Remember our guest blogger, Brent Riggs? The guy who twisted my arm Monday and put up that wonderful post for us? He’s been working on a book on for over four years, an incredible story he told me about when I went to stay for a week at his home. The book is called “Terrorist to Evangelist: The True Story of Kenneth McClinton”. I was talking to him last night and he mentioned it will finally be available today. Here’s what Brent wrote me about the story:
“Ken was a terrorist. He killed people, bombed things and lived a life of violence and hate. In solitary confinement in prison, all alone with an old Bible, God transformed Ken. It is a modern day “Damascus road” conversion that took a man from being a killer to a believer, from violence to love, from terrorism to evangelist. Ken’s life is a fascinating story and it is nothing short of miraculous that he even lived to see that day of conversion.”
Brent has put up a couple of free chapters on his website for people to preview. We really hope you’ll check it out. You’ll love the book, and you’ll be helping us say a great big “THANK YOU” to Brent for what he has done for us over the months. Check it out here at:
http://www.brentriggs.com/kenny_mcclinton_terrorist_to_evangelist.asp
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There was not a whole lot of news today with Kayleigh. We met with the Neurologist and he really didn't have anything to offer that anyone else has talked about. No offense to any neurologist reading this post right now, but I have never seen anyone skate through their answers more than this guy today. There was never a yes and no answer and the guy just seem so nervous to talk to us.
According to Dr. Brain, there is no cure or procedure to help with this issue and our odds are (worse than) next to nothing. Not the cooling pads, hyper-barometric chambers, replacing stem cells, or anything else you can possibly think of for many underlying reasons. Because of Kayleigh's bad health in other, such as lungs and heart, the procedures would only be detrimental to her. As you can see, we have NOT given up hope if you can tell by the never-ending questions or research we have been doing lately. We do not want Kayleigh to go, and if there is a chance, there is a will, but unfortunately, we can't find the way. We will continue to pray that God makes this decision for us.
On a brighter note, Kayleigh had a wonderful day today. As I held her peacefully in my arms, she didn't cry or thrust heavy breathes the whole time we were there. She seemed to be content and just plain comfortable. Ya know, whether or not she can understand something that her brain does or does not tell her, move in a direction that is purposeful, act normal as any other child in this world shall act, she is still by far perfect in God's eyes and ours.
Our goal is to bring her home as quickly as the doctors will allow us. Being that she will continue to have nursing care at home, it may take a couple weeks before she reaches the normal max feeds that it will take to make that glorious journey out of the NICU. We are so thankful for everyone who has been there for us through this trying time and we continue to ask for prayers of strength and of course, another miracle.
God Bless,
202 comments:
1 – 200 of 202 Newer› Newest»My thoughts and prayers are with you and your family. Thank you for sharing your journey with us,
God Bless your family!!!
We are continuously praying for little Kayleigh!
Continuing to pray for another miracle. With God all things are possible.
praying for your sweet little angel.
Ang
sweet baby girl... God with us always and forever.
God bless you for not giving up hope. My husband and I will see if we can find out anything that may help you all. Love you and praying for you.
The McGuire Family
I continue to hold you close in my thoughts...Love from Michigan!
Praying for a miracle and that GOD will shine so brightly you'll never doubt the decisions you have to make for Kayleigh.
Continuing to pray in southeast Georgia...
From a mother who has 3 children with their own disabilities I know what hopital time is like. I spent many many months on end there. I don't know though what to say to help. I wish I did. We were told we'd loose our son to his infection from bowel disease but we were lucky and he's doing great now. Dreams do come true and maybe god will grant you that extra special time you need. I really hope so as you all deserve it. Thinking of you all the way from Australia.
Beautiful Pictures!! Continuing to keep you all in my prayers.
Blessings,
Lisa (Ohio)
praying for your family.
She is absolutely beautiful, those picture brought tears to my eyes seeing her with her daddy. I will continue to pray very hard for a miracle for you sweet baby girl. Miracles do happen and Kayleigh is proof of that. She truely is a miracle from above.
I wish I had some ideas to share as to what roads to look down and research. I'm thinking of you all and praying for that miracle.
Beautiful photos!
Still praying...
We are constantly praying for you guys. Your faith is amazing.
Jenna
Dear Freeman family,
One of my favorite miracles of Jesus was when he healed Jairus' daughter in Luke chapter 8:
8:49 While he yet spake, there cometh one from the ruler of the synagogue's house, saying to him, Thy daughter is dead; trouble not the Master.
8:50 But when Jesus heard it, he answered him, saying, Fear not: believe only, and she shall be made whole.
8:51 And when he came into the house, he suffered no man to go in, save Peter, and James, and John, and the father and the mother of the maiden.
8:52 And all wept, and bewailed her: but he said, Weep not; she is not dead, but sleepeth.
8:53 And they laughed him to scorn, knowing that she was dead.
8:54 And he put them all out, and took her by the hand, and called, saying, Maid, arise.
8:55 And her spirit came again, and she arose straightway
Jesus spoke and her spirit came again - how beautiful is that? He said, Fear not and believe and she will be made whole. Jairus must have had some amazing faith, because his daughter was healed - even when everyone else "laughed him to scorn".
This has many similarities to your situation - I was amazed when I read it again. Keep believing on Him, dear family. Your faith has been a wonderful example to the rest of us, and God may still reward your faith by returning Kayleigh's spirit to her sweet little body. We miss seeing her smile - nothing is impossible with God!
Love,
The Peskirs
She is PERFECT.
And you know what... I swear she looks as though she is trying to smile with a happy face while you kiss her on her nose.
I am angry at the doctors. I know GOD is in control and I talked to Him about this. I told Him that it was better for us to accept if HE chose to take Kayleigh, but its frustrating if it looks like a medical error took her life so soon.
Could this have been prevented if the doctors did their job is what I want to know?
I want to come over there and fight for you guys and Kayleigh and be a HUGE advocate for her. Im just so sad about this.
I can't get enough of her little face. Thanks for continue to post pictures.
God Bless.
Praying for Kayleigh.
Kayleigh you are so so beautiful.
I can't help but to keep singing that song "Amazing" because Kayleigh you are AMAZING.
Still praying for you.
Kristie
It is such a shame that doctors can be like that. You and Aimee are such wonderful advocates for Kayleigh! I will continue praying for a miracle for Kayleigh! I can't wait until you can bring her home. Thank you for sharing such sweet pictures!
She is so precious and of course PERFECCT!!!!
I'm continuing to pray for Kayleigh and your entire family. How are the kids handling all of this..have you told them about the current state of Kayleigh's condition? I pray for peace for all of you and most of all I pray for a miracle for Kayleigh so that we can watch her grow and progress for many years to come.
I hope you can bring her home quickly. God bless!
Melindaa
Kayleigh is indeed perfect. She's beautiful beyond words. My family and I continue to send love and hope and prayers to you and your family. Please give your sweet princess a cuddle from us (Evans family) in Australia xxx
I see you kiss little Kayleigh's nose and think how many times I do that to my little girl every day. It makes me realize in that moment just how precious every day is. I'm sure I'll hug her tighter tonight!
May God continue to hold your hand through this and may peace and comfort find you soon in your home holding Kayleigh tight.
It breaks my heart that there is no immediate answer. You and your family are very strong. When I am having a bad moment or arguing with my 6 year old or husband, I stop and think about what you guys are going through and how important family is. You have helped me remember when times get tough to look to God for answers. I will continue my prayers for Kayleigh that she gets strong soon so you will be able to bring your precious girl home to the room she has never been in. I will continue to pray for your family for strength and peace within. I pray that Kayleigh has another good day.
Adam, SO glad you see you in some pics with her for once. I was just thinking the other day that I rarely see you get in on them...not that I mind seeing Aimee with her beautiful daughter, either! :)
Cuddle that girl for us.
I pray every night. I pray for my family and friends. I pray for myself and others. Other than when my own little girl was very, very sick I have never prayed this hard before.
My heart is breaking for you and your wife. This hits so close to home for me. My Katie had a 50/50 chance of being where Kayleigh is today.
I wish I could do more.
I love the pictures- it's so hard to imagine she's any different now than a few weeks ago- she just looks so wonderful! We are still praying and wearing our bracelets, and my kids love to share her story with others when they ask about the bracelets! Can't wait for her trip home and pictures of her where she's supposed to be!!!
Adam, these pictures of you and Kayleigh are so beautiful. Your entire family are in my prayers and I pray that Kayleigh will come home soon.
So precious...daddy and his daughter...my prayers and heart go out to you all!
She is just so beautiful, i just love seeing her pictures. She brightens my day. I am continuing to pray for you guys, and yes, Kayleigh is by far, absolutely perfect- she is nothing less than God wants to her to be, and that is perfect. She is precious and you guys are amazing. Hang in there- she soon will be home.
Always praying and thinking of you. What a sweet perfect little girl. I feel honored to have read her story and watch her journey. God Bless you all. Stay strong our sweet girl
Praying for you and your family. May God give you the peace that you need to get through this. Kayleigh has been such an inspiration to so many and will continue to inspire others. God bless each of you.
Thanks for the update... I come by here numerous times a day to read updates... see pictures... pray for your little girl... she is a miracle and god will continues to give miracles... she is beautiful... I love all of your pictures... I hope they decided to use one of these cooling pads, hyper-barometric chambers, replacing stem cells, it never hurts to try, it might really make a difference, I cant see it hurting, then again im not to fimilar with the things other than the cooling pads and the Hyper-barometric chamber... god bless your family... I will continue prayer... a miracle will happen...
Sending prayers from Knoxville! I love the pictures!
Still praying for your little girl! She truly is a miracle. I remember reading Aimee's post on babycenter when the dr's said there was no chance. There is always a chance and I hope you are blessed again!
I am sorry Dr. Brain has been elusive. You need doctors who are upfront and honest with you.
Those pictures of you holding her are just precious.
I pray several times a day that God lay down a healing hand on Kayleigh. She has been through so much already that truly, she deserves to live a blessed life. I struggle to understand why this is happening. I never expected to feel the way I do, but Kayleigh has made me feel so deeply. Her triumphs make my heart sing and her pain (and yours)as well as her recent dignosis make my heart break. I appreciate what I have even more now, but I hate that it came at Kayleigh's cost.
God bless you both. I love Kayleigh and will continue to pray.
"Be still, and know that I am God;
I will be exalted among the nations,
I will be exalted in the earth."
Psalms 46:10
You have an absolutely beautiful daughter!! You and your little saint are in our prayers.
~Amy
I have been following Kayleigh's journey for a few months now and this is the first time I am commenting because im sure the following words will help, as it helped me and my family when we were in crisis 2 years ago with my nephew having neuroblastoma cancer at the age of 8 months - he is now cancer FREE!
- Trust in HIS timing
- Rely on HIS promises
- Wait for HIS answers
- Believe in HIS miracles
- Rejoice in HIS goodness
- Relax in HIS presence
Sending prayers and love from South Africa!
God bless
Megan du plessis
keatonjohnduplessis.blogspot.com
Still praying!
This is so heartbreaking to read and I cant imagine what the two of you are going through but when you think about it, we all are here for a short time no matter how healthy we are. The goal in life is to bless others and bring others to Christ and Little Kayleigh has already done so much of this already in 10 months! She is precious. I wiill continue to pray for her.
~Angela
Beautiful pics! Still praying in OH.
I love seeing her eyes! And Adam seeing her look at you and Aimee is a wonderful sight as I am sure youfeel the same way. Many prayers today baby girl!
never give up. She is so precious. Thank you so much for sharing the pics and stories with us. I'm praying every day.
Tammy
My prayers are with Kayleigh and your family at this time. You are absolutely right, Kayleigh is perfect in God's eyes. You are amazing parents. Stay strong in faith!
I hope she can come home soon, to be with her family and be in her own room. If only for a short time. My thoughts and prayers are with you everyday. God Bless you all!!
Continued prayers for Kayleigh and your whole family.
Praying for you, your family and your beautiful little girl.
Thank you so much for the update and pictures. I am prayer for Kayleigh every day. God bless you all
We're praying for you guys and for Kayleigh's miraculous recovery.
She's beautiful!
Buffalo, NY
Ahh, i love the 2nd picture of you guys! Kayleigh is a doll and we are still praying for a miracle.
She most certainly is perfect! I'm continuing to pray for your precious baby girl and the rest of your family. Thank you SO much for sharing your story with the world. Kayleigh has touched my life in a way I can't explain. She makes me strive to be a better mommy to my little boy. I hug him just a little bit tighter now because I'm reminded of just how fragile life is and just how incredibly blessed I am to have him.
God bless you all!
~ Michele
Adam, thank you for letting us all see a glimps into your life and for letting us walk with you all in prayer. Kayleigh and her life have reminded me again how our daughter was and is a miracle. We have 5 children however our last was born at 34 weeks and they didn't know if she would make it. She did and is almost 18 months.
My prayer for you and your family is that everyday with Kayleigh would be a good memory. Also, I am praying that God would prove all the doctor's wrong and heal her brain.
Love,
Cathy in Clarks Summit, PA
What a beautiful little girl. I'm praying hard for another miracle for Kayleigh, and for her to go home SOON!
Praying for your peace, hope and understanding. God can do anything but fail.
Love to you all....
Kayleigh is perfect in our eyes too! We are praying for you guys & sending positive thoughts your way. I have placed your blog button on my blog.
Hugs from FL.
She is absolutely beautiful! And you are right, she is a perfect baby. I am praying every day for Kayleigh but you all have already been so blessed. Your wife carried an angel that has touched so many lives around the world. She is truly a wonderful gift from God!
Thoughts and prayers continue to be sent in your direction for your family!
I pray for you many times throughout my day. I am begging the Lord to perform one more miracle on Kayleigh. Your family has gone through so much, I just want to fix it for you. All I have to offer is my prayers that the Lord will heal your sweet girl and comfort you all during this time. You are such amazing parents and Kayleigh surely is one amazing little girl.
Hugs and prayers,
Heather~ On the Homefront
Continuing to think of Kayleigh each and every day here in Australia. I just adore the "Amazing" song that is playing on your blog right now. Sending you strength. Kylie x
Continuing to think of Kayleigh each and every day here in Australia. I just adore the "Amazing" song that is playing on your blog right now. Sending you strength. Kylie x
Freeman's:
She looks perfect and peaceful and of course just like a princess should look. I am so glad you have chosen to bring her home so many people would have probably just gave up and ended. I admire you both for not giving up and getting her home to have the family all together for as long as you see fit or our gracious Lord does. I have been praying for the Lord to give you strength and guidance and for his will to be done in sweet Kayleigh's life and of course a miracle to happen again. Please take your time on whatever decision you make and never let anyone or anything make you decide right then. Let the Lord lead you in the right way. I sit here with tear filled eyes and I just don't see how you do it (I know it is by the Lord). Please continue to update us even if it is just a pic. Kayleigh baby girl you have made my morning bright by getting to see you. We Love you guys. Hang in there and fight to get home with Mommy and Daddy and Brother and Sister.
Just wanted you to know I will be walking in our local walk for March of Dimes this Sunday and will be walking for you. You are in my prayers. May God bless you and your little girl.
Adam and Aimee, I'm praying for you guys harder than I've ever prayed for anyone. Sweet little Kayleigh is in my mind off and on all day every day. We just love her so much!
You have been met with less than enthusiastic doctors before and God has brought the right people to you regardless of the ignorance of the pessimists. This is the area where I am currently praying the most. I so badly want a new suggestion or possiblity for you all, just a ray of hope.
You guys are doing great! You haven't lost faith or hope. Most people would have never made it this far! God is so glorified by your unfailing faithfulness even in these tragic circumstances.
Love you all so much! Give her a hug and kiss for us from Maryland.
Dose she involuntarily move her eyes? Because in all these pictures in this post she looks like she is looking right at you and staring into space like in the last? I would think that when you put her up to you or on her side her eyes wouldn't move to look your way but it looks like they do in these pictures?
She is so beautiful and I will pray for a miracle!
My little three year old gets so excited when she gets to see any picture of Kaywee. I was reading this post and Jerni Faith said look mommy Kaywee is awake now. She was so excited. I have all the hope that Kaywee will give Jerni Faith many more pictures to excite her. She talks and prays for Kayleigh many times a day. Still Praying,
Nikki Conway And Jerni Faith
I am so happy to hear that you guys are doing research and asking questions! That means you are still doing everything in your powers for your child and not sitting idle as the doctors tell you there is no hope for her. Praise God for parents!!! Praying for you guys as always.
I can see Kayleigh looking RIGHT at you in this picture. She knows her daddy is holding her tight! She is so perfect and amazing. You are truly blessed to have such perfection in your lives. I continue to pray for your sweet girl :)
love from florida,
joanna, trey and reece
Oh, yes...perfect. Absolutely. Perfect. And sooo precious! Praying for all of you!!!
Praying for you all in East Tennessee!
The Glovers
That last photo is just too precious. Still thinking of you all in Phoenix.
She looks like she is enjoying herself cuddled up with dad. I am so glad you have not lost hope. There is still a chance for a miraculous turn around. As I and other bloggers have stated, you can recover from this state and it is higher in children. I will not loose hope or stop praying along with you. I think your Kayleigh is so very special and she has touched my family. May God watch over your angel and place His healing hands on her, and may He watch over you and your family. xoxo to Miss Kayleigh
How I love to see that beautiful face. She just makes me smile everytime I see her. May God continue to bless her and her family.
The world is praying for Kayleigh! I pray that she's able to go home under much better conditions, but it will still be a beautiful day when she gets to see the outside world. Still praying in Camp Lejeune, NC!!
Praying hard in Kansas for sweet beautiful Kayleigh!!
love these pics! praying for a miracle everyday!
Praying and believing for Kayleigh and your family. God bless!
Your sweet Kayleigh is beautiful!!! Oh my goodness she melts my heart. I feel like our Heavenly Father must have a way to allow her to see and hear you. Keep loving her, hugging her, kissing her, she will know it. I pray for an outcome that you will know no matter what she will be Okay, and whole. May God's arms wrap around your family at this very difficult time. You have a beautiful little girl, and she has touched my heart!!!!
Precious, Beautiful Kayleigh, We are all praying for you and your family. We hope that you will soon be able to leave the NICU behind you, and head home to some relaxing at home with your loving family.
Praying from Texas still. Will continue to do so!
I'm so glad that God knows the future and holds us in His mighty hands.
Love the pictures... even if they did make me cry.
She looks so beautiful. Can you answer a question for me? CAN SHE HEAR YOU? Can she hear you tell her you love her? I know she is awake enough to breathe and all, but can she here her mommy and daddy tell her how much they love her?
Please let me know, cuz this is an issue I cannot get past. I want to know that God is letting her here you there for her.
Rachel
lovefor9.blogspot.com
luvfor9@gmail.com
Thank you for the update. Your family is amazing. Praying for a miracle in Portland, Or.
She is a beautiful baby girl and we are all blessed that you continue to share your journey with us. I will keep hoping for a miracle for Kayleigh and your family.
Doctors are wrong sometimes.....that is why they call it "practicing" medicine......don't lose hope!
She is beautiful!!!!!
Nicole in Ontario
Something friends told me when my daughter was in the NICU and I couldn't be there as much as I wanted. When you can't be there to hold her God is holding her. I saw many miracles in our NICU journey and I pray God will bless you with a few more miracles.
What a beautiful princess. It's hard to think we will never see her pretty smile again or her eyes light up. I have fallen in love with this princess, just like you predicted. She has touched my life and taught me a greater appreciation for my children. If teaching people to appreciate their children more was her mission in life, then she has fulfilled it 10 fold. I pray for a miracle, not sure which miracle, I just ask for you to be blessed as God see's fit.
As for neuro...get a second opinion (although for you it sounds as if it may be a first opinion). We have a wonderful neurologist (Dr. Teodori) and neurosurgeon (Dr. Manwaring)here at Phoenix Childrens. Our neurosurgeon does a LOT of research here and is amazing!!!
Praying for a miracle((hugs))from our family to yours
Those pictures are so adorable! She looks so peaceful and cute in her daddy's arms! Kayleigh and your whole family still have prayer warriors behind you. God is good and has crazy awesome powers that can turn ANYTHING around!
Praying for you!!!
-Katie Marlin, MN
I have been fervently praying for healing for Kayleigh, but I wish God could let us all know what form that healing will take. I'm hoping and praying that He decides on that miracle, but until then enjoy holding that precious girl close.
My heart aches with yours over this turn of events for Kayleigh! Praying in Georgia for a miracle for your precious baby!
... PRAYING FOR KAYLEIGH AND YOUR FAMILY AND HOPING FOR THE GREATEST MIRACLE....
Still praying for you. Thank you for sharing the new pics with us. It's great that she is awake and seems comfortable.
God is so good. He is the author and finisher of our faith. He had definately given you great faith.
I feel impressed to leave you a comment although I never have and I've been following your story for so long now..
The pictures you post of Kayleigh are just amazing.. There is still life in her eyes. I still see her in there..
Do not give up hope.....
She'll tell you when she's ready to go.. until then keep fitting..
You know how when you go to funerals you just see an empty shell and its almost comforting to know that the persons soul isnt there anymore.. and that there truly is just a vessel laying in that box????
It's not like that with her..... she is still there...
Keep fighting and we'll keep praying...
So beautful. There is nothing like the love of a father and daughter. We prayed for God's will to be done for Kayleigh in our small group at church last night. Thank you for sharing.
I was brought up in a Christian family, but regrettably, have strayed away from my faith in recent years. Your incredible strength and faith has been an inspiration to me and has reminded me exactly how powerful and magnificent God really is. Since I learned about your family I have come back to God. I have begun to talk to him again, thank him for all the blessings in my life, and more importantly, pray that he watch over your family. Thank you for being an inspiration to another young mother, and for reminding her how important God is in her life. You and your wife set an example for us all. My prayers are with your family. Thank you for your bravery, faith, and for sharing your families story with the world.
I pray everyday that you can get Kayleigh home to see her siblings and her room. She really is as cute as a button and PERFECT in every way!!!
Praying in Seattle
so beautiful!
I agree...get another neurologist. i hate that they sort of dismissed your hope. I think the fact she opens her eyes and has some expression on her face has to mean something. I think HE just needs a little more time to work his miracle. I do not think the world is ready to let Kayleigh leave here. I know you guys aren't. She is so precious! There was another post earlier about a baby that only had a brain stem that is talking and learning to crawl.....I hope you can take her home soon and she can start on a road to recovery.
Hang on sweet baby girl, the world is pulling for you!!!
xxoo,
from Alabama
Praying for your family with a heavy heart. She still looks alert in the pictures. I hope you get to go home soon.
She is so beautiful! She looks like a little doll.
-Patty
fellow preemie mom
Adam & Aimee,
I am so glad to hear that you have not given up hope and just accepted what the doctors have to say. I wish there were a way to get a second opinion. Kayleigh has done so much for me...she has changed my life in numerous ways. I think about how many people are praying for her around the world and wow, that is amazing! I'll bet there have never been this many prayers coming in for one little person before...she is truly AMAZING!!! If we all continue to hope and pray for a miracle, maybe, just maybe, He will see it through! Love & prayers always!
Kayleigh is just beautiful! I love how she looks in your first post...so adorable! She does look comfy in her daddy's arms. Bless you all and keep fighting for your baby!
Still praying in SC...
I believe where there is life, there is hope! Don't give up on your little girl... and remember no matter what... she will not leave this world until God says it is time. Her life is in God's hands just as all of ours are.
These pictures of Kayliegh are precious and absolutely beautiful. You and your wife are amazing people and I tear up at the thought of anybody having to go through something like this. However, you have got to spend 10 months with an amazing little princess. Continuing to pray and God bless.
My heart and prayers go out to your family. I wish you strength in making the tough decisions that you have to make regarding your precious little girls' care. As a parent, I make tough decisions all the time and they don't compare to the ones you have been dealing with since Kayleigh was born. You have such strength and a beautiful family. You will find answers and it only takes one doctors infinite wisdom to work! God does grant miracles and we will continue to pray for all of you.
What a beautiful precious child. The pictures are great. I will continue to pray for God's miracle and for you to bring her home soon. I'm sure your other children can't wait to see her also.
Praying for God's hope, comfort, and guidance for all of you, as well as abundant blessings.
I have been praying for your baby for awhile now and I'm so sorry to hear of the latest news. I hope my question doesn't come out sounding bad, because that's not my intention...
If doctors are giving her no real hope at a life, then why does she need to be up on her feeds to go home? I mean can't she continue her feeds and increasing them at home with you and her nursing care?
Again, I'm not trying to sound like her feeding doesn't matter. I just hope you can get her home sooner rather than later.
Hugs to your family!
Thinking and praying happy home thoughts for Kayleigh!
Our thought and prayers are with your family. We are praying for that miracle again. God Bless! *HUGS*
The pictures are so precious.
I am thankful that you are finding ways to continue to enjoy this sweet time with your precious girl!
I'm continuing to pray that God will bestow you with another great and wondrous miracle for Kayleigh. May he lead you, as well as the doctors, to "find a way." I also pray for the day you will be able to take her home and enjoy her outside of that hospital room without ANY distractions.
I'm glad you have blessed your readers by sharing the journey you are taking with your blessing from God. Thank you!
In God's love. Sending many, many prayers your way from SC.
You both are incredibly strong. Adam, she will forever be your little girl. If you haven't already please read I LOVE YOU FOREVER to her. She may not make movement with purpose but I did read that she can feel pain...so that means she can also feel your love. Peace to you Freemans.
SO BEAUTIFUL
Don't forget what my professor said. Start moving Kayleigh's arms and legs, open and close her hands, touch/tap/tickle her all over, talk to her, expose her to numerous different kinds of sounds/tastes/textures, expose her eyes to pictures/colors/designs/flashing lights in various patterns and rhythms, etc. etc. etc. My professor said that the program they have in Japan works aggressively with the children by trying to get them to sit up and crawl and everything. Keep trying! If there are any neurons alive in Kayleigh's brain they can network and form paths around the damage. (I hope you got my e-mail about it the other day. The advice comes from Professor James Sossebee of Sinclair Community College. I also spoke to another of my professors, Professor Keyes and he said GET A SECOND OPINION and see neurospecialists.)
Our God is a God of miracles. Sometimes I go back on your site to see the photos of just how tiny she was and it is so amazing. Then I marvel at the amount of comments on the site seeing just how many people she has on their knees. She is the most lovely baby! I look forward to the photos you will post of her in her own sweet crib. Stay steadfast in His grip! We are all praying for you and Kayleigh
I am praying for that miracle! The pictures are adorable!
Her eyes in the first picture are lifted up not sagging down. That says to me that she has motor control which means she has neurons and a chance. Do her pupils still react to light?
i am praying constantly for a miracle and you are always in my thoughts. constantly lifting kayleigh up ~hugs~
Hi I am praying for you all. If you have time check out prayforsantana.org, they are awesome believers who have travelled this same path and have had success where there was no hope.
We are Praying for a "Miracle" for Little Kayleigh. We Love you guys and are Still Praying in South Mississippi.
Kayleigh is absolutely beautiful. Miracles do happen and that is what I will continue to pray for. Thank you for letting us all in to your lives and thank you for aloowing this precious sweetheart to touch so many lives!
I've been reading up on Kayleigh for a while now...but just didn't have words. So I've been praying. Please know that the Great Physician is holding her... and surrounding you guys in peace, love & most especially, prayer!
Much love & MANY prayers,
from a stranger in sunny seattle,
Krista Lynn
What precious pictures! We are praying that you are able to go home with her soon. We believe God still does miracles and we are praying for one for Kayleigh.
Love,
Pastor Steve & Carla in Maryland
You are right...she is perfect! I'm praying every day for her!
Kayleigh is absolutely beautiful. She is proof that miracles do happen, and that is what I will continue to pray for.......another miracle for this precious angel. Thank you for sharing your story and for allowing your sweet baby girl to touch the lives of so many people. She truely is amazing!
Our thoughts and prayers continue to be with little Kayleigh and your family. She looks beautiful and I know continues to be a blessing to you. We're praying for a miracle for that sweet little girl! All things are possible.
I was brought to your blog through MckMama and Stellan. I'm sooo thankful for this and for the last week I have gotten to know your sweet baby girl. She's beautiful and you are truely blessed to have this time with her. Your family is in my prayers my God continue to bless you in the next few weeks, months, or years that you may have with Kayleigh.
On my mind always as usual I continue to pray for a miracle the latest photos are so beautiful!
Summer and Family in California
Do not ever let the Drs tell you no, they wont try something. Lowering the body tempature can take pressure off of the brain (which can cause a flat line) and can cause the brain to heal. Also, if he dr isn't meeting your expectations with your answers, continually ask them until you get the answer that you want!
I pray that they are wrong and reading the story from another reader about her foster son was amazing and I pray that God touches Kayleigh one more time to heal her. I know that we as readers have asked so much of Him, but she is one of His most precious creations that He has kept here on this earth for so ong already!
Continuing to pray for healing, miracles, peace, comfort.
Beth
Still praying for a Miracle...GOD be with your precious baby girl, Kayleigh Anne. She is sooo beautiful...sooo happy you and Amiee got to hold her and that she was comfortable while doing so. What a glorious day it will be when Kayleigh Anne is home with her family. GOD is waiting for just the right moment to work HIS Miracle...for Kayleigh Anne's litte body...Love to your family.
Patricia & Wes
Not a day has gone by since Aimee's inital post on BBC that I haven't prayed for your beautiful Kayleigh. Thank you for sharing her with all of us. I fully believe that with Kayleigh, I have been witness to a miracle. She is amazing.
Blessings,
Kristin
She's adorable. Miracles can happen. You will all be in my thoughts and prayers.
Such a beautiful baby! I am so sorry that you have to walk this agonizing path. I'm sure you've seen this before but this morning as I read your words about praying that God would take this decision out of your hands, I was reminded of this passage...
Psalm 139:13-16
13 For you created my inmost being;you knit me together in my mother's womb.
14 I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.
15 My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth,
16 your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be.
I would encourage you, in the midst of all that you're dealing with, to rest in the knowledge that God loves little Kayleigh infinitely and perfectly, and he will call her home on the exact day that He has ordained for her....whenever that might be.
God Bless you Freeman family. You are in my prayers.
Keep praying...miracles do happen..God works in mysterious ways....
I LOVE the picture of Kayleigh and Adam! I swear, she is STARING up at her Daddy!
I don't believe she is 'unaware' of what is going on around her...I think she knows..she knows her Mommy and her Daddy...she knows what love feels like....babies are much smarter than we think!
Praying for you in Carol Stream, Illinois!
Sarah
Even though she may not 'understand' things, I bet she can feel your love for her.
My prayers are with you.
Suzanne
She is just so precious!! I pray everyday and will continue to!! She is a doll!!!
God Bless!
Mandy...Ontario,Canada
Praying for your sweet and precious little girl.........coming over from Samuel Knights blog.
I believe, I have hope, I have faith, and I trust in Kayleigh. She has come so far...... I can only imagine what she has in store for us next. Thanks for sharing your story and allowing us to see miracles. God Bless!
We have donated in honor of Kayleigh from the Spivey family in Lexington, South Carolina. We pray for Kayleigh and your family everyday. She is strong little girl with such a wonderful story. Thank you for sharing it with us everyday.
Praying for all of you. Your family is amazing and truly an inspiration in love, hope and faith. Thank you for sharing your story with the world and inviting us along on your difficult journey. May you find peace within your hearts and know that Kayleigh is truly an angel of God.
I don't know if you read comments, but I wanted to post this link. Please forgive the term "vegetative state". I hesitated to post this b/c of that, but this was such good information....
http://www.scholarpedia.org/article/Vegetative_state
Nothing is worse. Even death is better, to be with God. But to see something happen to a beautiful little baby girl for no answer as to why, it's horrible. I admire your strength in God in such a moment and don't think I could do the same. I would question Him. Kayleigh doesn't deserve this; no baby does. No one did this to her, it just happened. Why did He let it happen?
How is your faith so strong?
Seeing the Daddy and Daughter picture makes me think of my husband and daughter and it absolutely kills me. You should be bouncing her on your knee like my husband is doing.
I do not understand God's ways at times, but I do know that He has a plan for us all, so I pray for that. I pray that His will for Kayleigh be done so there is no more suffering. I pray He performs a miracle as we know He can. "God, you performed a miracle with my baby girl the day she was born. I know you, Lord, you can save this baby too. Please, let your will be done."
I also pray for your family's continued strength and faith as you walk down this unknown path. That He may soon give you answers.
Love and prayer,
Melanie
What beautiful pictures! Not a single day goes by that I do not pray for Kayleigh and the rest of the family. I cannot thank you enough for letting us into your lives because by doing this, I have come to love Kayleigh and love really is the greatest gift of all (even if you have never met).
With God all things are possible- there is so much that is unknown about how the brain works, who knows what she can actually feel? I bet she can feel you guys and your love for her and is comforted by your presence. We'll keep praying for a miracle.
I believe that as much as science and medicine knows, there is much more it does not know. Our Creator, God, is so magnificient, beyond comprehension. I would not take all the things the Dr.'s say to heart. I, too believe she can feel your love, how do we know, for sure, that she is unaware? Maybe we can see she is unable to respond, or lines may not show up on a screen, but God has made our body and soul, and it is something man will never fully understand. I think God would not leave breath in her if there were not more to her sweet life. Parent's are a very important role in the life of a child, and no one can show earthly love like mom and dad, and since Kayleigh remain's on earth, I believe she can "feel" this, deep in her soul. I love you all and never cease praying for sweet Kayleigh. I still pray for an earthly miracle. May God bless you and your family.
Love
The McGuire Family
L
When I first found out about her current condition all I could do is cry and wish there was something I could do to help.
Now, I am not as sad anymore. You see, in these pictures you have posted, she doesn't look sad, or hurt. She looks content, even happy. I feel like she is so blessed to have a family like she does. This may not be the life that anyone wants, but you have embraced it and made the absolute best of it and continue to show her that unconditionally!
Adam, I swear in the last photo, she looks like she's looking right at you. Have hope. Have faith. I think about Kayleigh every day and I hope she can hear everyone who's thinking of her and praying.
She is absolutely gorgeous! I am praying for your family.
Just wanted to tell you are an inspiring family, I am so happy you will not give up hope on your daughter. I have a child with a brain injury and she is the light of our lives. I know of families who were told their child would be deaf,blind, and in a vegetative state. Now at 4 years old yes, has CP but is nothing like was described. Let Kayleigh write her own story, she is a precious child.
Kayleigh sounds like she had an anoxic brain injury during the prodedure. Is the neurologist nervous perhaps because he's trying to cover for someone? Did her trach come undone or get kinked? If she went without oxygen, her pulse oximeter should have alarmed and they should have responded immediately. That they didn't tell you anything about it, and that she never woke up after the procedure poses the question to me as a nurse. Just think about it......
I did not mean to sound judgemental or heartless. I love Baby Kayleigh at this point as if she were my own. I just want to be sure you guys are taken care of.
God Bless you in his infinite wisdom.
She is just absolutely beautiful and I can't wait until the day comes that you can bring her home. Your family is in my thoughts and prayers.
She's just so precious!
Continuing to pray for you all!!
Kayleigh has light in her eyes & that shows me that God is on her side! I want you to know I pray for her daily and wish you all the comfort one could have during this trying time. walking with you and wishing I could take her pain.. on my mind in Texas.
She looks more aware in these pictures then the last ones her eyes are not the same they don't have they empty stare into space look they had in the post before this one.
I read that it can take up to a month of cases like hers to show signs of healing.
I would get her looked at a second time.
She just looks like she is looking right at you not throe you.
I pray for her alot.
Praying for Kayleigh and your family, hoping for miracles to happen...you know it's possible that Kayleigh might be able to hear you; please continue to talk and sing to her. I am discouraged with the doctors, did they ever tell you what exactly happened to cause Kayleigh's situation and why they chose to do three surgical procedures all at once on a fragile baby? I know there are probably a lot of "what ifs", but you guys are amazing parents; keep on reaching out for answers, get other doctors opinions for Kayleigh's future and continue to hold onto that precious daughter.
Continuing to pray.
I pray that God's Anointing fall fresh on you, Adam and Aimee and your children right now and that HIS Love envelopes all of you and that all of you will feel HIS presence so strong at this very moment. Kayleigh is so precious and Adam you and Aimee are so special along with your children. The Joy of The Lord is your strength. Be Encouraged and know all of you are in my prayers. Thank you for sharing Kayleigh with us. Please email me your P.O. Box. janice.kessler@att.net
Love in Jesus,
Jan
Dear Freeman family,
I keep trying to comment early, when the you may actually get to read it, but have failed again...your followers are WAY ahead of me...but I will try anyway. I am a friend of the Deans' in Michigan and one of the committee members of the Lindsay Dean Heart Fund. If you are interested, I would be happy to talk to one of you about our successful fundraisers...but I don't want to do it in the public eye. You may have already done what we are doing....I know there are lots of activities on your blog. But when I read of all you are going through, I just wish I could help more, besides the praying I am doing constantly for you and Kayleigh. Brent's post REALLY got to me! So if you, or a relative, would like to contact me, my email is: elaineburdick@hotmail.com Please feel free to email me if you wish.
In the meantime...praying always,
Elaine
What a beautiful family you are, such a huge inspiration and example to all of our. She is so beautiful, we will continue to pray for all of you.
What a beautiful baby, I pray for the Lord to reach out his arms to Kayleigh and comfort her in her hour of need and send his angles to be around her bed to keep watch.I hope she gets well enough for you to take her home.
Adam and Aimee, my heart breaks everytime when I see the pictures, just dont give up hope, I see that there is LIFE IN KAYLEIGH'S EYES......... GOD IS GREAT............ AND HE IS WITH ALL OF YOU....Glad to see "Daddy and his Princess" she looks good...Please know that we are sending LOVE and PRAYERS FROM
PAEONIAN SPRINGS,VA
We are definitely praying for a miracle here in Utah. We pray for all of you by name. Lord, hear our prayers.
SHE IS SO PRETTY,BUT I SEE LIVE IN HER EYES,DONT GIVE UP , WE ARE STILL PRYING HARD HERE FOR HER TO RECOVER SOON HOPE THE MONEY HELPED YOU ALL OUT SOME,WISHED I COULD DO MORE FOR ALL OF YOU, WE LOVE TO GIVE YOU A BIG HUG AND TELL YOU IT WILL BE OK, AND IT WILL GOD KNOWS WHAT HES DOING HE WILL SHOW YOU THE RIGHT THING TO DO
You must be SO PROUD of Kayleigh! I know that I would be. What a beautiful sweet angel baby she is! The strength, courage and sweetness that she has shown in her life just stops me in my tracks. I DO believe I still see those things in her expression today. She exudes them! You guys are so very blessed to have that daughter of yours! Kayleigh still has much to share with you, her family ... and with us all. Enjoy every single second with her. She is a blessing beyond words ... and PERFECTLY amazing. I just love that little girl!
Hugs,
~Patty
God bless you both for not giving up hope amidst what all the Drs are saying...such a tough situation to be in. What a beautiful baby girl you have though and thank you for sharing your pics of her. Still praying for a miracle here for you guys!
Believing for this MIRACLE!
Bless you all and May God cover you with LOVE and MERCY!
Praying for nothing less than a miracle for your sweet, sweet baby girl.
She is perfect. I am praying :)
Praying for you and your family. Sweet Kayleigh you have come so far and fought such a brave fight. I wish there was something I could say or do to make this all a bad dream. Kayleigh you are indeed a beautiful little angel and may God hold you close in your final journey. I am not giving up hope as there is always a chance of a miracle only God knows when it is time. God bless you all!
WOW you guys! She is just beautiful. I continue to pray and think of your baby girl often. I just not sure there is a path out there quite as hard as the one you guys are on. To have to make these tough decisions about your daughter just breaks my heart. I just THANK GOD you believe in Him. That He is able to hold onto your family and you continue to fight for her and have faith His will be done.
Enjoy that sweet girlie!!
I am praying for your precious family. I am praying God gives the doctors and nurses abundant wisdom. Thanks for sharing such sweet pictures of daughter and daddy time.
Pray in Texas!!
Beautiful, beautiful Kayleigh...I continue to pray for you!! Thank you for once again posting such wonderful pictures of her and for updating.
God bless you and your family.
with prayers,
Lisa (MD)
I sit here and look at your pictures and think...she is here...she has her eyes open...she "looks" healthy...yet she isnt.?. There would be no way that I (as a parent) could ever make a decision to "pull the plug" so to speak, on her. I am praying for your family and for Kayleigh. You know, I really would love to help, financially, but we are having a very tough time with everything with Kenny and his health and needs. Not to mention, 6 other kids. My prayers and thoughts are with you all. This must be very stressful and painful for you both to see your daughter...who was doing great...and is now...well...not doing good at all. I have faith in God that something great will happen for her and for you all. You have so many people helping you all out...Kudos to everyone! There is goodness in this world (send some my way, would ya?! LOL!)
Love ya guys and just have faith, were all praying for you.
The power of the human touch can do amazing things. Forget what the doctors say, you just keep loving that little girl, I know she can see and hear you. Maybe she can't show it but she knows. You are all in my prayers!!!
Freemans:
Kayleigh's life is such a blessing to all of us! What an amazing witness you have given all of us by letting us follow the journey you all are on right now. May God's will be done and Peace be abundant.
Sending you much love in Christ and continuing to PRAY!!!!
I have never commented on your blog, but have been reading it for months now. I just wanted to let you know that my heart breaks for you, but I am praying for a miracle. Kayleigh is a sweet angel from above. I pray that she gets to go home soon to be with her family.
I agree with others responses, please please get some answers, concrete answers as to what went wrong. With the Neuro. acting nervous, it raises a red flag to me. They owe this to Kaleigh, she has fought for 10 long months to survive. I know this is horrible for you and your family, and maybe it cannot be changed now(only by God) but if something was done, mistakes were made, they need to step up to the plate and let you know. They are giving up to soon.Praying for Kayleigh and her family always. Trusting in God to give this sweet little angel a miracle.
Don't give up! Neurologists told us our daughter's brain MRI was worse (when she was a baby--& it still is)than Terri Schiavo's was. But she is in high school---honor student, on drama team, dance, etc. Never say she will never be able to do anything. Our daughter is missing 3/4 of her brain & it rewired in the 1/4 left.
Praying for you.
Prayers and hugs. She is so precious.
continuing to keep kayleigh and family in our prayers. blessings,
After reading some of these posts, and some that have had similar situations, I believe that anything is possible. You and Amiee and strong faith in our Lord and that goes a long way. Keep fighting hard for Kayleigh, believing & praying which I know you & Amiee will. Fight hard baby Kayleigh.
Many, many hugs to you
We are just in awe of you all. We are so happy that you are taking Kayleigh home and will be caring for her just like you always planned. My husband and I have talked about you and Kayleigh (and have been praying for so very long) and we would absolutely make the same decisions a thousand times over. Kayleigh is your daughter and all you can ever do is care for her and love her-even if she hadn't had this set back.
We are just so proud of you guys and are honored that you are sharing a part of your journey with us.
God is so god. Kayleigh is so loved. There are miracles every day.
Love,
The Smiths (in TN)
She is gorgeous! God bless you all.
Our prayers continue for Kayleigh, she is so precious. God Bless, Sherri
I can't get over how beautiful she is. As always you are all in my prayers.
She is more precious than words can express! I am keeping you in my prayers and I have nominated you for the Attitude of Graditude Award - please visit my blog at http://sewnso.blogspot.com
Kayleigh's Family-wow, i have only been able to read about your story in the last few days, and my heart breaks for you guys, and I pray God wraps His hands around you constantly. I have no idea what you are completely going through, but my husband and I were expecting sextuplets, and I delivered them preterm at 21 weeks about six weeks ago, and we lost all of them. God continues to give us strength! If you guys need anyone to listen or to talk to we would love to. My email is courtneycamille@gmail.com, and our blog is www.thetippingfamily.com, I am praying for you guys.
Love Courtney
Awwweee, Sweet Kayleigh! I am breathing lighter today. Not to make this about me, but I've been so tense and stressed over here. Im making sure I pray all day; afraid to stop.
The pics the last couple of days are absolutely wonderful. I am sooooo happy to hear you have not taken no for an answer and I hope you read the couple of success stories above. My Aunt had a stroke and was told she would not walk talk or comprehend a thing or recognize her own husband, children or family. She had to start all over as if she was 3yrs old and is now bowling, golfing and talking and knows who her family is and remembers her past. Anything is possible! Nothing is set in stone.
Definitely keep singing (great stimulation!), talking, playing, hugging and kissing (like you wouldn't, ha). She IS there. I think she just wants to go home and this is the only way the doctors would listen to her :) She will thrive at home where there is no stress and only 24hr love. From your blogs she has already made some good progress...maybe not exactly the big miracle...YET...but baby steps are in order and we have to be sooooo incredibly grateful for those too!
I am so grateful for your entire family for changing my perspective of my life and everything around me! I know I've thanked you before but I could never repay you all. The least I could do is go crazy praying my heart out!
Kayleigh - I hope you had another wonderful day and make sure you keep up you feeds so you can go home and continue to amaze us all!
I'll be working on that bedtime story for you this weekend!
Love you guys!
Susan Elkins (CA)
Wow, I have to say that I have been quite uplifted by what others are saying about the miracles that have happened in the past with these other brain injuries and the personal stories. Kayleigh is still the most precious little miracle for your family and I believe this must be God's way of keeping you close. Never give up on her as she is the glue that bonds you and your entire family. She looks so alert and awake and happy and content. Get second opinions and take her home and spend all the time you can with her and you just never know what might happen. She has proved many doctors wrong in the past and I think she can do it again!! Lots of prayers, kisses, and hugs...
Kelly (Wisconsin)
My prayers are still with you guys. Continue doing what you are doing...Kayleigh feels every ounce of your love.
Praying she can come home soon. Thank you so much for sharing her story on my website (preemie-mom.com). She is a blessing to so many.
Nothing like a daddy and his daughter. Of course the pictures of you holding her made me cry. My heart aches for your family.
God bless you all.
Beth
This is my first time reading, I would like to say that she is absolutely beautiful and your family will be in my prayers.
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