12/18/08 - 10:53am - A Glimmer of Hope!!!

PRAY!!! Get on your knees and pray right now!!!

Our doctor came to us not too long ago after having a group meeting about Kayleigh and told us that they have some small glimmer of hope. Now I said I would not go in to detail of Kayleigh's prognosis, but I want you to get the full understanding of what we are going through right now and what you all need to pray for.

Right now, Kayleigh is currently on the max setting of every machine and medication there is to keep her alive. She is on the vent, 100% oxygen, 20ppm NO2, Viagra, Prosticyclin, and still her oxygen saturation is at 80-85. She is also on 3 different pain/sedation medications and a constant drip of a paralytic. The paralytic is helping right now, but she is quickly getting to the max dose on that. The slightest touch sends her sats dropping and spiraling out of control in to a hypertensive episode. She has earmuffs to block out the sound as every bit of noise will also cause her to spiral out of control.

Kayleigh's x-ray came back yesterday showing some haziness around her lungs and the x-ray that was taken early this morning proved that haziness to be pneumonia and it is getting worse, quickly. They have ordered an ultrasound to see if the fluid showing up on the x-ray is inside or outside of the lungs. The good thing is, it is treatable by antibiotics and extracting the fluid. One follower mentioned Decadron, which is a steroid that helps with inflammation. They have a steroid similar to that which will do the same exact thing, but minus the negative side effects. So thank you for mentioning/screaming it to us. We heard you ;)

So, this pneumonia could be making her lungs cause problems with the pulmonary hypertension as did the urinary tract infection the other week. If we can clear up the pneumonia and the excess fluid, we may be able to get Kayleigh back to a state of stability. The only issue comes back to the pulmonary pressures and whether or not they have increased a lot due to the pneumonia and if they will be "fixed" at that level. It is like a zip tie. When something causes Kayleigh's pressures to rise/tighten, nothing will drop/loosen it up again. With Kayleigh's lungs looking the way they do right now, the doctors and nurses are shocked that Kayleigh is currently satting in the mid 80's.

All I have to say is that Kayleigh is fighting hard and God is listening to our prayers. Please keep praying that the pneumonia will clear up fast, her fluids will be released from her body and her pressures will return to a better level. Since the doctors have more answers, they are finding little hope in moving to a better prognosis. But, little hope from the doctors is A LOT better than no hope from them at all. Aimee whispered to Kayleigh this morning if she got better, she would give her some bacon. I think Kayleigh heard her, HA :)

We are beyond floored right now and we are honestly taken back as we truly feel that God is listening to all of our prayers right this minute. So please keep praying as hard as possible and hope that there is some way a miracle can take place and Kayleigh can make it through this. God is showing His signs of HIM being the one to decide what happens with Kayleigh, but it is evident that He is listening to our prayers. God is by far the one in control, so let's speak loud enough so He can hear every word we pray.

I will update you all as soon as I hear something.

GOD BLESS,

The Freemans :)