathing with a beating heart. If she can breathe on her own, she is still very much with you...just in a different state. God will bring her home when He is ready. She is a true Miracle, an Angel..a Saint. She has brought people all over the world to their knees. She is forever in our hearts.
Much love,
Gleason Family
This absolutley breaks my heart. I woke in the middle of the night a few days ago and decided to check on Kayleigh. I just sat and cried at the news. My prayers have been with you and all your family since the beginning. Stay strong. You are all amzing!
Thinking of you in Arkansas
I have been following Kayleigh's journey since I first read Aimee's post on BabyCenter that the doctors didn't expect Kayleigh to make it to viability. Time and time again, her awesome spirit has amazed and humbled me. You are all in my prayers - God will guide you in your decision. Adam and Aimee, you are stronger than I can even imagine what you are going through. I continue to pray for healing for Kayleigh - whether is be medical healing or healing by going home to be with Jesus. I had a dream about Kayleigh last night - you guys were pushing her around the zoo in a stroller. No tubes, no nothing...just Kayleigh... Even though I don't know you guys, I feel connected to you in such a strong way. My prayers are with you and I hope you are able to find peace in this tough time.
I am sorry to hear of this news today. I will pray for a miracle.
When I saw no post for a bit, I knew things were not good. I am so sad for you. I have no words of wisdom or huge thoughts that may help comfort, becasue at this time they probabbly won't be enough. But know that you have done the hardest job in the world, being a parent! You have made all the right decisions with the best intent for your sweet child. I am praying for a miracle. I also pray that you can get time at home with Kayleigh...in a place of comfort and warmth. You guys are so strong, and I don't think I could be as strong as you...my favorite picture of Keyleigh is the one with with the ring on her wrist, I see it all the time and marvel at her stregnth and yours. With LOVE from Oregon!
Tracey
My heart breaks just thinking of what you all are facing. I am so very sorry. I am continuing to pray for your family...for guidance, for strength, and for wisdom. I also continue to pray for a miracle for Kayleigh. Your family is my thoughts and prayers constantly as you go through this time.
I can't even express the sorrow I am feeling for you and your family.
Please know that while I have no answers for you, your daughter's life has made an impact on me. She has touched my heart.
I dont know what to say that you havent heard before. I God will lead you down the right path for peace. In a diffacult time like this I like to remember joy. I couldnt stop crying so I went to an old blog you posted with the pics of her in the bule chair. She just cracks me up in those pics. I'm still praying for her. Be stronger then you have ever been before. Hug the kids at home extra tight. Love you guys.
Adam...praying with you. If I can help, you know where to find me.
I am so sorry. I'm sure you are shocked and a bit numb at the sudden change in your precious Kayleigh's life.
I know God will guide you in the decisions you make for your beautiful baby. He has trusted you with this precious life from the beginning. She is your daughter and you love her.
Please know you are in our prayers here in NC.
Thousands of prayers for Kayleigh during this time!!
My heart goes out to you all right now. I don't even know what to say. Kayleigh has been on my mind constantly since you received this news. I pray that you will not have to make any type of decisions about Kayleigh's future and that God will show you what is best for her and your whole family. It's not fair that this is happening to you-I hate it. No one should have to face outliving their child. I pray that you find peace, and in the meantime treasure every single moment with Kayleigh. Love and praying can accomplish amazing things. Give Kayleigh hugs and kisses from Topeka, KS-we're thinking about all of you.
Tammy Lister
ntrlister@hotmail.com
May God hold your family in his loving arms and help you through the decisions that will come in the times ahead.
Hello Freemans,
This is my first time commenting on your blog, but I have followed you in your journey from the begginging. I want to let you know that my eyes are flooded with tears as I read this news. This is such an incredible heartach. I will be in continuous prayer for Miss Kayleigh! May God be with you in these next few days! Prayers from Canada! ~Jolene
I CAN NOT IMAGINE WHAT THE TWO OF YOU AND YOUR FAMILIES ARE GOING THROUGH,WE ARE STILL PRAYING THAT GOD IS JUST GIVING HER A SHORT BREAK TO REST AWHILE BEFORE SHE COMES BACK,THATS WHAT I HOPE ANY WAY,GOD HAS REASONS FOR DOING THIS, WE JUST DONT KNOW WHY,PLEASE KEEP US INFORMED AS MUCH AS YOU CAN ,I LOVE THAT LITTLE GIRL AS IF SHE WAS MINE,PRAYERS FROM YADKINVILLE N.C.
http://www.wels.net/cgi-bin/site.pl?1712&cxDatabase_databaseID=1&id=6791&magazine=Forward%20in%20Christ
This might help you with some questions about when the soul leaves the body. So sorry you are going though this. Praying for Kaleigh and her whole family.
From the other side of the Atlantic- London.....
You have been and are the most loving and faithful of parents, Kayleigh has in her life been so fortunate to be so enveloped in love and care.
If she is no longer with you in this life she will be much loved in the next.
I hope and pray you are given wisdom of mind, peace of heart and for your family to be enveloped in the love of your heavenly father
My heart is aching for you. I will be praying for you and the decisions you will be making over the next week.
Love,
Dana
My husband and I and our families and our church and all of our friends have been praying non-stop for your precious baby girl. i know thinks seems bleak but just keep beliving and God will show you the way. I pray that she will wake up and improve but if it is her time, then God has bigger and better plans for her. You are in my heart and my thoughts and my prayers always.
Sending love from Texas, Mat, Christi, and baby Tyler
May God give you the direction that you must take. My thoughts and prayers are with Kayleigh and all of your family.
Kayleigh is held my God whether she is here or not. He is carrying you thorugh this too even though I imagine it would be so hard to feel that.
I pray for peace over your hearts in this journey. Cuddle her, tell her you love her and let her breath touch your skin.
I will continue to pray for you all.
All my love and strength to you.
Carly x
http://www.bonemarrowstemcelltherapy.com/intensive-neurological-stem-cell-program.html its a good read and could help your little one, Praying for you all!
my heart goes out to your family...and i will continue to keep Kayleigh in my prayers.
I am so saddened by your news. I wanted share this song with you. It was shared with me when my daughter, who is 6 days younger than Kayleigh, was in the NICU. It is called "Never Alone" by Jim Brickman and Lady Antebellum. I hope you find comfort in it like we did. I am praying for Kayleigh and your family all the time...
May the angels protect you
Trouble neglect you
And heaven accept you when its time to go home
May you always have plenty
The glass never empty
Know in your belly
You're never alone
May your tears come from laughing
You find friends worth having
With every year passing
They mean more than gold
May you win but stay humble
Smile more than grumble
And know when you stumble
You're never alone
Chorus: Never alone
Never alone
I'll be in every beat of your heart
When you face the unknown
Wherever you fly
This isn't goodbye
My love will follow you stay with you
Baby you're never alone
well
I have to be honest
As much as I wanted
I'm not gonna promise that the cold winds won't blow
So when hard times have found you
And your fears surround you
Wrap my love around you
You're never alone
Chorus
May the angels protect you
Trouble neglect you
And heaven accept you when its time to go home
And when hard times have found you
And your fears surround you
Wrap my love around you
You're never alone
Chorus
My love will follow you stay with you
Baby you're never alone
I wish I had words right now. I'm angry and upset and my heart is breaking. I feel like you all are part of my family..I feel like Kayleigh is one of my own. I can't imagine if I feel that way what you are going through right now. NO MATTER WHAT I'm here to support you guys. NO MATTER WHAT I will never ever forget Kayleigh. NO MATTER WHAT she will ALWAYS be in my thoughts and I will ALWAYS remember her! What an amazing little girl you have!!!!!!!! I'm praying for your family and for sweet Kayleigh...praying most of all for a miracle but also praying for you all to feel peace and somehow to find the strength for whatever comes next!
HUGS
Praying for you all.
I am so sorry. Please try to find some comfort in knowing that if God takes her home, we have the promise of seeing her again and being with her for eternity. What a day that will be when we are reunited with our loved ones who have gone on, never more to be sick, no pain, and together forever. Your little angel has fought a strong battle, and i believe that she is wrapped in Jesus arms real tight with no pain or care. I know He loves the babies and is probably talking to her right now with angels all around...what a peace she probably feels. We are human and the pain is so great when we go through these things, we never forget it, day or night, but try to know that Jesus will comfort all hearts. My heart breaks for your family. God Bless each of you is my prayer.
i am so sorry and am still praying. I am truly sorry for you, your wife, Kayleigh and the other children. This is very saddening and I am continuing to pray for your family.
It breaks my heart to read this however we're praying now more than ever. Miracles do happen. I pray that Kayleigh is still with us and improvents surface soon, and that your family remains strong during this uncertain time. Sending all of the love and comfort vibes possible that you are capable and will follow the path He has mapped.
My heart aches for you right now. God has a plan for each of us. We don't know what it is but be comforted in knowing that He knows what it is. Thank you for sharing your sweer Kayleigh with us. She truely is a MIRACLE. Praying always.
Dear ones, I'm saddened by the latest developments...my heart breaks for you. I understand your need for religious counsel and I'm also sure you know that once you've heard everyone's thoughts and opinions, God will guide you in the right decision. I'm still praying for a miracle. She's come so far, bless her heart. As a mama of 3 w/one on the way, I feel so much pain for what you're going through. The tears flow for Kayleigh in Tucson, AZ. She has touched me. YOU have touched me. God speed.
Jessica
I am so sorry for the trying times your family is going through. I will continue to pray for kaleigh, God has a plan for her and you! being a mother to a 2lb preemie, having 13 surgeries i can kind of relate.
Please dont lose the faith.
im praying for you!!!!
This was one hard post to read. The tears roll down my face as I type...I can't even begin to imagine...But from what I gather you both are amazing, strong people and you have to remember that God only gives us what we can handle. I personally haven't lost a cjild but I did loose a lil brother who was 19 months at the time and its been almost 30 years ago and I STILL MISS HIM. Wonder where, what he would have become. But knowing he is in Heaven looking over me is a blessing in its own. Not everyone can say they have this. My heart pours out to you. Love and Hugs sending your way....
I have been where you are. Regardless of medical statitics and spirital advice the decision is ya'lls. Be prepared for negative reactions, even in your grief people will let you know their opinion. I found simply saying "God's will be done" brought great comfort, if our Lord can say it facing the cross then I could. Praying for you and asking for an extra measure of peace.
Praying for your sweet and precious little girl in Ontario, Canada.
My heart is just breaking for you and your family. I truly believe that God has a plan for little Kayleigh and although it seems to be an overwhelming amount of information you need to process, time to find some peace...a quiet place and listen to HIM, not to all of us...in that quiet HE will speak to you and you will be at peace with your decisions. I am in constant prayer for you and your family.
I have been following Kayleigh's blog for a while now, probably since a few months after we lost our little one, Jenna, to Trisomy 18 last year.
I wanted to say that sometimes the miracle comes from knowing when the right time to say goodbye is and knowing that she will be completely healed after that.
We had to make the decision in late 2007 to remove my granny from life support. Our first decision was to bring her home if we were going to do so. Hospice is wonderful for that, if you want to bring Kayleigh home. When we knew we were going to try to carry to term with Jenna, I looked into hospice care for babies, and there are many who provide this wonderful service for little ones.
Also, we just knew when it was time to take the life support away from Granny. It was a peaceful decision for all of us, and since that day, none of us have questioned if we did the right thing or not. I think if we hadn't waited until we had a peace about it, we all would have wondered if we were doing the right thing. My mom said the Lord gave us the peace we needed.
But please, definitely consider taking her home. I think we would have also felt differently about letting Granny go if we hadn't brought her home.
My heart breaks for you and sweet Kayleigh, who's journey we have followed now for many months. Your story has made me as a mother and a wife a better person. I do not take one single day for granted anymore. When faced with horrible choices and feeling lost I try to think about all the good things in my life and think back to brighter days. Kayleigh is a miracle baby and through you and Amiee she has touched so many of us with her triumphs over such huge obsticles. We will continue to pray hard. Each and every moment of the day we will think of her and her family.
God Bless you all...
My heart is breaking for you... yet I stand firmly with you that God is in control. Praying, praying, praying for a miracle.
My heart is breaking for you and your precious little girl. I'm so sorry for all your are suffering through, and of course, struggling to grasp. You are all in my prayers.
Continued prayers for Kayleigh and the rest of the family.
Shelly
I was introduced to your blog just today and my heart goes out to you! Your little Kaleigh is as precious as can be. I lost my daughter at 3 months to a heart defect back in 04 I know how living in the NICU can be. Keep your chin up and stay strong for little Kaleigh. I will continue to send prayers your way and follow your blog.
Michele Wallace
My heart is breaking with you as I read this Adam and Aimee. I am so sorry to hear such terrible news about your precious angel. I pray that God places his hands around you and Kayleigh and provides the strength, peace and comfort you need in whatever decision you make. I am praying very hard for you all.
I am so so sorry about Kayleigh. This breaks my heart. I will continue to keep her as well as all of you in my thoughts and prayers.
I will keep you in my prayers.
Adam,
I came across Kayleighs blog in February and was quickly flooded with memories when reading her story. My cousins also welcomed a sweet baby girl 15 weeks early and weighing only 15 oz in June of 07. Averie Marie was a fighter from the get go, just as Kayleigh. When she was 5 months old she came home with her parents and for a time life was wonderful. Sadly enough to our broken hearts Averie went to be with Jesus one evening in her sleep just one month later. Once again my heart is broken when reading your recent posts on Kayleigh. I am praying for her, for you and your wife and asking God to bring peace into the situation in the way he can and the way that he has intended. I believe fully and completely in miracles. I have one in his crib here at home and I never give up on them. I just always pray that God gives me the strength and the wisdom, not to mention the peace I and my family need in times such as these. And so I will continue to have faith that God can perform a miracle and I will continue to pray for the strength, wisdom and peace for your family and through whatever is placed in your life. I am not one who is blessed with giving very encouraging words or scripture, although I wish I was. So, all I can say is....you are loved, Kayleigh is loved and not just by God (although it doesnt get much better then that does it?) but by myself and the people who have prayed and lifted their hands and voices to our Lord in her name. You are loved and we are praying relentlessly for you and your precious, beautiful miracle baby.
With all of my heart,
Mel
To Kayleigh's family
My prayers have been with you and will continue to be with you. I can only relay the "conversation" with Jesus I had 25 years ago when my son was trying to survive a very rare deadly cancer. After thanking Him for the strength to get through each day, I asked what was to happen and what did He want me to do. Back came the words, "Leave Greg to me". He gave me strength for each day and took care of Greg. I have never doubted that no matter what, He would be there. The Shepard is always with you.
Diana
My heart is just breaking for you. Praying for you.
I just sent a post to facebook. I encouraged everyone to pick a certain time to pray for Kayleigh. I know that everyone is praying non-stop, but I think that the body of Christ must come together and get on our knees for her. I would love it if everyone picked a time and we prayed for her around the clock. I will be praying at 9pm - eastern - in Michigan. Please join me. "Around the Clock for Kayleigh"
I'm so sorry to hear that there is no change in your sweet little girl's condition. I'm still praying for you all. If it is His will that Kayleigh be in heaven, then she will be, and she would be there now. She is still here, breathing on her own and stable other than lack of brain activity. I must have faith that His plan for your sweet little girl\s time here on Earth is not yet done.
No matter the decision you make in the coming days/weeks, I know that He will guide you to make the right one.
I am so sad to read this post. I am speechless. Kayleigh is an awesome little girl and loved by so many. Praying for you & your family.
i have been reading your story for awhile now and i have never commented, but I want you to know that you and your family are deeeply in my prayers and remember when you only see one set of footprints in the sand that is when God carried you...
"Trust in the Lord with all your heart, and lean not on your own understanding; in all your ways acknowledge Him, and He shall direct your paths." (Proverbs 3:5)
Thus says the Lord, Your Redeemer, the Holy One of Israel: "I am the Lord your God, who teaches you to profit, who leads you by the way you should go." (Isaiah 48:17)
"I will instruct you and teach you in the way should go; I will guide you with My eye." (Psalm 32:8)
"For this is God, our God forever and ever; He will be our guide even to death." (Psalm 48:14)
"The Lord will guide you continually ..." (Isaiah 58:11)
Notice the specific words that God will "guide you continually, be our guide even to death, guide you with His eye, leads you by the way you should go, teaches you to profit, instructs you and directs your paths."
as someone whose had to take two of her children off life support, my heart is breaking for you...
may god meet you in this place and may he HEAL sweet kayleigh...
my thoughts and prayers are with you.
Dear Adam and Aimee,
As parents of three girls, our heartfelt prayers are with you every moment through your ordeal.
We have thought about these types of issues on many many occasions for multiple reasons. We are familiar with times that "brain scan" results have been ignored and patients awaken and return to full consciousness. Take this young man's case, for example: http://www.msnbc.msn.com/id/23775873/
That is not to say that we, or anybody, knows what God has planned for your beautiful daughter. That is to say, however, that in your post, you already gave your answer, "We are just not ready to say "Goodbye, for now."
Trust your instincts, not the imperfect predictions of the doctors. Remember this; the medical term of "brain death" is NOT PERFECT. It is the attempt at the doctors prediction of what will happen in the future. Your daughter is ALIVE, and you have the proof in your posting, "Her sats are great and her heart rate/blood pressure is right where it should be." That is not true for somebody who is not living. Job 1:21 "The Lord gives, and the Lord takes away. Blessed be the name of the Lord." The Lord has not taken Kayleigh away. She is a living, breathing human being. As hard as it is to see your baby in this condition, no one knows what work God is doing right now through this situation. Kayleigh is in the care of the Heavenly Father and you have to trust that at all times. If He chooses to call her to Him, it will be undeniable. She will have no sats and no blood pressure.
In the meantime, you are parents of a living Kayleigh! Give God a chance instead of letting the doctors short-circuit the natural progression from life to death. Give God's Providence a chance in your life to see his Hand instead of allowing the doctors' influence you (usually for financial reasons) and cutoff any natural healing process that may be going on with your Kayleigh.
Trust God and trust your instincts. We will hold you all; parents, Kayleigh, and the doctors in our prayers.
I am praying for you and your baby girl. I am from bbc. I have been following your blog for some time now. You two are amazing people. I don't know that I could be as strong as you are. Don't give up hope.
God bless you
Adam,
Dont give up hope please...she is such a fighter, but if its her time then please embrace her with your love and give her the comfort of your arms.
Praying Hard
First of all, I am so sorry to hear what you are going though... this is, im sure, an extremely difficult time. I want to tell you about a little girl named Faith. She is a local youth ministers daughter. She was 11 weeks early (only 29 weeks along) and weighs 3lbs 2 oz. at birth, she was not breathing, and the doctors ended up giving her an epy boost (directly to hart), blood transfusions and 11 minutes of CPR to get her functioning. She struggled and fought her way through 3 months of life, many tears, many medical procedures, and false hopes. Her parents, after having multiple flat EEGs and many other negative test results, pulled her off the life support nad feeding tubes that she had been connected to from day one and let God take control. She was then able to be held in her parents arms, disconnected from the machines. Her mother often danced with her, slept with her, and told her stories about her older sister Brenna. She passed into Gods loving arms on April 21, 2008 at 8:20pm. Her parents knew that her passing was Gods will,and in heaven she would be well cared for, and that they had had 3 months of love with thier amazing daughter.
The point of my rambling, once God was allowed to control the situation, instead of the advanced medical machines we have now, Baby Faith went home. She will be forever missed and loved.
Am I saying that you should do the same-- or course not. I could not give you a "yes/no" answer, as i have not been there and your amazing little Kayleigh is not my daughter. You have to do what you and your family [and medical team] believe is right and no amount of words can make that choice easier.
our prayers are with you as always.
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Here are a couple verses as requested:
1 Peter 5:7 says:
7 Casting all your care upon him; for he careth for you.
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Proverbs chapter 3 verses 5 and 6:
5 Trust in the LORD with all thine heart; and lean not unto thine own understanding.
6 In all thy ways acknowledge him, and he shall direct thy paths.
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I believe that God will guide you, and your family, as well as your beautiful little Kayleigh, where you need to go.
Love and Prayers from Eugene Oregon.
Jenny and Paul.
As a NICU nurse, I have taken care of many patients like Kayleigh who have fought daily and taught those around them (including us nurses) so much during their all too brief time on earth. I truly believe that you will know when and if it's time for Kaeleigh to grow her wings and join the choir of angels.
Blessings to your whole family.
Praying and thinking of you all, and have been all day.
Praying for you all. I am so sorry.
There is no need for you to ever apologize for not blogging. You are going thru a heart-wretching time right now so the blog is the least of your worries.
All of you are in my heart now, but there is nothing that can be said to make you feel better. But this poem might express what Kayleigh is experiencing.
--Sandra in Chicago
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This World Is Not My Home
by Albert E. Brumley
This world is not my home, I'm just passing through
My treasures are laid up somewhere beyond the blue
The angels beckon me from Heaven's open door
And I can't feel at home in this world anymore
O Lord you know I have no friend like you
If Heaven's not my home then Lord what will I do?
The angels beckon me from Heaven's open door
And I can't feel at home in this world anymore.
Our prayers are with you - may you feel God's loving arms strengthening you and giving you unexplained peace and wisdom. I cannot fathom the depth of emotions you are experiencing, so I'll pray that the Lord will speak to you as you make decisions. God Bless!
Praying for you during this difficult time. May you be led with strength and guidance.
My heart is breaking for you. I am praying for peace beyond understanding for you. It is wise to gather all information, both medical and spiritual. In the end though, I believe it is you whom God will speak to as her parents as to what path to take. It is a decision no parent should ever have to make. A scripture that has become my personal strength as I have faced dark days with medical issues with my daughter is 2 Tim. 1:7..."For God hath not given ujs the spirit of fear; but of power, and of love, and of a sound mind." That is my prayer for you.
I didn't expect to see this post at all. I actually had it set in my mind that little sweetie pie would be waking up from that bad nightmare and she would be back to normal. Adam and Aimee, I've lost 2 babies as well, so I know the feeling of dispair and hopelessness! I know the terrifying fright you are feeling now. You are in my thoughts and prayers right now and always. God Bless each of you and may He lay his healing hands upon each of you as you walk through this together. Our Father has little Kayleigh's life predistined, so whatever decision is made for her, He ordained it! I love you all!
Lifting your little girl and family up in prayers for a miracle.
Today I praise God for you, because you have shown so many that He is real - I can see Him shining so clearly through you. It is when people go through something so unimaginable and unbearable, and are still full of grace, strength, faith, love, and kindness that God shines through. People cannnot exhibit the exceptional character that you and your family have shown throughout these months without the help and grace of God. I am praying my heart out for you and your family, the doctors and nurses caring for you, and precious Kayleigh. May He grant healing, wisdom, strength, rest and peace to all of you.
Lots of love,
Lindsay
I've come to fall in love with your precious little girl and it breaks my heart to read this update. I cannot imagine what you are going through. Your incredible faith and strength is just amazing.
Your family is in my prayers every single night and will continue to be.
Lifting you to the arms of Jesus. No words can convey how much I feel for you. Praying constantly.
Much love,
Kim in Seattle
I can't express enough how my heart aches for your little angel right now. I know no matter the future, I will always remember her and the strenth, beauty, and love she has shown me. I can't give up hope just yet, just not in me. I know you might have some big decisions in the near future and I read comments about her coming home with you. I don't know all the red tape about insurance but would it be possible to bring her home? Freemans just remember so many of us pray and think of you. If you need us we are here for your family. May God be with you and give you the reasons to understand. I love Kayleigh so very much and support your family 100%. Give Kayleigh still so many xoxo.
I wouldn't dare try to tell you what decision to make, that is between you, the doctors and the Lord. Praying that the Lord will help you make the right decision, and that whatever it is, He will give you complete peace.
I will be keeping you and your family in my prayers. i will also forward this to my pastor in hopes he will respond to your request.
Hebrews 4:16
Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need.
Bj
Adam and Aimee - I am not a preacher but it is God's will for all of us to live long, strong, and prosperous lives. As born-again children of God, you have rights according to our covenant with God. You and your children have a blood-bought right to freedom from death and destruction and you have a blood-bought right to healing. Find some scriptures and stand on those scriptures like Isaiah 53:5 says, "...with his stripes (Jesus' stripes) we are healed." Everything in the Bible is based on seed, time, and harvest. Start planting words of life and healing over your daughter by confessing out loud the scripture over your daughter. Believe what God says about your daughter more than what anyone else says, including the doctors. Just because you have not seen manisfestation yet does not mean it is not on its way. Do your best to resist all fear and unbelief. II Timothy 1:7 says, "For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind." Luke 10:19 says, "Behold I give unto you power to tread on serpents and scorpions, and over all the power of the enemy: and nothing shall by any means hurt you." You had indicated wanting to get in touch with preachers for prayer... I know of a very anointed ministry. Please feel free to visit www.worldchangers.org. They have a prayer line you can call Sunday through Friday 7:00am to 8:00pm EST.
Still praying for a miracle for your little lady. I pray that God will give you comfort and wisdom if it comes to you both needing to make a decision about Kayleigh's future. You are in our prayers. May God give you peace.
Sending you love and support, and my prayers are with you. My heart is breaking for your family...
Love,
Erika
http://littletinyfootprints.blogspot.com/
We are praying for you. God will guide you, comfort you and hold you. Kayleigh will let you know when it's time. You will know.
We are praying for you.
Andrea
I'm praying for your sweet little angel. I'm also praying that you get answers to all your questions and find peace with the answers. My heart is breaking for you. May God continue to give you strengh.
We are thinking of your family and Kayleigh. God Bless the little princess .
I will not give an opinion as you asked. I just want to send love and hope that things will turn out exactly the way God intended (and why wouldn't they?) He knows the plan for her and it is perfect.
Your daughter is beautiful. Peace be in your hearts. I am so sorry for the pain and confusion you are feeling.
Praying in so many ways!
Praying for peace of mind and comfort for your entire family.
Without ceasing,
Kaye
Psalm 46:10
Matthew 21:22
I have been following your story for a while and i first want to say that I am so sorry you and your family have to go through this horrible time. My husband and I lost our son at 30 weeks pregnant one year ago next Sunday so i know your pain....i pray the Lord will give you peace beyond measure and that His Holy Spirit will comfort you in this time.
I encourage you to just spend time with your family. You know the decision in your heart..you do not need pastors telling you what to do but you need you, your wife, your family and God. That's all. Too many voices will confuse the situation. May the peace of God rule over you like never before.
Praying for you,
Amber
You and your family are in our thoughts and prayers. We think about Kayleigh all the time. My son and I did the March of Dimes walk this morning and walked in honor of Kayleigh. Her name was on my shirt and my sons bib along with other preemies that we know. I have sent your blog to our preacher and I know that he will be praying for you as well.
Praying for your sweet baby and for all your family
xoxo
In a way, our modern medical technology is a two-edged sword. On one hand, it allows micro-preemies to survive when not so very long ago they would have died shortly after birth. On the other hand, modern medicine creates the sad situation you are in right now.
I know of several people who are caring for children who wore born very prematurely. One is blind and paralyzed and can't speak. Her parents believe she can hear and understand what is said to her but they aren't sure. They are faced with huge medical bills and are worn out from constant care of a child who grows larger but who will never mature beyond infancy.
Another close friend of mine was born premature and has cerebral palsy. She is fortunate that despite trouble walking she has a brilliant mind and is a fine lawyer with a very supportive husband.
There are many levels of disability. While, as you say, God can do anything at any time, there are certain rules that govern all life. It seems apparent that your little girl is gone from you. I'm terribly sorry.
If I were in your position I would not want to keep her physical body breathing when her spirit is no longer inside it. That's another unfortunate byproduct of modern medicine: she appears to be sleeping, about to awake any moment. I'm sure the sight of your beloved child, still warm and breathing, makes the choice that has to be made even more bitter.
I think that instead of looking for a quote from the Bible to tell you what do do you should weigh everything the doctors tell you and act in a loving and respectful manner toward your daughter. I have found that the Bible has many contradictory opinions about all sorts of subjects. I don't think the answer is in the pages of the book but in what you have learned from living a Christian life. good luck and again, I'm sorry.
I'm sorry you are facing this. God will show you the way. He will tell you when it is time to let go. You will know for SURE what is right when you need to make decisions. May God give you peace.
You are all in my prayers. I know that IF the time comes, whatever decision you make will be the right one.
Twice we have had to make the decision about removing life support for our children. Only one week before the day life support was removed, for both of them, they were supposedly healthy and normal children. We were also taken by complete surprise. We also had faith in God.
I will tell you this about your question. I believe this sincerely. Dominic and Bridget both brought this question to me as I struggled to know if they were here or already advancing...
Our spirits our housed inside our bodies, creating our souls. I believe Kayleigh may in fact be conversing with angels while still having residence in her body. I felt very sure that Dominic was not always with us even though his body was still sustained. His spirit was in a sense in "limbo" (I don't like that word as it has religious connotations I don't agree with, but I am uncertain how to phrase this). I also felt certain of this with Bridget. It was not until their bodies were released from the machines that their spirits were free to progress into the eternities.
I am sorry that words fail here. When the languages were confounded, we were left unable to express such deep things such as these with words. My spirit reaches out to yours in this time, and I hope somehow you can feel spirit to spirit my deep tenderness I feel for your situation. And how I ache to give you answers. Sometimes we will go a lifetime still without answers, as we are taught (as Isaiah says ) "like upon line" "precept by precept". Even if we heard all the answers, we stil may not be prepared to understand them yet. I am still very much waiting for answers. I believe God will give you the inspiration you need to do what is right for Kayleigh, your family, and God.
In deepest concern and love.
I'm so sorry you find yourselves in such an unbelievable place after an already-very-long journey! Kayleigh has touched many, many lives and will continue to do so! Please take comfort in remembering God is NOT surprised by these circumstances...He has known from the beginning of time the number of hairs on her sweet head as well as the day, time and circumstance in which she will return to Him. You always have and will continue to make the best decisions for her!!
You're in our prayers!
Tracy
My heart is aching for sweet Kayleigh! I want her to wake up so bad and for her to be back on her way to recovery. Why is the question in so many of our minds and we may never know. No matter what I am still praying first that God brings a miracle to to Kayleigh. Second of all I am praying for peace for you and Aimee! We love you guys and I still have hope! PLEASE Lord breath life into Kayleigh!
I just read Kayleighs story, and first of I would like to say what an amazing little girl you have. I know you aren't sure where this battle is going to lead you, but she is a fighter! My thoughts and prayers go out to her and your family...
Adam and Aimee,
There are no words to express the profound sorrow I feel on your behalf. I REFUSE to give up hope on Kayleigh and will pray for her everyday until the Lord makes his final call. She has been such a blessed miracle to so many souls in her short time on earth and only GOD can decide how that story will end. Live everyday to the fullest, give her lots of kisses, and allow your hearts to soak up all of the love and faith that your tiny daughter gives to the world! I contacted the best pastor I know about your story. I hope he will help answer some of your uncertainties. I will keep praying.
Still praying for you! Hang in there, God will give you the right answers at just the right time. He is FAITHFUL! Prayers, blessings and love to your family and sweet baby Kayleigh!
Melissa
McMinnville, OR
My thoughts are with you. I cannot imagine what you are going thru. Your little girl has touched my heart. I have a 3 kids, including a 4 month old. She is only a little bigger than Kayleigh. I have been hugging on her extra today. I feel like I know you from reading your blog and I have been crying all day. I hope you and your family will find some peace and please give Kayleigh a hug and a big smooch for us.
I am at a complete loss for words. I never thought it would all come down to this. Matt & I are so sorry. After everything you all have been through you do not deserve this. Your sweet little girl should be going home to be in your arms it is just tragic that she might be gone. I know that you will make the right decision. Hugs, kisses, & love to all of you.
Praying for you and for Kayleigh. I'm so sorry to hear of this recent news.
man. words can't be shared that will help you. except this. i'm praying for you and your family through this crazy time. god is good and faithful.
Praying for Miss Kayleigh! Hang in there Adam and Aimee...prayers are coming your way!
~Elyse~
I just found this blog today. I watched Kayleighs story and cried the whole time. You are all so strong! Your baby girl is so beautiful and such a blessing to so many people. Thank you for sharing her story. I am praying for you family.
I am praying hard for your beautiful daughter. God has the final say in what goes on here on earth. I would just listen to God and what he has to tell you. Sometimes the doctors listen to the books and not their hearts. I hope and pray God will give you a beautiful miracle with your amazing daughter and your family. I will continue to pray for Kayleigh and your family. Let God guide you and he will answer your prayers.
With love,
Julie
God Bless You and Thank you for sharing your story!!!!!!
"Along unfamiliar paths I will guide them; I will turn the darkness into light before them and make the rough places smooth. These are the things I will do; I will not forsake them." Isaiah 42:16
I am trusting God to lead you in each and every decision you will be making for your precious Kayleigh. I am so sorry that this is happening to you and to her. I am praying that He makes your path clear to you at this time.
Love and Hugs, Laurie
I've been following your blog
I'm at a loss of word
I pray every night for your daughter
I'm sure God has a special plan for her
Praying for Kayleigh and you her dear parents. My heart goes out to you.
I have continued to pray, every single day, every single hour, almost constantly. Before I sleep, I pray, when I wake, I pray. This poor baby...I don't see how it's fair! I have shared her story with my boyfriend, who really didn't know whether he believed in god or not, his dad was budhist, is budhist, his mom is christian. Once I told him of Kayleigh...he began to have faith in god...She converted someone who once thought religion was stupid. Also my entire church is praying for your little girl, she is in my faith statement for confirmation, we will continue to pray for Kayleigh...I'm not giving up yet...No one should. She's an amazing girl...pray that god can work one more miracle.
Like most other commenters, I am saddened beyond words by the situation you are facing with your precious Kayleigh. I pray that God's wisdom would guide your decisions and that whatever decision is made would be made with complete certainty that He is leading you.
Grace and peace.
I am so, so sorry to read this. Sending lots of love and prayers from Michigan.
I will be keeping Kayleigh in my thoughts and prayers. as well as your family. I am so sorry that you have to go through this. I wish you lots of strength through this rough time.
Adam,
I've sent an email.
I had tears in my eyes as I was reading this, so sorry. I have been following Kayleigh for months. I will keep you guys in my prayers.
This is absolutely not how I wanted to see your story end. My heart breaks for you and I'm praying for you.
I am so so sorry. No parent should ever have to go through what you have.
God Bless you.
((HUGS))
May God bless and keep his arms around Kayleigh and both of you. Remember that when times are at their worst, God is holding you, all of you. I pray that somehow Kayleigh can come out of this but I also pray that his will be done. He will take care of all of you, give you peace, the answers will come to you. Kayleigh has changed me forever. And so many others. We thank her and love her for that. She is the cutest little peanut ever! Keep praying and the right answers will come to you. You will continue to be in my constant prayers here in northern CA.
Love and hugs,
Lise
I have been following for some time, but I have never posted. My heart breaks for you both to be put in this position. You are right to lean on your faith in God, and seek guidance from faith leaders at this time. I pray that it brings you some solace, whatever your decision may be. Lean on the Lord and He will show you the way. My prayers are with both of you and your beautiful baby girl. May God bless all of you.
My heart breaks for ya'll. Praying for you and your little girl.
Praying. You do what you think is best for your baby girl. Dont let those Dr'd make that decision for you. Please.
Bigger miracles have happened. We continue to pray that she will recover fully and be in your arms.
Continued prayers for your family
My heart aches for you. I have no new words of comfort. I can only echo what others have said. Belive in yourself. God will hold you in his loving hands and guide you during these difficult times.
Should you decide to take your daughter home, consider contacting a children's hospice (or similar agency in your community). They can assist you with caring for your child at home, wherever her path may lead from here. Choosing a children's hospice isn't choosing defeat. They have experience with the entire spectrum -- from children with only a limited time on this earth to children who defy the odds of the physicans.
My prayers go out to you and your family. Take care.
We are so sorry. We are still praying for a miracle. And praying for your family to handle the tough days ahead.
Like many others, I have been following for a few months but have never left a comment. I cannot imagine what you are going through and wouldn't dream of giving advice. Just know that your little girl and family have touched many lives and there are lots of people praying for you and thinking of you, more than you know.
I think it may be time to consider bringing sweet baby kayleigh home to her beautiful nursery to be loved on by the rest of the family. May you feel peace during this difficult time. You did everything you could for that baby, rest assured of that. May you be lifted up by our prayers.
I am so sorry. I really don't have anything to say other than my thoughts and prayers are with you everyday.
Psalm 139 speaks at length of how we are "fearfully and wonderfully made", that God knew us before we were even conceived. vs.16 says that He already has our days planned and numbered. The Almighty Father knows Kayleigh's time to join Him, just as He knows when you or I will pass on to our Heavenly home, and just as He knew that about my sweet little one. Keeping her in the hospital, on or off machines, is not going to bring back her brain function. Only the Great Physician can do that- and, if he chooses to heal her, he will do it wherever she is. You do what you feel is best for your family. If you want to take your sweet baby girl home, don't let guilt or fear stop you. Sometimes I think God puts us in a time of waiting so that we can better accept His will. If He is calling her home, in all of His glorious grace, He has allowed you time to prepare, time to say goodbye. Use that time in a way that 10 years from now you can say that you have no regrets as to how you spent your short time with her.
Don't misunderstand me to say that I have given up hope. Our God is all powerful, and I firmly believe that He has all power to heal. In our human capacity, though, we cannot begin to understand his will or His plan. I do know that every life has a purpose, and if God used your sweet angel to lead someone (or hundreds) closer to Him, then praise God for giving you the honor of being her parents.
I pray God's hand to guide and comfort you always, and to guard the hearts of your other children.
My heart sank when I read today's post. I am praying for a miracle for sweet Kayleigh.
I have been following from the beginning and praying for you guys and this is just not what I think any of us wanted to hear. I wanted her to be home with you guys right now but the Lord has different plans I guess. Just pray. Thats all I can really say...God will give you the answers you need.
I am so sorry that you have to even be faced with such a decision that just absolutely breaks my heart.
I will pray for your family and of course keep praying for baby Kayleigh.
Brittany<3
Our hearts are breaking with yours. Take time to hold and love your sweet baby girl. Take pictures of you both holding her. We are sending you faith, love and strength right now.
PLEASE READ THESE STORIES!!! I hope they give you faith!!!
http://www.catholicnewsagency.com/new.php?n=12164
http://www.lifesitenews.com/ldn/2008/feb/08021508.html
http://www.deathreference.com/Bl-Ce/Brain-Death.html
This shows Gods work at hand!!
I am absolutely heartbroken trying to imagine what you are going through...and though there are over 300 responses I doubt you will even notice mine.
I am not as Christian as most who follow your blog...but I am an avid follower of Kayleigh's story just the same...I pray just the same.
My hopes for you, though religious counsel will help your hearts...to remember everyone has their own interpretation of the Bible and their opinions on "What God wants you to do", even preachers. I hope you and Aimee sit in a room alone, hold each others hands silently, looking into each others eyes...and it will come to you what to do as this precious baby's parents.
I'm sorry if I come across as rude or ignorant towards anyones beliefs...its not my intentions...I just think your own opinion as parents should trump anyone elses...whether it is God speaking to you through silence or crashing through the door.
I am sending all my good thoughts, praying and love your way...Kayleigh has touched the hearts of so many people...God's plan is obvious...we all see her sweet, strong spirit...and makes us look at miracles like this in awe.
S.O'S from Canada
We are sending prayers from Utah!!! We pray that you will be able to make the right decision regarding your sweet daughter!!!
Thank you for sharing Kayleigh with us. We have all been blessed to know of your cute family. I will be praying for your family, that the Lords spirit will be with you to help you find peace and comfort at this difficult time. I believe the Lord is holding Kayleigh in his hands. She is so close to Him. Stay close to HIM and you will be lead in what you should do. Whatever happens, you will be with her again! One day!
I found your blog as I am sitting here at work in the NICU in Germany. What an honor it is to be called to such a job. I am able to laugh with families, cry with families and more than anything, share the love of Jesus with these families. I want you to know that
'The PEACE of God, which surpasses ALL understanding, will guard your hearts and your minds through Christ Jesus' Philippians 4:7
There are no words that we here on this earth can say to comfort your deepest sorrow, but when you are unable to speak, the Holy Spirit will interevene. As I read your blog, the Lord reminded me of a video that was made by a church following the Columbine shootings and in that video it showed those that had faced death, standing before their MAKER and the words that I keep hearing over and over are
'To be Absent from the Body, is to be Present with the Lord' 2 Corinthians 5:8.
Your beautiful daughter is resting her head in the loving hands of her Maker. I do believe that the Lord can heal her in an instant, but if He so chooses to take her home, I pray you can find comfort in knowing that she is in a beautiful, perfect place.
God is in complete control of all our situations and nothing is allow to happen with out His knowledge and ok, just like the attack on Job. But I also believe in the power of prayer and the presence of an Almighty God to keep up safe in His hands. And no doubt many have been touch and changed by your story.
That word is DON'T GIVE UP! JUST BELIEVE!! TRUST IN YOUR FATHER!!!
"But when Jesus heard what had happened, he said to Jairus, "Don't be afraid. Just TRUST ME, and she will be all right. When they arrived at the house, Jesus wouldn't let anyone go in with him except Peter, James, John, and the little girl's father and mother. The house was filled with people weeping and wailing, but he said, "stop the weeping! She isn't dead; she is only asleep." But the crowd laughed at him because they all knew she had died. Then Jesus took her by the hand and said in a loud voice, "Get up, my child!" And at that moment her life returned, and she immediately stood up!" Luke 8:50-55a
My prayer for you:
Father I ask you to give peace to Adam and Aimee. Holy Spirit comfort them in this time of need and strengthen and encourage their faith. Use this for your glory and honor today. Thank you Father for hearing our prayers. And thank you for answering.
Just remember Adam and Aimee, it is not over until GOD (not the doctors) says it's over. Trust in Him and your hearts will be strengthened. Christ has already got victory over death.
Love you always,
Katie Anderson
Keeping you all in my prayers!! God will lead you-follow him!! Blessings and Hugs to all of you.
I am praying for your family. Kayleigh is adorable and I am so sorry she is in a fight of her life and the family has to suffer. Please know you are in my thoughts and prayers.
Praying God will continue to hold you and strengthen you all during this time of trusting. May you have that peace that passes all understanding. . . . .Kayleigh is a precious and beautiful.
I can't imagine the heartache and pain that you guys are feeling right now. I can't!
I do 'think' that if I were in your shoes, I'd want to take my baby home, too. I'd want her to see her beautiful pink and brown room. I'd want her to be at home with the family.
We love you guys from Texas. If only our arms could reach far enough to hug you.
~for she is a shining being and a dweller in the light~
Where there is life there is hope. My heart goes out to you. Don't underestimate God. You may not need to do anything, but wait.
I'm so sorry. This must be terribly hard for you. I am praying.
i have been where you are. my son was 11 months when hypoxia left him brain dead. we had to make the decision. he was sick and had a double organ transplant...his life was a struggle to say the least.
plese know this. if your little girl is already gone. she is at peace. she no longer has to struggle and to fight. she no longer has to feel pain, or endure another surgery...you will never worry for her again.
i came to the point with my son, when he was holding on to just a bit of brain functino...that i whispered in his ear, 'it's okay to let go...you don't have to fight for me anymore...i'll be okay.' an hour later, he was declared brain dead.
i was tired of seeing my son struggle...i prayed that god would take him. some people can't imagine that...but, when you've seen your child suffer, you just want it to stop. you just want them to be at peace.
all was not lost...we kept his heart beating and donated it to a little girl who wouldn't have survived 48 hours without it.
look deep inside...try to think about your daughter and not your own emotions. we realized that we were not keeping my son alive because he had such a great life and quality of life..we were keeping him alive for ourselves and to prevent pain for us...it wasn't fair to him.
i will be thinking of you and hope that you will find peace in the decisions you make.
I want you to know we are praying for you and we have been in your shoes.
We are here to listen...and to help you through this.
Michelle at www.elijahslegacy.blogspot.com/
I want you to know we are praying for you and we have been in your shoes.
We are here to listen...and to help you through this.
Michelle at www.elijahslegacy.blogspot.com/
I pray that you are all surrounded by God's love and God's grace and that he may offer you comfort, support and answers. I am just so heartbroken for you, I have prayed for Kaleigh countless times and will continue to pray for you and your sweet little girl, no matter what journey God has in store for you. Hugs to you and your family,
Christie O.
The Lord will bless you and guide you in your decisions with what you need to do for your sweet precious baby girl. You guys are wonderful parents and wonderful people to know. We love you all!
Creek family
My heart is breaking for you!!!!! :( I pray that you get a miracle!!
Praying for this sweet little girl and the parents as they go through this difficult time.
I am so sorry that you and your family are going through all this heartache. :'( I weep everytime I read your blog and I can't imagine just how hard it must be for you. I hug my son closer to me everyday and think about your precious daughter. She is simply beautiful. I wish there was something I could do to stop this from happening. I am glad your strength is God is strong.. I don't know what I would do in your position.
I haven't prayed in a very long time, but I am praying for your little girl. Know that I am sending all the love that I can your way.
My heart is suffering with yours right now. I am praying for you and your hearts.
My twins were born at 23 weeks weighing 1lb. When my son was 56 days old we had to make the difficult decision to take him off life support. It is a decision I wish no parent ever had to make and I wish no parent ever had to lose a child. I watched my son pass away in my arms, and for us, him passing peacefully with us rather than continue to suffer until his body gave out in his hospital bed, was the decision for us. There is no right or wrong decision and do not forget that. There is the decision you make with each other and what feels right in your heart and right with your faith. I pray that the Lord is with you both during this difficult time. My heart goes out to you knowing the devastation you are enduring.
Adam and Aimee,
im so sorry you are faced with this decision, please don´t take any advise that it isn´t from God, from reading your blog I feel that this is the way you are.
My husband and I had to make the most difficult decision of taking off life support, not with one child, but with two beautiful children who we love and will miss forever.
My babies were micro-preemies too, and had so many medical issues, each one with a different one but one as bad as the other. One of my babies had no brain function either from a massive bleed. At first when DNR was mentioned I was offended, but as the days went by, as we had multiple doctors consults and various tests, we felt in our heart that we wanted to give our children the best life they could have. Being bedridden for the rest of their life, was not the life we wanted to give to them, so we decided that the best gift we could give them was the give of life, eternal life.
we discussed it with our church´s priest, and pastors and we felt that it was the right choice in our heart, we felt Jesus´s presence with us, we felt peaceful with our decision. We knew it was the right decision even if it broke our hearts forever.
Let me tell you that I prayed so hard for a miracle for them before our decision, I believed it in my heart, I believed my FAith could move mountains. And it did, it gave my babies life, the most beautiful life anyone could have, in Heaven with our Lord.
Miracles happen in ways we cannot fathom, just pray that God give us the understanding and acceptance. He listens to us, and he responds in the best possible way, even though we don´t understand it.
This decision will affect the rest of your lives, you have to feel at peace with it or else your life will be shattered forever.
I will keep you in my prayers so that you receive God´s guidance and strength, it is the only way.
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