4/28/09 - Thank You

Twenty-five minutes have gone by on the clock while I sit here and think of the best way to thank you all for your support and I still can't find the right words to say. Not to mention that I am typing with one arm because Brent twisted my other arm right off, begging to write on my blog to reach out to others to help our family. Brent you are a complete blessing and I am thankful I prayed, listened to God, and let you post. Brent, I am thankful God has blessed us with such an incredible friend such as yourself. If you missed Brent's very generous post, read it (HERE).

I really did not want to let him write for us because every single one of you have helped us out so much before. Whether you prayed for us, donated your hard earned money or supported us with your love, we are forever grateful. In just one full day, you all have helped lift such a huge burden off of our backs. Dealing with Kayleigh's situation is one of the hardest thing any parent should have to go through, so thank you to every single one of you for helping take our minds off of our financial stressors so we can focus on Kayleigh who needs all of our positive thoughts. We are SO VERY THANKFUL!!!

Please understand that we would love to share with everyone how much was donated, but several people made a very good point, mentioning an amount can cause possible security issues and we would rather protect our family from any possible criminal activity. Unfortunately, this has already happened in the past. That is also why we are going to post a PO Box soon for those of you who asked for our address. Worrying about shooting an intruder family protection at this time in our lives is something we don't need right now, especially since we will be bringing our sweet Kayleigh home soon. Thank you tons for understanding.

Kayleigh looked so beautiful today, but doesn't she everyday? More of her swelling from the surgery has gone down and she seems to be in a more comfortable state than she has lately. There are very few cries of pain or discomfort and her rapid breathing has ceased for the most part. She was awake today while we held her and even though her eyes are distant, they weren't being pulled in direction that seemed noticeable. She looks straight forward, which made us feel almost as if she was looking at us. To clear some confusion up, she has no cerebral cortex brain functions, but still has brain stem functions. This allows her to breath, heart to beat, to move without purpose, and unfortunately cry/feel pain. She doesn't understand anything, won't learn, talk, comprehend anything she she sees or hears, and will never have purposeful movements.











We were able to speak with the doctors and share our plans with them. We plan to care for Kayleigh in the NICU until she is able to come home, just as if she was normal and had no brain injury. There were questions of whether or not we bring her home with normal nursing care of palliative care. We plan to bring her home on normal nursing care, so we take our time to live as a family before we decide to say good-bye. God is almighty and we will continue to pray He lays His hands on her to create a miracle, so no quick and rash decisions will be made. We will listen to our Lord and decide when that time is right.

So we are happy to continue to share the journey of Kayleigh's triumphant road home like every single one of us planned for so long. Just because Kayleigh's brain is not working the right way, doesn't mean she is not looking down on us with pure joy that we are able to follow through with the plans we always dreamed of. We know she is rejoicing in this moment with us and is happily smiling from a better place. She is our precious daughter, miracle and gift from God, and we will not let anything get in the way of our dreams and wishes.

Thank you all from the bottom of our hearts for the love and support you have given us. Please pray Kayleigh continues to progress with her feedings and everything else, so she can come home sooner than later. That day is still going to be one of the most glorious days of our lives because we still remember everyone telling us she will never make it that far.

We can't wait to hold her here in peace and quiet. We can't wait to see the sunlight dance across her face. We can't wait to see the wind blow in her hair peach fuzz. We can't wait to cuddle up next to her while she naps and we REALLY can't wait until we are all home as a family for as long as we possibly can.

God Bless you all and God Bless our sweet little Kayleigh,

254 comments:

1 – 200 of 254   Newer›   Newest»
Anonymous said...

i am praying for you

Tara said...

Sweet sweet baby! My heart goes out to your family! There is not a day that goes by that I do not pray for peace and comfort for all of you!

Dani said...

still praying for you guys. I will continue to and hope you can find the happiness you all deserve..

mom22little1s said...

She is so gorgeous! God Bless!

aaensons said...

i am praying that she will get to go home with you really soon to the family. It will be something that is needed for everyone. It was so wonderful for brent to post yesterday. Keeping your family in my prayers

Phoenix's Mom said...

Please know that my thoughts and prayers are with your family. You have an amazing little girl, and I can't wait to rejoice in your home coming together as a family. Thank you for sharing your story and strength.

Busy Momma said...

i am so happy that you will get to take her home. i hope that it is sooner than later. much love to you all

Catherine said...

The pictures are so beautiful, and yet so sad. I haven't been able to get Kayleigh out of my thoughts at all for the past few days, and my heart is just breaking for you all. With my son, we were at a severely high risk for all the complications Kayleigh had, but we escaped them...every post I read about Kayleigh is like reading it about my own child. My heart and soul cheer that Kayleigh has you as her parents; those who are strong in faith, who have an unfathomable ability to love and care for her in any way she needs, and are so self sacrificing. There are no greater parents for Kayleigh than the amazing gift she received by being born into your lives.

debbale said...

God's blessing and peace be with you...will continue to pray that your dreams come true and you are able to take Kayleigh home soon.

Rose Haven said...

This is so sad. We continue to pray.

Shelby said...

she is so beautiful! I am so glad to know you won't be making any quick decisions. You have to give miracles time as you may already know. Hang in there Freemans.

mumof2boys said...

Kayleigh is absolutely beautiful. I love your plans to take her home and be with the four of you as a family.

Hoping for a miracle.

mommylicious said...

Continously praying for you guys, every day. Kayleigh is a special little girl, and God gave her to you for a reason.

Kemp and Remis mommy said...

God Bless you, In our thoughts and prayers forever.. shes such a fighter:)

Chrystal M. Smith said...

I also can't wait for that day. I want to see pictures of Kayleigh out of that NICU, and I pray fervently that we get those pictures and you get to have your daughter home soon.

In Christian love

Rebekah said...

She looks so sweet and peaceful. I rejoice with you and look forward to the day you can bring your sweet baby home. We as readers are so blessed to have been allowed on this journey with you. Thank you for the bottom of our hearts.

Jennifer said...

I love to catch up with what is going on with Kayleigh. And yes, she is adorable in those pictures.
Praying hard for her home coming!
Jen in Florida

Leah said...

She is beautiful. I hope your family continues to get the support you need to make your financial situation NOT be a burden to you at this time. You are both very strong, and I admire you for having such a positive attitude in your sad situation. Every time I read a post on your blog I cry... every time. I had my husband read a few posts last night... we cried together.
God Bless your family. I will keep you all in my thoughts and prayers.

Mama2aMiracle said...

I am so glad to hear that there were no fast choices made. You and Aimee have made the perfect choice if you ask me..:-)

Kayleigh is a miracle and she is gonna love to feel the sun-light on her cute cubby cheeks!!

I have a friend, her name too is Lori, and I am sure she would talk with you for she has faced a lot of what you are facing now..Her daughters name is Emma and she is now 4 and still living at home with her!!

http://www.myspace.com/twinwithtwins

Todd and Courtney said...

Thinking of you in Chattanooga, Tn.

Amy said...

Continuing to pray for your family and precious Kayleigh.

Jenna said...

Your words are absolutely beautiful. Kayleigh is such a beautiful little girl who loves her Mommy, Daddy and siblings so so much! I continue to think about each and everyone one of you everyday. Thank you for letting all of us be touched by beautiful Kayleigh.

Lots of Hugs and Prayers!
Jenna

Georgia in KC said...

Thank You Adam for the update. She is absolutely beautiful. I'm so glad to hear you're going to be able to take her home. She needs to be in her loving home and out of the hospital. I will pray that days comes soon. She is a miracle and has blessed more people in her short 10 months that most people do in a lifetime.

Kara and Glen said...

God Bless. You and your family are forever in our prayers. I hope that day is everything you ever dreamed it would be.

Anonymous said...

wow I am the first to comment. never imagined that would happen. She is beautiful. I am so thankful that you continue to share her sweet face! God bless and be with you. she looks so peaceful. :)

Following Him said...

Sweet Kayleigh is just too cute! Hang in there Adam & Aimee...prayers are coming your way!
~Elyse~

Christa @ Quintooples said...

Bless you. I am praying...I think of you all the time. ((()))

Jackie said...

Always praying!!!

Stephanie said...

I have no words tonight just prayers and love for your family and sweet Kayleigh!

candi said...

God bless you guys. She is so beautiful. I am so happy you can bring her home. I will continue to pray for her. She is a beautiful little girl.

Anonymous said...

I don't know how you can continue to go on without being so damn angry about this situation. I ADMIRE you so very much and wish I could have half the grace you have at this time. I am angry. I love God, but I am angry. I am so terribly sorry and all I can do is continue to pray. I love your little girl and I love all that she has done for so many of us, but I hate that you are all hurting so much. You have given so much of yourselves and there is little we can do to give back and help ease your pain.
May God hold you in the palm of His hand.

Trish said...

What exactly has to happen before they will let you take Kayleigh home now?

mommyof2sons said...

She is beautiful. I saw the link to your blog on MckMama's blog. Prayers for your family that Kayleigh can go home soon!

TnAHurst said...

I wish there was something financial I could give to help but I will donate my time in prayers. Each one for God to supply what you need and that you will have a wonderful miracle! God bless you-Amber

Dotty said...

God Bless you all!! Kayleigh is a very lucky and blessed baby, she has such wonderful parents who are standing by her and doing everything they can for her! what an inspiration.
she is such a beautiful and precious lil girl. thank you for sharing her.
God Bless
Dotty

Chip and Dani Brown said...

Thanks for the update! Beautiful pictures of your beautiful girls, Adam :)

Tract said...

Freeman's, for all that I rejoice for you, my heart breaks for you. I love Kayleigh like a family member and have followed your blog since shortly after her birth. I hope someday maybe you can give us an estimate of the donations!! I have never done that before and am so curious due to the number of posts and knowing that many of the people who donated may not have posted!!! I still pray everyday for Kayleigh and your family! :)
Tracy
Nebraska

Anonymous said...

God bless little Kayleigh and your family. I've been reading your story for a while now and have thought and prayed about you often. May you take your sweet angel home soon to be with your family. She is so beautiful.

Konnie said...

We Love Kayleigh! and We Love her Family too. Your Beautiful little girl has touched our lives in so many ways. I can not wait for the day when you bring that Beautiful Baby home where she needs to be(with her family).
Praying in South Mississippi!
The Dooley Family!
Isaac, Konnie, Grayson, Brayden & Easton

Anonymous said...

She looks so peaceful. I am confused about the feedings, though. How does that work? Is she bottle fed? I would curious on the specifics on that. God bless you.

Tammy said...

I am so thankful that prayers are being anwered and that your precious babe can soon go home. May God bless and keep you all. Much Love

Jena said...

I will continue to pray for Sweet Kayleigh and your family. She is absolutely beautiful!! God bless you!

Heather A said...

She is so amazingly beautiful, she looks like a precious doll :) I am glad your spirits seem to be up and that you and your family have one less thing to worry about. Your lil girl is AMAZING and I still am crossing my fingers for a miracle. I know you will be able to bring her home in no time to do the things that every parent deserves to do with their child. God Bless- Fellow Sept BBC Momma

Anonymous said...

Oh, sweet Kayleigh. I am so glad you are going to get to go home. I am praying for your little brain to start working again. She does appear to be looking at you! Can she live forever like this? Since her brain stem is functioning? I just wish she would feel no more pain, I know that part must be heartwrenching for you. Have they determined what caused this? God bless you sweet Kayleigh and your amazing mommy and daddy!

Robin said...

Beautiful post and pictures. There is not an hour in each day that our thoughts are not with Kayleigh and you all. Praying for peace and joy in such a terrible situation. You are all loved and prayed for every day in this house. We want you to know that Kayleigh has made an impact in not only my life but my 7year old son as well. He talks of her every day and reads your updates with me and he reminds his brothers to pray for her everyday.

With love,
Robin & Sebastian
WA

Anonymous said...

Absolutely beautiful and perfect she is, your love is for her and our Heavenly Fathers love is for her! Because of His love, His peace and His perfection, you will have a peace and understanding that surpasses your imagination!

Dianap said...

I'm sure that she is playing with the angels. I bet she will enjoy coming home.

I don't believe that doctors know everything, and I'm still praying for a recovery/miracle.

Thank you for sharing your story, I have followed you from babycenter, and it makes me grateful for all my blessings.

Your faith is inspirational, and your family is amazing.

Jennifer said...

Oh my~~~so breath-taking precious! Kayleigh you are so amazing and you do shine just like the stars! Oh precious angel from above...I'm so glad that you will be going home soon to live the rest of your life surrounded by all of your family.

I pray for you today...tomorrow..and all the days ahead.

Yes, you are so amazing.

Katrina said...

Thank you Adam for sharing her story and making my life with my kids much more meaningfull and bringing me back to The god I haven't been close to in years (long story). It will make me a better person Knowing Kayleigh and her journey.

Still praying for that Miracle.

Tinika said...

Still praying. And yes, she is still the cutest thing ever!

Kim (BC Sept 08 Mom) said...

Thank you so much for posting! I have been hitting the refresh button all night long! Such a beautifully written post (as always!) Thank you for sharing the pics...its wonderful to see her with Aimee, cuddling & loving together. I am so glad that you will be able to take Kayleigh home soon. It will be so wonderful for you to get to spend time with her as a family in the place where she belongs. Still praying for all of you and hoping for more miracles!

jag said...

Continued prayers for your family and your beautiful baby girl...

LJ said...

Kayleigh is beautiful, precious, and amazing! I am so moved by your journey. God is so good and you guys are living proof. I will continue to pray for Kayleigh and your family everyday and I will keep reading as long as you keep writing.
God Bless,
LJ

Kelly said...

Adam,
This was a very beautifully written post. I commend you and your entire family for being so strong throughout this entire fight. Your family and especially that sweet little Kayleigh have changed my life forever. I cherish my kids more each and every day and hold them tighter than ever before. I appreciate all that life has to offer even though there will always be hard times but also many wonderful ones. I am so glad to hear that you still will be bringing Kayleigh home. You have all fought the good fight and you should be forever proud of yourselves and of course, most of all, Kayleigh. She has taught many people many different things in her short life that most people do not ever accomplish in 20 or more years. She is a precious gift from God and will forever leave an imprint on many hearts throughout the world. I know she will forever be in my heart and mind and I thank you for bringing her into this world and fighting for as long as you have and continue to do. God bless you.

Many hugs and much love---

Kelly (Wisconsin)

The Hone's said...

I have just read up on your story and you guys are so strong. I dont know if I could be that strong if kaleigh was my daughter. Im praying for you and your daughter that you will be able to take her home soon. She is beautiful!

Jennifer in Seattle said...

We continue to pray for Kayleigh and your entire family. She looks so perfect and beautiful - what an amazing treasure. I've said it before, but will continue saying it. Thanks for sharing your beautiful gift with all of us. Each night I hug my baby tighter and each day I thank God for his Grace. May God continue to touch you and help you through this difficult time. Kayleigh....you are treasured by so many. Keep fighting precious girl!!

The Lindsay Family
Kenmore, WA

Kristine said...

I am so, so sorry that your little girl had to go through ANY of this struggle.

There are so many things that we just don't (and can't) understand. The most difficult is seeing our babies fight illness and suffer.

Just know this...your little girl has made a difference in so many lives during her short time here so far. Your faith has inspired me to spend more time connecting with God and Kayleigh's sweet face will FOREVER occupy a place in my heart.

What you are going through is my biggest fear realized. My daughter came so close to where Kayleigh is right now. I wish with all my heart that things were different for you and your family. Your Kayleigh has touched my heart in a way that no one else ever has before. I have tears streaming down my face and I ache for all of you.

I'm sorry if this message is scattered...I keep searching for something to say that will HELP in some small way, so here it is...

I'm praying. I'm praying.

Hugs from Kristine & Katie

Shari said...

I was brought to tears by this post, and I really can't pinpoint why. I'm keeping your whole family in my thoughts.

Kayleigh is beautiful. I hope your family can create many memories with her, and I pray that God touches your family.

Michelle said...

I'm so glad that some of the financial burden has been lifted. I gladly donated, and I will continue to do so. Kayleigh looks so precious in her new pictures. I can't even tell you how many miracle stories I've read recently about people who have made full recoveries after being brain-dead. Don't ever give up hope on Kayleigh! I know your faith is great! God bless you all, and my prayers continue...

Lacy's Family said...

Thank you for continuing to show such amazing strength through such a difficult situation. Still praying for your family and you continue to be in my thoughts. What a wonderful day it will be to hear your are bring Kayleigh home and see the pictures of her laying in the grass and in her beautiful room.

Anonymous said...

She is beautiful. I can not look at her and smile through my tears. I pray for a miracle. We all will be shouting with joy the day you get to take her home. Blessing, Lisa from Texas.

Anonymous said...

Just was looking at your churchs website and noticed that your pastors theme for the past Sunday was "Healer". I just found that ironic with all youre going through, he was reminding the congregation about how He can heal. (physically and spiritually) Im so glad we could help out financially, as I have been feeling so helpless. We have been praying for you and your family-as we have not given up on sweet Kayleigh!

jenn said...

she is a beauty.
she is a precious gift from God himself.
she is an angel.

i pray that you get to take your baby girl home soon.
i can't wait to see pictures/videos of all of you in your home enjoying being a family.

praying in GA.

Mama4Real said...

Oh Jesus please make yourself known through this family. Let your glory be revealed in your plan for their little girl. Bless and protect them Father, comfort and give them peace!!!


My heart continues to ACHE for what you must be going through.

ManyBlessings said...

Praising God for Kayleigh's life. God bless you for the honor that you are showing her as she moves from this temporary life to her eternal life.

dawn

Kristie said...

Count me in to continue to pray for her. Also I see her hair coming in how cute.........

Kaleigh has taught me so much....to be more thankful for the small things and to see life through a child's eyes. I think so many times we loose sight of things, if we would just take the time to look we will see the beauty of things.

We love you Kayleigh~~

Kristie,Tony,Justin, and Rebecca Williams in Alabama~~

Anonymous said...

Life is so precious and your Kayleigh is the perfect example of a precious life. GOD has a plan for her...just as HE has for all children...we will see what HE has in store for your sweet little Kayleigh. Know that she is in my prayers and I am praying for a FULL and COMPLETE recovery!!!

Anonymous said...

Anyone can tell just by looking at Kayleigh that there is something special about her, she is so beautiful, she takes my breath away, she is an angel. I am sure Kayleigh has become everyone's baby, daughter, granddaughter, as she is to my family. God Bless

Anonymous said...

"We will listen to the Lord." When I read that on your post tonight, my heart was at peace. As long as you listen to the Lord and follow what he lays on your hearts, little Kayleigh will be alright and blessed. Kayleigh is a miracle and she is a gift from God. Just as all babies are God's gift.

Prayers that you all can be at home and as one family. To be able to do the things your heart desires will be my prayer.

Ann Stegall
Wake Forest, NC

Lea Ann said...

Thanks for the update...I am a little disheartnd Adam, by reading your post it sounds like you are giving up hope a little on Kayleigh. She is a fighting miracle from God and there ALWAYS lies hope in our Lord. Look at what all Dr.'s said she would never do and she has done it. I understand there is a scientific/reality factor with what the tests are saying...but Kayleigh is special...how do you explain a miracle in scientific terms...you can't.
Matthew 15:28...

On a different note...look into Music Therapy for Kayleigh. I am a grad student in Music Therapy and we are taught alot about how Music Therapy can help people with brain injuries....(and NICU babies as well) and so so much more. If you want more info on it please don't hesitate to ask...or I can help you guys locate a Music Therapist in your area.
lamelita at gmail dot com

You guys are in my thoughts and prayers everyday.

Joanne said...

Thank you for this wonderful update. I give thanks and praise to God that you have been helped financially. I love the pictures of your beautiful little girl, and pray she will be home with you soon.

Holly said...

Such difficult days...prayers are being sent.

Mari said...

kayleigh look so beautiful in these pictures, but then she always looks so beautiful.

praying for all of you and the medical team treating her.

blessings.

wicker0407 said...

Thanks so much for sharing the photos Adam I love to see precious Kayleigh she is beautiful as usual. I think about Kayleigh all the time I pray every day and I still think a miracle is possible. Your daughter has touched my life, really changed my life and I will always be so grateful for that. I have cried so much over all that has happened. I was angry for many days and I still don't understand why, why her but it's all part of God's plan. You and Aimee are wonderful parents and your courage through this time of deep despair is amazing. Continue to lift you up in prayer and never giving up HOPE! God Bless
Summer and Family in California

kadencesmommy68 said...

She is definitely a gorgeous baby!!!! You guys did beautifully on her and we are still praying for a miracle here!!!! We are thinking of you everyday!!!!! God bless!!!!

The Lenz Family

Nelson Family said...

First, I pray for Your family and sweet baby everyday. I love her. I have often praised God for the many wonderful miricles that I have been so blessed to have witnessed and Kayleigh is one of them. I have been following your blog, and recently, with her new found prognosis, keep thinking about a book that I read a long time ago, the book is called; One Tattered Angel: A Touching True Story of the Power of Love, by Blaine Yorganson. It is a very short book, takes just a few hours to read if I remember correctly, But it is about: One Tattered Angel is a remarkable story of the power of love to reach beyond physical limitations. This is a touching, true story about the "angel" Blaine and his wife Kathy adopted in 1988. Born with hydraencephaly — only a brain stem and cerebrospinal fluid — Charity changed the lives of their entire family. Blaine Yorgason describes the immense difficulties and even greater joys of raising Charity along with their six children. In a home filled with love and compassion, Charity outlived her doctors best predictions and progressed beyond belief.
I am sure you do not have tons of time to read, but if you do and can find this book, This couple has amazing insight.
I truely believe that her soul is still with her body, and she hears every word you say to her. She may not be able to show you, but she is still there! I pray for another miricle and that you get "more time" than you would expect with your daughter home.
Many prayers,
Karen
Moscow Idaho
25 week baby Hannah

Bridget said...

Kayleigh is AMAZING! (that song fits her) And her parents are too! Beautiful sweet baby pictures...Our family is Praying!!!!((hugs))from California

Anonymous said...

Kayleigh is in my thoughts and prayers daily. The first thing I do when I get home from school is read your blog. If there is no update, I just look at previous pictures posted and see what a sweet little angel you have. I think about Kayleigh and your family throughout the ENTIRE day. I pray everyhting goes well and you are given the comfort, strength, and guidence you need to get through this and bring your miralce baby home. She has blesses so many lives.

Anonymous said...

OOO MY she is just sooooooooooo BEAUTIFUL!!! We will continue to pray for your beautiful and very special family..lots of kisses and huggs for that adorable baby girl..Thinking of Kayleigh always

Helen and family
Biloela Queensland Australia

Tamara aka Cheapskate Mom said...

It is a relief to know that some of your financial burden has been alleviated so you can focus more on that precious little girl. Just know that we all support each other and it is ok to lean on others for help to stand. Your heart is a beautiful, giving, loving heart and you will one day pay this forward.

I can't help but be so frustrated at what is happening to Kayleigh. She has fought this amazing fight and it seems so abruptly ended and my heart is just breaking. I hope you will look for answers as to why this happened to her. Not now, of course as you need to focus on your love for her and cherish your sweet baby. Eventually though, someone needs to really explain where things went wrong.

I have to hold out hope for a miracle. I pray you get to take Kayleigh home soon. In the meantime I am praying with all my might that somehow God puts His light behind her eyes and gives you more time to treasure your little princess.

*Hugs*

Anonymous said...

Why does Kay's skin look so shiny and stretched on her face? Is that related to the brain injury?

jenny regan said...

Aww, we were looking forward to seeing a grand total. We remember you raising the six thousand from the other raffle thing. and were hoping you had surpassed that total this time! Well hopefully you got enough to help out. Btw, How is your new job going? And, did Kayleigh's social security money ever come through for you?? Blessings to you all.

Tamara aka Cheapskate Mom said...

Also, I wanted you to know that your "One Pound Miracle" video on youtube.com is not working for some reason. I tried to share it on my blog and it won't upload there or on youtube. It is so awe-inspiring to watch what Kayleigh has endured I wanted to share it with other people so they could know her story too. If it is something that can be fixed, please update us.

God Bless,
Tamara

Kristi said...

Praying for Kayleigh to come home with you SOON! Sending thoughts of hope and joy to your family. God bless you!

Mark, Kristi & Luke, LA, CA

Shari said...

You are amazing through all of this and only wanting what the Lord would have for you and His timing to bring little Kayleigh home. She is beautiful! I have tears of rejoicing for you tonight in many ways, but also tears for the heartache you might have to endure. Love to you from Oregon!

Niecey said...

You guys are so strong, your daughter is so beautiful and your story is so inspirational. I am praying for you all. I believe in miracles. I'm also a mother who las lost a child and I know first hand how amazing God is at carrying us through hard times. I believe he will be with you and comfort and strengthen you on this path, where ever it takes you all.

The Carney's said...

What a beautiful baby girl Kayleigh is. She is always on my mind and we will continue to pray for her. I am so happy to hear that you'll be able to take her home, to have her there with you and her siblings, with unconditioal love. Always in our thoughts and prayers!!

Anonymous said...

I struggle to understand why God would do this, but it sounds as though you are finding peace. Kayleigh is beautiful and in my thoughts frequently. Do they know how this happened? Here is a link to a page I found with some promising treatments for this condition.

http://en.wikipedia.org/wiki/Persistent_vegetative_state

I am still hoping for a miracle!
Much love!
Amie

Anonymous said...

Continuing the prayers for Kayleigh and your entire family. You are such people. May God continue to bless you and Kayleigh and may she grow stronger so she can join your family at home. God works miracles and God answers prayers. Keep on praying!

Love and blessings from Wisconsin!

Kelli said...

Bless you, Adam and Aimee. I'm thinking of you and baby Kayleigh every day.

Debbie said...

Adam, thank you sooo much for updating us...She is so gorgious and Kayleigh and you all are in our continuious prayers.

Anonymous said...

Still praying for all of you! Can you tell us after the money is spent or in a trust or something if it covered your debt at least? I pray it will.

Mama.Sienna said...

Kayleigh is very BEAUTIFUL!! God's Angel here on Earth for whatever short time it is. Kayleigh has left her HEARTPRINT here for a LIFETIME!!!

Tears run down my face and my heart aches as if this was my own child. My two precious boys are sleeping peacefully upstairs as I write this.

Extra prayers tonight not only for Kayleigh and her entire family but thanking the Lord for my beautiful blessings and my wonderful husband.

In Gods Graceand love,

Sienna- Bay Area CA

amanda said...

I'm happy that you are going to bring Kayleigh home soon!

She looks much better from her surgery, and with God none of us knows what tomorrow's days may bring, and in the meantime I wlll be praying for you all, and Kayleigh's recovery.

Crysgoss said...

Sweet, sweet angel! Kayleigh has brought me closer to the Lord and is making me a better parent.
I continue to pray for a miracle and peace.
Thank you so much for the updates and pictures!
Praying and loving the Freemans!

Thandi said...

We will not stop praying until Kayleigh herself decides she's tired of this earth.May you be strong and thank you for the udpates.Still confused about what she CAN'T do at the moment. ie. feedings, being able to see etc, but as long as she has breath, I believe she's still alive.God bless and keep you strong.

The Pirsein Family said...

Kayleigh has been blessed to have you and Amiee as parents. She has so much love given to her as she gives so much love to you. She is truely amazing and beautiful in these pictures you posted. She is strong and she is still fighting. She has come farther than anyone has imagined she would. Praying for your family, Kayleigh and a miraculous recovery.

Anonymous said...

I am so glad that we are all able to help out in saome way - whether it be prayers, comments of support or financial - whatever we can do, we do it proudly.

Kayleigh does have the best parents possible!! The two of you are just so amazing. I am so happy that you will be able to bring her home and care for her there. What a blessing that will be. I will pray that she continues to progress to the point where you can take her home. I am also praying for a miracle, too!

Thank you for the wonderful picture updates. May you be at peace and feel our prayers working.

All my love,

Elizabeth

Boston, MA

Kirsten: said...

Kayleigh is adorable! Bless her and your family!

Blake's Momma said...

I haven't followed your blog for very long, but I just had to tell you that I pray for you and your little family.

Every post breaks my heart and your strength in many ways makes me stronger - it is amazing how many people Kayleigh has touched.

While my son has some mild challenges, your words really put things into perspective.

Thank you for sharing your faith and what I am sure will be the hardest days of your life.

Tami S said...

God bless you and your precious little Kayleigh. Even though her life is now different than what you thought it would be, you are giving her strength and peace that can only come from your faith. I will pray hard that you can bring her home soon. She is just beautiful!!

Hope said...

You both have seen Kayleigh fight through more than any parent should. Many, many times! You've done this with incredible grace and faith. You both are amazing, as I know I've told you multiple times. I'm glad you're taking your sweet girl home. I'm also glad you're doing normal nursing. I don't think her brain is done healing and I'm praying for a miracle.

Kayleigh is beautiful.

Mel said...

Prayers from OK as always...
She truly is a beautiful child.

Anonymous said...

God Bless sweet Kayleigh and your amazing family. We have know an a beautiful gift from God that has taught us to love greater and to fight harder. Fight sweet girl.

Jill Elaine said...

I agree with you, Kayleigh is beautiful. A beautiful gift from God. My heart breaks for you, but I know God has a plan. We may never fully understand His plan here but it is bigger than we are. Praise His name. I think the choice you've made for Kayleigh and your family is wonderful and God will bless you all in the coming days. Can't wait to hear that Kayleigh is home.
Prayers and Blessings,
Jill

4 Lettre Words said...

So amazing.

Still praying...
Dina

The Carpenters said...

Bless you, guys. Beautifully said.

Misty Rice said...

She is so beautiful. Just so yummy.

Constantly praying.... I believe in a very BIG GOD.

Michelle M. said...

She IS gorgeous! Praying that you will be able to take your little girl home soon.

Anonymous said...

A Mom holding her sweet beautiful daughter, there is nothing more wonderful. Thank you for sharing such a tender moment.

Wendy

Emmeline said...

I am so happy you now have a plan to look forward to and that your financial stress is lessened. Kayleigh is very lucky to have all of you as family.

Anonymous said...

I pray each and every day for you and your beautiful daughter and your other children. I hope that you are home with her soon. Praying for a mircale. You and your family approach each day with grace and faith on your side and that is evident. May the sun always be on your face and the wind at your back. Hold on to that beautiful baby girl, each life is precious.

We keep praying myself and my three guys.

Praying in Tennessee

Natalie, NJ said...

It is so amazing to see how it seems you are becoming at peace with what has happened and are accepting the "new normal" that God has given to you for Kayleigh. I am still praying for a miracle. The pictures are gorgeous as always. I can't wait for the day you take her home. As far as thanking us for helping you, it is an honor for us to be able to help in any small way that we can. My prayers are constant.

Lisa said...

What a sweet little girl you have there. I have been praying so much since I found your blog. I am so happy that you will be able to take her home with you soon so you all can enjoy being together as a family. She may be looking down on you both, but just think about happy she will be knowing that you brought her home so she could enjoy "her" home, "her" room and the comfort of just having her family around. That in itself shold bring comfort and peace not only to Kayleigh, but also to the two of you. God Bless you for what you are doing for your sweet little girl.

In God's Love,
Lisa (Ohio)

Blessed Mom of 8 said...

Adam and Aimee,

Praise God for your precious miracle baby!

Praise God for all that have come alongside of you to carry this burden!

Praise God for the Rigg family and everyone who has come here to know your needs through them!

Praise God for love - not the worlds love but HIS!

Oh God You alone are worthy of all praise!

I'm so blessed by this post and your faith - to trust in Him no matter what comes your way. I have been posting about change and how often it is feared. Despite the fear you have both laid it down and put your faith in Him!

May God continue to bless you richly for all that you have done in His name for His glory!

Love and blessings,
Jill

Mom2GarretandRyan said...

I'm so sorry. I am just so very sorry.

That poor little girl has been through so much, and you and Aimee. I wish, and pray, just pray for a miracle for her.

Ponce Family said...

She's absolutely beautiful! You all have been in my thoughts constantly this past week. Lots oh hugs and prayers from Lakeland, FL.

mom2LEAA said...

May God continue to bless your family. Thank you for sharing your beautiful daughter with so many. May the days to come bring peace and joy to you.

Cindy,
in Connecticut

Courtney said...

She is such a beautiful girl. I can't even imagine what your family is going through. Kayleigh and the whole family will remain in our thoughts!

Ferrick said...

What a beautiful testament to your love of the Lord. We are only to believe and receive...I stand with you in agreement that Kayleigh has her miracle and the only thing we wait for is the manifestation of God's promise in this world. Blessings, Susie

Becca said...

I hope that Kayleigh's homecoming is sooner rather than later. My heart is breaking for you and your family but I am excited and happy that your baby girl is so close to coming home. Thank you so much for sharing her story with us

Dalila from NJ said...

Kayleigh is BEAUTIFUL... GOD BLESS HER. Thank you for the update. Praying for you all.

((HUGS))

Beth in NC said...

She is beautiful and I'm so glad you guys received a financial blessing.

You are being wise on the PO box! Don't apologize.

God bless and carry you!
Beth

Julie said...

Kayleigh is just beautiful...her pictures get me every time. Praying for all of you...

Toni :O) said...

So wonderful to see your update and photos of that beautiful little Princess. I'm so sorry for what is happening but I'm so thankful all of us that donated and are praying for you is helping you out in some way. Your family is so worth it and I continue to pray that you get to bring that sweet girl home very soon. May God continue to bless you.

Anonymous said...

It seems many have an opinion on whether Kaleigh's spirit is still in her beautiful little body or not, but I think it is cruel (although well-intentioned) to burden the Freemans with those opinions. No one reading the blog can possibly know. That is for the Freemans to determine. Please know that you have my full support and love with whatever you have to do in this most difficult of all possible parenting decisions. I pray that you will feel God's peace confirming your choices at this time.

KAS said...

I second that you please, please, please read the Wikipedia article presented above by "anonymous": http://en.wikipedia.org/wiki/Persistent_vegetative_state

Please consider bringing up some of these options with your doctors. The fact alone that she is opening her eyes shows that a diagnosis of a vegetative state seems likely, and even then, she hasn't been in this state long enough to qualify as a PVS (permanent or persistent). Please consider bringing up these options to your doctors before you leave to see if they have heard of these drugs or if they can recommend therapies. People HAVE recovered from vegetative states, they just sometimes need a bit more medical help to do so. <3

As always your family is in my thoughts and I sincerely hope for the miracle that is still possible.

- Another Kayleigh Anne

The Burgess Family said...

My heart just smiled knowing that you will be indeed taking that little gal home to her family! I think that God answers prayers and He is still answering your prayers with a loving yes with Kayleigh being at a point where she is so close to coming home. Praying for great progress for her so that you can get her home.

Lindsey Barham said...

Freeman's:
Wow, how well put this post was. I am thrilled with the decision you have made to bring her home. May God bless this plan through and through for you both. I know you have mad the right decision for sweet Kayleigh. Whatever the outcome is we know that it will be God seeked in what you decide. Kayleigh is so blessed to have you both as parents. God knew jsut who to give Kayleigh to (You Two)!!! I am so glad the donations are going to help and please reach out to us as you need the help. We are your Christian Family and we all want to help. The pictures are so amazing of Kayleigh and she looks so great. Like I said before she is looking better than ever before so peaceful. Continue to seek the Lord on everything and remember Doc's don't know it all. I am praying all the time and remember we love you guys. I am looking forward to the day Kayleigh goes home.

Heather said...

I pray for you all everyday, my heart is so heavy with grief for you. I can't even imagine the pain you feel but to see your faith endure through it all is truly amazing. You two are wonderful incredible parents and your strength is a testament to all who read about you and your sweet Kayleigh. I am in constant prayer that your sweet Kayleigh will be healed, He does perform miracles and Kayleigh is proof He has no limits to what He can do. Praying that you will be able to take her home to the rest of your family very soon.
Hugs and prayers,
Heather~ On the Homefront

Laurie in Ca. said...

Adam and Aimee,

I want to thank you for allowing us to be a part of helping in this difficult time. Thank you for receiving it in the manor it was given. I am praying constantly that God gently brings you through and will bring you all home together soon. Kayleigh is just beautiful and loved by so many.

"Delight yourself in the Lord; And He will give you the desires of your heart." Psalm 37:4

God bless and keep you and I hope the donations continue pouring in as He lays this on our hearts.

Love and Hugs, Laurie

Debo Hobo said...

What a beautiful blessing. And she has the exact same name as my niece.

God bless all of you :)

April Swarthout said...

what a blessing. I praying that GOD leads the path and I know that you as a family will follow. May GOD be with you.

April

Andrew and Trisha said...

She is so very beautiful! I pray she is able to go home with you soon. My heart swells for your baby girl and for you and your wife. May God shine his grace upon you all.
Trisha

Angela said...

Such a beautiful angelic baby. Dancing with the angels, what could be better.

Praying for peace and comfort for you all.

In God's love,
The Bridges Family

Jennifer Ross said...

Always remember...God is the creator of miracles. Please don't loose hope.

Angela said...

May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.
-Romans 15:13

When we face the inevitable dark days of life, we must choose how we will respond. Will we allow ourselves to sink even more deeply into our own sadness, or will we do the difficult task of pulling ourselves out? We bring light to the dark days of life by turning first to God, and then to trusted family members and friends. Then, we must go to work solving the problems that confront us. When we do, the clouds will eventually part, and the sun will shine once more upon our souls.

Even through the pain & sorrow the presence of God, like a warm, comforting blanket, can shield us and protect us and allow the deep inner joy to surface, even in the most devastating circumstances.

I pray this peace & comfort for you all.

Anonymous said...

Thank you for the updated photos of a living angel here on earth! She is amazing - lovingly made in God's image. God picked 2 wonderful strong parents to share in the life of Kayleigh Anne. I will keep praying for you and your sweet angel. Kayleigh we all love you!

Jenny said...

So happy to hear that she is breathing on her own and can go home! I think your decisions are perfect and know I would do the same thing! I am still praying for the best outcome- can't wait for her to truly experience her family at home. BTW- our donation is on its way- wanted to wait until payday so we could send a little more! May God Bless you all!

jill w said...

praying for your family. i know how it is to have a child at home that the doctors have said there is no brain function. my sister's firstborn was a lively, happy, drooling machine at 5 months old. at the sitters, he choked on his formula and aspirated it. he was lifewatched to a hospital and put on life support.. trach and feeding tubes. the dr. said he had no brain function, and what was showing up was just seizures. my sister and her hubby said we are taking him home. after 103 days in icu, he went home on a vent and a feeding tube. he lived at home with 24 hr nursing for 7 years before the Lord called him home. my sister and hubby cherished every moment they had with cody. he was a true blessing, and he did respond, but the drs said he wouldnt. he cried when mom and dad left the house for date nite. and the wonderful nurses he had loved on him, read books to him, just as you would any child. we loved cody, and i know you will not regret making this choice. God is the One who gave this beautiful child to you, and He is the One who will call her home, in His time ! If you would like to "talk" to my sister, let me know.

with love and prayers..

jill

Anonymous said...

so beautiful...still praying for a miracle....

Bridget said...

Thank you for your update. I'm so glad that you received many gifts from those of us that pray and think of you each day. We've never met, but I feel like your family has made a bigger impact on my life than some of my dearest friends and family. Thank you for that gift. May I just share- - Reading your lastest post w/ the song 'Amazing' playing in the background is just too much. When I got the the beautiful pictures of Aimee holding Kayleigh; and hear the verse; "...you're so amazing.. you came from heaven.." **deep breath** The Freeman family is amazing. My tears won't stop. My heart is so sad that Kayleigh's condition has so changed from just mere weeks ago.
Sending love & prayers from IL-

Anonymous said...

What a beautiful, precious baby girl!

Suzi said...

Beautifully written. You are all in my thoughts and prayers. May God Bless sweet Kayleigh with another miracle. I hope you get to go home soon. Much love!!

Kim M said...

Your post is so full of love and sweetness for your precious little gem. I am continuing to pray for your whole family and that your dream comes true of taking your sweet Kaleigh home to be loved and care for surrounded by her family. It is plain to see why God chose the two of you to be Kayleigh's parents - thank you for sharing your precious little one and her journey here on earth with us.

Jen said...

Continued prayers for all of you....thanks for the beautiful pictures!

April said...

I know I have said it before, but I will say it again...God has chosen you, Adam and Aimee to be the proud parents of Kayleigh because of your strength and undying faith. She has shown us the true works of our Lord and He shines through her beautiful face. Your post was beautifully written, she is looking down on you... and smiling for there is no pain in heaven. She is at the right hand side of our Loving Creator. I keep a photo of Kayleigh in my bible to always remind me of what opened my eyes and turned by head heavenward. As your blog song says... She is so amazing.

Hall Family Highlights said...

Do not ever give up. Ever. Kayleigh is beautiful and I pray for her constantly. Dont ever give up. When my brother was born they told my mom he wouldnt live and if he did he would never walk or talk. He is now 32 and works a job. Yes he is disable but he is alive and that is because of prayers! I know GOD is aware of you and your situation and that because of him you have Kayleigh.

Anonymous said...

Still praying for a miracle!!

Trav's Mommy said...

Not a day goes by that I don't think of sweet, beautiful Kayleigh. I talk to my family, friends and co-workers about her like she is a close friends child. Know that I'm praying for Kayleigh and your entire family to pull through this with a miracle. She is amazing and I have faith that God will continue to bless you with her presence here on earth.
With love and hope,
Ashley

Ellie Grace and Bennett said...

I am not usually the person that leaves comments, but your story has truly touched my heart. Our stories are so very similar...preemie babies, NICU for months, several surgeries, almost home, and then IT happened. Our son suffered an unforeseen tragedy in the NICU at six months old that resulted in a flat reading...he was pronounced brain dead 2 days later. I can honestly say I feel the pain and agony you are feeling right now. I ache for you and your family. You are in my prayers daily.
Blessings.

asplashofsunshine said...

It is obvious that you are at peace with taking her home. What a great decision! YES YES, she is absolutely precious and gorgeous. Keep snapping pictures and even video. Yikes, I think I said that once before. You can never have too many precious moments of your children.

I want to thank YOU for bringing little Kayleigh into my life (in the bloggy world). Her face makes me smile and remember how precious life is. THANK YOU!

Raun and Megan said...

She's absolutely beautiful! I'm still praying for God to work such a miracle on that little girl. However, He has used her life to touch so many people and her story is FAR from over! My cousin was born with so many problems and the Lord allowed us the privelage to be with her for longer than the doctors ever predicted or imagined. Her story has inspired so many people and it is still going. I pray that the same happens for you...that you get to enjoy your little girl for so many years! And I'm so thankful Brent wrote that post because I had no idea. I'm a new reader to your blog and now I know how I can physically help you guys. Thanks, Brent!

Anonymous said...

May the Lord be with you and continue to give you the strength you need. Please know that there are people who don't know you everywhere that are constantly praying, thinking of, and remembering your sweet family. Thank you for allowing us to help you. This is what life is all about!!!! We love you!!!!

Anonymous said...

Can this child be any more BEAUTIFUL?? Seriously.
Rest assured our prayers will be with your family now and forever!
The Fullers in Houston

MJ said...

She is so beautiful ~ I hope you get to take her home and spend some loving time with her. In my mind is just seems so senseless that this happened....in my heart, I know it is God's wishes. I am praying for you all. God Bless You!

Krystal said...

I hurt for you, and I'm praying for you.

Rebekah K said...

I will keep on praying for another miracle. She is so precious, thanks for sharing the recent photos. Kayleigh has touched so many lives, It breaks my heart that any parent has to go through this type of situation. Take care

libby @ ninesandquines said...

Adam, you are very welcome...you and Aimee are so strong that it takes my breath away. So do the pictures of your beautiful, perfect Kayleigh....

Julie said...

Have you been given a time when you will finally be able to bring her home? I am just looking forward to the day where you can sit in your house in silence w/o the buzz of the NICU & just hold your sweet girl. I am saddened that this has happened to her. She should be getting ready to crawl & play with her siblings. I find it so unfair I wish you all the best of luck.

scrappy quilter said...

Continued prayers.

SadMommy3434 said...

I've been trying to keep up with your family's story and it breaks my heart to read your story. Kayleigh is a beautiful little girl and I know that you are feeling God's blessings each day you have her.

I will be thinking about you and Kayleigh. I lost my son, Cylas, in January 2008 and I still struggle from day to day.

Kayleigh you are a gift from God and I know that he will give your parents the strength to make it through this. Know that you loved and thought about often.

gem01 said...

I have to agree with other posters. The song 'Amazing' is just so appropriate when referring to Kayleigh. I have three children of my own who I love with every inch of myself. Kayleigh is also so very special to me and I love to see her at peace. I hope you don't mind that I have her picture as my desktop background on my computer. She is a contant reminder to me that God is with us and to always be positive. Thank you for sharing and give that sweet little girl a hug and kiss from my family in Maryland!

Kristin said...

I can't bring myself to believe that she will never do some of the things listed in that post. I think that is because I don't want to believe that. It makes me sick to see what that beautiful baby girl has gone through and to see you guys struggling in so many ways. By faith and grace may all of your troubles be healed!!! I just can't give up on Kayleigh yet...I don't want to!

jan kessler said...

God is still in the miracle business. I too would like your address. Thank you for sharing Kayleigh with us.

In His Love.

Jan

Heather said...

Praying for your precious baby! She is beautiful and so lucky to have a wonderful family like you!

jan kessler said...

God is still in the Miracle Business. I too would like your address.

In His Love,

Jan

Anonymous said...

God is still in the miracle business. I will keep you in my prayers.

In His Love,

Jan

Stephanie Hoeckel said...

God Bless you and your family, and sweet little Kayleigh. Me and my 1 year old daughter are walking for the march of dimes this sunday and will be wearing our pink Kayleigh bracelets. I will continue to keep her in my prayers!

Tanya said...

You are in our prayers, Kayleigh is an absolute angel, such beauty!

Anonymous said...

Thank you for your update! We are still praying for a miracle for sweet Kayleigh! The faith that you and Aimee have continues to amaze me. I am not sure I could say the same if ever put in such a situation! You are such wonderful parents and your entire family is a great blessing!

Give your little peanut a big hug from me and start telling her more about bacon! : -)

Laurie in SD

Erin said...

I am glad I could help. I am also continuing to pray for Kayliegh and reading has led me to believe it is possible for a recovery. I will pray God will touch her with His healing hands. I think taking her home is wonderful and I know she has a long life to live with her family. I am comforted that we are able to see her grow up through pictures...My prayers continue profusely for your angel, Miss Kayleigh. Give her plenty of xoxo.

Anonymous said...

I will continue to pray for sweet Kayleigh. I would love for you to read the post about the vegetative state and maybe mention it to her doctors. Never give up Hope. I left the hospital with a nicu baby that the doctors said she wouldn't ever be normal due to the way her brain is shaped. Well she has defied all odds and is a happy 8 month old. She is doing everything the doctors said she wouldn't. God bless!!

Anonymous said...

Please understand that brain death and persitatn vegetative state are two very different things.

Michele said...

I've lost three babies to miscarriage, and three to infant death. It's only through God's help that my husband and I have survived. I am praying for you and your beautiful daughter. She is gorgeous and I hope that God's healing hand brings her to you 100%. Miracles DO happen.

Anonymous said...

Kayleigh has an unbelievable aura around her. i see it in every single beautiful picture you take of her! i love her little button nose and her peach fuzz hair. she is simply a miracle and i just love her! praying feverishly that she comes home to your loving home. she has worked and fought so hard! praying for you sweet girl~
~joanna
nov. bbc mama

elteescat said...

Surely, there is at least SOME cortex function or she wouldn't be able to feel you touch her hand and pull away. You also said she heard your voice and seemed to know you. As long as there's at least a LITTLE bit of cerebral cortex function I refuse to believe there's no hope! Her brain could still reroute itself! There's a young man here in Dayton who LITTERALLY had almost the entire right side of his head blown off and I DO mean BLOWN O-F-F with a close-range gunshot and he got up and walked out of the hospital on his own two feet! I saw him on the news and most of the right side of his head was MISSING and he was sitting in a chair smiling! God can STILL work a miracle! As long as there's life there's hope!!!!! I love Kayleigh with all my heart and I REFUSE to stop believing!

Brandon, Andrea and Emma said...

I am so glad you are able to bring Kayleigh home. What a wonderful time that will be. Kayleigh is so precious-she looks so beautiful in those pictures. It is so nice to know that she WILL know when she goes home. She will be smiling so big that day!! God Bless you all!!

Belle's Blog said...

Praying for a miracle for kayleigh! Keeping your family our thoughts and prayers daily.

The Kargs said...

Oh Adam and Aimee, I am first of all so happy to hear that God has been meeting your financial needs through people around the globe!! We of course are in a situation ourselves, but even STILL long to give. And we still pray.

Can you tell us how long Kayleigh can live with her brain like it is? Is it just up to her body and God? Or what kind of decision would you have to make? How would you let her go if it wasn't on her own? There have been many times with Veiyah that they have worried about her brain, and I guess I just wonder what happens when/if it ever became a reality.

Don't worry about my questions tho. Really just read your comments and know how loved you guys are and how much we are praying for you daily, all day long.

Give Kayleigh a kiss for me? She's so beautiful and I know how it is to kiss a baby good-bye. It hurts. But is somehow beautiful at the same time, yes? I saw Jesus take Aderah into His arms. (If you didn't read my blog where I spoke to you guys, ...if you get a chance at one point in your life, read "the shack".

ALL OF OUR LOVE!!!

Ani and Jeremy

Madi, Selah, Veiyah and ^^Aderah Psalm^^

Anonymous said...

What a pretty princess! Look at that blonde fuzz coming in! You must be so proud of your girls.. Aimee and Kayleigh...what beauties!

Jenn said...

She is breath takingly beautiful. thank you so much for sharing her with the world- she as well as you both are an inspriation. Little things we sometimes as parents take for granted are brought about here- such as the sunlight on your child's face- getting to nap with them side by side and listen to them breathing- you take none of that for granted. You are wonderful parents and Kayleigh is a lucky little girl. And no matter what happens- there are those of us who won't forget little Kayleigh. Good luck with the time to come- always in prayers-- jenn.

Tammy N. said...

Thank you so much for sharing your story. I continue to pray for your family.

Just'N Angel said...

Praying and loving all of you. Sweet Kayleigh is so precious.

S said...

Aimee~
My heart is broken. You continue to remain so faithful and strong, as I sit and read about Kayleigh's amazing journey and feel mad and sad and cheated. I know I should follow your lead and feel comfort that God is in control. I'm just having a hard time with it right now. I have been following Kayleigh's journey for so long and felt so hopeful that she would come home to her pink and brown room and live happily ever after. You and your family fill my thoughts and prayers. God bless you and yours and may God continue to hold your hand and your heart. I'm still praying for devine intervention.

Much love~

MyLinda said...

God bless your family. Your post was so beautifully written.

Judi and Elaina said...

Keeping all of you and your sweet angel Kayleigh in my prayers. Your strength and belief in God is so awesome. Hoping to hear that your are bringing sweet Kayleigh home very soon. Hugs!!

Mel said...

those pictures of Kayleigh and Aimee are priceless, what a sweet baby. continuing to pray for you in New Mexico.

wicker0407 said...

Just sending my love and prayers today as Kayleigh is on my mind.
God Bless,

Summer and Family in california

Christy said...

I just found Kayleigh today and I will be praying for her from here on out.

God Bless

Shannon W. said...

Hey guys - I'm so glad Kayleigh still has the goal of going home. It will be wonderful when she does. I just smile at the thought of one of you holding her in HER room while her brother and sister play down the hall. I found an article on what I believe is Kayleigh's condition from my very limited understanding. If you want to take a look here is the link. http://www.neuroskills.com/anoxia.shtml
It's the first medical article I read that talks abt recovery. No matter what happens though we know the Lord is at work always. I pray that you feel His love and presence with you at all times. As always, Kayleigh and her awesome family is in our thoughts and prayers.

Catherine Latchford said...

Kalyeigh is such a precious angel. I hope that she comes hope soon! I know you all will embrace her everyday she is home. Cherish her, treasure each day she spends in the comfort of her own home and bed. I pray that is just the thing she needs. She is such a strong baby and such a beautiful girl. Though it may seem like "she isn't there" in her eyes, She is, she is looking straight into your heart and remembering each moment.
Still praying for you all and your beautifl daughter...

Erica Levin said...

Praying for a miracle for the Freemans. I hope one day soon you will be able to bring your sweet baby home. You deserve a miracle. Thinking of your family all the time!

Erica Levin

Anonymous said...

Dear Freemans:
I have been following your blog and was so saddened to hear of the recent turn of events. You are an amazing loving family who has remained positive in the face of horrible news and for that I truly admire you. I know you love your little girl so much and only want what is best for her, and as a parent myself, fully appreciate the desire to take her home to be with your family. However, when I read you were taking her home with nursing as opposed to palliative care, it gave me pause, having gone through something similar in my own family. I know someone posted of a similar story where the family cared for a child for 7 years before he passed on and they were grateful for that time. Our family story was quite different unfortunately and I'm going to tell you only out of true concern for your wonderful family.

My cousin was born with hydrocephalus (water on the brain) He had brain function -- was not brain dead in any part of his brain -- but was brain damaged. My Aunt & Uncle took some "extraordinary measures" in terms of keeping him alive shortly after birth (vent, feeding tube, operation, etc.) and when he recoverd, chose to take him home from the hospital with those things in place and on 24 hour nursing care. As he grew, it became more and more difficult to care for him, not to mention financially and emotionally draining. The pressures were tremendous and ended up causing them to go through bankruptcy, lose their home and in the end, their marriage couldn't handle the stress and their other children suffered greatly. They eventually could no longer care for him once he became a teenager and he had to be institionalized. He is now 30-something years old and my 70-year Aunt recently said that she regretted her long-ago decision to keep him alive with the vent, etc. and wished they had let him go to heaven so many years ago. They are now worried about what will happen to him when they pass.

I hope you are not offended by this story. I am a Christian and have a deep faith but as you said last week, I think Kayleigh (her soul, what made her unique) is already in Heaven despite the fact that her beautiful little body remains here on earth.

Catherine Latchford & Family said...

Also,
Thank you so much for sharing those beautiful pictures of Kayleigh and her mommy. She honestly looks like she is content and happy to be with her mom. I donated to you all because one you deserve it and two I know that If I were in your shoes I would hope there was someone there to help. No matter what the issue was. I am glad you have family and friends there with you to surround you all and baby Kayleigh.

Leslie Williams and Family said...

I only learned of Kayleigh and your family a few short days ago. The Lord has laid it on my heart to do as much as I can for you and her. In him I will do as he asks and support, pray, donate, etc any way possible.

Everytime I look at my children I see her. I think of her and you all so many times in each and ever day. Take peace in the Lord knowing so many prayers and thoughts and hands are surrounding you and lifting you up.

I think that the decision you have made is a wonderful and selfless choice. I am sure it was the hardest thing any parent could have to do. I look at her pictures and cry though. Not becasuse she looks bad ao anything like that but only knowing the pain se has endured in such a short life so far. As a mother I do not want my children to know these pains and am so blessed to have 4 healthy children.

Lord, I pray for the Freeman family, Lord that you will show them your unchanging Love and bles this family more and more each day. Let your love be seen by them and through them in a way they never thought of Lord. Guide their hands and hearts Lord. Keep them close to you so they feel you and your support and love for them and precious Kayleigh. Kayleigh has a purpose in her life and that very purpose may be to draw together Christians and non-Christians alike just as Brent said that yes non christians still supported her too. How awesome would that be if this little angle lights the path to you Lord and brings even 1 person to know you! And teach them of you, Lord. Little Kayleigh may be the best leader for you Lord, by showing everyone just how good you are. Lord we Praise you and your power in our lives as we know you have full control over this situation and everything. Thank you Jesus, Thank you for loving us so much. Amen.

Wendy said...

she looks precious there in her mother's arms.

Anonymous said...

The Beautiful Kayleigh Anne - NICU Warrior. My family is still praying for yours!

Yolonda
Angel D'Lon Grace's Mommy

Mom of 3 and bride-to-be! said...

Many many many many many kisses to Kaleigh and as always, constant prayers.

My heart aches. I don't want this to end like this. She's a fighter, and I want to believe that she will "snap out of it".

I look into her eyes, and BEG her not to let go....hold on...something will shift...I believe...I have Hope.

My heart is heavy with sadness. I am SO sorry you are going through this.

I hope you feel the warmth of all our love.....

Love, Light, and Prayers...tons and tons of prayers.

Chantal

Tam said...

Can't the cortex of the brain repair itself with its plasticity? I read cases on the internet where the cortex brain cells repair itself in adults, and babies have even better chances of repairing the brain than adults. I think you guys will see Kayleigh's cortex of the brain recovered.

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